05/03/2012 Inside Out Yorkshire and Lincolnshire


05/03/2012

Exploring plans to reduce the number of children's heart units in hospitals across the region, and examining claims that some patients hve been totally overlooked in the process.


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Welcome to Inside Out from Leeds. This week, as many businesses

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struggle to pay their bills, we find out the length so a royal

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landlord was prepared to go to avoid paying -- paying tax. And

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what do these strange art works have to do with saving a mint for

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the Duchy of Lancaster? Also tonight, the forgotten heart

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patients. Why some say the controversial review of children's

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heart services has ignored one group of patients. We have the same

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surgeons, the same team, we should have the same review with the

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children. And defying the odds. The younger boy who has amazed doctors

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For many businesses, times are tough and they are looking at ways

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to reduce their tax bill. But we discovered that the Duchy of

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Lancaster, which holds the Queen's property portfolio, has been going

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to unusual lengths to avoid paying tax on one of its properties in

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Harrogate. This is 11 Ripon Road, near the centre of Harrogate. It's

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an office building that is on the market for around �1 million. But

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it's been empty for nearly three years and that could be costing the

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owner around �16,000 a year in business rates. He owns the

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property? This is a clue. -- who owns it? His it is owned by the

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Duchy of Lancaster. The Duchy of -- the Duke of Lancaster is of course

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the Queen. The Duchy dates back to the 13th century and holds land and

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property on behalf of the sovereign. Last year, it made a surplus of �13

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million. Since 2008, landlords have to pay business rates on properties

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after they had been empty for three months. It seems the Duchy of

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Lancaster has tried to find ways around pain. What is this?

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Apparently, if you have a charity in, you get three months rate free.

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We have been told in order to avoid business rates, 11 Ripon Road has

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been filled with art. Could the Duchy be trying to avoid tax by

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placing art in its property? We decided to find out. Posing as a

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business man, Inside Out journalist Richard made an appointment to view

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the property. It was arranged for 9am.

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It is a few minutes to 9am and the property is just up the road. We

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have a Jaguar, so we look businesslike. We will see how we

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get on. Richard is met by an estate agent he selling the property on

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behalf of the Duchy. He walked into the first room and is struck by

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what is in there. What is this? Apparently, if you have a charity

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in, you get three months rate free. Is there a sort of art group in as

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tenants? A victory do their Artin here. In is it OK to take two or

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three pictures -- they do their art in here. He has finished the

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meeting and we will see what has happened.

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Hello, Richard. How did that day? The what you have in there is a

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deserted office block. The only thing in there is a rather bizarre

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modern art work. One did it look like? If you look at the camera,

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that almost looks like draped toilet rolls. Actually, it is

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dustbin liners. They have been festooned across a room. A are they

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all like this? The have different types of art work. There are

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balloons, often for oil. There is very as types of plastic bags. The

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estate agent was open. This is a tax dodge. She said the art work is

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there to reduce the outgoings of the people who own the building,

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the Duchy of Lancaster. There are little cards. I picked up the one

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of the person who has done the art work, he is called Josh Artus. Is

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that Josh Artus? Josh explains the service he offers. In case you are

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wondering, it is not a charity. have my own art company. It is

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based on helping clients manage their empty rates. He says he knows

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what he's doing. The air are cases being fought against companies,

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illegally doing it -- and there are. We do occupy the property. We do

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not make up a fake company. We have artists working in the building.

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They claim people can make an appointment by e-mail to view the

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art works. We tried to make an appointment, but after two weeks,

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we still had no response. We have tried sending e-mails and

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telephoning Josh Artus and his colleagues. But they did not return

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our telephone calls. The duchy said that ACTE Arts apologised for not

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responding to the viewing request and will ensure it is not repeated.

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The organisation said it had several exhibitions which have been

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viewed favourably on the site. It plans many more for the remainder

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of its tenancy. It says the building supports artists and is

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for the benefit of the community. The question is, are they doing

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anything wrong? It is not my taste in art! I am no expert,. Stuart

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Hicks is an expert on business rates and advises landlords on how

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to reduce their tax liability within the law. Whether it is to

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your taste, would you advise people to do this to reduce rates? It is

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not something I would advise to proceed with. Stewart has sympathy

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with landlords facing bills on properties that are lying empty.

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economy is difficult. -- the economy is difficult. Landlords

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with empty property are suffering. How can they reduce their

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liability? The law is black and white in terms of what people can

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do, such as occupation for 43 days, after that, there is a period of

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relief. The problems that can arise is if the property is not occupied

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genuinely, alternatively, occupied for the purpose for which the

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property is there. What do you think of the use of this property

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in Harrogate? I would be concerned it was not a genuine occupation, in

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which case the billing authority could seek to take action to

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recover the money claimed. Duchy told us that ACTE Arts

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occupied the building twice last year and in accordance with rating

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law, the Duchy have claimed a total of six months business rate relief.

