Browse content similar to Autism. Check below for episodes and series from the same categories and more!
Line | From | To | |
---|---|---|---|
Justin, would you prefer not to have autism? | 0:00:00 | 0:00:03 | |
But I have autism. That's my life. | 0:00:03 | 0:00:05 | |
Do you like having autism? | 0:00:05 | 0:00:07 | |
But autism is my life. That's all. | 0:00:07 | 0:00:10 | |
What does your autism make you do? | 0:00:10 | 0:00:13 | |
How does it make you different from other people? | 0:00:13 | 0:00:16 | |
-I don't know. -Maybe he's had it, he's on overload. | 0:00:16 | 0:00:21 | |
I'm so overwhelmed with questions. | 0:00:21 | 0:00:23 | |
I enjoy the honesty that Justin shows. | 0:00:23 | 0:00:29 | |
He's honest about finding things annoying, and at the same time | 0:00:29 | 0:00:32 | |
sometimes I feel like maybe I am being boring, | 0:00:32 | 0:00:36 | |
which isn't such a great feeling. | 0:00:36 | 0:00:38 | |
Yes, it is bland. | 0:00:38 | 0:00:40 | |
'For several days, I'd been spending time among children | 0:00:41 | 0:00:45 | |
'diagnosed with autism, a condition of the brain | 0:00:45 | 0:00:47 | |
'often associated with a lack of interest in others. | 0:00:47 | 0:00:51 | |
'Around 1 child in 100 has autism. | 0:00:53 | 0:00:57 | |
'Those severely affected can sometimes behave in a way | 0:00:57 | 0:01:00 | |
'that is profoundly challenging for the people who care for them. | 0:01:00 | 0:01:04 | |
'And yet, with the right intervention, | 0:01:04 | 0:01:08 | |
'they can also make amazing progress.' | 0:01:08 | 0:01:11 | |
Konnichiwa, watashi wa Nicholas. | 0:01:11 | 0:01:14 | |
'One of America's top schools for autism is here in New Jersey. | 0:01:14 | 0:01:18 | |
'By visiting some of the pupils, I was hoping to get a glimpse | 0:01:18 | 0:01:23 | |
'of what life was like for their families. | 0:01:23 | 0:01:26 | |
'The tough choices they have to make over how to raise their children.' | 0:01:26 | 0:01:29 | |
What's your name? | 0:01:29 | 0:01:32 | |
Hello? | 0:01:32 | 0:01:33 | |
'And to experience for myself the pleasures and the strains | 0:01:33 | 0:01:37 | |
'of one of the most extraordinary kinds of relationship.' | 0:01:37 | 0:01:42 | |
-I need help. -You need help with what? | 0:01:55 | 0:01:57 | |
You ate your doughnut already, you're not getting another one. | 0:01:57 | 0:02:00 | |
'Paula Vieira has three children, of whom two are autistic - | 0:02:00 | 0:02:05 | |
'the seven-year-old twins Marcelo and Lucy. | 0:02:05 | 0:02:08 | |
CHILD SOBS | 0:02:08 | 0:02:11 | |
'During the Saturday errands, Marcelo had become distressed | 0:02:11 | 0:02:15 | |
'that we hadn't stopped at the supermarket, | 0:02:15 | 0:02:18 | |
'part of his usual routine.' | 0:02:18 | 0:02:20 | |
I know you want to go shopping. We're going to go to Dr Mark. | 0:02:20 | 0:02:23 | |
Don't hit me. You need nice hands. You need nice hands. OK? | 0:02:23 | 0:02:31 | |
Stop. You need nice hands. You need nice hands. Now stop that! | 0:02:31 | 0:02:35 | |
HE WAILS | 0:02:35 | 0:02:39 | |
Both Marcelo and Lucy have autism. | 0:02:49 | 0:02:52 | |
What is autism, as you understand it? | 0:02:52 | 0:02:55 | |
As I understand it? It is a neurological disorder. | 0:02:55 | 0:03:00 | |
Cause unknown. Cure unknown. | 0:03:00 | 0:03:03 | |
-Right, Lucy. Where do you want to go? -Outside. -You want to go outside? | 0:03:03 | 0:03:08 | |
Hi, Lucy. How are you doing? | 0:03:08 | 0:03:11 | |
Would you like to say hello, Lucy? | 0:03:14 | 0:03:16 | |
How are you? | 0:03:17 | 0:03:19 | |
-Was I doing something wrong, or...? -No, you weren't. | 0:03:24 | 0:03:29 | |
You see, Lucy, now, she's an independent little soul. | 0:03:29 | 0:03:33 | |
She'll sit up there on that swing all by herself | 0:03:34 | 0:03:37 | |
without even making the connection | 0:03:37 | 0:03:39 | |
that there's a whole world around her. | 0:03:39 | 0:03:41 | |
Do Marcelo and Lucy know that they're autistic? | 0:03:41 | 0:03:46 | |
No. I doubt it. | 0:03:46 | 0:03:48 | |
I don't think they know what day it is. | 0:03:48 | 0:03:52 | |
I just try and make them happy. | 0:03:52 | 0:03:55 | |
I sense you're pretty stressed about this whole thing. | 0:03:55 | 0:03:57 | |
I'm heartbroken. | 0:03:57 | 0:03:59 | |
God forgive me, but... | 0:04:00 | 0:04:02 | |
..I don't get a lot of enjoyment from them. | 0:04:04 | 0:04:06 | |
To wait five years to hear someone call you "Mom" | 0:04:06 | 0:04:11 | |
after daily doing everything for them to keep them safe | 0:04:11 | 0:04:15 | |
and give them comfort and provide for them, it's... | 0:04:15 | 0:04:19 | |
..it's tough, you know? | 0:04:21 | 0:04:22 | |
'Marcelo and Lucy attend a state school | 0:04:30 | 0:04:33 | |
'specially designed for autistic kids.' | 0:04:33 | 0:04:36 | |
We're from the BBC and we're very pleased to meet you. | 0:04:38 | 0:04:42 | |
HE SINGS GIBBERISH | 0:04:42 | 0:04:46 | |
'The Developmental Learning Centre in Warren, New Jersey, | 0:04:46 | 0:04:49 | |
'has around 250 children.' | 0:04:49 | 0:04:51 | |
-Say "car". -Car. -Good! | 0:04:51 | 0:04:53 | |
Say "cheese it". | 0:04:53 | 0:04:56 | |
'It takes an age range of three to 21-years old and prides itself | 0:04:56 | 0:05:00 | |
'on turning no-one away, no matter how disruptive their behaviour.' | 0:05:00 | 0:05:04 | |
That's the one we're working on. B. | 0:05:06 | 0:05:09 | |
'Much of the work focuses on social interaction.' | 0:05:09 | 0:05:12 | |
You say, "What's your favourite movie?" He says, "Red Tails". | 0:05:12 | 0:05:15 | |
-Then, you could say... -"That's cool". | 0:05:15 | 0:05:17 | |
-My favourite movie is Lord Of The Rings. -OK. We have our script. | 0:05:17 | 0:05:23 | |
Now, you guys are going to act it out. | 0:05:23 | 0:05:24 | |
-Hey, what's up? -Nothing much. | 0:05:24 | 0:05:27 | |
SCREECHING | 0:05:27 | 0:05:29 | |
Cut. | 0:05:29 | 0:05:31 | |
'A small percentage of students make enough progress to move | 0:05:32 | 0:05:36 | |
'to a more mainstream school.' | 0:05:36 | 0:05:38 | |
Hey, Nick. | 0:05:38 | 0:05:41 | |
'The latest to make the jump was 19-year-old Nicky Ingrassia.' | 0:05:41 | 0:05:45 | |
I'm graduating high school. | 0:05:45 | 0:05:47 | |
You graduated from here, and are moving on to a new school. | 0:05:47 | 0:05:51 | |
But that's not graduating high school. | 0:05:51 | 0:05:53 | |
-Well, it kind of is from here. -You're moving on. | 0:05:53 | 0:05:58 | |
What about my old friends? They're going to miss me to death. | 0:05:58 | 0:06:02 | |
You want to be challenged and this is a great opportunity for you. | 0:06:02 | 0:06:05 | |
-Yes, but I have a fear of getting homework. -Oh! -You know what? | 0:06:05 | 0:06:09 | |
I can give you homework now to prepare you! | 0:06:09 | 0:06:12 | |
The idea is you'll be in a school where the other students | 0:06:14 | 0:06:18 | |
are at a higher educational level than the ones here. | 0:06:18 | 0:06:21 | |
-Yes. -Which you will enjoy. | 0:06:21 | 0:06:24 | |
-Most likely. -You hope to. | 0:06:24 | 0:06:26 | |
-I hope to. -Are you nervous? -Yeah. -Why? | 0:06:26 | 0:06:30 | |
Because it might be a bit harder, and the challenge might increase. | 0:06:30 | 0:06:34 | |
-Do you get a lot of anxiety? -What's anxiety? -Do you get anxious? | 0:06:34 | 0:06:38 | |
-Sometimes. -What makes you nervous? -The students who don't know better | 0:06:38 | 0:06:42 | |
who have nothing better to do with their lives | 0:06:42 | 0:06:45 | |
but to bother the crap out of me. | 0:06:45 | 0:06:47 | |
How about the work, does it make you nervous? | 0:06:47 | 0:06:50 | |
-The work we ask of you? -Yeah, | 0:06:50 | 0:06:52 | |
cos most of the of the time, it's pointless. | 0:06:52 | 0:06:55 | |
-Why is it pointless? -Because it's either too easy or too hard. | 0:06:55 | 0:07:00 | |
So Nicky has challenges | 0:07:00 | 0:07:02 | |
