26/10/2017 Timeline


26/10/2017

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Tonight...

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Is there enough support for people

with rare forms of cancer?

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And we go behind the scenes

at the theatre group that's launched

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the careers of many Scottish actors.

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Welcome to Timeline,

where we've been visiting the drama

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company breaking down barriers

in helping people into careers

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on stage and screen.

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Also, the mentoring project

turning around young lives.

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And...

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The Scottish hip hop star who's gone

from rapping to writing

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with his new book picking

up rave reviews.

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How much support is there for people

with rare forms of cancer?

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Kevin O'Neil is one of only 15

people in the world diagnosed

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with malignant myopericytoma.

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He lives with chronic pain

after surgery to remove a tumour

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the weight of a large bag

of potatoes from his back.

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Kevin's trying to track down

the other people with the same

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diagnosis so he can speak to someone

who knows what he's going through.

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Here's his story.

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You are told you are one of 15

people worldwide with a rare tumour

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and you think it's like winning the

lottery, that type of thing. The

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condition I have is called malignant

myopericytoma and I had a tumour

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which started in the wall of my

chest here and it spread round to

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the shoulder blade. What was

happening was that because the rib

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cage was protecting the lung, the

Juma itself was forcing out Mike

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shoulder blade and over a 12 week

period it came to the discomfort of

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25 centimetres with 35 centimetres

deep and I had surgery to remove it

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in a 12 hour operation. It I was in

a medical induced coma for two and a

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half days. The majority of the ribs

were taken away, I have two small

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ribs there and it is a complete

chest rebuild. There is nobody to go

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to with such a rare tumour, there is

me and 14 elsewhere so how do you do

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it? Facebook, Twitter, set up a

blog? But the whole idea is to try

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to get five or six people who have

the same condition as myself, to be

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able to say, how do you get by your

day and deal with the pain and

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you're off days?

Kevin's condition

come with it being so unique, one of

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15 worldwide Comey does not have

that person he can sit and have a

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copy with or talk about how he feels

on a day-to-day basis. -- have a

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coffee. He had been ill for a number

of years, a number of which he went

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undiagnosed and five operations

later and I thank my stars we still

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have him.

Kevin O'Neil?

Hello.

I and

three very senior colleagues removed

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the tumour on his back and I've

never seen anything like it before

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or since. He has been an incredibly

strong personality and his constant

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positive attitude is really very

uplifting.

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I just think that when you see what

the nurses and the doctors and the

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clinicians and everyone involved

with the NHS does on a daily basis,

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it is just, it blows me away. They

have saved my life. I have too much

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to offer still, I'm 48 years old, I

certainly would hate to be the last

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thing, from items to lose their

father at an early age and I just

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thought that I had to make sure I

get through this.

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Kevin O'Neil there.

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So should more be done to help

people with rare cancers?

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Janice Malone is from

Macmillan Cancer Support.

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Is that a typical story come is

there much support for people with

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rare cancers like that?

It is a

fairly common story for people who

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have a rarer Cancer, to deal a

heightened degree of uncertainty as

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to what the future might hold for

them and also to feel isolated and

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alone because as Kevin said in the

film, there is nobody can talk to

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about his particular experience.

One

out of 15 in the world.

And what

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kind of support is there for those

people who are the only ones?

There

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is a huge amount of support out

there, for example at Macmillan we

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have an online community which

allows people with a rarer cancer to

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reach out to be for sometimes all

around the world who have a rarer

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cancer. There are a number of

different support mechanisms, so

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somebody with a rarer cancer can tap

into them also sometimes the

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feelings and experiences of somebody

with a rarer cancer might be similar

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to someone with a more common cancer

as well. We know that those types of

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things, around your emotional

well-being, needing somebody to talk

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to about how you feel, that is

important to people. Financial

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worries are important to people, and

they will be similar across the

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board.

How big a help its online

support compared to one to one?

It

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depends on people's preferences. I'm

a big advocate for trying to make

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sure we tailor the support to the

individual. Some people love the

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online support and think it is the

right thing for them but others

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would be preferring to sit down

face-to-face with somebody and

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everything in between. Kevin

mentioned about writing a blog and

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things like that, those are ways of

reaching out to people and they are

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becoming more popular.

