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Where is he? You need to shout for help. | 0:00:03 | 0:00:08 | |
Where is he? Which way did he go? | 0:00:08 | 0:00:10 | |
One of London's biggest hospital trusts... | 0:00:10 | 0:00:14 | |
He's having a heart attack, but we'll get him in straightaway and | 0:00:14 | 0:00:17 | |
we'll get him sorted out. | 0:00:17 | 0:00:18 | |
OK, on three. One, two, three. | 0:00:18 | 0:00:19 | |
..treating more than 20,000 people every week. | 0:00:19 | 0:00:22 | |
Flying over the enemy lines. | 0:00:22 | 0:00:24 | |
This is a place with some of the best specialists in the world... | 0:00:24 | 0:00:27 | |
I'm amazed he's alive. He had two blocked arteries. | 0:00:27 | 0:00:29 | |
..where lives are transformed... | 0:00:29 | 0:00:32 | |
Thank you so much. | 0:00:32 | 0:00:35 | |
..but it's under intense pressure. | 0:00:35 | 0:00:38 | |
We have a financial deficit of 41 million. | 0:00:38 | 0:00:40 | |
With growing patient numbers... | 0:00:40 | 0:00:43 | |
We are full. We're always full. | 0:00:43 | 0:00:46 | |
How long has he been here? 13 hours and 46 minutes. | 0:00:46 | 0:00:49 | |
I don't think that's best patient care. | 0:00:49 | 0:00:51 | |
..and higher expectations. | 0:00:51 | 0:00:55 | |
They're can't be nothing in this day and age. | 0:00:55 | 0:00:58 | |
I want to look after him. | 0:00:58 | 0:00:59 | |
First ambulance is on the ramp. | 0:00:59 | 0:01:01 | |
At a time when the NHS has never been under more scrutiny... | 0:01:01 | 0:01:04 | |
We're declaring a major incident at the St Mary's site. | 0:01:04 | 0:01:06 | |
If this was my sister, or a friend, or anyone, | 0:01:06 | 0:01:09 | |
this wouldn't be good enough. | 0:01:09 | 0:01:11 | |
..week by week, we reveal the complex decisions | 0:01:11 | 0:01:14 | |
the staff must make... | 0:01:14 | 0:01:17 | |
Anybody else who hasn't gone knife to skin, they need to be sent home. | 0:01:17 | 0:01:20 | |
..about who to care for next. | 0:01:20 | 0:01:25 | |
Do you reach a point where you say, "Enough is enough"? | 0:01:25 | 0:01:27 | |
Yes. The family may not like that but, | 0:01:27 | 0:01:29 | |
"We are stopping and this is where it ends." | 0:01:29 | 0:01:38 | |
In terms of treatment options, I'm at the end of the line. | 0:01:55 | 0:01:58 | |
They've tried chemo. | 0:01:58 | 0:02:02 | |
They've tried radiotherapy, surgery, and it's still coming back. | 0:02:02 | 0:02:05 | |
51-year-old Glendon has a type of brain tumour | 0:02:05 | 0:02:09 | |
called glioblastoma. | 0:02:09 | 0:02:17 | |
He's tried every treatment his local hospital | 0:02:17 | 0:02:21 | |
in Lancashire can offer. | 0:02:21 | 0:02:22 | |
This is the most aggressive cancer known to man. | 0:02:22 | 0:02:24 | |
You either collapse into a little pile of self-pity, | 0:02:24 | 0:02:26 | |
or you carry on fighting. | 0:02:26 | 0:02:28 | |
And I will carry on fighting until it kills me. | 0:02:28 | 0:02:33 | |
To access a new type of therapy, | 0:02:33 | 0:02:35 | |
Glendon is now under the care of Matt Williams, | 0:02:35 | 0:02:37 | |
a leading oncologist at Charing Cross Hospital. | 0:02:37 | 0:02:42 | |
INTERVIEWER: How did Glendon find you? | 0:02:42 | 0:02:43 | |
I don't know. | 0:02:43 | 0:02:48 | |
I don't know. I suspect Google! | 0:02:48 | 0:02:49 | |
Matt is one of the few doctors in the country | 0:02:49 | 0:02:51 | |
willing to prescribe immunotherapy for brain tumours. | 0:02:51 | 0:03:01 | |
Lots of cancers are able to avoid the immune systems, | 0:03:01 | 0:03:04 | |
so they kind of hide from it. | 0:03:04 | 0:03:06 | |
And what the current generation of immunotherapy does, | 0:03:06 | 0:03:07 | |
is allows the immune system to get active and then attack the tumours. | 0:03:07 | 0:03:13 | |
It's known to work for some tumours. | 0:03:13 | 0:03:14 | |
We do not know whether it works for others, | 0:03:14 | 0:03:16 | |
and yet it is really expensive. | 0:03:16 | 0:03:18 | |
The NHS does not offer immunotherapy to brain tumour patients because | 0:03:18 | 0:03:22 | |
its benefits are unproven, but it can be accessed privately. | 0:03:22 | 0:03:27 | |
So we're going up to the 15th floor, | 0:03:27 | 0:03:31 | |
which is the private wing stuck on top of Charing Cross Hospital. | 0:03:31 | 0:03:37 | |
Doors opening. | 0:03:37 | 0:03:39 | |
In most cases, I think private medicine | 0:03:39 | 0:03:41 | |
means a nicer room, better coffee. | 0:03:41 | 0:03:45 | |
But there has been a change. | 0:03:45 | 0:03:49 | |
There are cases where you'll get access to other drugs | 0:03:49 | 0:03:52 | |
that aren't available on the NHS. | 0:03:52 | 0:03:57 | |
And the number of people who want to access those drugs | 0:03:57 | 0:04:00 | |
is definitely going up. | 0:04:00 | 0:04:03 | |
OK, this is your bed. | 0:04:03 | 0:04:05 | |
Lovely. | 0:04:05 | 0:04:09 | |
I really fancy a refreshing Aperol Spritz! | 0:04:09 | 0:04:13 | |
There must be a little bar around the corner here somewhere, surely? | 0:04:13 | 0:04:17 | |
Glendon is one of Matt's NHS patients. | 0:04:17 | 0:04:20 | |
Since his diagnosis a year ago, he's been exploring all treatments, | 0:04:20 | 0:04:24 | |
including those only available privately. | 0:04:24 | 0:04:28 | |
This is his Novocure. | 0:04:28 | 0:04:31 | |
It sends a current through the brain at a certain frequency | 0:04:31 | 0:04:33 | |
that's supposed to catch the cells before they split, | 0:04:33 | 0:04:36 | |
so they don't set up in other areas of the brain. | 0:04:36 | 0:04:40 | |
They don't have Novocure on the NHS. | 0:04:40 | 0:04:43 | |
Ballpark figure, I believe they're around about ?12,000 a month. | 0:04:43 | 0:04:47 | |
But I phoned them up and begged, basically. | 0:04:47 | 0:04:51 | |
I got it on compassionate grounds. | 0:04:51 | 0:04:53 | |
INTERVIEWER: Glendon, how much have you spent | 0:04:53 | 0:04:54 | |
on trying to cure yourself? | 0:04:54 | 0:04:57 | |
I've only just started. | 0:04:57 | 0:04:59 | |
We've just travelled really and saw a few private... | 0:04:59 | 0:05:03 | |
I'd say about 10,000, but I'm now starting to throw big wodges at it. | 0:05:03 | 0:05:07 | |
What's the war chest? Half a million. | 0:05:07 | 0:05:12 | |
But we haven't really got that sat there. No. Not liquid cash. | 0:05:12 | 0:05:15 | |
Yeah, it's assets. | 0:05:15 | 0:05:18 | |
We'd have to sell more or less everything to get hold of it. | 0:05:18 | 0:05:21 | |
It will be everything else but the house. | 0:05:21 | 0:05:23 | |
I'm not going to leave my family destitute by a long stretch. | 0:05:23 | 0:05:26 | |
Hello. I'm one of the neurosurgical team. | 0:05:26 | 0:05:28 | |
How are you doing, sir? Nice to meet you. We need to get you an MRI scan. | 0:05:28 | 0:05:32 | |
Three months ago, Glendon had surgery to remove the tumour, | 0:05:32 | 0:05:35 | |
but it returned and is growing. | 0:05:35 | 0:05:37 | |
I thought we should talk about Mr Snape. | 0:05:37 | 0:05:41 | |
He's now relapsed again. There are no standard treatment options. | 0:05:41 | 0:05:44 | |
For a whole bunch of reasons, | 0:05:44 | 0:05:45 | |
immunotherapy may well not be effective in | 0:05:45 | 0:05:47 | |
glioblastoma by itself. | 0:05:47 | 0:05:48 | |