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The Arts Company occupied the building for 45 days in March and

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April and 50 days from July to September, in other words, just

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over the 43 day limit. There were precisely three months between the

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two occupations. The duchy said they reimbursed ACTE Arts for their

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business rates during short periods of occupation and that the company

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has signed a six-month lease, during which time the business

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rates will be paid. There are many charities genuinely occupying empty

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buildings and I have come to visit one of them. East Street Arts is a

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registered charity that has been around for 20 years and they have

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occupied this empty building in Leeds since October. What have you

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got going on? A range of things from young people producing art, to

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painters, to people working on experimental animation and we have

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actors rehearsing. What do you do you have with the landlord?

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landlord gives us a tenancy, in this case for one year, and for low

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rental. We get a building cheaply and then landlord finds a tenant,

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even though they are not getting a big rental. Stuart Hicks believes

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that putting these so-called art works into 11 Ripon Road was a

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mistake. Have -- I have been approached in the past by companies

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offering a similar sort of service, but my advice to landlords I

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represent has been not to go ahead. How serious could this be? If the

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occupation is a sham, there are problems potentially with her

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Majesty's Revenue and Customs, who could see the claiming of rate

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relief as a serious issue. Could the Queen's private land portfolio

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find itself in trouble with Her Majesty's Revenue and Customs?

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The controversial review of children's heart surgery that could

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see the unit in Leeds closed is still being fought in the courts.

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Away from that, there is a group of patients who believe they will be

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affected by future changes, who say they have not really been

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considered. My heart has a leaking a foul for.

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It causes one side to work harder than the other -- valve. It's will

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make a difference. He will be limited in his activities. Phil

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Varley is about to undergo an operation to fix a problem with his

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heart he was born with. I asked the doctor the bottom line and he said

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if I did not get it done, I would not see 60. He is one of a growing

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number seen as a modern medical miracle, children born with

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congenital heart disease who are surviving two adults. There are

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concerns that a review of children's heart services in

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England that could see operations stop in Leeds, could lead the loss

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of adult congenital surgery, too. We have the same surgeons and team,

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we should have the same review with the children. It is bizarre not to

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consider the two services together. After all, what is important is the

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patient. With the two together, it could not have been managed in

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practical terms. Phil Varley faces a difficult operation but the

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outcome could make all the difference to his life. We get

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married next year and have our lives to look forward to. That will

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get me through it. The media spotlight has so far been fixed on

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controversial plans to reorganise children's heart surgery, which

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could see centres like Leeds stop operating, and it follows the

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scandal at the Bristol Royal Infirmary in the 1990s, when

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children died due to poor care. The NHS once bigger specialist centres

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to ensure surgeons have enough patients to keep their skills honed.

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But are they the same surgeons operating on children as adults? It

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has left some questioning why adults were not included in the

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review. Kimberley Botham was born with serious problems to her heart.

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She relied on the expertise in Leeds her whole life. If I have

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surgery, I have to have it done with a congenital heart surgeon,

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and most of the MoD children's surgeons. I cannot go to my local

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hospital for an anaesthetic. I broke my arm and had to go to Leeds

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to have pins fitted. If I have children, I have to have a surgeon

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ready in case anything goes wrong. We have to be at these centres. Yet,

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they have ignored the adults who need that service. Dr John Gibbs is

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a former president of the Congenital Heart Patients

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Association. He is a consultant in Leeds. It is incomprehensible. The

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patients need an ongoing service through their lives. The specialist

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expertise required to look after them is common among children and

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adults and all centres work closely between children and adult services

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and it is bizarre not to consider The NHS says the decision was taken

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because adults have difficulty -- different needs. But this is an

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issue that has divided opinion will stop this is a letter sent to the

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NHS body running the children's review back in 2010. It is on

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behalf of 34 doctors and nurses and calls for the to refuse to be an

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integrated process rather than seen as two issues with a separate

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solutions. But the BBC has also seen a damning e-mail sent just a

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few months ago by a senior doctor called Graham Stuart who sits on a

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influential panel that advises the children's review. This is a copy

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of the e-mail which was sent to me enormously in the post. Bennett, it

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says clearly, it was ludicrous to only consider paediatric services

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when at a critical level, we're all running services for both are adult

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and paediatric patients. In retrospect, I should have jumped up

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and down and screeched like a banshee and will sense prevailed

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and adults was included or I collapsed foaming at the mouth. The

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image says says this is not the general view of professional bodies

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involved in the process. I don't agree but the fundamental points