People like

Kevin feel they are alone, so would

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you consider setting up a rare

cancer group?

Absolutely, and if

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there are people out there in

experiencing that like Kevin and

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they feel they are not getting the

support they need, come and talk to

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us at Macmillan and we would be

delighted to have that conversation

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and to see what we can do for

people.

Thank you very much for

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coming to tell us about that.

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It's given many Scots their first

taste of acting, with stars who've

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gone on to appear in big screen

films, as well as small screen hits

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like Burnistoun and River City.

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Now the drama group Toonspeak,

which provides access to the arts

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to disadvantaged communities,

is marking 30 years

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since it was founded.

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We asked Paul English to look

at the secret of its success.

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Some things in the north of Glasgow

have changed in the last 30 years.

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The red Road flats, once a marker in

this part of the city skyline, are

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now long gone, but there is one

aspect of life here which remains a

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towering presence. Social worker

Stephen King started Toonspeak young

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people is that in 1987. Having grown

up in the area he recognised the

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need for young people to be able to

express themselves through

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performing arts.

For a lot of young

people it was about building

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self-confidence and being part of a

troupe, a community of people

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working together. But for others it

was about imagining that ability to

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be working in a theatre and in an

arts environment, a television

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environment and to be able to

realise that.

And many of them did,

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including Stephen Purdon, better

known as shell suit bob in River

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City. Iain Robinson also learned his

trade at Toonspeak. As well as

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Anniston Star Luis student --

Burnistoun star Louise Stuart.

We

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went away on a workshop which was

almost like a therapy session as

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much as anything. If you were

interested in the technical side you

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could go behind the scenes, there

was encouragement of writing and I

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always argued that performing art is

important because of those

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communication skills and clarity of

diction, they are all important no

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matter your line of work. The

majority of kids that went to

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Toonspeak when we did not in the

industry, there is a variety of

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jobs. My two best friends from

Toonspeak are a deputy headteacher

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and a civil servant at the city

council but the skills and

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confidence and communication skills

that they honed here...

Tell me

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about how important it was in your

day going to Toonspeak, that you

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could access the art like that.

Having that place to go and finding

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a tribe I think is quite important.

You can go to school and do your

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thing but there is also that of

place that is equally as important

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in terms of developing relationships

and social skills and I don't think

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I would have went into acting

having, if there wasn't something

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like Toonspeak, for sure.

30 years

on and it is still inspiring the

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careers of young people both on and

off the stage.

I love coming here

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and just meeting everybody and

playing the games and acting.

I

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really like it, I have been coming

since it started.

It feels like home

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here, like you can not like to

anything but have fun with your

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friends and all that.

As the face of

this community changes, some things

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remain as important now as they were

30 years ago and with Toonspeak

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ready for the next act, that is good

news for the unknown stars of

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tomorrow.

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Jasmine Main chairs Toonspeak.

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You have been through it as well.

I

sneaked in when I was ten years old!

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You're meant to be 11 so I told a

wee white light!

And it launched

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your own acting career that you do

you see in the groups you are

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teaching the stars of the future?

I

do and I think confidence and drama

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is so much more than just

performing, it is life skills. It is

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your social ability, your social

capital, to go to the shop and ask

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where the milk is fixed confidence.

And for a lot of the wee ones we are

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working with, they don't have that,

and it is also a safe space and time

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for them to be creative and not

worry about what is going on. And

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that was my safe space as well and I

was lucky to be able to go and do

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other things. I know how important

it is.

And how are you for money at

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the moment?

Are you wanting a tap?!

But it is hard at Toonspeak, we

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offer the transport and we feed the

participants. That is one of the

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biggest issues of the moment.

Funders, everybody wants to fund

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exciting stuff but for that to

happen we need to get the young

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people safely through the door and

that sometimes means picking them up

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at the front door and making sure

they get there. And for us that is

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one of the main issues, myself as

chair of the board, it is that I am

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keen to make sure it continues over

the next 30 years. It is such a

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difference.

And what would you say

to people who are looking at

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different projects to fund, and say,

that is nice but it is the icing on

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the cake and not a core priority

project?