There are good reasons to think that adding immunotherapy to a second | 0:05:48 | 0:05:51 | |
course of radiotherapy may be more effective. | 0:05:51 | 0:05:55 | |
And the evidence for? Poor. | 0:05:55 | 0:05:57 | |
The problem is immunotherapy is quite new. | 0:05:57 | 0:06:01 | |
And so far, the results have been very disappointing. | 0:06:01 | 0:06:04 | |
It's ethically hard. There is no open trial for him. | 0:06:04 | 0:06:07 | |
The company won't give him compassionate use. | 0:06:07 | 0:06:10 | |
We're looking at self funding. | 0:06:10 | 0:06:11 | |
So he would have to self fund, he is well aware of this. | 0:06:11 | 0:06:14 | |
Poor chap. | 0:06:14 | 0:06:16 | |
I had another patient in clinic today explicitly say, | 0:06:16 | 0:06:19 | |
"I have some money, if there are extra things I can pay for, | 0:06:19 | 0:06:22 | |
"then I want to know about them." | 0:06:22 | 0:06:25 | |
And in that setting, you can't then not tell people about things, | 0:06:25 | 0:06:28 | |
cos that's clearly the wrong thing to do. | 0:06:28 | 0:06:31 | |
When I started in the NHS, | 0:06:31 | 0:06:36 | |
I never thought I would have to have conversations with patients | 0:06:36 | 0:06:38 | |
and ask them how wealthy they were. | 0:06:38 | 0:06:42 | |
That's the first set of immunology you're going to get and you'll | 0:06:42 | 0:06:46 | |
need three doses of that. | 0:06:46 | 0:06:48 | |
But it's actually going to be more like 6,000, I think, | 0:06:48 | 0:06:51 | |
because he's having a bit less of the drug. | 0:06:51 | 0:06:53 | |
So that'll be kind of 24,000 to start with. | 0:06:53 | 0:06:56 | |
If that doesn't work, we move onto these two drugs, | 0:06:56 | 0:06:59 | |
and that's ?31,840. | 0:06:59 | 0:07:02 | |
That's two immunology drugs that he might need, | 0:07:02 | 0:07:06 | |
and I don't know how many treatments he'll need of that. | 0:07:06 | 0:07:11 | |
You know, you live once. | 0:07:11 | 0:07:15 | |
Life is precious. And I do feel like I'm being asset stripped | 0:07:15 | 0:07:19 | |
for a cancer which is not my fault. | 0:07:19 | 0:07:23 | |
But by doing the immunology, it should, | 0:07:23 | 0:07:26 | |
touch wood, buy me more months. | 0:07:26 | 0:07:32 | |
If you go back 10 or 15 years, | 0:07:34 | 0:07:36 | |
the NHS essentially provided all the treatment that was available. | 0:07:36 | 0:07:40 | |
There is now a gap, particularly in terms of drugs, | 0:07:40 | 0:07:43 | |
where the NHS will not pay because funding is flat, | 0:07:43 | 0:07:47 | |
the demand is rising, | 0:07:47 | 0:07:49 | |
we're all looking at things we can stop doing. | 0:07:49 | 0:07:53 | |
And so that the gap between what is potentially available | 0:07:53 | 0:07:56 | |
and what the NHS will provide, is unfortunately going to get bigger. | 0:07:56 | 0:08:05 | |
Since the NHS was formed, consultants have had the right to do | 0:08:13 | 0:08:16 | |
private work in addition to their NHS responsibilities. | 0:08:16 | 0:08:21 | |
The NHS does encourage private practice because | 0:08:21 | 0:08:23 | |
they get revenue from it. | 0:08:23 | 0:08:25 | |
And all hospitals in the NHS have to look for their revenue. | 0:08:25 | 0:08:31 | |
To enable Imperial College Trust to benefit from private work, | 0:08:31 | 0:08:35 | |
each of its five hospitals has a private ward. | 0:08:35 | 0:08:41 | |
At Hammersmith Hospital, it's the Robert and Lisa Sainsbury Wing. | 0:08:41 | 0:08:46 | |
It's where private patients come. | 0:08:46 | 0:08:47 | |
Occasionally we use it for the NHS, | 0:08:47 | 0:08:49 | |
if we're short of beds on the NHS side. | 0:08:49 | 0:08:51 | |
They're all individual rooms with en suite bathrooms. | 0:08:51 | 0:08:54 | |
I feel like a salesman! | 0:08:54 | 0:08:58 | |
Today, cardiothoracic surgeon Rex Stanbridge | 0:08:58 | 0:09:01 | |
has one private patient on his operating list. | 0:09:01 | 0:09:04 | |
Nice bed. | 0:09:04 | 0:09:06 | |
You've got Sky Movies. | 0:09:06 | 0:09:09 | |
And Sky Sports, your favourite! Star treatment! | 0:09:09 | 0:09:13 | |
87-year-old Mary is having surgery to remove | 0:09:13 | 0:09:18 | |
a suspicious lump on her lung. | 0:09:18 | 0:09:20 | |
Oh, I can see the prison! | 0:09:20 | 0:09:22 | |
Look! | 0:09:22 | 0:09:24 | |
There! That's the highlight of Mum's visit to the hospital! | 0:09:24 | 0:09:27 | |
Yeah, it is. I've been to Scrubs! | 0:09:27 | 0:09:28 | |
It is a very attractive building, I think so anyway. | 0:09:28 | 0:09:31 | |
Right, I'll go and see her for the consent. 11. | 0:09:31 | 0:09:34 | |
Good morning. Good morning. | 0:09:34 | 0:09:37 | |
Right. OK. | 0:09:37 | 0:09:41 | |
As you know, they were following you and they found that you had a lump | 0:09:41 | 0:09:44 | |
in your lung, on the left side, | 0:09:44 | 0:09:46 | |
and that over a period of a few months, six months, I think, | 0:09:46 | 0:09:49 | |
that lump has grown. Yes. I hope you're going to take it out. | 0:09:49 | 0:09:53 | |
Yes. Well, we'll take out the cancer but also it's the upper lobe | 0:09:53 | 0:09:56 | |
of the lung that we may take out as well, | 0:09:56 | 0:09:58 | |
which is our gold standard procedure for lung cancer. | 0:09:58 | 0:10:02 | |
I know as you get a bit older people might argue, | 0:10:02 | 0:10:04 | |
"Why bother?" | 0:10:04 | 0:10:06 | |
SHE LAUGHS | 0:10:06 | 0:10:09 | |
However, I tend to like to think that it's not the age | 0:10:09 | 0:10:12 | |
from the cradle but the age from the grave that we're looking at. | 0:10:12 | 0:10:15 | |
Yeah! | 0:10:15 | 0:10:18 | |
Right, so this is the consent form for you. | 0:10:18 | 0:10:21 | |
Mum has medical insurance and she has this certain amount | 0:10:21 | 0:10:25 | |
of cancer care, so we've done... | 0:10:25 | 0:10:27 | |
all the scans and all the different tests | 0:10:27 | 0:10:30 | |
that she's had to have - we've done all that on the National Health. | 0:10:30 | 0:10:35 | |
Thank you very much. OK. Good luck! | 0:10:35 | 0:10:41 | |
And the only thing that she asked is after the operation that she has her | 0:10:41 | 0:10:45 | |
own room, so that's why she wanted to do that privately. | 0:10:45 | 0:10:47 | |
My husband, he's been dead 28 years so he set it up | 0:10:47 | 0:10:52 | |
and we've been paying ?800 per month. | 0:10:52 | 0:10:58 | |
I think I get a little more peace when you've got your own room. | 0:10:58 | 0:11:01 | |
You don't get people coming in and out and in and out, | 0:11:01 | 0:11:04 | |
and a nice, big window, blue sky. | 0:11:04 | 0:11:07 | |
INTERVIEWER: Do you feel like you've kind of earned it? | 0:11:07 | 0:11:11 | |
Well, I paid for it, let's put it that way! | 0:11:11 | 0:11:15 | |
Mr Stanbridge said he would do it on the same day whether she came in on | 0:11:15 | 0:11:19 | |
the NHS or she came in privately. | 0:11:19 | 0:11:21 | |
It would have been equally as fast from the diagnosis to now. | 0:11:21 | 0:11:25 | |
She pays a lot of money in every month | 0:11:25 | 0:11:28 | |
and doesn't get much out of it, | 0:11:28 | 0:11:30 | |
and she can have the same operation but in a slightly nicer environment. | 0:11:30 | 0:11:34 | |
They get a bit more personal care from the consultant. | 0:11:34 | 0:11:37 | |
