Lleisiau Cleifion Canser Y Byd ar Bedwar


Lleisiau Cleifion Canser

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-Subtitles

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-Cancer diagnosis rates in Wales

-are among the slowest in Europe.

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-Last week,

-in its annual cancer report...

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-..the Welsh Government

-admitted it needed to be improved.

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-Tonight, we follow the family...

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-..of a 24-year-old man

-with bowel and brain cancer...

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-..who fear

-that he won't pull through.

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-You're always feeling...

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-..that if they had

-done more, sooner...

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-..that it wouldn't have spread

-as much as it has now.

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-We also talk to the widow

-of cameraman Andrew Davies.

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-She wants changes to the system

-to help GPs spot symptoms sooner.

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-I'm certain he'd be here today

-living a healthy life...

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-..had he had an early diagnosis.

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-More and more of us

-are dying from cancer every year.

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-How do we stop that growth?

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-Cancer - stopping the growth

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-Last October, and a fundraising gig

-for Cronfa Andrew Pwmps.

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-The fund, named after

-the Llanpumsaint cameraman...

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-..will provide financial aid

-for sick freelance workers like him.

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-Among the crowd

-is Andrew's widow, Llio.

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-Tonight has been remarkable.

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-Music encompasses so much,

-doesn't it?

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-It brings back memories, emotions...

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-..the time I met Andrew.

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-Ail Symudiad and Eryr Wen

-are playing tonight.

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-Back in the 1980s,

-Andrew was Eryr Wen's drummer.

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-Eryr Wen was close to his heart.

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-The band was a very big part

-of his development as a person...

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-..and his best friends

-were in the band.

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-Also there

-were countless friends of Andrew...

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-..who supported the whole family...

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-..after he was diagnosed with cancer

-back in 2014, aged just 50.

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-The aim of tonight

-is to launch the fund.

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-Cronfa Andrew Pwmps.

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-It will help others who were

-in the same situation as us.

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-Llio lives in Ammanford.

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-She and Andrew

-moved to this house in March 2014...

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-..just months

-before he was diagnosed with cancer.

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-Hello, Catrin. It's nice to see you.

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-He was a television cameraman...

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-..and I'd worked with him myself

-before he fell ill.

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-About six months, maybe more,

-before we moved house...

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-..he looked tired all the time,

-and pale.

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-He went to the doctor.

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-He was very good

-about going to the doctor.

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-Statistics show that men

-aren't all that good about doing so.

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-But he was good.

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-He'd been telling me for five years

-that he felt weak.

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-That he had no strength, no energy.

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-Andrew had been to see his GP

-many times during this period...

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-..because of his worries

-about his health.

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-He was advised to tackle

-his high blood pressure.

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-Then, one day,

-he saw a different doctor.

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-He told him that he wanted him

-to have blood tests immediately.

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-Those blood tests

-showed that he was anaemic.

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-The worried doctor

-sent him for further tests.

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-He went for the colonoscopy...

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-..and we were both called in.

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-And, oh...

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-You know, they just said

-that there was a growth there.

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-In the bowel.

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-Then I thought, oh...

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-..it's possible

-to get treatment for this.

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-Then they said...

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-..that, unfortunately,

-it had spread to the lungs.

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-They were looking at us...

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-..fairly seriously.

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-The first step was to remove

-the tumour from the bowel.

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-It was at the time

-of the Llanelli Eisteddfod.

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-He went in the previous week.

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-He had a big operation, you know...

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-..to remove this big lump...

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-..and it was a massive lump.

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-After speaking

-to the doctor afterwards...

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-..we realized that the cancer

-had been in his body...

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-..for about six years.

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-Llio finds it hard to accept...

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-..that it took so long

-to recognize the symptoms of cancer.

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-We knew within a week.

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-It was a matter of blood tests

-and a colonoscopy, and we knew.

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-As simple as that.

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-A year later, in August 2015...

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-..Andrew heard that the cancer

-had spread to his brain.

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-Things looked bleak,

-but he tried his best to beat it...

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-..including alternative therapy

-in Malaga.

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-He said that he couldn't believe

-the care he received.

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-Incredible care from the NHS.

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-But we have to do something

-about the diagnosis.

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-Twenty months after the diagnosis...

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-..on 1 February 2016, Andrew died.