that a non-autistic person might not have? | 0:07:02 | 0:07:05 | |
Educationally? | 0:07:05 | 0:07:06 | |
-Exactly. -Which are what? | 0:07:06 | 0:07:08 | |
Coping with frustration | 0:07:08 | 0:07:11 | |
and being told to do a job and complete it. | 0:07:11 | 0:07:16 | |
You don't want to talk about this? You look uncomfortable. | 0:07:16 | 0:07:21 | |
-I'm not comfortable. -Why? What's making you uncomfortable? | 0:07:21 | 0:07:27 | |
-This is a good way for you to express yourself. -You see that? | 0:07:27 | 0:07:31 | |
-OK, come here. -What was it? | 0:07:31 | 0:07:34 | |
A kid having a hissy fit. That's one reason why I shouldn't be here. | 0:07:34 | 0:07:40 | |
JAZZ MUSIC | 0:07:40 | 0:07:42 | |
'It's not uncommon for children at the DLC to have aggressive tantrums. | 0:07:52 | 0:07:56 | |
-'I was curious to meet one of these pupils.' -Hi! Oh, it's you. | 0:07:56 | 0:08:01 | |
How was your day, Joe? | 0:08:01 | 0:08:03 | |
'Joey Morales Ward is 13 years old | 0:08:03 | 0:08:06 | |
'and lives in Morris Town with his mother, Carole.' | 0:08:06 | 0:08:09 | |
-Hi, Joey! -Hi, Joey! | 0:08:09 | 0:08:12 | |
That's what we do. | 0:08:14 | 0:08:15 | |
-W....say cheese! -Yeah. | 0:08:15 | 0:08:19 | |
-Were those chips good? Yes. -Yes. | 0:08:22 | 0:08:26 | |
You've got to be quiet cos they're asking me a question about you. | 0:08:28 | 0:08:32 | |
Coo-wa-a-woo. Say cheese. | 0:08:32 | 0:08:36 | |
-How are you, Joey? -Are those cameras? | 0:08:36 | 0:08:39 | |
-Those are cameras, yes, but he asked you, how are you? -Good. | 0:08:39 | 0:08:43 | |
-Good. Joey had a behaviour today. -Yes, he did. | 0:08:43 | 0:08:46 | |
He had a behaviour today. | 0:08:46 | 0:08:48 | |
The teacher said he went after her, which means he got up | 0:08:48 | 0:08:53 | |
from what he was doing and started to attack her. | 0:08:53 | 0:08:57 | |
They had to restrain him. | 0:08:57 | 0:08:59 | |
How often does that happen? | 0:08:59 | 0:09:01 | |
-Erm, at least once a day, sometimes twice. -With Joey? -Yeah. | 0:09:01 | 0:09:07 | |
-Every day? -Yeah. -Why does he do it? | 0:09:07 | 0:09:10 | |
I want to say part of it is lack of communication, | 0:09:10 | 0:09:13 | |
but at this point, because they have gotten worse in the last two years, | 0:09:13 | 0:09:18 | |
I want to say puberty. | 0:09:18 | 0:09:21 | |
How does Joey fall on the autistic spectrum? | 0:09:21 | 0:09:24 | |
Medically, he is considered severely autistic | 0:09:24 | 0:09:27 | |
because of the lack of communication, but there are kids | 0:09:27 | 0:09:31 | |
with communication that have more severe behaviours than him. | 0:09:31 | 0:09:35 | |
There's no... It's a huge spectrum. | 0:09:36 | 0:09:40 | |
There's no one thing that you can say that each kid has. | 0:09:41 | 0:09:45 | |
-Hi, Joey! -Hi! | 0:09:45 | 0:09:48 | |
JOEY MAKES NOISES | 0:09:48 | 0:09:51 | |
-I'm Louis. -Hi, Louis. | 0:09:51 | 0:09:55 | |
If you could take the autism away, would you do it? | 0:09:57 | 0:10:00 | |
Yes, I always pray for that miracle. | 0:10:00 | 0:10:02 | |
One day, I was in church and my daughter says, | 0:10:02 | 0:10:05 | |
"Mom, do you know that God made him that way?" | 0:10:05 | 0:10:07 | |
So then, I'm like, God made him that way... | 0:10:07 | 0:10:11 | |
to make me learn a lesson, probably. | 0:10:11 | 0:10:15 | |
Hi, Kate! Say hi! | 0:10:15 | 0:10:17 | |
-'Carole's daughter, Kate, is not autistic.' -Hi, Kate. | 0:10:17 | 0:10:22 | |
-You don't want to say hi? You're being shy. -It's OK. | 0:10:22 | 0:10:25 | |
I'm just going to bring her in. | 0:10:25 | 0:10:28 | |
SCREAMING | 0:10:28 | 0:10:32 | |
In, in, in, in. | 0:10:38 | 0:10:42 | |
Down, down, down. | 0:10:47 | 0:10:50 | |
CONTINUOUS SCREAMING | 0:10:56 | 0:11:00 | |
I might call my husband. Would you mind? | 0:11:14 | 0:11:17 | |
Hold his legs. | 0:11:20 | 0:11:23 | |
Breathe. | 0:11:25 | 0:11:27 | |
-Go get some water. -Shall I get some water? | 0:11:29 | 0:11:32 | |
Thanks. | 0:11:34 | 0:11:36 | |
-Would you like us to step out? -No - unless I let you film, | 0:11:40 | 0:11:44 | |
nobody's going to ever know that this is true autism. That's it. | 0:11:44 | 0:11:49 | |
A lot of parents don't want you to see that. | 0:11:49 | 0:11:52 | |
Breathe through your nose, Joseph. | 0:11:52 | 0:11:56 | |
DEEP BREATHS | 0:11:56 | 0:11:57 | |
-Are you sorry? -Sorry, yes. -OK. Can I have a kiss? | 0:12:02 | 0:12:07 | |
-Everything's OK, now? -Everything's OK, now. | 0:12:08 | 0:12:12 | |
-When will we say cheese? -Everything's OK. | 0:12:15 | 0:12:18 | |
I'm Louis. Nice to meet you. How was that for you downstairs? | 0:12:18 | 0:12:23 | |
Is that still an emotional thing to see that? | 0:12:23 | 0:12:26 | |
It's very emotional... | 0:12:26 | 0:12:29 | |
and I know he's getting, you know, taller and bigger than me, | 0:12:29 | 0:12:35 | |
and I know one day I can probably not control him at all. | 0:12:35 | 0:12:39 | |
Sometimes he came after you and punched you for no reason. | 0:12:39 | 0:12:42 | |
If I say the word "no", he comes like a bulldog on top of me | 0:12:42 | 0:12:46 | |
-and punches me. -Does it ever affect how you feel about Joey? | 0:12:46 | 0:12:51 | |
No. | 0:12:51 | 0:12:53 | |
I remember when she was pregnant and she told me she had a baby boy. | 0:12:54 | 0:13:00 | |
I was happy. | 0:13:00 | 0:13:02 | |
I would like him to be a doctor or a lawyer, big things in my dreams. | 0:13:02 | 0:13:07 | |
But in the end, 18 months later, I found out he was autistic. | 0:13:07 | 0:13:10 | |
Now, I don't care anymore. | 0:13:10 | 0:13:13 | |
I would be happy if he was a dishwasher or a landscaper. | 0:13:13 | 0:13:20 | |
This sounds like a strange question, | 0:13:20 | 0:13:22 | |
but does it make it harder to love him? | 0:13:22 | 0:13:24 | |
No, I love him. It's like any regular child. | 0:13:24 | 0:13:29 | |
'A few miles away in Scotch Plains, New Jersey, lives Mary Ingrassia.' | 0:13:44 | 0:13:49 | |
-Hi, Mary. -Hi, Louis. -How are you doing? | 0:13:49 | 0:13:52 | |
-'A teacher, and the mother of Nicky.' -Nicky's in the basement. | 0:13:52 | 0:13:56 | |
-He's running upstairs right now. -Here's everything. -Wow! -It's a lot. | 0:13:56 | 0:14:01 | |
-Is Britney here as well? -Yes. -Where is Britney? -Britney? | 0:14:01 | 0:14:06 | |
Britney is Nicky's twin. You're 19 as well. | 0:14:06 | 0:14:08 | |
-How do you do? I'm Louis. -Hello. | 0:14:08 | 0:14:10 | |
Has it been helpful for Nicky to have a twin? | 0:14:10 | 0:14:14 | |
I think it's been helpful for Nicky to have not only a twin, | 0:14:14 | 0:14:17 | |
but so many other siblings with their friends coming in. | 0:14:17 | 0:14:22 | |
Because he gets socialised, gets to mix and mingle. | 0:14:22 | 0:14:25 | |
But Nicky was born normal. | 0:14:25 | 0:14:29 | |
How old was Nicky when you realised there was something different? | 0:14:29 | 0:14:34 | |
-About 18 months old. -What happened? | 0:14:34 | 0:14:36 | |
He literally woke up one morning, | 0:14:36 | 0:14:39 | |
he went into a total regression. | 0:14:39 | 0:14:42 | |
He stopped babbling, he stopped crawling, | 0:14:42 | 0:14:45 | |
he just stopped doing everything. | 0:14:45 | 0:14:49 | |
-How has Nicky done at DLC? -Nicky's done great. | 0:14:49 | 0:14:52 | |
They have taught Nicky way above and beyond my expectations. | 0:14:52 | 0:14:58 | |
-How? -I overgrew the challenge. -Look at him! | 0:14:58 | 0:15:03 | |
What would stop him from going to a mainstream school? | 0:15:04 | 0:15:08 | |
-Forget it, I couldn't go. -I think just the idea of normal children. | 0:15:08 | 0:15:12 | |
Being bullies? | 0:15:12 | 0:15:13 | |
-Yeah. -There's kids I have problems with in my class. | 0:15:13 | 0:15:16 | |
This morning, I was so angry, I said, | 0:15:16 | 0:15:18 | |
"I'm going to stab this kid if he doesn't shut up." | 0:15:18 | 0:15:22 | |