I just wanted to check on the bloods on this patient. | 0:11:37 | 0:11:40 | |
Private one? Yeah. Lovely. | 0:11:40 | 0:11:44 | |
INTERVIEWER: If you have a procedure, would it be private? | 0:11:44 | 0:11:48 | |
I haven't got private insurance. | 0:11:48 | 0:11:52 | |
I don't know if I should have to start now, | 0:11:52 | 0:11:54 | |
but I believe it's very expensive. | 0:11:54 | 0:11:58 | |
Next to Hammersmith Hospital is... | 0:11:58 | 0:12:02 | |
It's the trust's centre of excellence | 0:12:03 | 0:12:06 | |
for gynaecological medicine. | 0:12:06 | 0:12:08 | |
Hello. They're ready for you to go to theatre now. | 0:12:08 | 0:12:10 | |
OK. | 0:12:10 | 0:12:13 | |
I'll walk down. We'll take a pillow with us as well. | 0:12:13 | 0:12:16 | |
44-year-old Nicky has ovarian cancer that's relapsed. | 0:12:16 | 0:12:21 | |
I've been given 6-12 months if I don't have any treatment. | 0:12:21 | 0:12:26 | |
In addition to her NHS care, Nicky's crowdfunding to raise money | 0:12:26 | 0:12:29 | |
for a cancer drug. | 0:12:29 | 0:12:34 | |
"My surgical team in Devon have only proposed chemo and I do not believe | 0:12:34 | 0:12:38 | |
"this is my only hope." | 0:12:38 | 0:12:41 | |
Don't be nervous, it's fine. I'm really nervous. | 0:12:41 | 0:12:43 | |
"So I've needed to find out if I can find any other treatment." | 0:12:43 | 0:12:46 | |
We're going to follow the blue corridor. | 0:12:46 | 0:12:49 | |
"I've done much research and the most immediate chance to live a bit | 0:12:49 | 0:12:52 | |
"longer is a large surgery plus ideally | 0:12:52 | 0:12:54 | |
"a new maintenance drug called Olaparib." | 0:12:54 | 0:12:57 | |
You're in good hands, OK? | 0:12:57 | 0:13:03 | |
It has to be paid for privately. | 0:13:03 | 0:13:06 | |
The cost is approximately ?4,000-5,000 a month. | 0:13:06 | 0:13:11 | |
I'm sort of fighting, fighting my corner as much as I can. | 0:13:11 | 0:13:15 | |
Are you all right? Yeah, I'm just really nervous. | 0:13:15 | 0:13:19 | |
At times, it's an uphill battle. | 0:13:19 | 0:13:22 | |
OK, I'm just going to flush your drip here. | 0:13:22 | 0:13:28 | |
No-one talks about the cost of cancer | 0:13:28 | 0:13:30 | |
and I'm determined to try and find a way to stay alive. | 0:13:30 | 0:13:38 | |
The NHS gives patients the right to choose their consultant. | 0:13:46 | 0:13:49 | |
When her cancer returned, Nicky sought a second opinion | 0:13:49 | 0:13:51 | |
from Christina Fotopoulou, | 0:13:51 | 0:13:55 | |
a renowned gynaecological cancer surgeon | 0:13:55 | 0:13:56 | |
who's at the forefront of new surgical techniques. | 0:13:56 | 0:14:01 | |
Nicky's initial diagnosis was a few years ago. | 0:14:01 | 0:14:04 | |
When she had this surgery back then | 0:14:04 | 0:14:07 | |
the ovaries and the tubes were removed. | 0:14:07 | 0:14:09 | |
So when ovarian cancer comes back, | 0:14:09 | 0:14:12 | |
it comes back on the skin inside the abdomen, it's called the peritoneum. | 0:14:12 | 0:14:16 | |
But you can see here, | 0:14:16 | 0:14:17 | |
all this is being covered by little lesions there | 0:14:17 | 0:14:20 | |
that are common to be there at relapse. | 0:14:20 | 0:14:25 | |
However, she has a larger tumour that goes a bit deeper | 0:14:25 | 0:14:29 | |
into the liver. | 0:14:29 | 0:14:30 | |
Good morning. | 0:14:30 | 0:14:31 | |
Christina will perform a radical operation to remove the cancer | 0:14:31 | 0:14:33 | |
that's spread to the lining of Nicky's abdomen and liver. | 0:14:33 | 0:14:37 | |
She's a young woman. We are doing everything in order | 0:14:37 | 0:14:40 | |
to try to prolong her life. | 0:14:40 | 0:14:46 | |
We know from retrospective data that overall survival | 0:14:46 | 0:14:49 | |
can be high if you can get the patient tumour free. | 0:14:49 | 0:14:52 | |
Whether we will be able to get her tumour free, | 0:14:52 | 0:14:55 | |
this is something that we can answer only during the operation. | 0:14:55 | 0:15:01 | |
OK, if you need anything, give us a call. Yeah, all right, thanks. | 0:15:01 | 0:15:05 | |
All right, take care. | 0:15:05 | 0:15:09 | |
Nicky was in remission for a year. | 0:15:09 | 0:15:10 | |
We had no sign of anything for 12 months | 0:15:10 | 0:15:13 | |
and I think probably we got a little bit complacent... | 0:15:13 | 0:15:17 | |
..until we got the second diagnosis. | 0:15:17 | 0:15:23 | |
It feels like your world's just collapsed again. | 0:15:23 | 0:15:28 | |
INTERVIEWER: Do you ever talk about the end? | 0:15:28 | 0:15:31 | |
No, we haven't done yet. | 0:15:31 | 0:15:33 | |
I know we'll have to at some point. | 0:15:33 | 0:15:36 | |
We know it's real, we know what's going to happen. | 0:15:36 | 0:15:38 | |
There's no reluctance to talk about it. | 0:15:38 | 0:15:41 | |
We will talk about it, I think, when the time comes. | 0:15:41 | 0:15:51 | |
Yeah, stick him on the end there, can't we? | 0:15:58 | 0:16:00 | |
Glendon, who wants to top up his NHS treatment | 0:16:00 | 0:16:03 | |
with a self-funded course of immunotherapy | 0:16:03 | 0:16:04 | |
is seeing Matt Williams in his NHS clinic. | 0:16:04 | 0:16:08 | |
This is... | 0:16:08 | 0:16:11 | |
..now post re-resection. | 0:16:11 | 0:16:15 | |
Glendon has already had two surgeries, | 0:16:15 | 0:16:16 | |
chemotherapy and radiotherapy | 0:16:16 | 0:16:18 | |
at hospitals in Preston and Liverpool. | 0:16:18 | 0:16:23 | |
He's obviously got that cavity but he's got this new tumour... | 0:16:23 | 0:16:30 | |
..which might benefit from some of that coming out. | 0:16:30 | 0:16:33 | |
I have another treatment which I am intending to give him | 0:16:33 | 0:16:36 | |
which he's come today to see me about, | 0:16:36 | 0:16:39 | |
but I think an operation first might be a good idea. | 0:16:39 | 0:16:42 | |
My only concern is this is then his third operation. | 0:16:42 | 0:16:44 | |
The main risk I would worry about in him would be | 0:16:44 | 0:16:48 | |
a paralysis on the left side. | 0:16:48 | 0:16:54 | |
What I'm looking for at the moment is obviously to stay alive. | 0:16:54 | 0:16:58 | |
I've got to kill it | 0:16:58 | 0:17:00 | |
and immunology, as far as I'm aware, | 0:17:00 | 0:17:02 | |
is the only chance I have of actually bringing | 0:17:02 | 0:17:06 | |
this nightmare to an end. | 0:17:06 | 0:17:10 | |
I think we are in a difficult place. | 0:17:10 | 0:17:13 | |
There's a significant amount of abnormal tumour | 0:17:13 | 0:17:17 | |
and we feel that if we're going to advance the case, then we should try | 0:17:17 | 0:17:22 | |
and remove as much of that to get as small a target as possible. | 0:17:22 | 0:17:27 | |
How do you feel about the idea...? | 0:17:27 | 0:17:30 | |
I'm fine because I haven't got really an option. | 0:17:30 | 0:17:33 | |
Is there anything else that you want to ask? | 0:17:33 | 0:17:37 | |
The main thing is can we do this so that I'm alive? | 0:17:37 | 0:17:40 | |
SHE LAUGHS Cos I don't want to die. | 0:17:40 | 0:17:42 | |
I don't want to do all this and die at the last hurdle, | 0:17:42 | 0:17:45 | |
that would be infuriating for me cos I've worked so bloody hard | 0:17:45 | 0:17:49 | |
to get to this stage. Sure. | 0:17:49 | 0:17:51 | |