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made in that e-mail and those are not points in the wide process that

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has gone on throughout all the professional groups. A there was a

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pressing need because children were dying and it was thought they were

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dying unnecessarily so the view was taken to get on with the review of

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children. That is four years downstream, the adult review only

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started last year and paediatricians don't want for the

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delay on this. So why does it matter whether adults were included

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in the children's review? A separate review into adult surgery

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is now under way and should overhaul a service that is

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desperately in need of change. But some people fear the children as if

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you will have already decided where many of the surgeons they need will

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be based. Michael Cumper is from the grown-up congenital heart

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patients' Association and also sits on the advisory board for the adult

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review. The result of safe and sustainable will determine where

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the children's surgical units are and as the surgeons are the same

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teams as operate on the adults, then it will obviously determine

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where the adult centres will be as well. The idea that the original

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plan was for adult surgery to follow children's can also be found

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in discussions between members of an expert panel set up to advise

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the children's review. In a limited conversation, one senior doctor

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reminded colleagues that there had been an expectation that adult

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services would eventually be Co located with children's. In essence,

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some believe this also means that if the centre like Leeds lost its

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children's heart surgery, then adult operations would be lost, too.

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If you took away paediatric cardiac surgery, they would not be enough

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work to sustain its expertise for adults here in Leeds. If it went

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from here, I believe adults would as well. The NHS refutes any

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suggestion that adults will have to follow children's and say there is

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no requirement for adult and children's services to be located

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together. Absolutely no decision has been made in that regard, and

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nor is any decision inevitable. Isn't it commonsense that if you

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move it from one city, it. From where it has gone? We say first of

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all what the most desirable service is and there is no reason

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whatsoever that this stage there are stand alone adult congenital

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services cannot exist provided there are an adequate number of

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cases and volume for the surgeons have to do. The children's review

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is currently being challenged in the courts but could make a

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decision as soon as the spring as the adult review could stretch well

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into 20 that team needing some people are uncomfortable about what

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the future holds. I don't know what surgery centre I will end up at

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come I don't know if Leeds will close. If it closes, I will go to

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Birmingham and that terrifies me because I think it will be overrun

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but patience. The operation on Phil's hard to clearly 10 hours to

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complete and was a success. Eight weeks on and he is feeling much

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better. It has already made a difference. I feel better in myself

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and if it wasn't for the surgery, maybe my life would have stopped

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sooner than what it will. For Phil and thousands like him who were

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born with congenital heart disease, the reorganisation of their

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surgical care is seen by experts as a rare opportunity. The question

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now is, where do they go from here? Do they backtrack and start again

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from scratch or do they carry on and see what the outcome is? I

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would prefer they carried on because the worst thing is delay

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and mortar late. I think that having been to refuse separately is

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something that will work very effectively. It has made me feel

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like we don't matter and we are just aside think that they will

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think about later. The NHS says no decisions have been made in terms

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of either review and there are no plans to bring the two together.

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Imagine being told your baby has an incurable disease and could die

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before reaching his first birthday. That was the stark reality effaced

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by Steve and Diane Waller more than a decade ago but their son Jack

:20:17.:20:22.

defied medical opinion and we have been to meet this remarkable young

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boy. And 12 candles on the cake but few

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believed he would live long enough to delight. All children spread

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these are special but as a parent, imagine how pressures they would

:20:46.:20:51.

seem if you feared each of them might be their last. We were told

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that Jack would die suddenly at any minute out of nowhere. Jack had

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this very rare lung condition and there was nothing they could do but

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to take him home and enjoy the time with him because he would probably

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not see his first but it. A Jack suffered from a rare and fatal lung

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condition called primary pulmonary hypertension. For four years, he

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had to wear a back pack which injected life-saving drugs into his

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heart. There were times when I thought, I will never make it and

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this will be the end. I am a natural born fighter, whatever life

:21:35.:21:42.

throws at me, through letters of the way. I like that song, just

:21:42.:21:47.

look on the bright side of life. Jack is in London with his dad for

:21:47.:21:51.

one of his regular trips to Great Ormond Street. In total, he has

:21:51.:22:01.
:22:01.:22:03.

probably spent a year of his life so far in hospital. This is a

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familiar routine for Jack and the staff here. They will know that

:22:07.:22:10.

without the constant medical intervention, he wouldn't have

:22:10.:22:14.

survived this long. Blood test Tarin but it is Jack who is giving

:22:14.:22:18.

the middle. The nurse is an Arsenal fan and tonight the London team is

:22:18.:22:28.
:22:28.:22:31.

playing Jack's beloved Liverpool. You should see me on the train, who.

:22:31.:22:39.

Whatever happens on the pitch, a jack winds the pre-match banter.