What did I tell you about talking like that? | 0:15:22 | 0:15:24 | |
-It's freedom of speech! -No, you can't do that. | 0:15:24 | 0:15:27 | |
-What did I tell you about talking like that? -Never do it. | 0:15:27 | 0:15:31 | |
-And what did you do? -I said it anyway cos I was angry. -Why? | 0:15:31 | 0:15:34 | |
-Because I was angry! -I'm sorry. | 0:15:34 | 0:15:36 | |
That's trouble. They can arrest you. You'll go to jail! | 0:15:36 | 0:15:41 | |
-No way! -Oh, yeah. | 0:15:41 | 0:15:43 | |
-Do you want that to happen? -No way. -Cos that's a threat. | 0:15:43 | 0:15:46 | |
-I'm not kidding. -I hear you loud and clear! You're not funny. | 0:15:46 | 0:15:52 | |
-You're not funny cos we already spoke about this. -Oh, I'm not funny? | 0:15:52 | 0:15:56 | |
Am I laughing? No! | 0:15:56 | 0:15:58 | |
-Quit overreacting. -Stop it, Nicky. You're aggravating me right now. | 0:15:58 | 0:16:02 | |
Everybody needs to stop, that's the thing. | 0:16:02 | 0:16:04 | |
If you could take away Nicky's autism, would you do it? | 0:16:04 | 0:16:08 | |
-No. -Why not? -Cos he's too special. | 0:16:08 | 0:16:13 | |
He also does so many things that you've never seen before. | 0:16:13 | 0:16:18 | |
I don't think any of my other children could do what Nicky does. | 0:16:18 | 0:16:22 | |
'Nicky's written a number of dictionaries | 0:16:22 | 0:16:25 | |
'and a novel called Dragonula, | 0:16:25 | 0:16:27 | |
'which he was keen to show me.' | 0:16:27 | 0:16:29 | |
These two are Japanese books which is my favourite language to learn. | 0:16:29 | 0:16:34 | |
I'm starting to write the entire alphabet | 0:16:34 | 0:16:37 | |
in Hiragana, Katakana and Kanji. | 0:16:37 | 0:16:40 | |
-Do you speak Japanese? -Yes. -How do you say, "hello, my name is Nicky."? | 0:16:40 | 0:16:45 | |
Konnichiwa, watashi wa Nicholas. | 0:16:45 | 0:16:48 | |
-Very good. -Next we have German. -Can we move on to Dragonula? | 0:16:48 | 0:16:53 | |
-Not yet. -Oh. | 0:16:53 | 0:16:55 | |
Next we have Chinese simplified, | 0:16:55 | 0:16:58 | |
and, last but not least, the Hindi language book. | 0:16:58 | 0:17:00 | |
Hindi is the language that they speak in India. That's it for those, | 0:17:00 | 0:17:04 | |
now we're moving on to the most anticipated work of them all. | 0:17:04 | 0:17:08 | |
-The Dragonula novel by me, of course. -You wrote this whole book? | 0:17:08 | 0:17:12 | |
-The whole book. It's inspired by dragon law. -About dragon law. | 0:17:12 | 0:17:15 | |
Yes, dragon law - or, if it's British English, it's Dragonula. | 0:17:15 | 0:17:19 | |
-Would you read us a tiny bit of the book? -Sure, I'll read the prologue. | 0:17:19 | 0:17:24 | |
"The year was 1462. In a medieval Europe civilisation setting built in ancient Japan, | 0:17:25 | 0:17:29 | |
"there once lived a sympathic Japanese Romanian black dragon. | 0:17:29 | 0:17:34 | |
"Mona has committed suicide by diving off the castle's tower. | 0:17:34 | 0:17:38 | |
"Zenaiku screams in despair as he slowly goes down to his death | 0:17:38 | 0:17:42 | |
"as the blood rises up, a fort-high blood pool." | 0:17:42 | 0:17:45 | |
-Great. -What do you think? -Terrific. | 0:17:47 | 0:17:50 | |
This school that Nicky is about to start. | 0:17:50 | 0:17:53 | |
-He'll stay in there until how long? -Until he's 21. | 0:17:53 | 0:17:56 | |
-After then, what happens? -I'm not really sure. | 0:17:56 | 0:18:00 | |
-I'm not sure where we're going to go after that. -Will he still stay here? | 0:18:00 | 0:18:05 | |
-Oh, yeah, of course. -For how long? | 0:18:05 | 0:18:07 | |
-Nicky will live here as long as I'm alive. -As long as Mom's alive. | 0:18:07 | 0:18:11 | |
And then, you know... | 0:18:11 | 0:18:12 | |
-And then Britney will take him? -Britney or one of his brothers. | 0:18:12 | 0:18:19 | |
-You would do that, Britney? -Of course. He's my twin brother. | 0:18:19 | 0:18:22 | |
May I move on to another thing? OK, every... | 0:18:22 | 0:18:26 | |
-Mom, you're ruining it. -Sorry. | 0:18:26 | 0:18:29 | |
Touch your head. | 0:18:42 | 0:18:44 | |
Head! Look, touch! | 0:18:45 | 0:18:47 | |
'I was back at the DLC, | 0:18:47 | 0:18:49 | |
'hoping for more insight into the methods of the school.' | 0:18:49 | 0:18:53 | |
-Lucy, can you tell me how he feels? -Mad. -He does feel mad. | 0:18:53 | 0:18:57 | |
'Children on the autistic spectrum | 0:18:57 | 0:18:59 | |
'often have trouble with skills most people regard as instinctive.' | 0:18:59 | 0:19:03 | |
-How does he feel? -Surprised. -He does not feel surprised, he feels... | 0:19:03 | 0:19:07 | |
-Happy. -He does. Show me happy. | 0:19:07 | 0:19:10 | |
'The school tries to teach these abilities | 0:19:10 | 0:19:12 | |
'using strictly regimented phases of work and break | 0:19:12 | 0:19:15 | |
-'to incentivise learning.' -Three stars, you get a break. | 0:19:15 | 0:19:19 | |
Good. | 0:19:23 | 0:19:25 | |
'I'd arranged to spend some school time with Joey | 0:19:25 | 0:19:28 | |
-'and his behaviour specialist Kim Spurlock.' -Good job. | 0:19:28 | 0:19:31 | |
So, he looks for the price of the item and there are two items | 0:19:31 | 0:19:34 | |
-and he adds up the price, and gets a result. -Right. | 0:19:34 | 0:19:37 | |
-He seems to be doing well. -Yes. He's made progress. | 0:19:40 | 0:19:43 | |
We are really trying to focus on his behaviours, | 0:19:43 | 0:19:48 | |
trying to decrease them. | 0:19:48 | 0:19:50 | |
And Joey's strengths? | 0:19:50 | 0:19:51 | |
That he can work on an activity for long periods of time, | 0:19:51 | 0:19:55 | |
especially the vocational tasks. | 0:19:55 | 0:19:57 | |
I have... | 0:19:57 | 0:20:01 | |
-I am... -I am finished. -Good. Let's do collating and stapling. | 0:20:01 | 0:20:06 | |
Something like this is what I was talking about, his strengths. | 0:20:11 | 0:20:15 | |
He can stay on task. | 0:20:15 | 0:20:17 | |
He can do an activity or job and work through it | 0:20:17 | 0:20:20 | |
and complete the activity. | 0:20:20 | 0:20:22 | |
-What are you drawing, Joey? -Girl. -Are you drawing a girl? | 0:20:24 | 0:20:28 | |
Does she have a name? | 0:20:28 | 0:20:31 | |
-Who is this? -Girl with ponytails. | 0:20:31 | 0:20:35 | |
Girl with ponytails. Very nice. | 0:20:35 | 0:20:38 | |
ALARM | 0:20:40 | 0:20:43 | |
Break is... there you are, finished. | 0:20:43 | 0:20:47 | |
SCREECHING | 0:20:54 | 0:20:58 | |
Lie him back. | 0:21:06 | 0:21:08 | |
Bye. | 0:21:25 | 0:21:27 | |
-This is your class? -This is my class. | 0:21:27 | 0:21:29 | |
'A little later, I checked in with a teacher called Matt Fernandez, | 0:21:29 | 0:21:33 | |
'curious to meet a few of Nicky's peers.' | 0:21:33 | 0:21:36 | |
Hi! How are you? Hi! Nice to meet you. | 0:21:36 | 0:21:40 | |
Bradley, will you stand up for a second and talk to us, please? | 0:21:40 | 0:21:45 | |
Thank you, Bradley. | 0:21:45 | 0:21:46 | |
-Matt is your teacher, how do you get on with Matt? -Him? -Yeah. | 0:21:46 | 0:21:51 | |
-I dunno. -How old is he? -Not how old I am. How do we get along? | 0:21:51 | 0:21:56 | |
-Do you like being in my class? -Yeah. -What will you do when you graduate? | 0:21:56 | 0:22:01 | |
-Where do you work now? -TK Maxx. | 0:22:01 | 0:22:06 | |
-That's a department store? -Yeah. | 0:22:06 | 0:22:08 | |
-What do you do there? -What did I do? You know, fold. -You folded. | 0:22:08 | 0:22:14 | |
-I fold the towels. -Good, thanks, Bradley. -You're welcome. | 0:22:14 | 0:22:19 | |
-This is Tyler Smith. -Hi, I'm Louis. Nice to meet you. -This is Tyler. | 0:22:19 | 0:22:26 | |
-Hi, Tyler. -Hi! -Tyler has pens. -Takia has a knack for geography. | 0:22:26 | 0:22:31 | |
You can give him any country in the world and he'll give you the capital. | 0:22:31 | 0:22:35 | |
-For real? -For real. -What's the capital of Great Britain? | 0:22:35 | 0:22:38 | |
-London. -Good. | 0:22:38 | 0:22:40 | |