I mean, it really has. | 0:17:51 | 0:17:53 | |
I mean, I've done... | 0:17:53 | 0:17:57 | |
..ten hours research every day since the day I've been diagnosed. | 0:17:57 | 0:18:03 | |
I will spend whatever it takes. | 0:18:03 | 0:18:06 | |
And I know this sounds daft - when I got diagnosed I thought, | 0:18:06 | 0:18:12 | |
"There can't be nothing in this day and age." So that's where I am. | 0:18:12 | 0:18:16 | |
Sorry, rant over. OK. That's all right. | 0:18:16 | 0:18:20 | |
I'll leave you with that audience and I'll see you next week. | 0:18:20 | 0:18:24 | |
Thank you very much. | 0:18:24 | 0:18:25 | |
The point of us offering you treatment to keep you alive | 0:18:25 | 0:18:29 | |
is so you can enjoy your life and spending your time till... | 0:18:29 | 0:18:32 | |
Spending your time till three in the morning | 0:18:32 | 0:18:34 | |
looking up brain tumour treatments... | 0:18:34 | 0:18:35 | |
Thank you so much. ..on the internet, | 0:18:35 | 0:18:37 | |
that's not much quality of life. | 0:18:37 | 0:18:43 | |
Do I know it! You've just made my life so much easier. | 0:18:43 | 0:18:46 | |
OK, but only if you go and spend your time | 0:18:46 | 0:18:48 | |
doing something more interesting. | 0:18:48 | 0:18:51 | |
Traditionally, you used to be able to say to patients, | 0:18:51 | 0:18:54 | |
"I think you should have treatment X | 0:18:54 | 0:18:56 | |
"and you will be having treatment X," and now there's the internet, | 0:18:56 | 0:18:59 | |
so it's much easier to see what is the standard treatment | 0:18:59 | 0:19:01 | |
for your disease in America, Germany, | 0:19:01 | 0:19:03 | |
Norway and our cancer survival rates | 0:19:03 | 0:19:07 | |
are worse than almost everywhere in Europe. | 0:19:07 | 0:19:10 | |
And how we deal with that as a profession, | 0:19:10 | 0:19:13 | |
how we deal with that as a society, is a difficult question. | 0:19:13 | 0:19:23 | |
Katie Urch is the divisional director | 0:19:26 | 0:19:28 | |
overseeing all cancer services for the trust. | 0:19:28 | 0:19:32 | |
INTERVIEWER: How does a drug get approval? | 0:19:32 | 0:19:34 | |
Usually a drug has been developed by a company | 0:19:34 | 0:19:39 | |
and gone through various clinical trial phases. | 0:19:39 | 0:19:41 | |
It is then put forward in this country for NICE approval. | 0:19:41 | 0:19:44 | |
NICE approval means it has been independently assessed | 0:19:44 | 0:19:48 | |
as having some degree of benefit. | 0:19:48 | 0:19:53 | |
NICE is the body responsible for deciding | 0:19:53 | 0:19:56 | |
which new treatments should be available on the NHS. | 0:19:56 | 0:20:01 | |
We are certainly in a golden era of more and more drugs available but | 0:20:01 | 0:20:04 | |
the amount of added life benefit perhaps is quite minimum. | 0:20:04 | 0:20:13 | |
And so the jury is still out on many of them, | 0:20:13 | 0:20:15 | |
of exactly what benefit we're going to see. | 0:20:15 | 0:20:22 | |
Christina is halfway through a two and a half hour operation to remove | 0:20:30 | 0:20:34 | |
cancerous tissue from Nicky's abdomen. | 0:20:34 | 0:20:39 | |
So the disease is stuck on the right urethra on the right pelvic vessels, | 0:20:39 | 0:20:44 | |
and on the right muscle that goes to the leg. | 0:20:44 | 0:20:47 | |
If you dissect it in the way it should be dissected, | 0:20:47 | 0:20:50 | |
then it easily comes off. | 0:20:50 | 0:20:54 | |
I'm stripping it away like you would strip away your gloves | 0:20:54 | 0:20:57 | |
or your tights. | 0:20:57 | 0:20:59 | |
In cancer medicine, for advanced stages, | 0:20:59 | 0:21:05 | |
we talk about prolongation of life, not about a cure. | 0:21:05 | 0:21:07 | |
If we only want to cure people, then we will have to treat | 0:21:07 | 0:21:10 | |
only patients with very early stages of favourable tumours | 0:21:10 | 0:21:13 | |
and let everybody else die. | 0:21:13 | 0:21:16 | |
That's not possible and that's not ethical to do that. | 0:21:16 | 0:21:26 | |
INTERVIEWER: What would have happened if you guys | 0:21:26 | 0:21:27 | |
had stayed back in Devon? | 0:21:27 | 0:21:31 | |
We probably would have started chemotherapy this coming Thursday. | 0:21:31 | 0:21:39 | |
They offered us just chemotherapy, | 0:21:39 | 0:21:40 | |
they didn't think surgery was indicated | 0:21:40 | 0:21:41 | |
and that's why we thought we'd look around | 0:21:41 | 0:21:43 | |
just to make sure that what we were being offered was the right thing. | 0:21:43 | 0:21:52 | |
But each trust has its own rules and they do vary quite dramatically. | 0:21:52 | 0:21:57 | |
The specialists here just finished a research project | 0:21:57 | 0:21:59 | |
that your chances of living longer are higher | 0:21:59 | 0:22:01 | |
if you have surgery before your second set of chemo | 0:22:01 | 0:22:03 | |
rather than just chemo on its own. | 0:22:03 | 0:22:05 | |
Queen Charlotte's and Chelsea offers specialist surgical treatment not | 0:22:05 | 0:22:07 | |
available at most local hospitals. | 0:22:07 | 0:22:10 | |
Around a third of their gynaecological cancer patients | 0:22:10 | 0:22:12 | |
are from outside London. | 0:22:12 | 0:22:17 | |
INTERVIEWER: My understanding is there's drug that could | 0:22:17 | 0:22:19 | |
prolong life expectancy. | 0:22:19 | 0:22:23 | |
As far as I know it's a maintenance drug. | 0:22:23 | 0:22:26 | |
It's something to do with altering the replication of the cancer's gene | 0:22:26 | 0:22:30 | |
and it's supposed to increase the length of time before it comes back. | 0:22:30 | 0:22:35 | |
It doesn't treat the cancer, | 0:22:35 | 0:22:37 | |
it just tries to maintain the situation as it is. | 0:22:37 | 0:22:39 | |
That's the drug that we're hoping to go on in the autumn. | 0:22:39 | 0:22:43 | |
INTERVIEWER: Is this available on the NHS? Yeah, it is after a third | 0:22:43 | 0:22:46 | |
session of chemotherapy so your cancer has got | 0:22:46 | 0:22:49 | |
to come back two times after the first one for you to qualify under, | 0:22:49 | 0:22:53 | |
I think, current NICE guidelines. | 0:22:53 | 0:22:56 | |
It doesn't seem fair. It's available after two sessions of chemotherapy | 0:22:56 | 0:23:02 | |
in some countries in Europe and they've had some success | 0:23:02 | 0:23:09 | |
with it in France and Germany, I think. | 0:23:09 | 0:23:16 | |
Patients will come to you in the clinic and they have read many | 0:23:16 | 0:23:19 | |
things about new drugs. Often they will tell you, | 0:23:19 | 0:23:21 | |
"Why can't I have this?" | 0:23:21 | 0:23:22 | |
So we're finished. | 0:23:22 | 0:23:23 | |
We have to be cost-effective but we also have to balance | 0:23:23 | 0:23:26 | |
very carefully the benefits for the patient. | 0:23:26 | 0:23:27 | |
If we give all this money for a new drug for a few months longer, | 0:23:27 | 0:23:31 | |
we have to take this money from patients in screening programmes, | 0:23:31 | 0:23:34 | |
in early detection of disease that can be cured. | 0:23:34 | 0:23:36 | |
So, it's tricky. | 0:23:36 | 0:23:46 | |
Hey. | 0:23:46 | 0:23:47 | |
Perfect. Really? Perfect. | 0:23:47 | 0:23:53 | |
Everything as expected, no problems, she's tumour free and fine. | 0:23:53 | 0:24:00 | |
So well done. OK? It's all good. Thanks very much. | 0:24:00 | 0:24:03 | |