I think it is so much more,

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and if you can imagine and you can

problem solved, that is all that in

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there for anybody, come along to

Toonspeak and see what you think and

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look at the projects. I know when

they walk through the door that the

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young people have got them and I

have every confidence. It is about

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being creative but also so much more

and it is your life skills and your

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safe place and having that can make

so much of a difference and the

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potential with young people, you can

see it within two weeks, a month,

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you can see the change.

Thank you

very much for coming in.

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And that's not the only project

helping young people tonight.

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That's right.

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Let's look at another

initiative designed to help

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disadvantaged youngsters

realise their potential

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through mentoring.

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MCR Pathways partners an older

mentor with a young person who's

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struggling at school.

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It's been so successful at a Glasgow

school that it's now being rolled

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out to the rest of the city

and will soon come to

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other parts of Scotland.

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Timeline went to meet two

young men who benefited.

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Ayew OK telling us some of the

challenges you had growing up?

When

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I arrived in Scotland, England was

not my first language. My first

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language was Portuguese. I never did

primary school, or even the third

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year. I started from the fourth

year.

I had challenges growing up.

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Homelessness, the care system,

Eamonn McCann after five of us on

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her own.

I lived with two brothers.

We did not have mum or dad.

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Sometimes you felt you needed a

cuddle from ma'am.

Every good thing

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that happened, you braced yourself

for something bad to happen.

Coming

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from Angola, how difficult did you

find it to embed in the Glasgow

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culture?

Music was different,

environment was different,

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everything was different.

What was

your confidence like?

I would come

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into school, head down, not looking

or talking to anybody. I just wanted

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to get in, get lunch and get home.

That led to me going in a primary

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four level, reading and writing.

Your head was all over the place,

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rather than focused on the

classroom?

I would definitely say

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that now.

Why did you not feel you

could go to further education?

You

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needed certain grades and I did not

have that. To have that you had to

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do exams, which I could not do

because I never had the national

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five. So I was like, after school,

that's the end, nothing else to do.

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What is life like now?

For me, I

would say it is a thousand times

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better. I am doing an HND. And I see

that there is a door opening.

What

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is your lifelike now compared to

your life as Young Liam?

Not bad,

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quite different. I am not homeless.

That is a positive. I graduated two

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years ago.

Which is amazing, given

you were four years behind when you

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join secondary school.

How do you feel about the programme?

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I have been doing it for two and a

half years. Something that is

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important for the young people who

need some extra help.

Why did you

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get involved?

I realised there were

a lot of young people in the school

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who were in the same classrooms,

with the same teachers, but

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education outcomes were so much

worse. We quickly realised it was

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because of their background and home

situations, rather than their

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abilities. So we spoke and spent a

lot of time with those young people,

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of which you were one, to find out

what the challengers were, and more

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importantly the solutions that we

would actually put in place to

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support young people like yourself

that had experienced a disadvantaged

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background, to allow them to get to

a place that they can engage better

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with the education system and what

it has to offer.

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Afonso And Liam with their mentors.

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Iain MacRitchie is the

founder of MCR Pathways.

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What does the mint or actually do?

We get asked the question of how can

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we see a change in those young

people, 48% going to college,

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university or a job after school, up

to 80%. Believe it or not, it is

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breathtakingly simple. What we ask

is that our mentors come to school

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and first and foremost it is just

about listening to those young

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people, building a relationship,

empathising, one of trust. Before

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moving on to, what is the potential

of the young person? At the moment,

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our young people are too much

defined by their circumstances, the

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difficulties they experience at

home. Our programme is simply about,

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you will be defined by your talent

and potential. Then it is a focus

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of, what could you do? Go and try

stuff. It is about building

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confidence and self-esteem.

Is on

the danger that for young people are

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just feels like another adults

telling them what to do?

It does,

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but our programme is about equality.

For example, we do not tell the

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mentors about the young person's

past. It is focused on what they

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could be in the future. The young

person decides and chooses to become

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part of the programme. It is

completely voluntary. We have found

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there is as much impact on the

mentors as there is the young

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person. It just ends up being a no

lose situation for any party.

Should

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charities be picking up the slack

for a service that councils should

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provide?