-France? -Paris. -Madagascar? -Antananarivo. | 0:22:40 | 0:22:45 | |
-Tibet? -No Tibet anymore. -OK, Tibet doesn't count. | 0:22:45 | 0:22:50 | |
'Nicky had just a few days left | 0:22:52 | 0:22:54 | |
'before transferring to his new school. | 0:22:54 | 0:22:56 | |
'I joined him for one of his last art classes.' | 0:22:56 | 0:23:00 | |
-I'm Louis. -I'm Tommy. -Louis, nice to meet you. How are you doing? Louis. | 0:23:00 | 0:23:04 | |
-Oh, my God. -Tell me briefly what's happening in here. | 0:23:04 | 0:23:07 | |
This is the Comic Book Club. We have it for an hour a week. | 0:23:07 | 0:23:12 | |
The rule is that they have to develop their own characters. | 0:23:12 | 0:23:16 | |
I've just shown my teacher my novel that I mentioned the other day. | 0:23:16 | 0:23:21 | |
It's right here. | 0:23:21 | 0:23:23 | |
His job is... | 0:23:23 | 0:23:26 | |
..to interact with everybody and help them out. | 0:23:26 | 0:23:28 | |
-You're sort of co-teaching. -Yeah, I co-teach. It's called collaboration. | 0:23:28 | 0:23:34 | |
That's the most important thing here, the kids interacting with each other. | 0:23:34 | 0:23:38 | |
Yeah, but I'm going to miss my friends. | 0:23:38 | 0:23:41 | |
Yeah, why don't you talk about how you feel about Nick leaving? | 0:23:41 | 0:23:45 | |
-We feel happy for him. -Why? -Because I'll get to do other things. | 0:23:45 | 0:23:50 | |
-He deserves to go to a different school. -Why? -Because I'm special. | 0:23:50 | 0:23:54 | |
Because he's special. All the kids there could speak. | 0:23:54 | 0:24:00 | |
Just about all the kids could speak, they are like a higher level. | 0:24:00 | 0:24:05 | |
-Johnny, how do you feel about Nicky leaving? -I feel great for him. | 0:24:05 | 0:24:10 | |
I am really proud that he's going to leave | 0:24:10 | 0:24:12 | |
because I'm going to miss him. He's one of my best friends. | 0:24:12 | 0:24:15 | |
-Me too. -Would you like to be going with him? -Yeah. | 0:24:15 | 0:24:18 | |
Years ago, we had violent behaviours | 0:24:18 | 0:24:21 | |
cos we didn't know any better. | 0:24:21 | 0:24:23 | |
-It was a tough break. -Yes, it was. -But as we got older, | 0:24:23 | 0:24:27 | |
we got mature and we were intelligent enough to learn more | 0:24:27 | 0:24:31 | |
of the real world. | 0:24:31 | 0:24:32 | |
-Let's go and say hi to George. -'I was back with the Vieiras.' | 0:24:43 | 0:24:48 | |
Look how long your hair is. Look, it's like a wig, George. | 0:24:48 | 0:24:52 | |
Paula was taking Marcelo for a haircut. | 0:24:52 | 0:24:55 | |
HE SHOUTS | 0:24:55 | 0:24:57 | |
No, we're not going yet. We're going to cut our hair. | 0:24:57 | 0:25:00 | |
HE SOBS It's OK. | 0:25:00 | 0:25:02 | |
Do NOT hit your sister! Stop it! | 0:25:02 | 0:25:05 | |
HE SCREAMS, SHE CRIES | 0:25:05 | 0:25:10 | |
I've got Peppa Pig on my iPhone. | 0:25:13 | 0:25:15 | |
Do you know Peppa Pig? | 0:25:15 | 0:25:17 | |
I do not know Pepper Pig. | 0:25:17 | 0:25:19 | |
PHONE PLAYS TUNE | 0:25:19 | 0:25:22 | |
LOUIS SIGHS | 0:25:22 | 0:25:24 | |
I'm right here. Your sister's going to the bathroom. | 0:25:24 | 0:25:26 | |
-Have you seen Peppa Pig? -Nope! | 0:25:26 | 0:25:28 | |
Look, Marce. | 0:25:28 | 0:25:30 | |
Do you want to hold it? Do you want to hold it? | 0:25:30 | 0:25:33 | |
PHONE PLAYS TUNE | 0:25:33 | 0:25:40 | |
'I was curious about the strain | 0:25:45 | 0:25:46 | |
'that raising autistic children can put on a marriage.' | 0:25:46 | 0:25:50 | |
-Say goodnight. -No! -Goodnight. | 0:25:50 | 0:25:53 | |
What do you want? Talk to Daddy. | 0:25:53 | 0:25:55 | |
Back at the house, and Paula's husband, Paulo, had finished work. | 0:25:55 | 0:26:00 | |
-Cheers! -Cheers! | 0:26:00 | 0:26:01 | |
'With the children in bed, we re-grouped in the kitchen.' | 0:26:01 | 0:26:04 | |
-How are you feeling? -Tired! | 0:26:04 | 0:26:06 | |
Long day. Very, very long day with the kids. | 0:26:06 | 0:26:09 | |
-It's like we're still stuck in toddler stage. -Yeah. | 0:26:09 | 0:26:12 | |
We haven't got out of the terrible twos yet. | 0:26:12 | 0:26:14 | |
It just keeps building up and building up and building up. | 0:26:14 | 0:26:18 | |
And then...he's angry and mad. | 0:26:18 | 0:26:21 | |
Marriage is...it's true, it'll never be the same. | 0:26:23 | 0:26:26 | |
It's never the same. Mmm-mmm. | 0:26:26 | 0:26:28 | |
-It's not the same as it was before, do you mean? -No. | 0:26:28 | 0:26:32 | |
Well, there's not like that laughter, fun part any more, you know? It's... | 0:26:34 | 0:26:37 | |
We miss out a lot. | 0:26:37 | 0:26:40 | |
So the only place you can take it out is on each other. | 0:26:40 | 0:26:43 | |
Like, we don't go on vacation. You know what I mean? | 0:26:43 | 0:26:47 | |
We don't go to parties. | 0:26:47 | 0:26:48 | |
And we are seeing what regular kids are doing outside, and... | 0:26:48 | 0:26:53 | |
I know exactly how he feels, because when you see typical children, | 0:27:01 | 0:27:06 | |
you...you can't help | 0:27:06 | 0:27:10 | |
but wish that that was your son playing on the football field. | 0:27:10 | 0:27:16 | |
Or your daughter cheerleading on the sidelines. | 0:27:16 | 0:27:19 | |
Or, you know, being in the school play, and doing things that kids do. | 0:27:19 | 0:27:23 | |
-You OK? -Mmm. | 0:27:30 | 0:27:32 | |
-Go ahead. -I just wanted to check on you. -I'm OK, OK? | 0:27:35 | 0:27:39 | |
HE LAUGHS: I'm back! | 0:27:44 | 0:27:46 | |
-Are you OK? -Yeah. | 0:27:46 | 0:27:48 | |
MUSIC: Mozart's Piano Sonata No.4 | 0:27:48 | 0:27:51 | |
-Is this where you are? -This is my homeroom. The sharp right. | 0:28:02 | 0:28:05 | |
Come, make yourself comfortable, if you could. | 0:28:05 | 0:28:08 | |
'By now I was more than a week into my stay, | 0:28:08 | 0:28:11 | |
'and Nicky had become curious about me. | 0:28:11 | 0:28:14 | |
'He'd taken the initiative of doing some research of his own.' | 0:28:14 | 0:28:18 | |
This is what you're best-known for? | 0:28:18 | 0:28:21 | |
You're working with BBC, making these documentaries and all these TV shows. | 0:28:21 | 0:28:25 | |
Like, When Louis Met... | 0:28:25 | 0:28:27 | |
And Louis Theroux's Weird Weekends. | 0:28:27 | 0:28:29 | |
Those are your two best-known programmes. | 0:28:29 | 0:28:32 | |
Well, I don't know...maybe. | 0:28:32 | 0:28:34 | |
Is all this info on your page true? | 0:28:34 | 0:28:36 | |
Saying that you are the youngest son of the American traveller? | 0:28:36 | 0:28:40 | |
We don't really have to read that, do we, Nicky? | 0:28:40 | 0:28:42 | |
You are of Italian descent and American descent. | 0:28:42 | 0:28:47 | |
-Is that strange to you? -That's really strange. -Why? | 0:28:47 | 0:28:50 | |
-I'm Italian descent as well. -Well, maybe we're related. | 0:28:50 | 0:28:54 | |
We probably are. Ha! It's a funny story. It's a funny... | 0:28:54 | 0:28:58 | |
-Shall we click that away now? -Sure. I'll move on to something else. | 0:28:58 | 0:29:01 | |
Thank you. | 0:29:01 | 0:29:03 | |
'But there was a possible crimp in the plan for Nicky to move schools. | 0:29:03 | 0:29:07 | |
'His threat of stabbing another student had been reported.' | 0:29:07 | 0:29:11 | |
-OK, so someone was laughing, right? -And one was cursing me off. | 0:29:11 | 0:29:15 | |
'One of the school's behaviour specialists, Dana Silver, | 0:29:15 | 0:29:17 | |
'had called Nicky into a meeting.' | 0:29:17 | 0:29:19 | |
What did you do to one of the students? | 0:29:19 | 0:29:22 | |
Did you say something back to the student? | 0:29:22 | 0:29:25 | |
Unfortunately. And I was told not to do it again afterwards. | 0:29:25 | 0:29:28 | |
-All right. So what did you say? -A threat. | 0:29:28 | 0:29:31 | |
And what was this threat? | 0:29:31 | 0:29:32 | |
I screamed, "If you don't stop laughing at me, | 0:29:32 | 0:29:35 | |
"I'm going to stab you." | 0:29:35 | 0:29:36 | |