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-It's 7.00am,

-and in Penrhyndeudraeth...

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-..another man

-has been diagnosed with cancer.

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-Osian Jones is 24 years old.

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-Along with his mother,

-he's going to Glan Clwyd Hospital...

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-..for his daily

-radiotherapy session.

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-What's this? The sixth week?

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-What's this? The sixth week?

-

-Yes, this is the sixth week now.

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-This is the latest

-in two years of treatments...

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-..to try to deal with the cancer

-that began in his bowel.

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-It's affecting me a lot more now,

-fatigue and so on.

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-It was tiredness that first took him

-to the doctor in October 2014.

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-He was living and working

-in Cardiff at the time.

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-I just felt tired all the time.

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-If I sat down,

-I'd fall asleep straight away.

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-I had no energy at all.

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-On one occasion,

-I went to the doctor.

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-He put it down to exhaustion.

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-Back in Penrhyndeudraeth

-over Christmas 2014...

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-..Osian had stomach ache

-and found a lump.

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-Initially, the doctor

-diagnosed appendicitis.

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-He was told to come back

-if the pain persisted.

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-The next day, his mother sent him

-back to insist on blood tests.

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-Within two days,

-he was rushed to hospital.

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-They thought

-that my appendix had burst.

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-I was taken to Bangor.

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-They treated me

-and found signs of bowel cancer.

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-After learning

-about the tumour in the bowel...

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-..his mother was frustrated...

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-..that he hadn't been sent for tests

-months earlier.

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-I do feel...

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-..that if they'd done

-a blood test at that time...

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-..I'm convinced that something

-would have shown up then.

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-They'd have caught it

-and it wouldn't have spread.

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-Last October, they learnt that the

-cancer had spread to the liver...

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-..and also found a new tumour

-on his brain.

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-They've told me that it's grade 4.

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-An aggressive tumour.

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-They have removed it all.

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-It's gone,

-but it will definitely grow back.

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-So, they're giving me radiotherapy

-and some chemotherapy.

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-That'll slow it down a little,

-but it'll definitely grow back.

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-There's no way to stop it, really.

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-Osian feels that the NHS...

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-..needs to find better ways

-of recognizing cancer symptoms...

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-..especially in people like him...

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-..who aren't

-in the usual risk categories.

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-Basically, they need a way

-to diagnose them sooner.

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-The testing should be much better.

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-It should be different,

-and include young people.

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-Better safe than sorry.

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-In part two, fears that Wales

-lags behind in diagnosing cancer...

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-..and the Welsh Government's plans

-to tackle the matter.

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-Wales, with other UK countries, has

-relatively poor cancer survival...

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-..compared to most

-of Western Europe.

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-Part of the cause

-is late diagnosis.

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-.

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-Subtitles

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-Subtitles

-

-Subtitles

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-Glan Clwyd Hospital.

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-Osian Jones is undergoing

-six weeks' radiotherapy treatment...

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-..after an operation

-to remove a brain tumour.

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-It felt sore last night.

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-Well, yes. It's a bit red now.

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-It's dry.

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-Two years ago, doctors told him

-he was suffering from exhaustion...

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-..and then that he had appendicitis.

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-But after emergency surgery,

-they found that he had bowel cancer.

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-Osian Jones?

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-But, in November last year...

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-..he was told that the cancer

-had spread to his liver...

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-..and that there was also

-a tumour on his brain.

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-At the previous diagnosis...

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-..I could see an end to it.

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-To all of it.

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-But this time...

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-..he won't get better.

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-It's just a matter of time.

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-It's a terrible thing

-for a 24-year-old man to hear.

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-It's just awful.

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-To be honest,

-I don't know how he carries on.

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-Although

-they've removed the brain tumour...

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-..and given him

-radiotherapy treatment...

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-..the tumour is likely to grow back.

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-I'm terrible -

-I tend not to talk to him about it.

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-I get upset every time.

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-He's starting to speak out more now.

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-He was talking about things

-the other day...

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-..talking about funerals.

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-His own funeral.

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-I'm the one who holds back, not him.

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-It has to be done. That's the thing.

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-It's one of those things

-that has to be done.

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-No mother wants to bury her child.

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-But for now,

-Osian hopes that the treatment...

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-..will slow the regrowth

-of the tumour.