Some disease on the pelvic sidewall, | 0:24:03 | 0:24:04 | |
some disease on the liver but on the liver, not inside the liver. OK. | 0:24:04 | 0:24:07 | |
Some disease on the diaphragm, like we discussed. Yeah. | 0:24:07 | 0:24:09 | |
That's that. Thank you, Christina. It's all fine. Thank you. | 0:24:09 | 0:24:13 | |
By the sounds of things, it couldn't have gone any better. | 0:24:13 | 0:24:16 | |
There was nothing unexpected there | 0:24:16 | 0:24:18 | |
and she managed to get everything out, which is fantastic. | 0:24:18 | 0:24:26 | |
You hope for that in the beginning but you don't want to hope too much | 0:24:26 | 0:24:29 | |
in case it doesn't happen. | 0:24:29 | 0:24:39 | |
All the best. Take care. | 0:24:42 | 0:24:50 | |
She said you'd be sitting up tomorrow. | 0:24:58 | 0:25:04 | |
INTERVIEWER: Do you ever feel you're being held to ransom? | 0:25:05 | 0:25:07 | |
Held to ransom in that I can't give the drugs that we want to give. | 0:25:07 | 0:25:12 | |
I think we have, in our health service, | 0:25:12 | 0:25:17 | |
an amazing access to drugs and to new therapies, | 0:25:17 | 0:25:20 | |
new surgical techniques. | 0:25:20 | 0:25:23 | |
But there is a balance of which drugs, | 0:25:23 | 0:25:26 | |
which interventions we fund and which we don't. | 0:25:26 | 0:25:30 | |
And every single economy will struggle. | 0:25:30 | 0:25:33 | |
We struggle and come up with a certain answer. | 0:25:33 | 0:25:36 | |
If you're in Europe, you would come up with a different answer. | 0:25:36 | 0:25:39 | |
In America, you'd come up with an answer based on what you can afford, | 0:25:39 | 0:25:42 | |
rather than what you need. | 0:25:42 | 0:25:43 | |
I don't think there is a perfect solution. | 0:25:43 | 0:25:47 | |
I think it's a very difficult balancing across a whole population. | 0:25:47 | 0:25:53 | |
Bye. Good luck. Thank you. See you. See you later. | 0:25:55 | 0:25:59 | |
87-year-old private patient Mary is called to theatre. | 0:25:59 | 0:26:03 | |
It's no good feeling all worried and uptight and stuff like that. | 0:26:03 | 0:26:08 | |
If it goes wrong, well, I've had a good life. | 0:26:08 | 0:26:15 | |
The hospital will recoup the cost of Mary's operation | 0:26:15 | 0:26:18 | |
and stay in hospital from her insurance company. | 0:26:18 | 0:26:22 | |
Nice big breath for me. A nice big breath. | 0:26:22 | 0:26:25 | |
On average, the trust charges a third more | 0:26:25 | 0:26:27 | |
for private work than the NHS tariff for equivalent treatment. | 0:26:27 | 0:26:31 | |
INTERVIEWER: Do you think the public view private work differently? | 0:26:31 | 0:26:34 | |
Yes. They do have misconceptions. | 0:26:34 | 0:26:36 | |
What's the most common? | 0:26:36 | 0:26:40 | |
The most common one is, | 0:26:40 | 0:26:42 | |
"Oh, he's in Harley Street, he must be the best." | 0:26:42 | 0:26:47 | |
This may be true and it may not be true. | 0:26:47 | 0:26:52 | |
Are there cowboys there? | 0:26:52 | 0:26:55 | |
Let's just say that not everything that goes on in Harley Street | 0:26:55 | 0:27:00 | |
is wonderful. | 0:27:00 | 0:27:01 | |
Private work is largely carried in NHS operating theatres | 0:27:01 | 0:27:04 | |
with an NHS surgical team. | 0:27:04 | 0:27:07 | |
Only the anaesthetist and surgeon are being paid separately | 0:27:07 | 0:27:09 | |
by the insurance company. | 0:27:09 | 0:27:13 | |
She's a relatively fit woman, actually. | 0:27:13 | 0:27:15 | |
She's a lifelong smoker. Does that change anything? | 0:27:15 | 0:27:18 | |
No, it doesn't change anything at all. No. | 0:27:18 | 0:27:21 | |
Would the NHS still choose to operate on somebody...? | 0:27:21 | 0:27:23 | |
Yes. Yes. Do you think it should? | 0:27:23 | 0:27:27 | |
Yes. Yes, definitely. Yes. | 0:27:27 | 0:27:35 | |
Flying over the enemy lines. | 0:27:35 | 0:27:41 | |
I'll take a knife to this and then I'll come back | 0:27:41 | 0:27:45 | |
and put the camera in. | 0:27:45 | 0:27:46 | |
Black is soot and it's a sign of smoking, | 0:27:46 | 0:27:49 | |
it's a sign of pollution in the air from all the motor vehicles we use. | 0:27:49 | 0:27:53 | |
She's got a mass on her lung. | 0:27:53 | 0:27:54 | |
A mass has been growing for six months | 0:27:54 | 0:27:58 | |
and is highly suspicious of a cancer, | 0:27:58 | 0:28:00 | |
but we haven't proven it is cancer yet. | 0:28:00 | 0:28:05 | |
This bag just pops the specimen in. | 0:28:05 | 0:28:09 | |
So we're going to do that by taking a segment of the lung. | 0:28:09 | 0:28:14 | |
Pop one wedge into the bag. | 0:28:14 | 0:28:17 | |
Sending it off to the laboratory. | 0:28:17 | 0:28:21 | |
And they'll give us a phone call back | 0:28:21 | 0:28:23 | |
to tell us what they think it is. | 0:28:23 | 0:28:28 | |
If it is cancer, we take out the upper lobe of the lung. | 0:28:28 | 0:28:31 | |
PHONE RINGS | 0:28:31 | 0:28:32 | |
Hello, Stanbridge here. | 0:28:32 | 0:28:37 | |
That's fine. Thank you very much. | 0:28:37 | 0:28:38 | |
And we have a result. | 0:28:38 | 0:28:40 | |
It's a non-small cell carcinoma, | 0:28:40 | 0:28:41 | |
so the biopsy is positive and malignant. | 0:28:41 | 0:28:44 | |
INTERVIEWER: How important do you think private work | 0:28:44 | 0:28:46 | |
is for the future of the NHS? | 0:28:46 | 0:28:48 | |
The NHS is making some money out of it. | 0:28:48 | 0:28:51 | |
A big bag and then we're going to take the specimen out. | 0:28:51 | 0:28:54 | |
And that helps to keep them going, | 0:28:54 | 0:28:56 | |
because they need all the funds they can get. | 0:28:56 | 0:28:59 | |
England is lucky, it's the only country that does have an NHS | 0:28:59 | 0:29:01 | |
quite like it is. | 0:29:01 | 0:29:04 | |
But it's not funded properly. | 0:29:04 | 0:29:06 | |
It's underfunded. | 0:29:06 | 0:29:09 | |
So we could do a lot more with a lot better equipment, | 0:29:09 | 0:29:12 | |
a lot more stuff, if it had more funding. | 0:29:12 | 0:29:20 | |
My headlight batteries have died, so that means I have to leave. | 0:29:20 | 0:29:25 | |
The team are going to close up. | 0:29:25 | 0:29:27 | |
INTERVIEWER: Can I ask a cheeky question? | 0:29:27 | 0:29:28 | |
How different is your invoice for this | 0:29:28 | 0:29:30 | |
compared to if it was on the NHS? Not silly money. | 0:29:30 | 0:29:34 | |
For two or three hours private operating... | 0:29:34 | 0:29:38 | |
..seeing the patient for 15 minutes every day... | 0:29:38 | 0:29:42 | |
..I don't know what you think it should be. | 0:29:42 | 0:29:44 | |
Do you want me to throw a figure out? Throw a figure out. | 0:29:44 | 0:29:49 | |
?1,000. Yup, well, it's not far off. | 0:29:49 | 0:29:52 | |
It's a little more than that. But it's less than two. | 0:29:52 | 0:29:57 | |
Hello. Hello. | 0:30:00 | 0:30:01 | |
It's all over, the operation. | 0:30:01 | 0:30:02 | |
It's good. OK. OK, do you want to sit down? | 0:30:02 | 0:30:05 | |
It's fine. Sure, sure. It's easier, you don't have to stand up. | 0:30:05 | 0:30:08 | |
All right. | 0:30:08 | 0:30:11 | |
She's OK. The result was that the frozen section that we did the wedge | 0:30:11 | 0:30:16 | |
showed that she had cancer, which wasn't a big surprise. | 0:30:16 | 0:30:20 | |