And see how he'll laugh at that. | 0:29:36 | 0:29:37 | |
And he would feel exactly like how I feel. | 0:29:37 | 0:29:41 | |
Me being laughed at by him is like being stabbed towards the chest. | 0:29:41 | 0:29:45 | |
OK. | 0:29:45 | 0:29:47 | |
Is this something Nicky's done before? | 0:29:47 | 0:29:50 | |
Yes. Throughout this year. | 0:29:50 | 0:29:52 | |
-Why? -Cos they make me so angry. | 0:29:52 | 0:29:54 | |
I just had to say those threats to get it out of my head. | 0:29:54 | 0:29:57 | |
And the stakes are higher now, Dana, | 0:29:57 | 0:30:00 | |
because Nicky's going to this other school? | 0:30:00 | 0:30:02 | |
-But I'm only one of the very few. -And it's amazing. | 0:30:02 | 0:30:05 | |
And we want that to continue for you, | 0:30:05 | 0:30:07 | |
so we need to make sure we can control your anger. | 0:30:07 | 0:30:10 | |
And we need to give you strategies of how to deal | 0:30:10 | 0:30:12 | |
when people don't like things. | 0:30:12 | 0:30:14 | |
-So these are the strategies? -Yeah, I think... | 0:30:14 | 0:30:17 | |
"Move away, ask them to stop, keep doing my work, | 0:30:17 | 0:30:19 | |
"write in my journal, or tell a teacher." | 0:30:19 | 0:30:21 | |
-Those are five options. -Those ARE five options. | 0:30:21 | 0:30:24 | |
I did tell him to stop and tell a teacher, | 0:30:24 | 0:30:26 | |
and I tried to move away. | 0:30:26 | 0:30:28 | |
I did four out of five strategies. | 0:30:28 | 0:30:30 | |
But you also did something inappropriate. | 0:30:30 | 0:30:32 | |
You threatened a student, right? | 0:30:32 | 0:30:35 | |
So are we going to try our best not to make threats? | 0:30:35 | 0:30:39 | |
-Yes. -You promise? -Promise. | 0:30:39 | 0:30:43 | |
MUSIC: "I'll Write and I'll Draw" by Woody Guthrie | 0:30:43 | 0:30:45 | |
Though most of the pupils at the school live at home, | 0:31:00 | 0:31:04 | |
there is a tiny handful whose behaviour | 0:31:04 | 0:31:06 | |
is so unmanageable that their parents can no longer cope. | 0:31:06 | 0:31:10 | |
Who am I speaking to? This is Josephine, Brian's mum. | 0:31:10 | 0:31:14 | |
'I was with a DLC parent called Josephine Engelhardt.' | 0:31:14 | 0:31:18 | |
Well, I'm on my way to pick up Brian. | 0:31:18 | 0:31:20 | |
You didn't tell him that I was coming, did you? | 0:31:20 | 0:31:24 | |
Oh, good. Good. Cos I don't want him to get to be anxious, you know? | 0:31:24 | 0:31:28 | |
Waiting. | 0:31:28 | 0:31:30 | |
(FROM INSIDE HOUSE) Look how happy he is! | 0:31:30 | 0:31:34 | |
Look at that beautiful smile! Mommy loves you! | 0:31:34 | 0:31:37 | |
Thank you very much. Take care. | 0:31:37 | 0:31:39 | |
'Brian had burned down the family house, aged eight. | 0:31:39 | 0:31:42 | |
'He had also repeatedly assaulted his mother. | 0:31:42 | 0:31:46 | |
'For the last two years, Brian has been living in a group home.' | 0:31:46 | 0:31:49 | |
SHE LAUGHS | 0:31:49 | 0:31:52 | |
-Brian, say hello! -How are you? -Hey. -I'm Louis. | 0:31:52 | 0:31:55 | |
-That's Marco. -Louis. | 0:31:55 | 0:31:57 | |
-Oh, I'm sorry! -That's all right. | 0:31:57 | 0:31:59 | |
-This is Louis. -Hi, how are you? | 0:31:59 | 0:32:01 | |
-Good. -Nice to meet you. | 0:32:01 | 0:32:03 | |
The number eight, please. | 0:32:06 | 0:32:08 | |
Here, honey. | 0:32:10 | 0:32:12 | |
You can put it there, OK? Here. | 0:32:12 | 0:32:15 | |
HE CRUNCHES FOOD | 0:32:19 | 0:32:22 | |
SHE LAUGHS | 0:32:22 | 0:32:24 | |
He LOVES to eat, Louis! He loves to eat! | 0:32:24 | 0:32:28 | |
The main course is to come. | 0:32:28 | 0:32:30 | |
-Ha-ha! He's not going to let me forget it. -Foo-foo-foo! Me-me! | 0:32:30 | 0:32:34 | |
Is it? Foo-foo-foo-foo? Me-me? | 0:32:34 | 0:32:36 | |
-What kind of taco is it? -Yeah. | 0:32:36 | 0:32:39 | |
-What kind is it? -Yeah. | 0:32:39 | 0:32:42 | |
-Is it beef? -Beef. | 0:32:42 | 0:32:44 | |
-Is it chicken? -Mmm. | 0:32:44 | 0:32:45 | |
HE CRUNCHES FOOD SHE LAUGHS | 0:32:47 | 0:32:50 | |
It's crunchy. | 0:32:50 | 0:32:51 | |
I can hear it crunching. | 0:32:51 | 0:32:54 | |
You know, he has a tendency, like a lot of autistic... | 0:32:54 | 0:32:56 | |
You've got to slow down. You're going to make yourself ill. | 0:32:56 | 0:33:00 | |
-Yeah. -You're going very quickly. | 0:33:00 | 0:33:02 | |
-Slow down, Brian. He always did. -Is he very hungry? | 0:33:02 | 0:33:05 | |
Or maybe he just likes the sensation of the food? | 0:33:05 | 0:33:07 | |
No, no. I believe...both. | 0:33:07 | 0:33:10 | |
I believe that they keep them on a schedule. | 0:33:10 | 0:33:13 | |
So he cannot just eat at will. | 0:33:13 | 0:33:16 | |
-Brian seems quite interested in me. -Yes. | 0:33:16 | 0:33:19 | |
-Yes. -See? | 0:33:19 | 0:33:20 | |
-Are we friends? -Yeah. | 0:33:20 | 0:33:23 | |
-Nice to meet you. -Yeah. | 0:33:23 | 0:33:25 | |
-We're from England. -Yeah. | 0:33:25 | 0:33:28 | |
I mean, there's a cliche about autism, | 0:33:28 | 0:33:30 | |
that the people can be a little bit insular or inward-looking. | 0:33:30 | 0:33:35 | |
But Brian seems...quite sociable. | 0:33:35 | 0:33:40 | |
Exactly! Exactly my point. He's very sociable. | 0:33:40 | 0:33:45 | |
Foo-foo-foo! Me-me! Foo! | 0:33:45 | 0:33:47 | |
-High five! -Foo-foo! -Thank you. | 0:33:47 | 0:33:50 | |
Food's coming. We've got to get back to the house. | 0:33:50 | 0:33:52 | |
'While Josephine went off to get more food, I was left in charge.' | 0:33:52 | 0:33:58 | |
-How are you doing? -Yeah. -Are you good? -Yeah. | 0:34:00 | 0:34:02 | |
-How are you feeling? -Yeah. -Good? -Yeah. | 0:34:02 | 0:34:04 | |
-Do you ever play with these? -Yeah. | 0:34:16 | 0:34:18 | |
-What do you do with them? -HE MUMBLES | 0:34:18 | 0:34:21 | |
-Dominoes? -Yeah. | 0:34:21 | 0:34:22 | |
-What do you do with them? Do you ever do this? -Yeah. | 0:34:22 | 0:34:25 | |
-Do you want to push that one? -Yeah. | 0:34:28 | 0:34:30 | |
-That's fun, isn't it? -Yeah. -Shall I do it again? -Yeah. | 0:34:30 | 0:34:32 | |
-Are you ready to push? -Yeah. -You push. | 0:34:32 | 0:34:35 | |
-Good! -Yeah. -Was that fun? -Yeah. -I thought so. | 0:34:39 | 0:34:42 | |
-OK, I'm going to do the whole lot. Will you help? -Yeah. | 0:34:43 | 0:34:47 | |
-You want to build one? -Mmm-hmm. -You build one. | 0:34:47 | 0:34:49 | |
OK, you don't have to. | 0:34:50 | 0:34:52 | |
OK, I'm building another one. | 0:34:55 | 0:34:56 | |
Brian? | 0:34:59 | 0:35:00 | |
Brian? | 0:35:03 | 0:35:05 | |
Brian? | 0:35:07 | 0:35:08 | |
-You OK? -Yeah. | 0:35:08 | 0:35:10 | |
I've got the dominoes. | 0:35:10 | 0:35:13 | |
I've got the dominoes. | 0:35:13 | 0:35:15 | |
Can you push the domino? | 0:35:15 | 0:35:16 | |
HE CRUNCHES FOOD | 0:35:18 | 0:35:21 | |
OK, honey. One minute, one minute. | 0:35:21 | 0:35:23 | |
Here. Here, sweetheart. | 0:35:23 | 0:35:25 | |
What made you decide you couldn't handle Brian at home any more? | 0:35:25 | 0:35:29 | |
OK. I knew deep down that things were unbearable. | 0:35:29 | 0:35:35 | |
Absolutely unbearable. | 0:35:35 | 0:35:38 | |
To be afraid of your child is a terrible thing. | 0:35:38 | 0:35:42 | |
You know, to be...having to hide, | 0:35:42 | 0:35:46 | |
or having to run away, because... | 0:35:46 | 0:35:50 | |
Brian! No, no, no. That's not yours. That's not yours. | 0:35:50 | 0:35:54 | |
Go have a can. Grab a can from the refrigerator. | 0:35:54 | 0:35:58 | |
You want a can? | 0:35:58 | 0:36:00 | |
-Lasagn... -No, no, no. | 0:36:00 | 0:36:02 | |
See, he says, "Lasagne". He knows how to say it. | 0:36:02 | 0:36:05 | |
No. No. See? | 0:36:05 | 0:36:07 | |
It's almost like a glutton, you know what I'm saying? | 0:36:07 | 0:36:10 | |
He goes from one, you know, relentlessly... | 0:36:10 | 0:36:12 | |
Brian, no! No. OK? | 0:36:12 | 0:36:15 | |
(SHE LAUGHS): All right. | 0:36:15 | 0:36:16 | |
-He had a little bit of a look on, then. Did you see it? -(SHE LAUGHS) | 0:36:16 | 0:36:19 | |
-What did that mean? -Because I said no. | 0:36:19 | 0:36:22 | |