I think the best, nation is

both. The skills that charities

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bring in terms of understanding the

communities, a local need in

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particular, needs to work in the

mainstream. We could not do what we

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do outside the school system. It has

to be within the school system, and

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there is a fabulous partnership

between what we have with Glasgow

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City Council and the schools.

Thanks

for coming in.

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If you have a story to tell

or if there's anything you think

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we should be following

up, let us know.

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You can get in touch

through Facebook or Twitter,

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you can find us online,

or you can email us -

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[email protected].

0:20:390:20:41

Look forward to hearing from you.

0:20:410:20:42

Shereen.

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What do you know

about paper cutting?

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I thought it's what happens

when you cut yourself

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opening an envelope.

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Ouch!

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But, turns out it's an art form

which has proved pretty successful

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for Dundee-based Boo Paterson.

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Like many artists she's

found it a struggle

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to make that breakthrough,

but her hard work has paid off

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with the launch of a book designed

to enable others who want to get

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into paper cut art.

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This is a piece called Seasick,

which I created in response to the

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first wave of refugees drowning in

the Mediterranean. I was imagining

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what it would be like to drown. I

started paper cutting when I was

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three or four, and I used to make

paper sculptures out of print paper.

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As an adult, I became a journalist

on the straight from school and I

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worked in that industry four-year

is. But whilst also working in

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cabaret and circus. I ran away with

the circus, actually, to Australia.

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And many of the Anna Moore 's I love

from Australia are in the book. When

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I came up with the idea for the book

I was extremely poor and I wanted to

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think of a way out of that

situation. I am now ready to cut.

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The general rule is to start in the

middle and work your way out. This

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is one of the easy ones. I made the

book so that it started off very,

0:22:140:22:20

very easy and it gets harder as it

goes on. The principle of the book

0:22:200:22:25

is to have people doing art. I think

that was the great success of the

0:22:250:22:31

colouring books. It meant that

people who were not good at art

0:22:310:22:35

could do it. We can see one of my

earlier works, which is called art

0:22:350:22:42

vultures. It was basically the only

thing that was feeding me. They took

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away my working tax credit because I

was not earning enough. I made this

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work out of the working tax credit

rejection forms. I am primarily a

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political artist. The plight of

refugees in particular in forms much

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of my work. With that in mind, the

book is actually a real departure

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for me. In a way, that kind of

commercial illustration is the

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graft. The stuff that you do because

you feel it deeply is almost

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effortless. There is the finished

artwork. And now all we need to do

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is to do the relief. When you are

holding a scalpel, you definitely

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concentrate more acutely. It is that

focus which gets you into a flow

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state, which children are

infrequently when they are playing,

0:23:370:23:39

when they do not know there is time

passing. Back to the book, and

0:23:390:23:44

choose a piece of colour for the

mount. And you can stick this on,

0:23:440:23:49

either with the spray mount, all

with foam squares.

0:23:490:23:56

Boo Paterson there.

0:23:560:24:00

You thought it was about making

paper aeroplanes. A beautiful

0:24:000:24:03

artform.

0:24:030:24:05

He's a newspaper columnist,

a broadcaster, and a star

0:24:050:24:07

of the Scottish hip hop scene.

0:24:070:24:09

But Darren McGarvey,

also known as Loki, has added

0:24:090:24:11

a new string to his bow.

0:24:110:24:12

His first book is about to be

published, called Poverty Safari,

0:24:120:24:15

with rave reviews already

0:24:150:24:17

from the likes of JK

Rowling and Irvine Welsh.

0:24:170:24:20

Darren's here now.

0:24:200:24:27

High praise, Darren. Tell us what

the book is about.

For me, it has

0:24:270:24:37

three central ideas. The experience

of poverty, which is not often given

0:24:370:24:41

enough space or airtime to be

vividly described in such a way that

0:24:410:24:46

people who have not experienced it

can understand it. Secondly, a

0:24:460:24:51

critical analysis from the

perspective of a working-class

0:24:510:24:53

person who has engaged with services

and institutions, a critical

0:24:530:24:58

analysis of what I call the poverty

industry. I am not slagging off

0:24:580:25:02

charities or public institutions. I

think there is a great -- a lot of

0:25:020:25:08

great and important work going on,

but there are issues around how the

0:25:080:25:12

institutions engage with

working-class people and involve

0:25:120:25:15

them in discussion. Often, they

parachute into communities like an

0:25:150:25:18

imperial force, viewing housing

schemes as primitive cultures that

0:25:180:25:23

need to be upgraded. The third part

focuses more on my own personal

0:25:230:25:29

journey of recovery and how a lot of

the issues in my life, health

0:25:290:25:33

problems, poverty, homelessness, a

lot of that began to improve not

0:25:330:25:37

just when I engaged with public

services but when I started to take

0:25:370:25:41

more responsibility and be more

honest about my own problems. So the

0:25:410:25:47

book oscillates between a memoir and

social critique with those themes.