No. So I proceeded to do the full lobectomy. | 0:30:20 | 0:30:25 | |
It's all out. And I'm sure she won't need further treatment for it, | 0:30:25 | 0:30:29 | |
and I'm sure that's a relief. | 0:30:29 | 0:30:33 | |
Thank you. Thank you very much. Thank you. | 0:30:33 | 0:30:36 | |
Thanks. Thank you. | 0:30:36 | 0:30:44 | |
She's OK. | 0:30:44 | 0:30:49 | |
God, she's tough! | 0:30:49 | 0:30:53 | |
I'm sure they were quite nervous that they'd done the right thing | 0:30:53 | 0:30:58 | |
because she's elderly and it's their mum | 0:30:58 | 0:31:01 | |
and they've helped to advise her. | 0:31:01 | 0:31:07 | |
Is she asking anything? Yeah, no, she's speaking, yeah. | 0:31:07 | 0:31:09 | |
She's awake. Yes. | 0:31:09 | 0:31:10 | |
Does she want to know what's happened? | 0:31:10 | 0:31:12 | |
I don't know if she'd be that awake. | 0:31:12 | 0:31:14 | |
You can ask her. | 0:31:14 | 0:31:20 | |
Hello. | 0:31:20 | 0:31:22 | |
Good - everything's good. The operation's done, all right? | 0:31:22 | 0:31:29 | |
Just relax and we'll just look after you for the next day or two. | 0:31:29 | 0:31:35 | |
Good. | 0:31:35 | 0:31:43 | |
Mary will spend up to 24 hours | 0:31:46 | 0:31:49 | |
recovering in the hospital's cardiac intensive care unit. | 0:31:49 | 0:31:54 | |
INTERVIEWER: The people with cancer who have private health care, | 0:31:54 | 0:31:58 | |
do they live longer? I've absolutely no information on that. | 0:31:58 | 0:32:04 | |
In private care, I don't think you can buy life. | 0:32:04 | 0:32:10 | |
Welcome, everyone. | 0:32:14 | 0:32:15 | |
So let's move on to the first item on the agenda, | 0:32:15 | 0:32:18 | |
which is the income report. | 0:32:18 | 0:32:20 | |
In the five years from 2010 to 2015, | 0:32:20 | 0:32:23 | |
the trust's income from private work increased by 40% - | 0:32:23 | 0:32:26 | |
from ?31 million to ?43 million. | 0:32:26 | 0:32:31 | |
So April, the first month of the new year, | 0:32:31 | 0:32:35 | |
was actually a pretty good month for us again. | 0:32:35 | 0:32:37 | |
So it followed the strong trend of the last three or four months. | 0:32:37 | 0:32:40 | |
I think, in terms of highlights, | 0:32:40 | 0:32:42 | |
our cancer business continued to show strong growth. | 0:32:42 | 0:32:45 | |
If you can grow more private patient income, | 0:32:45 | 0:32:47 | |
that will actually help out with the | 0:32:47 | 0:32:50 | |
rest of the national health business. | 0:32:50 | 0:32:53 | |
There's a lot of enthusiasm for working closer with you and finding | 0:32:53 | 0:32:56 | |
the growth. I think there's a bigger understanding of how private works | 0:32:56 | 0:32:58 | |
in the trust - that we need to get those very clear messages going on. | 0:32:58 | 0:33:03 | |
INTERVIEWER: Are there any downsides to doing private work? | 0:33:03 | 0:33:06 | |
I think people think that we make more compromises | 0:33:06 | 0:33:08 | |
than we actually do. | 0:33:08 | 0:33:11 | |
We know that it doesn't compromise our NHS care, but, nonetheless, | 0:33:11 | 0:33:17 | |
it's very easy to write a story that says because there's money in there, | 0:33:17 | 0:33:20 | |
because the NHS needs money, | 0:33:20 | 0:33:21 | |
surely they must be disadvantaging NHS patients in some way, | 0:33:21 | 0:33:24 | |
whereas the truth is that the money | 0:33:24 | 0:33:26 | |
does flow back in to NHS patient care. | 0:33:26 | 0:33:29 | |
And the proposal is to kind of take that income and directly allocate | 0:33:29 | 0:33:32 | |
it down to divisional positions. | 0:33:32 | 0:33:34 | |
Is it possible to say what percentage goes back to NHS? | 0:33:34 | 0:33:38 | |
All of it. It doesn't go anywhere else. | 0:33:38 | 0:33:41 | |
It could go into private facilities. | 0:33:41 | 0:33:44 | |
It doesn't in our case, cos we own all the facilities. | 0:33:44 | 0:33:48 | |
We need all of the things to be flying... | 0:33:48 | 0:33:51 | |
..and I think we need to just keep doing what we're doing. | 0:33:51 | 0:33:57 | |
We have a financial deficit of 41 million, | 0:33:57 | 0:33:59 | |
so if we can make money treating private patients, | 0:33:59 | 0:34:02 | |
then it's better that we address our deficit that way than that we have | 0:34:02 | 0:34:05 | |
to cut back on NHS services, which, to be honest, | 0:34:05 | 0:34:08 | |
is the only other way we can address the deficit. | 0:34:08 | 0:34:11 | |
OK. Great. Keep up the good work. | 0:34:11 | 0:34:14 | |
We've got to get smarter, we've got get more efficient | 0:34:14 | 0:34:16 | |
and we've got to do the best with the money we've got. | 0:34:16 | 0:34:19 | |
I don't think that's a particularly difficult argument. | 0:34:19 | 0:34:21 | |
I think it's reasonably well understood, | 0:34:21 | 0:34:23 | |
it's just not very popular. | 0:34:23 | 0:34:30 | |
Another five big deep breaths, there, for me. | 0:34:30 | 0:34:32 | |
You're doing really well. | 0:34:32 | 0:34:36 | |
Starting to feel a little bit woozy. | 0:34:36 | 0:34:39 | |
Glendon's undergoing three hours of brain surgery on the NHS to remove | 0:34:39 | 0:34:43 | |
as much tumour as possible. | 0:34:43 | 0:34:44 | |
Wow, wow, wow... | 0:34:44 | 0:34:47 | |
Just getting off to sleep now. OK. | 0:34:47 | 0:34:49 | |
Drifting off to sleep. | 0:34:49 | 0:34:52 | |
The operation carries a risk of paralysis on his left-hand side. | 0:34:52 | 0:34:57 | |
OK to start. | 0:34:57 | 0:35:00 | |
Thank you. | 0:35:00 | 0:35:01 | |
That's the skull. He's had a previous opening here. | 0:35:01 | 0:35:04 | |
The opening, the craniotomy, | 0:35:04 | 0:35:06 | |
has been secured with metal screws and plates. | 0:35:06 | 0:35:11 | |
Elevate this. | 0:35:11 | 0:35:14 | |
And we have plainly abnormal tissue under here. | 0:35:14 | 0:35:18 | |
I suspect this will be part of the tumour, this grey, | 0:35:18 | 0:35:22 | |
jelly-like substance here. | 0:35:22 | 0:35:28 | |
Sometimes they're terribly soft and it would be like resecting | 0:35:28 | 0:35:32 | |
creme brulee. But, um... | 0:35:32 | 0:35:35 | |
in this case, as you can see, as we grab the tumour, it's very firm. | 0:35:35 | 0:35:39 | |
It's like almost a hard lychee, or a rock-hard kiwi fruit. | 0:35:39 | 0:35:49 | |
This tumour would be about the size of a tangerine. | 0:35:49 | 0:35:52 | |
It's almost five centimetres across. | 0:35:52 | 0:36:02 | |
When was that? That was... I think that was about four years ago. | 0:36:03 | 0:36:07 | |
Yeah. | 0:36:07 | 0:36:10 | |
Hm! That's the same time. | 0:36:10 | 0:36:15 | |
We went to Cambodia and Vietnam. | 0:36:15 | 0:36:17 | |
We were planning on doing lots more travelling. | 0:36:17 | 0:36:18 | |
We used to walk quite a bit, as well. | 0:36:18 | 0:36:21 | |
Just a picture walking, there. | 0:36:21 | 0:36:23 | |
How did you meet? Through a friend, actually, that I worked with. | 0:36:23 | 0:36:26 | |
Yeah. | 0:36:26 | 0:36:27 | |
She introduced us. She actually did a reading at the wedding, | 0:36:27 | 0:36:30 | |
which was really nice. | 0:36:30 | 0:36:33 | |
Glen hates all these wedding pictures. | 0:36:33 | 0:36:35 | |
He says he looks awful on them. | 0:36:35 | 0:36:37 | |
To be fair, he's probably ill, though, | 0:36:37 | 0:36:39 | |