Like he was trying to intimidate you a little bit. | 0:36:22 | 0:36:26 | |
But it's nothing in comparison to how it was. | 0:36:26 | 0:36:29 | |
It was pretty unbearable. | 0:36:29 | 0:36:31 | |
So the times that Brian did hurt you, how would he hurt you? | 0:36:31 | 0:36:36 | |
He would grab me, and you know, I would lose chunks of hair. | 0:36:36 | 0:36:39 | |
Sometimes it would get real scary. | 0:36:39 | 0:36:41 | |
He would grab my throat and he could easily choke me that way. | 0:36:41 | 0:36:45 | |
< Lasagne. | 0:36:45 | 0:36:48 | |
Huh? No, honey. No, you're...Brian! | 0:36:48 | 0:36:51 | |
-Brian, go over there. -Lasagne. | 0:36:51 | 0:36:52 | |
SHE LAUGHS You think he's being aggressive! | 0:36:52 | 0:36:55 | |
That's not being aggressive at all! | 0:36:55 | 0:36:58 | |
No, Brian, leave the kitty alone. | 0:36:58 | 0:37:00 | |
He's got a mischievous streak, though, you know? | 0:37:00 | 0:37:03 | |
SHE LAUGHS CAT MEOWS | 0:37:03 | 0:37:06 | |
He seemed a little more cuddly in the car, | 0:37:06 | 0:37:08 | |
and now he's making me a little nervous. | 0:37:08 | 0:37:10 | |
SHE LAUGHS Wait a minute. | 0:37:10 | 0:37:11 | |
No, you don't. No, No. CAT MEOWS | 0:37:11 | 0:37:14 | |
-Leave the kitty alone. -(HE MUMBLES) -Yes, go ahead. Lay down. | 0:37:14 | 0:37:17 | |
He's actually trying to be friendly, believe it or not. | 0:37:17 | 0:37:20 | |
-Brian! No, no, you cannot touch that. -He can do that if he wants to. | 0:37:20 | 0:37:24 | |
Does he have behaviours at the residence? | 0:37:24 | 0:37:27 | |
At the home that he's in? | 0:37:27 | 0:37:30 | |
The only time... Hardly ever, he's like... | 0:37:30 | 0:37:33 | |
they tell me he's one of the best-behaved there. | 0:37:33 | 0:37:36 | |
The only time that he does is food-related. | 0:37:36 | 0:37:39 | |
So at the moment, basically, during the week | 0:37:39 | 0:37:41 | |
Brian lives at the group home | 0:37:41 | 0:37:43 | |
and then he comes back at weekends just during the day. | 0:37:43 | 0:37:47 | |
Saturday, Sunday during the day he's with you? | 0:37:47 | 0:37:49 | |
Right. Only because... | 0:37:49 | 0:37:51 | |
-But he doesn't spend the night here, ever? -Yes, he has. | 0:37:51 | 0:37:54 | |
And it's been a disaster every time! | 0:37:54 | 0:37:57 | |
Because he doesn't sleep. | 0:37:57 | 0:37:59 | |
'Brian had been put on medication, which Josephine felt was helping | 0:38:07 | 0:38:11 | |
'with his impulsivity. | 0:38:11 | 0:38:13 | |
'Still, it was striking how warm he was, and how friendly.' | 0:38:13 | 0:38:16 | |
-Who? -Brian. | 0:38:17 | 0:38:18 | |
Yeah, that's Brian. | 0:38:20 | 0:38:21 | |
Who do you think that is? | 0:38:21 | 0:38:23 | |
-Yeah, Brian. -Yeah, that's Brian. | 0:38:23 | 0:38:26 | |
'I'd been concerned that Brian might not deal well with | 0:38:26 | 0:38:29 | |
'the end of the visit. | 0:38:29 | 0:38:30 | |
'But when the time came, | 0:38:30 | 0:38:33 | |
'he was the one who asked to be taken back home.' | 0:38:33 | 0:38:36 | |
-You're waiting for us? -Yeah. -Good job! Good job waiting, Brian. | 0:38:36 | 0:38:40 | |
-Where do you want to go? -To the house? OK. | 0:38:40 | 0:38:43 | |
-How much do you think I love you? -Too much. | 0:38:46 | 0:38:48 | |
-Too much? -Yeah. | 0:38:48 | 0:38:51 | |
SALSA MUSIC PLAYS | 0:38:54 | 0:38:58 | |
-Am I picking you up tomorrow? -Yeah. | 0:39:17 | 0:39:19 | |
I'm going to pick you up tomorrow? | 0:39:19 | 0:39:21 | |
-Yeah. -OK, sweetheart. Come here. I love you. | 0:39:21 | 0:39:25 | |
-Nice to meet you. -Aw! | 0:39:25 | 0:39:27 | |
-Goodnight. -You get in here? | 0:39:27 | 0:39:30 | |
Yeah. | 0:39:30 | 0:39:31 | |
OK. You go right through. | 0:39:31 | 0:39:33 | |
Oh, thank you. Thank you for watching over him. | 0:39:33 | 0:39:35 | |
(FROM INSIDE) Take care! | 0:39:35 | 0:39:37 | |
-God bless you. -God bless you too. | 0:39:37 | 0:39:39 | |
-Goodnight. -Goodnight. Thank you. | 0:39:39 | 0:39:42 | |
-He seems very happy. -Yeah, he is. | 0:39:42 | 0:39:44 | |
He's a happy little kid, he really is. | 0:39:44 | 0:39:46 | |
Why do you think he's so much more mellow now? | 0:39:46 | 0:39:50 | |
Because he is in a much more mellow environment. | 0:39:50 | 0:39:54 | |
You couldn't create that environment at home? | 0:39:54 | 0:39:58 | |
Not with the pressures. | 0:39:58 | 0:40:00 | |
We were just so...bogged down and so tired. | 0:40:00 | 0:40:05 | |
-Swamped? -So frustrated. Exactly. | 0:40:05 | 0:40:07 | |
Are you happier now as well? | 0:40:07 | 0:40:09 | |
I am happy, you know, in a certain way, that I'm a lot less stressful, | 0:40:09 | 0:40:17 | |
my life right now. | 0:40:17 | 0:40:19 | |
But I'm also sad in another way, because he's not with me. | 0:40:19 | 0:40:24 | |
'It was the morning of Nicky's first day at his new school. | 0:40:34 | 0:40:37 | |
'I'd arranged to visit him at home.' | 0:40:39 | 0:40:42 | |
-I'm sorry. -That's all right. Hi, how are you doing? | 0:40:42 | 0:40:44 | |
Nice to see you. How's it going? | 0:40:44 | 0:40:47 | |
How are you doing, Nicky? | 0:40:47 | 0:40:50 | |
-I'm tired a bit. -Nick, are you nervous? -Yeah. | 0:40:51 | 0:40:55 | |
High five. | 0:40:55 | 0:40:57 | |
I'm curious whether there's more students at DLC Warren | 0:41:00 | 0:41:03 | |
-who'll be able to make the kind of progress you've made? -Probably not. | 0:41:03 | 0:41:07 | |
-Mary, was Nick ever diagnosed with severe autism? -Yes. | 0:41:07 | 0:41:11 | |
-Severe? -When he was little. -Was he? -But I overcame. | 0:41:11 | 0:41:16 | |
He was non-verbal. I mean, he wouldn't do anything. | 0:41:16 | 0:41:18 | |
-I overcame that. -He just screamed. -Until he was? -I would say about six. | 0:41:18 | 0:41:22 | |
So that's amazing, isn't it? The journey that he's been on. | 0:41:22 | 0:41:25 | |
-How did he start communicating? -Honestly? | 0:41:25 | 0:41:28 | |
My parents took Nicky to a church, | 0:41:31 | 0:41:34 | |
a cathedral in Philadelphia, St John Paul Neumann's church. | 0:41:34 | 0:41:38 | |
And I don't know if it was a miracle or something that, you know, | 0:41:40 | 0:41:44 | |
was supposed to happen, but the next day, | 0:41:44 | 0:41:47 | |
after the visitation of the church, Nicky said to me, "Hi, Mom." | 0:41:47 | 0:41:52 | |
-What?! -Just as clear as day. | 0:41:52 | 0:41:55 | |
Crazy. True, though. I don't know, maybe it was coincidence. | 0:41:55 | 0:42:00 | |
-He said, "Hi, Mum." -Mm. | 0:42:00 | 0:42:03 | |
-And then after that, he just added more words? -Mm-hmm. | 0:42:03 | 0:42:06 | |
It's a little bit of a miracle, right? | 0:42:06 | 0:42:09 | |
Yeah, but, but, I think it's a... I think it's a disaster | 0:42:09 | 0:42:12 | |
-at the same time, too. -Why? | 0:42:12 | 0:42:15 | |
My mouth got me into a lot of trouble throughout my life. | 0:42:15 | 0:42:19 | |
'With the school day soon starting, there was still no sign of the bus.' | 0:42:21 | 0:42:25 | |
Where is it? | 0:42:25 | 0:42:27 | |
HE SIGHS | 0:42:27 | 0:42:29 | |
-Do you feel anxious? -Yes. -Would you like a hug? | 0:42:29 | 0:42:33 | |
I'm not gay. LOUIS LAUGHS | 0:42:34 | 0:42:36 | |
-What was that reaction?! -I'm like, "I'm not gay!" | 0:42:36 | 0:42:40 | |
He doesn't mean it like that, Nick. | 0:42:40 | 0:42:42 | |
-Not like a gay hug, like a reassuring hug. -OK, fine. | 0:42:42 | 0:42:46 | |
Hugged by a celebrity. | 0:42:47 | 0:42:49 | |
-THEY LAUGH -Hugged by a celebrity! | 0:42:49 | 0:42:52 | |
-Hugged by a celebrity. -Ah, Louis. | 0:42:52 | 0:42:55 | |
-Was that nice? -Yes, it was, when you hugged me. -Aw. | 0:42:55 | 0:42:58 | |
LOUIS LAUGHS But the gay thing, no. | 0:42:58 | 0:43:01 | |
Where is it? | 0:43:07 | 0:43:10 | |
-We could take Nicky. -You could do that? | 0:43:10 | 0:43:12 | |
Yeah, that would be great. | 0:43:12 | 0:43:14 | |