0:25:470:25:52

It is very powerful. If it is not a

crass question, tell us what it is

0:25:520:25:57

like to be poor.

First of all, you

don't really know you are poor until

0:25:570:26:02

you go somewhere that is not poor. I

described this in the book, my first

0:26:020:26:07

journey to the west end of Glasgow.

Anyone from a working-class

0:26:070:26:11

community has an idea about the west

end. The first thing I noticed was

0:26:110:26:15

how calm it was. I was like, OK,

this is how people dress when they

0:26:150:26:19

are not afraid they will be stabbed.

It was this serenity that I had

0:26:190:26:25

never known. For me, that was the

fundamental difference. Not so much

0:26:250:26:30

the affluence, the money, but the

stress levels. The stress levels

0:26:300:26:33

were lower in the affluent

community, so it was easier to

0:26:330:26:38

negotiate compromise, to be more

socially mobile. In the community I

0:26:380:26:42

come from, everyone carries this

emotional baggage all the time.

0:26:420:26:47

Conflict.

Conflict. When you are

stressed, you are in fight or

0:26:470:26:52

flight. When you have a community

and families dealing with stress and

0:26:520:26:56

the unhealthy coping strategies that

arise from that, you start to

0:26:560:27:00

understand what you mean by social

immobility. It is not necessarily

0:27:000:27:04

just about money. It is about stress

management, emotional awareness and

0:27:040:27:08

literacy. To a certain extent, that

can involve people taking a bit more

0:27:080:27:15

responsibility for how they

emotionally react to things, the

0:27:150:27:17

things they put in their body, how

it changes the way they behave,

0:27:170:27:20

their mental health. I talk from a

position of experience, so not

0:27:200:27:26

pontificating about stuff I have not

been through.

To what extent do you

0:27:260:27:31

think individuals and communities

can make a difference, rather than

0:27:310:27:34

waiting for the government to come

and help?

First of all, I would like

0:27:340:27:39

to in courage people in this

condition, in this culture of

0:27:390:27:43

tribalism, and I understand where it

has come from and I am not making a

0:27:430:27:46

value judgment about any group,

whether people on the radical left,

0:27:460:27:50

or political parties on the

mainstream right or left, but really

0:27:500:27:54

we need people in this country who

understand multiple ways of looking

0:27:540:27:58

at things and are able to

communicate between multiple tribes,

0:27:580:28:02

to try and not so much build a

consensus, I do not want to be

0:28:020:28:08

involved in a political discussion,

but I want to go into communities

0:28:080:28:11

and say, yes, we need to change the

system, rail against corruption and

0:28:110:28:15

deal with social inequality, but

also we need to challenge each other

0:28:150:28:19

about the violence in our

communities, the regressive social

0:28:190:28:22

attitudes in our communities, and we

have to do that without being

0:28:220:28:27

accused of blaming poor people.

Because ultimately, in working-class

0:28:270:28:31

communities there is an appetite for

people to take responsibility. And I

0:28:310:28:34

think I have the ground when it

comes to that stuff. -- I have my

0:28:340:28:39

ear to the ground.

0:28:390:28:44

The book is called Poverty Safari.

0:28:440:28:47

That's your Timeline for this week.

0:28:470:28:48

Thanks for watching.

0:28:480:28:49

Shereen and I will be back next

week, same time same place,

0:28:490:28:52

when we'll have an interview

with the actor and presenter

0:28:520:28:55

Ross Kemp, who's been

inside Barlinnie prison

0:28:550:28:56

for a new documentary.

0:28:560:28:57

So do please join us then.

0:28:570:28:59

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