because that was only six weeks, | 0:36:39 | 0:36:40 | |
probably, before he had his seizure. | 0:36:40 | 0:36:42 | |
Do you feel like he's changed? | 0:36:42 | 0:36:45 | |
Yeah. I mean, he's totally different. | 0:36:45 | 0:36:47 | |
He'd gone manic, at one point, and he was quite aggressive. | 0:36:47 | 0:36:51 | |
Literally, I'd have to walk ten paces behind, | 0:36:51 | 0:36:53 | |
that kind of attitude! | 0:36:53 | 0:36:56 | |
Sometimes I used to get a bit annoyed at him because I thought, | 0:36:56 | 0:36:59 | |
"Well, you wouldn't be like that beforehand." | 0:36:59 | 0:37:02 | |
And even when he's like in surgery now, it's kind of, | 0:37:02 | 0:37:05 | |
"Is he going to come back the same person?" | 0:37:05 | 0:37:08 | |
And, yeah... It's bad enough, like | 0:37:08 | 0:37:10 | |
you say, that he's got this prognosis. | 0:37:10 | 0:37:12 | |
I might lose him at some point, but I might lose him before I lose him. | 0:37:12 | 0:37:15 | |
And to be fair, I've lost some of him already. | 0:37:15 | 0:37:18 | |
That is distressing. | 0:37:18 | 0:37:26 | |
On the angle. | 0:37:26 | 0:37:32 | |
First day. | 0:37:35 | 0:37:38 | |
Three days after surgery, | 0:37:38 | 0:37:40 | |
Mary is recovering in her private room. | 0:37:40 | 0:37:45 | |
I'm grateful that I can have a private room and top-hole surgeons. | 0:37:45 | 0:37:55 | |
I think the kids felt, "Is she going to come out of the operation?" | 0:37:55 | 0:37:59 | |
You know, because I'm old. | 0:37:59 | 0:38:02 | |
I have a lot of confidence... | 0:38:02 | 0:38:06 | |
..thankfully, and I didn't think of dying at all. | 0:38:06 | 0:38:11 | |
I thought, "No, I'll survive." | 0:38:11 | 0:38:19 | |
INTERVIEWER: So how come you're in on a bank holiday? | 0:38:19 | 0:38:21 | |
She's a valued patient and I'm taking a special interest in her, | 0:38:21 | 0:38:24 | |
so I thought I'd come in and see her. | 0:38:24 | 0:38:26 | |
Hello, good morning, Mary. | 0:38:26 | 0:38:28 | |
How are you? Fresh out the shower. | 0:38:28 | 0:38:30 | |
Fresh out the shower. Fresh and lovely. | 0:38:30 | 0:38:32 | |
That's fine. | 0:38:32 | 0:38:35 | |
Is that different than if she was an NHS patient? | 0:38:35 | 0:38:38 | |
Probably. | 0:38:38 | 0:38:40 | |
Good. Did you have a good night? Very good, thank you. | 0:38:40 | 0:38:43 | |
Excellent. Excellent. | 0:38:43 | 0:38:45 | |
I come in because she is a private patient and I come to see her | 0:38:45 | 0:38:48 | |
and I think that's basic practice for private | 0:38:48 | 0:38:50 | |
to come and see your patients every day, | 0:38:50 | 0:38:52 | |
if you possibly can - if it's reasonable. | 0:38:52 | 0:38:54 | |
And the traffic is much lighter on a bank holiday! | 0:38:54 | 0:38:58 | |
I see you've done all the Sudokus and everything. | 0:38:58 | 0:39:01 | |
Oh, yeah. That's pretty good, isn't it? | 0:39:01 | 0:39:03 | |
I enjoy it. | 0:39:03 | 0:39:05 | |
Yeah, it means, you know... | 0:39:05 | 0:39:07 | |
Brainpower. Keeps the brain ticking. | 0:39:07 | 0:39:08 | |
Keeps the brain going. Yes, that's important. | 0:39:08 | 0:39:09 | |
Yeah, it is. Fine. | 0:39:09 | 0:39:12 | |
Well, I'll see you again in two weeks. | 0:39:12 | 0:39:14 | |
A couple of weeks. Yes. That's right. | 0:39:14 | 0:39:16 | |
Good. Well, thanks again. | 0:39:16 | 0:39:19 | |
Very good. Thank you. | 0:39:19 | 0:39:20 | |
Right, thank you very much. So, how's Mary? | 0:39:20 | 0:39:22 | |
I think she's ready for discharge. | 0:39:22 | 0:39:24 | |
Overall, I think she's done spectacularly well. | 0:39:24 | 0:39:27 | |
What do you think of Rex? | 0:39:27 | 0:39:28 | |
I think he's great. Yeah. | 0:39:28 | 0:39:31 | |
I told him I loved him yesterday. | 0:39:31 | 0:39:34 | |
What did he say? He didn't say anything. | 0:39:34 | 0:39:37 | |
He's too shy, I think. | 0:39:37 | 0:39:43 | |
Look at you. Treated like a queen. | 0:39:43 | 0:39:47 | |
The trust's total revenue turnover is about a billion. | 0:39:47 | 0:39:51 | |
The Imperial Private Healthcare | 0:39:51 | 0:39:52 | |
part of the business is about 50 million. | 0:39:52 | 0:39:55 | |
So we're currently about 5%. | 0:39:55 | 0:39:59 | |
See, the sun's shining for me. | 0:39:59 | 0:40:01 | |
We're an NHS Trust. | 0:40:01 | 0:40:03 | |
The priority goes on the NHS patients. | 0:40:03 | 0:40:05 | |
But with the big deficits that the trust faces, | 0:40:05 | 0:40:08 | |
I think our chief financial officer would like me to double the size of | 0:40:08 | 0:40:12 | |
the business and that may well be possible over time. | 0:40:12 | 0:40:21 | |
Glen, the operation is all finished now. | 0:40:25 | 0:40:28 | |
You can start breathing. | 0:40:28 | 0:40:30 | |
Deep breaths, in and out. | 0:40:30 | 0:40:33 | |
That's it. Well done. | 0:40:33 | 0:40:36 | |
We are entering a phase of cancer survivorship where people have been | 0:40:36 | 0:40:40 | |
treated and have emerged out the other end, | 0:40:40 | 0:40:43 | |
that there will be people like this who are having ongoing treatment and | 0:40:43 | 0:40:46 | |
you're still scanning them, | 0:40:46 | 0:40:49 | |
operating on them and involving health costs. | 0:40:49 | 0:40:53 | |
You then become a victim of your own success. | 0:40:53 | 0:41:01 | |
Where's Kate? | 0:41:01 | 0:41:07 | |
Glen? Here, darling. Hi. Hello, hi. | 0:41:07 | 0:41:11 | |
Hello, sweetie. | 0:41:11 | 0:41:15 | |
How are you? I'm fine. | 0:41:15 | 0:41:16 | |
It was just a bog-standard one. | 0:41:16 | 0:41:17 | |
Was it? Give me a kiss. | 0:41:17 | 0:41:20 | |
There you are, sweetie. | 0:41:20 | 0:41:21 | |
Good job on you. | 0:41:21 | 0:41:24 | |
Yeah. You can still move all your left side. | 0:41:24 | 0:41:29 | |
That looks good. Yeah. Yeah. | 0:41:29 | 0:41:33 | |
No deficit at all... by the looks of it. | 0:41:33 | 0:41:40 | |
Hello. Hello. | 0:41:40 | 0:41:44 | |
When I set out to do the operation, I was aiming for 90% removal. | 0:41:44 | 0:41:48 | |
Brilliant. I think we did more than that. | 0:41:48 | 0:41:52 | |
Oh, thank you so much! | 0:41:52 | 0:41:55 | |
You're a genius. Look at this. | 0:41:55 | 0:41:58 | |
No, I'm not a genius. | 0:41:58 | 0:41:59 | |
You've done brilliantly. | 0:41:59 | 0:42:00 | |
You're my hero. | 0:42:00 | 0:42:02 | |
Because it means that I can start living my life again. | 0:42:02 | 0:42:05 | |
And that's what I haven't been able to do for a year. | 0:42:05 | 0:42:08 | |
And if Dr Williams is happy, that will be the cherry on the cake. | 0:42:08 | 0:42:12 | |
He's the immunologist. | 0:42:12 | 0:42:14 | |
Yes. And he says, "Right, yeah, | 0:42:14 | 0:42:17 | |
"we've got enough to crack on with the treatment." | 0:42:17 | 0:42:19 | |
I'm happy. I'm the one who's paying all the money for this. Sure. | 0:42:19 | 0:42:22 | |
Under the trust's self-pay guidelines, | 0:42:22 | 0:42:25 | |
patients topping up their care with drugs not available on the NHS are | 0:42:25 | 0:42:29 | |
only charged the wholesale cost and a fee to administer them. | 0:42:29 | 0:42:33 | |
The NHS, quite rightly, will pay for treatments which are evidence-based. | 0:42:33 | 0:42:36 | |
But there are some patients who want to go beyond that and you could say, | 0:42:36 | 0:42:44 | |