-Be a good boy. God bless. -I'm a bit, I'm really nervous. -I know you are. | 0:43:17 | 0:43:21 | |
-OK. -I'm so anxious and nervous. | 0:43:21 | 0:43:23 | |
-You're going to be fine. -I hope I will. | 0:43:23 | 0:43:27 | |
-Love you. -Bye, now. | 0:43:27 | 0:43:29 | |
See you later, love. Good luck. | 0:43:29 | 0:43:32 | |
LOCKER SQUEAKS | 0:43:52 | 0:43:54 | |
Oh, God. | 0:43:54 | 0:43:56 | |
-Nick! How are you? -I'm new. This is my first day here. | 0:43:57 | 0:44:01 | |
-I'm so happy you're back. -I know. | 0:44:01 | 0:44:03 | |
-That's Louis. He's from the BBC and he's popular in the UK. -Really? | 0:44:03 | 0:44:07 | |
-He has a Wikipedia page. -Dang! You must be lucky. | 0:44:07 | 0:44:11 | |
Thank you very much. | 0:44:11 | 0:44:12 | |
-How do you know Nick? -He's an old friend of mine. | 0:44:12 | 0:44:15 | |
I have known her for... I've known her, six years ago. | 0:44:15 | 0:44:18 | |
Yep, six years ago we met in middle school. He's a good friend of mine. | 0:44:18 | 0:44:22 | |
-And now Nick's back. -Hi! Good morning. | 0:44:22 | 0:44:24 | |
How are you? Welcome, welcome, welcome. Are you excited? | 0:44:24 | 0:44:27 | |
-Yes. I'm nervous, too. -A little nervous. | 0:44:27 | 0:44:29 | |
-OK. Let's go to the room. -OK. | 0:44:29 | 0:44:32 | |
-So you can kind of hang out. -OK. | 0:44:35 | 0:44:38 | |
It's gonna be all right, don't worry. | 0:44:38 | 0:44:40 | |
-I'm already anxious and nervous to death. -Don't worry, Nicky. | 0:44:40 | 0:44:42 | |
-You're going to be fine. -We'll both help. -Thank you, girls. | 0:44:42 | 0:44:45 | |
-It's all right, Nicky. -Hey, Nick. Come here. | 0:44:45 | 0:44:48 | |
This is where we sign in every morning. | 0:44:48 | 0:44:51 | |
Good, there we go. | 0:44:51 | 0:44:54 | |
-Nice job. -Thank you. | 0:44:54 | 0:44:56 | |
That was a little too easy. | 0:44:56 | 0:44:59 | |
Come on, handsome. | 0:45:12 | 0:45:14 | |
'Back at the DLC, school photographs were underway.' | 0:45:17 | 0:45:20 | |
-Lower those hands. -Where's that happy smile? | 0:45:23 | 0:45:26 | |
Want me to come and tickle you? | 0:45:26 | 0:45:28 | |
'One of the strangest aspects of autism | 0:45:28 | 0:45:30 | |
'is how unpredictably it can develop. | 0:45:30 | 0:45:34 | |
'I wondered how these children's lives would unfold. | 0:45:34 | 0:45:37 | |
'Whether they would make sudden gains and leave, like Nicky, | 0:45:37 | 0:45:40 | |
'or continue locked in their own worlds.' | 0:45:40 | 0:45:44 | |
Give it to me! I got it! | 0:45:45 | 0:45:47 | |
Yay! | 0:45:47 | 0:45:49 | |
'For those older students who do stay at the DLC, | 0:45:51 | 0:45:56 | |
'teachers do their best to prepare them for an independent existence. | 0:45:56 | 0:45:59 | |
'One school hallway is built to resemble a main street, | 0:45:59 | 0:46:02 | |
'with classrooms designed to look like shops and workplaces. | 0:46:02 | 0:46:06 | |
'Here, students get used to life in the outside world.' | 0:46:06 | 0:46:10 | |
-Can I sit next to you? -Sure. | 0:46:10 | 0:46:12 | |
-What are you doing? -I'm writing. -What are you writing about? | 0:46:12 | 0:46:16 | |
Erm, there. That should do it. | 0:46:18 | 0:46:22 | |
"Add Sara Jane's purchases together | 0:46:22 | 0:46:24 | |
"and complete the cheque below for the total amount. Use today's date." | 0:46:24 | 0:46:28 | |
-So you had to put the date here. Did you write that? -Yeah. | 0:46:28 | 0:46:31 | |
-So this is helpful, isn't it? -Yeah. | 0:46:31 | 0:46:34 | |
Because if you ever needed to write a cheque out in the real world, | 0:46:34 | 0:46:37 | |
-now you know how to do it. -Yeah. | 0:46:37 | 0:46:40 | |
-Has he been making good progress? -Absolutely. | 0:46:40 | 0:46:42 | |
You know, one of Bradley's good skills is being very thorough | 0:46:42 | 0:46:45 | |
and making sure he goes back and checks his work, staying organised. | 0:46:45 | 0:46:49 | |
There's a lot of things we focused on in the last couple of years. | 0:46:49 | 0:46:52 | |
-How did Bradley score on his cheque writing? -He did very well. | 0:46:52 | 0:46:55 | |
-Very nice, Bradley. -Well done. | 0:46:55 | 0:46:58 | |
-HE SIGHS -Did you find it stressful? | 0:46:58 | 0:47:01 | |
-Yeah, I'm calm. -HE SIGHS | 0:47:01 | 0:47:04 | |
-Are you OK? -I'm fine. | 0:47:04 | 0:47:06 | |
-Hi, Brian. Do you remember me? I'm Louis. -Hi, there. -Louis. | 0:47:11 | 0:47:16 | |
Nice to see you. | 0:47:16 | 0:47:19 | |
-Are you, are you Joe? -Yes. -Louis, hi. | 0:47:19 | 0:47:21 | |
-It's nice to meet you. -Nice to meet you. | 0:47:21 | 0:47:23 | |
-Brian, what are you doing? -Yeah. | 0:47:23 | 0:47:26 | |
-Now, what are you doing right now? -So-orting. | 0:47:26 | 0:47:29 | |
-S-sorting. -Sorting. | 0:47:29 | 0:47:32 | |
At this point, Brian is sorting the different baked goods, | 0:47:32 | 0:47:35 | |
the pastries and things, by type into different trays, | 0:47:35 | 0:47:38 | |
with a view to maybe one day, you think, he could perhaps | 0:47:38 | 0:47:42 | |
-work in a bakery or in that kind of a workplace? -Yeah. | 0:47:42 | 0:47:47 | |
The skills to work in something like that he definitely has. | 0:47:47 | 0:47:49 | |
He can definitely sort the different shapes, different colours, | 0:47:49 | 0:47:53 | |
different sizes. | 0:47:53 | 0:47:55 | |
-Brian, we're going to go shopping. -Yeah. | 0:47:55 | 0:47:58 | |
Could you get me two potatoes, please? | 0:48:00 | 0:48:03 | |
And another one, please. | 0:48:03 | 0:48:05 | |
I'll just have one carrot, please. | 0:48:07 | 0:48:10 | |
And maybe one Danish. | 0:48:10 | 0:48:11 | |
-That is everything. -Yeah. | 0:48:13 | 0:48:15 | |
-Did you enjoy that? -Yeah. -Was that fun? -Fun. -Good. -Yeah. | 0:48:15 | 0:48:19 | |
Next year Brian will graduate, is that correct? | 0:48:19 | 0:48:21 | |
-He's graduating in June. -In June? -Yes. -What will happen then? | 0:48:21 | 0:48:25 | |
Well, he's currently going to be in a workshop. | 0:48:25 | 0:48:27 | |
Whether it's stuffing envelopes or putting batteries | 0:48:27 | 0:48:30 | |
in a remote control, packaging goodie bags, | 0:48:30 | 0:48:35 | |
we are trying to work on those independent work skills | 0:48:35 | 0:48:38 | |
while they're here. | 0:48:38 | 0:48:40 | |
-Come here. Listen. -Yes. | 0:48:45 | 0:48:47 | |
-What do we need to do in order to bake these cupcakes? -Get a bowl. | 0:48:47 | 0:48:52 | |
'A little later, I joined some of Nicky's old friends | 0:48:52 | 0:48:55 | |
'in a cookery class.' | 0:48:55 | 0:48:57 | |
-Oh, man. -That's OK, watch. We've got enough time. | 0:48:57 | 0:49:00 | |
-It's my fault. -No, that's OK. | 0:49:00 | 0:49:03 | |
100% vegetable oil, of course - | 0:49:03 | 0:49:06 | |
fruity delicious. | 0:49:06 | 0:49:08 | |
-What's the capital of Vatican State? -Vatican City. | 0:49:10 | 0:49:14 | |
-Somalia? -Mogadishu. | 0:49:14 | 0:49:17 | |
-Kenya? -Erm, Nairobi. | 0:49:17 | 0:49:20 | |
-Mm, that feels good. Tasty. -Very nice. | 0:49:25 | 0:49:30 | |
-Bradley? -Yeah? | 0:49:30 | 0:49:32 | |
-The cakes are delicious. -I know. You're welcome. | 0:49:32 | 0:49:35 | |
'My time at the DLC was up. | 0:49:35 | 0:49:37 | |
'I'd been struck by the dedication of the staff, and their commitment | 0:49:38 | 0:49:42 | |
'to making changes that could be tiny or immense - | 0:49:42 | 0:49:46 | |
'and sometimes both at once.' | 0:49:46 | 0:49:48 | |
Before leaving the world of autism altogether, | 0:49:55 | 0:49:58 | |
I was making a few revisits. | 0:49:58 | 0:50:01 | |
Sing a song for Daddy. | 0:50:02 | 0:50:04 | |
MARCELO SINGS JINGLE BELLS | 0:50:04 | 0:50:06 | |
'First, the Vieiras.' | 0:50:06 | 0:50:08 | |
# Tee-tee-tee, tee-tee. # | 0:50:08 | 0:50:12 | |
Can you dance to it? Dance. Dance. | 0:50:12 | 0:50:14 | |
# Tee-tee-tee-tee-tee. # | 0:50:14 | 0:50:16 | |
Mommy, I want ice-cream. | 0:50:16 | 0:50:19 | |
Part of what I sense, maybe, is that you don't want the fact | 0:50:20 | 0:50:25 | |