:22:39.:22:44.

Kaka is literally thousands of blood tests and it would upset and

:22:45.:22:53.

adults. Gay I don't mind having blood tests. In fact now I laugh at

:22:53.:23:01.

the needles. Jack's spleen is severely is one of through medical

:23:01.:23:05.

complications and and knock could burst at with fatal consequences.

:23:05.:23:15.
:23:15.:23:17.

It is one of a long list of challenges he faces. Jack became

:23:17.:23:22.

the face of the Bluebell Wood Children's Hospice Appeal and he

:23:22.:23:28.

raised �500,000 towards its building costs. A double lung

:23:28.:23:34.

transplant at the age of 5.5 saved his life. Unfortunately it is not a

:23:35.:23:43.

cure and so, Jack is doing very well and we hope he will have many

:23:43.:23:49.

more years of great quality of life. We are extremely proud of him. The

:23:49.:23:54.

way he has progressed is definitely down to his character. He is a

:23:54.:24:00.

stubborn the devil and he has always asked questions. The doctors

:24:00.:24:03.

and nurses will speak to him in a manner that he can understand but

:24:03.:24:13.
:24:13.:24:19.

they don't treat him like a little kid. He still needs a daily

:24:19.:24:29.

cocktail of drugs to keep him alive. Since my transplant, I have had so

:24:29.:24:32.

many people looking after me and I am grateful to all of them because

:24:32.:24:42.
:24:42.:24:44.

without any of this, I would never have made it to the stage. It is

:24:44.:24:48.

Jack's 12 but the today and he is opening his cards and presents with

:24:48.:24:53.

his and her brothers, Adam and Joe. Despite the celebrations, there's a

:24:53.:25:01.

school day to prepare for and Jack is not skipping lessons today.

:25:01.:25:05.

Every parent is proud of their child's milestones but Jack's

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didn't think he would survive long enough to a temporary school. He is

:25:09.:25:14.

now in his first year at Muff comprehensive. We used it

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laparoscope, he was wearing a backpack that kept him alive. Seven

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years on, he spread the is a cause for celebration. There are over

:25:27.:25:31.

1800 pupils in the school and many of them tower over Jack. Things

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they take for granted like walking to and from lessons, for Jack, can

:25:36.:25:40.

be potentially life threatening. The school is all too aware of the

:25:40.:25:43.

need to keep Jack away from any chance of being knocked by other

:25:43.:25:49.

pupils. He avoids the rash and only leaves when it is safe to do so. He

:25:49.:25:55.

has his own support worker to escort him to and from lessons.

:25:55.:26:05.
:26:05.:26:05.

don't want to get caught up in the rush. Often is there anything going

:26:06.:26:11.

around school, for example chicken pox, he cannot come into school. He

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would pick things up a lot more quickly than other children so that

:26:16.:26:22.

would affect his tiredness and things like that. He is definitely

:26:22.:26:27.

an inspiration to a lot of the children in their in the amount he

:26:27.:26:30.

copes with and he is still doing everything they do. His friends

:26:30.:26:36.

agree. What you think about the fact that he is still coming to

:26:36.:26:45.

school and doing his lessons? just America that he is still here.

:26:45.:26:50.

It is amazing that somebody with so many problems and so many things

:26:50.:26:56.

going on in his life and he is still positive about it. He make me

:26:56.:27:00.

think that we're all lucky. would you think about the fact that

:27:00.:27:04.

you can't quite do everything everybody else does? I find it a

:27:04.:27:10.

bit depressing but I may not be able to do it but I am still lucky

:27:10.:27:17.

because I was told I wouldn't see my first British. I have come to

:27:17.:27:21.

the Yorkshire why live tower and today there is a new junior ranger

:27:21.:27:31.
:27:31.:27:34.

on patrol. This is quite disgusting fact, they eat their own Pep!

:27:34.:27:36.

has notched up another birthday they thought he would never see.

:27:36.:27:42.

Next year he will be a teenager and he has hopes and ambitions for the

:27:42.:27:51.

future. If I do we get to being an adult, I want to become the world's

:27:51.:27:55.

youngest opera which is 15 or 16 years old. Hopefully I can live

:27:55.:28:01.

long enough to do that. He has just been through so much pain and

:28:01.:28:06.

frustration that he manages to keep smiling and he is an amazing little

:28:06.:28:10.

boy and he fights everything and he has the will to live and he is

:28:10.:28:16.

determined he is going to enjoy it. I want him to have the best, he

:28:16.:28:26.
:28:26.:28:26.

Jamie Coulson looks at plans to reduce the number of children's heart units and investigates some doctors who are claiming that one group of patients has been completely ignored in the process.


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