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-He takes every day as it comes

-with family and friends.

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-A year ago,

-Llio Silyn lost her husband.

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-He lost his battle with cancer

-that started in his bowel.

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-I'm certain he'd be here today

-living a healthy life...

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-..had he had an early diagnosis.

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-The cancer had spread from his

-bowel, to his lungs and his head.

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-It was terrible.

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-He was incredibly brave.

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-We need to save patients

-and families from all that.

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-Andrew Davies went back and forth

-to his GP for years...

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-..before he discovered

-the size of the problem.

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-"Imagine how much this is

-all costing," he used to say.

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-"How many thousands

-all this is costing."

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-"It could all have been saved,

-if I'd been screened before now."

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-There's no point getting an

-early diagnosis for breast cancer...

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-..and cancer of the uterus...

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-..when all the other cancers

-are left behind.

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-There is screening for bowel cancer,

-but only for those over 60.

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-At 52, Andrew was too young.

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-Almost 9,000 people died of cancer

-in Wales in 2014.

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-A 7% increase

-on the previous decade.

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-At the launch of his Cancer

-Annual Report last Wednesday...

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-..Health Secretary Vaughan Gething

-said that an early diagnosis...

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-..was key to improvements in

-prognosis for those battling cancer.

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-I went to meet Dr Richard Neal.

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-He works with the International

-Cancer Benchmarking Partnership...

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-..comparing the health systems

-of 22 countries.

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-He says that Wales is

-notably slow in diagnosing cancer.

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-Wales compares poorly

-to other similar countries.

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-When we compare Wales

-with other UK countries...

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-..and other countries with similar

-health systems like Denmark...

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-..Canada, Australia

-and bits of Scandinavia...

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-..the diagnosis times

-tend to be longer.

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-He says that GPs are reluctant

-to send people for hospital tests...

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-..because they fear negative

-feedback over too many referrals.

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-GPs are very wary

-about being seen as high referrers.

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-That's seen as being

-a bad GP and bad medicine.

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-That can sometimes deter GPs

-from referring the people...

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-..that they might need to sometimes.

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-He is leading a project

-with Bangor University...

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-..to try to encourage GPs...

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-..to consider the possibility

-of cancer sooner.

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-This is challenging because they are

-under pressure to save resources.

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-GPs are excellent at keeping people

-away from hospitals.

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-That's great for the health service

-because it keeps costs down...

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-..makes it cost-effective

-and prevents a lot of harms.

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-It may be that in Wales,

-GPs are better at that...

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-..which is the worst thing

-for cancer.

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-Dr Clifford Jones

-practises in Ebbw Vale.

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-He leads a team of GPs and nurses

-who are trying to improve...

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-..the services available

-for people with cancer in Wales.

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-The numbers are very small.

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-This practice has 8,000 patients.

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-We probably only have about thirty

-new cancer diagnoses in a year.

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-Around 82,000 people a year

-in Wales...

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-..are referred

-for emergency examinations...

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-..because cancer is suspected.

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-But only about 40% of patients

-exhibit obvious symptoms.

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-Most exhibit serious

-non-specific symptoms...

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-..or low-risk ambiguous symptoms.

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-If I see someone with symptoms where

-I'm not sure what's going on...

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-..but I know that something is

-wrong, I refer them to a specialist.

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-I will request a CT scan.

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-But if they don't have

-the 'alarm' symptoms...

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-..that make me think of cancer...

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-..then it may not be possible

-to get them tested quickly.

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-Instead of waiting

-a few weeks for the test...

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-..they may wait months.

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-The Welsh Government

-says that they are tackling this...

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-..by improving access to tests.

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-They say that pilot schemes for

-diagnostic centres are planned...

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-..for two health boards, Cwm Taf

-and Abertawe Bro Morgannwg...

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-..based on the Danish system.

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-This means that doctors could refer

-patients who may have cancer...

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-..in order

-to get a quicker diagnosis.

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-Dr Clifford Jones has been to

-Denmark to see the system there...

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-..and he supports the scheme.

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-The Danish government has said that

-every region of Denmark...

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-..must have a diagnostic centre.

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-At the moment, in Wales, we're

-talking about piloting one or two.

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-If they work and we think

-it's a system we should adopt...

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-..then the government

-must follow through with it.