that you've got two children with autism to define your existence | 0:50:25 | 0:50:30 | |
but, at the moment, it has become the defining fact of your existence. | 0:50:30 | 0:50:34 | |
It is, and it has been for a long time. | 0:50:34 | 0:50:36 | |
I'm starting to see that there's a light, | 0:50:36 | 0:50:39 | |
that it won't be what defines us as a family, | 0:50:39 | 0:50:42 | |
or defines us as individuals, eventually. | 0:50:42 | 0:50:45 | |
-So what do you hope for now? -Silence! | 0:50:45 | 0:50:49 | |
SHE LAUGHS | 0:50:49 | 0:50:51 | |
You know, they always say, "God gives you what you can handle." | 0:50:52 | 0:50:55 | |
And I have to say I think that we are extraordinary people | 0:50:55 | 0:50:58 | |
but we were extraordinary people | 0:50:58 | 0:51:01 | |
before these children came into our lives. | 0:51:01 | 0:51:04 | |
Which is probably why I have such difficulty accepting it. | 0:51:04 | 0:51:08 | |
I just... some people, it transforms them | 0:51:08 | 0:51:12 | |
to being this ultra-caring kind of a person. | 0:51:12 | 0:51:15 | |
Whereas I think we have always been that kind of person - that's, | 0:51:15 | 0:51:19 | |
that's the difference I was trying to make. | 0:51:19 | 0:51:23 | |
-So you feel you didn't need to be transformed, in a sense. -Yeah. Yeah. | 0:51:23 | 0:51:28 | |
Which is almost part of the reason why I get so angry because I, I... | 0:51:28 | 0:51:33 | |
I AM that loving, sweet person, compassionate person. | 0:51:33 | 0:51:36 | |
Right, Lucy? | 0:51:36 | 0:51:37 | |
-Wow. I like your alphabet. -MARCELO RECITES ALPHABET | 0:51:39 | 0:51:43 | |
Marcelo always loved letters. | 0:51:47 | 0:51:50 | |
He knew the alphabet, he must've been 18 months old, | 0:51:50 | 0:51:53 | |
-he knew the whole alphabet. -L... | 0:51:53 | 0:51:56 | |
-O! -Very good! -Good job! -Yay! | 0:51:59 | 0:52:04 | |
Hi. | 0:52:09 | 0:52:11 | |
You're supposed to ignore the camera, Joe. | 0:52:11 | 0:52:13 | |
Barney is dinosaur. | 0:52:13 | 0:52:17 | |
-Barney is a dinosaur. -Imagination. | 0:52:17 | 0:52:21 | |
'I was paying one last visit to Joey and his mother, Carole. | 0:52:21 | 0:52:25 | |
'Carole had once told me she'd prayed for a miracle for Joey. | 0:52:25 | 0:52:28 | |
'It being Sunday, we were attending church.' | 0:52:28 | 0:52:31 | |
Take away the sins of the world... | 0:52:33 | 0:52:36 | |
In the name of the Father and the Son... | 0:52:39 | 0:52:41 | |
# ..Clap your hands | 0:52:44 | 0:52:46 | |
# If you're happy and you know it clap your hands | 0:52:46 | 0:52:50 | |
# If you're happy and you know it Then your face will surely show it | 0:52:50 | 0:52:54 | |
# If you're happy and you know it clap your hands. # | 0:52:54 | 0:52:58 | |
'That Carole was hoping for some kind of cure for Joey | 0:52:58 | 0:53:01 | |
'seemed understandable, and yet what was strange | 0:53:01 | 0:53:03 | |
'was that Joey's personality was so bound up with his condition, | 0:53:03 | 0:53:07 | |
'it was hard to separate the two. | 0:53:07 | 0:53:10 | |
'His lovable qualities were intertwined | 0:53:10 | 0:53:13 | |
'with the challenges he presented.' | 0:53:13 | 0:53:15 | |
-Can you find Mickey Mouse? -JOEY SHOUTS | 0:53:16 | 0:53:19 | |
INCOMPREHENSIBLE SPEECH | 0:53:22 | 0:53:24 | |
-You want to sit here? -Sit here. | 0:53:26 | 0:53:29 | |
Sit here. | 0:53:31 | 0:53:33 | |
-Sit here. -Who, me? -Me. | 0:53:33 | 0:53:37 | |
-Sit here. -Yeah. -JOE GROANS | 0:53:37 | 0:53:39 | |
-OK. -Sit here. | 0:53:46 | 0:53:49 | |
-Who, me? -Who, me. | 0:53:49 | 0:53:51 | |
-Here? -Here. | 0:53:51 | 0:53:52 | |
INCOMPREHENSIBLE SPEECH | 0:53:54 | 0:53:57 | |
-Draw a picture? -The picture. | 0:53:59 | 0:54:03 | |
JOEY GROANS | 0:54:03 | 0:54:05 | |
-JOEY SCREAMS -No, no, no, no. | 0:54:23 | 0:54:26 | |
Yeah. You can't get angry and hit walls. | 0:54:26 | 0:54:31 | |
-Go. Lie down. -JOEY SCREAMS | 0:54:32 | 0:54:35 | |
Lie down. | 0:54:40 | 0:54:42 | |
'Since I'd last seen her, Carole had started a new technique | 0:54:42 | 0:54:45 | |
'for controlling Joey's tantrums by confining him to his room.' | 0:54:45 | 0:54:48 | |
-JOEY SCREAMS -Down. | 0:54:48 | 0:54:51 | |
-Can I help, Carole? -SCREAMING | 0:54:51 | 0:54:54 | |
Down. Down. | 0:54:54 | 0:54:57 | |
And when you're ready, you can come out. | 0:54:59 | 0:55:01 | |
JOEY SCREAMS | 0:55:01 | 0:55:03 | |
When you can calm down, you can come down for breakfast. OK? That's good. | 0:55:03 | 0:55:08 | |
-Good job. Calm down, breathe. -SCREAMING | 0:55:08 | 0:55:11 | |
We'll just leave him and see what happens. | 0:55:11 | 0:55:14 | |
-SCREAMING -Leave him. | 0:55:14 | 0:55:16 | |
If he breaks anything in there, we'll throw it out. | 0:55:16 | 0:55:19 | |
Scissors. Scissors. | 0:55:23 | 0:55:26 | |
-So you feel this new system could be working? -Right. | 0:55:26 | 0:55:31 | |
The tantrums, although they're still intense, he seems to, | 0:55:31 | 0:55:36 | |
after 10 minutes, | 0:55:36 | 0:55:38 | |
come out of it and he comes downstairs and says he's sorry. | 0:55:38 | 0:55:42 | |
On our last visit, you were worried about | 0:55:42 | 0:55:46 | |
whether you'd be able to control Joey as he got older | 0:55:46 | 0:55:49 | |
if the aggressiveness continued or got worse. | 0:55:49 | 0:55:51 | |
-Right. -Are you still concerned about that? | 0:55:51 | 0:55:54 | |
I'm still concerned about that. | 0:55:54 | 0:55:56 | |
If the tantrums got worse I would first try medicine. | 0:55:56 | 0:56:00 | |
If the medication does not work? | 0:56:00 | 0:56:03 | |
I don't want to think about that, | 0:56:03 | 0:56:06 | |
but what would happen is, in order for me to get help from the state, | 0:56:06 | 0:56:10 | |
I would probably have to call 911. | 0:56:10 | 0:56:13 | |
And then the state would step in. But I don't want that to happen. | 0:56:14 | 0:56:18 | |
If it really did not improve, | 0:56:18 | 0:56:21 | |
you would consider residential care? | 0:56:21 | 0:56:24 | |
Eventually I would have to because if I couldn't take care of him, | 0:56:26 | 0:56:31 | |
what am I going to do? | 0:56:31 | 0:56:33 | |
The sad thing is that's your only option, really. | 0:56:34 | 0:56:38 | |
That's the final outcome for all these children. | 0:56:38 | 0:56:40 | |
Wah! | 0:56:40 | 0:56:42 | |
-What do you want Mommy to do? -Sock. | 0:56:42 | 0:56:45 | |
You want Mommy to take... | 0:56:45 | 0:56:47 | |
Take a picture. | 0:56:47 | 0:56:49 | |
-Wah! -Beautiful picture. | 0:56:49 | 0:56:52 | |
-Can you tell if Joey likes me? -I... | 0:56:52 | 0:56:55 | |
Joe, do you like Louis? | 0:56:55 | 0:56:58 | |
-Louis still here. -Do you like him? Yes or no. | 0:56:58 | 0:57:01 | |
-Yes. -Do you like him? -Yes. Shake hands. -Would he say that anyway? | 0:57:01 | 0:57:06 | |
-Say cheese. -No, because I gave him two options and then I asked, | 0:57:06 | 0:57:09 | |
I said, "Joey, do you like Louis? Yes or no?" | 0:57:09 | 0:57:14 | |
-Now I have to ask again. Joey, do you like Louis? -Louis, yes. | 0:57:16 | 0:57:19 | |
-And I didn't give him two options. -Shake it, say cheese. | 0:57:19 | 0:57:23 | |
'I was leaving the world of autism with a fondness for the kids | 0:57:29 | 0:57:32 | |
'and a respect bordering on awe for the parents.' | 0:57:32 | 0:57:36 | |
-Moo! -It's a cow. | 0:57:38 | 0:57:40 | |
-Cow. Moo. -Moo. | 0:57:40 | 0:57:42 | |
'Raising a child on the severe end of the spectrum | 0:57:42 | 0:57:46 | |
'can entail decisions no-one should have to make.' | 0:57:46 | 0:57:49 | |
Moo-oo-oo! | 0:57:49 | 0:57:51 | |
'And yet these parents were, in different ways, continuing to find | 0:57:51 | 0:57:54 | |
'inner reserves of love and compassion. | 0:57:54 | 0:57:57 | |
'Performing a small miracle of their own in their ability to keep going.' | 0:57:59 | 0:58:04 | |
Subtitles by Red Bee Media Ltd | 0:58:29 | 0:58:33 |