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-They must make the resources

-available...

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-..so that this service is available

-to the people of Wales.

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-The Welsh Government says that

-the success of the pilot scheme...

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-..will be evaluated

-before being extended.

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-What's in the Cancer Delivery Plan

-is a good start.

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-What needs to follow on from that

-are the resources, funding...

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-..and staff...

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-..to see it through...

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-..and to make the changes

-needed for our patients.

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-We requested an interview

-with the Health Secretary...

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-..but he declined.

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-Instead, a statement was issued

-by a spokesperson...

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-..on behalf of the Welsh Government.

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-It said that they aim to diagnose

-cancer as quickly as possible...

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-..and that GPs have a key role

-to play in recognising symptoms.

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-The statement also pointed out that

-GPs have to follow NICE guidelines.

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-Since the changes made

-to those guidelines...

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-..the number of patients referred

-for cancer investigations...

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-..has risen by 12%

-between 2015 and 2016.

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-Osian lived and worked in Cardiff

-before his diagnosis two years ago.

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-Last week, he had the chance

-to return to the city.

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-This weekend has been brilliant.

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-It's the happiest I've felt

-for quite a while.

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-Mam said I was like a child again

-yesterday...

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-..because I knew

-I was going to Cardiff.

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-Back in Penrhyndeudraeth,

-Osian has a twin.

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-Catrin has been very supportive

-of her brother.

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-But she finds it hard

-to accept the situation.

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-I thought, "Why does he

-have to go through all this?"

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-He's never done any harm to anyone.

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-There are a lot worse people in this

-world who get everything on a plate.

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-He had a happy life in Cardiff,

-and now this has happened to him.

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-It's shit, really.

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-She's had tests herself,

-just in case.

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-She is clear of bowel cancer but she

-expects to undergo more tests.

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-But for now, being strong for Osian

-is her priority.

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-I try not to think about him.

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-At the start, I couldn't sleep

-for thinking about him.

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-But now, I try not to...

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-..because always thinking the worst

-will spoil my life.

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-I just need to make as many memories

-with him now as I can.

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-At the end of this month, the pair

-are going to Iceland together.

0:21:240:21:29

-Osian wants to see the northern

-lights, the Aurora Borealis.

0:21:290:21:33

-I just carry on and try to live

-as normal a life as possible.

0:21:340:21:38

-I don't really think about

-how much time I've got.

0:21:380:21:41

-There's no point. I just carry on.

0:21:420:21:45

-In 2008,

-before Andrew Davies became ill...

0:21:520:21:55

-..he and his wife Llio

-bought Siop y Pentan in Carmarthen.

0:21:550:22:00

-For me...

0:22:000:22:02

-It reminds me in a very positive way

-of Andrew.

0:22:020:22:08

-What he did for us as a family.

0:22:080:22:11

-The love and security

-he gave us all.

0:22:110:22:16

-He always made sure we were OK

-and that we were safe.

0:22:170:22:22

-He was always reminding me

-of things I had to do...

0:22:270:22:31

-..and made sure I'd done

-this and that.

0:22:310:22:33

-I still feel his presence

-very strongly here.

0:22:350:22:41

-I think it will stay that way.

0:22:410:22:44

-Throughout his career,

-Andrew was behind the camera...

0:22:450:22:49

-..filming other people's stories.

0:22:490:22:52

-But tonight, Llio wanted to draw

-attention to his story...

0:22:520:22:56

-..to emphasise the importance

-of early diagnosis.

0:22:560:22:59

-He was a special person.

-A father, husband and friend.

0:22:590:23:03

-He was loving, that's the word.

-Loving and mischievous.

0:23:050:23:08

-Next week, Conner Marshall

-was horrifically murdered...

0:23:130:23:16

-..by an offender who was in the care

-of the probation service.

0:23:160:23:20

-We follow his mother's battle

-for justice.

0:23:200:23:23

-There is more support for those

-who do these awful things...

0:23:230:23:28

-..than for us, the innocent family.

0:23:280:23:33

-Concerns are raised about

-the planned privatisation...

0:23:330:23:37

-..of the probation service.

0:23:370:23:40

-That's next Tuesday on S4C.

0:23:400:23:42

-S4C Subtitles by Testun Cyf.

0:23:560:23:58

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