"Well, they shouldn't be having non-evidence-based treatments." | 0:42:44 | 0:42:46 | |
Well, maybe the evidence is there, but it is not of the best quality. | 0:42:46 | 0:42:50 | |
Thank you. Bye. | 0:42:50 | 0:42:52 | |
Fortunately, I'm not sitting the other side of the desk with | 0:42:52 | 0:42:57 | |
a potentially life-threatening tumour | 0:42:57 | 0:42:59 | |
and what would want one do if it was yourself? | 0:42:59 | 0:43:01 | |
So you're ready for a cup of tea? | 0:43:01 | 0:43:04 | |
Coffee. Coffee? | 0:43:04 | 0:43:06 | |
All right. Cappuccino. | 0:43:06 | 0:43:08 | |
That'll have to do. | 0:43:08 | 0:43:10 | |
Be grateful. Say thank you. | 0:43:10 | 0:43:11 | |
If he was very quiet, I'd be worried. | 0:43:11 | 0:43:15 | |
Last time, you pretended I was your sister. | 0:43:15 | 0:43:18 | |
Who are you, anyway? | 0:43:18 | 0:43:20 | |
Yeah, don't start that again! | 0:43:20 | 0:43:22 | |
I'm glad you didn't play that trick this time. | 0:43:22 | 0:43:27 | |
Is there any more water? | 0:43:27 | 0:43:31 | |
My mouth's as dry as a badger's arse. | 0:43:31 | 0:43:41 | |
My mother passed away from ovarian cancer about 18 years ago... | 0:43:53 | 0:43:58 | |
..so I've known about ovarian cancer for a long time. | 0:43:58 | 0:44:06 | |
It was really devastating. | 0:44:06 | 0:44:07 | |
My mother was an amazing woman | 0:44:07 | 0:44:09 | |
and she suffered terribly through her illness. | 0:44:09 | 0:44:11 | |
And I was very fearful when I was first told, | 0:44:11 | 0:44:15 | |
because in my mind I'd seen someone | 0:44:15 | 0:44:17 | |
that I was close to go through the same thing. | 0:44:17 | 0:44:21 | |
Nicky is waiting to be discharged. | 0:44:21 | 0:44:23 | |
In six weeks, she'll start the standard NHS course of chemotherapy | 0:44:23 | 0:44:26 | |
at her local hospital in Devon. | 0:44:26 | 0:44:31 | |
Good morning. Good morning, Christina. | 0:44:31 | 0:44:34 | |
How are you? You look good. | 0:44:34 | 0:44:36 | |
So, we discussed yesterday that I'm happy that you go home today. | 0:44:36 | 0:44:39 | |
How have things been yesterday? | 0:44:39 | 0:44:40 | |
Better? Yeah, I have some good days and some not so good days, | 0:44:40 | 0:44:44 | |
but then I think from Sunday, things got better. | 0:44:44 | 0:44:46 | |
Excellent. I'm happy that you drink some coffee, | 0:44:46 | 0:44:49 | |
that you start eating normally, normal things. | 0:44:49 | 0:44:53 | |
Avoid things that could bloat you. | 0:44:53 | 0:44:55 | |
Any questions or anything? | 0:44:55 | 0:44:56 | |
I don't think so. Maybe just... | 0:44:56 | 0:44:58 | |
Do you have any idea when I could possibly drive and get back up and | 0:44:58 | 0:45:02 | |
running again? Yes. What are you doing again? | 0:45:02 | 0:45:04 | |
I work with horses. Don't do that. | 0:45:04 | 0:45:06 | |
OK. I'll wait a little while longer. | 0:45:06 | 0:45:12 | |
Wait until six weeks, please. All right. You're very good. | 0:45:12 | 0:45:14 | |
I'm very proud of you. OK? Thank you. | 0:45:14 | 0:45:16 | |
Thanks, Christina. See you on the 8th. OK. | 0:45:16 | 0:45:18 | |
Bye-bye. Bye-bye. Thank you. | 0:45:18 | 0:45:23 | |
Hey. Hi. | 0:45:23 | 0:45:24 | |
Hey, chicken. Hello. | 0:45:24 | 0:45:27 | |
I've checked out of the apartment. | 0:45:27 | 0:45:31 | |
Put my ring back on. How long has it been since you were able to wear | 0:45:31 | 0:45:35 | |
your engagement ring? | 0:45:35 | 0:45:36 | |
About a week. About a week, yes. | 0:45:36 | 0:45:38 | |
It's been really hard, cos it feels really strange without it. | 0:45:38 | 0:45:41 | |
It is just your fingers swell up, | 0:45:41 | 0:45:42 | |
because of the amount of fluid that they pump into you. | 0:45:42 | 0:45:45 | |
It feels fantastic to have it back on again. | 0:45:45 | 0:45:47 | |
It was ?7 short of 11 grand. | 0:45:47 | 0:45:49 | |
No way. Yes. Amazing. | 0:45:49 | 0:45:52 | |
I was wondering if it might go over 11,000, last night. | 0:45:52 | 0:45:55 | |
Some friends of mine that used to live in Scotland, | 0:45:55 | 0:46:03 | |
they did an office cake-bake sale. | 0:46:03 | 0:46:04 | |
?271. | 0:46:04 | 0:46:05 | |
I know, it's absolutely amazing. | 0:46:05 | 0:46:07 | |
Well, at the moment we've reached almost just shy of 11,000. | 0:46:07 | 0:46:09 | |
What's the target? | 0:46:09 | 0:46:11 | |
About... 66,000. ?66,000. | 0:46:11 | 0:46:15 | |
Yeah. | 0:46:15 | 0:46:17 | |
Even an old schoolteacher, when I was about 13, | 0:46:17 | 0:46:22 | |
he's donated some money and I've not seen him for over sort of 20, | 0:46:22 | 0:46:27 | |
25 years. I feel quite guilty, in a way, | 0:46:27 | 0:46:32 | |
that I sort of didn't deserve this money, because I'm not very good... | 0:46:32 | 0:46:35 | |
I never really ask for money and I never really ask for help. | 0:46:35 | 0:46:38 | |
So, for me, this was quite a novel thing to do. | 0:46:38 | 0:46:41 | |
I think crowdfunding is becoming | 0:46:41 | 0:46:42 | |
quite a common platform now, I think, | 0:46:42 | 0:46:44 | |
for people to raise money for cancer treatments | 0:46:44 | 0:46:46 | |
that aren't available on the NHS. | 0:46:46 | 0:46:47 | |
Are you ready to rock and roll? | 0:46:47 | 0:46:49 | |
Yeah. I'll get you some shoes. | 0:46:49 | 0:46:51 | |
What happens if you don't make 60,000? | 0:46:51 | 0:46:53 | |
Whatever the money I do raise, | 0:46:53 | 0:46:57 | |
I can still put towards several months of treatment. | 0:46:57 | 0:46:59 | |
So if it's around ?4,000-?5,000 a month, for the Olaparib, | 0:46:59 | 0:47:01 | |
I can still sign up with the drug and then just have as many months of | 0:47:01 | 0:47:05 | |
the treatment as I'm able. | 0:47:05 | 0:47:10 | |
With the amount that I've raised at the moment, | 0:47:10 | 0:47:12 | |
that would guarantee me at least two months | 0:47:12 | 0:47:15 | |
on Olaparib, which is fantastic. | 0:47:15 | 0:47:16 | |
That's already about 20% of the way. | 0:47:16 | 0:47:19 | |
Can you just confirm for me if you received Nicola's authorisation for | 0:47:19 | 0:47:22 | |
medication? Is it a possibility we can have it ASAP? | 0:47:22 | 0:47:28 | |
INTERVIEWER: Can you understand why the NHS don't fund it? | 0:47:28 | 0:47:31 | |
I can understand it, but it's still very frustrating. | 0:47:31 | 0:47:38 | |
Don't get me wrong, I'm eternally grateful for what's happened. | 0:47:38 | 0:47:41 | |
I dread to think how much money has been spent on Nicky's treatment | 0:47:41 | 0:47:44 | |
since the first diagnosis, 18 months ago. | 0:47:44 | 0:47:48 | |
I understand that, yeah. | 0:47:48 | 0:47:49 | |
Somebody does the sums and somebody has to do the sums. | 0:47:49 | 0:47:52 | |
It's an awful job to do but somebody works out how much to spend, | 0:47:52 | 0:47:55 | |
and how long to increase somebody's life by. | 0:47:55 | 0:47:57 | |
Anti-sickness. OK. | 0:47:57 | 0:48:01 | |
Antibiotics. OK. | 0:48:01 | 0:48:02 | |
The research that is coming out now is so promising. | 0:48:02 | 0:48:06 | |
Thank you so much. You've been amazing, thank you. | 0:48:06 | 0:48:08 | |
It has given us a bit of hope. | 0:48:08 | 0:48:11 | |
It could be a matter of months before it comes back again... | 0:48:11 | 0:48:14 | |
..but no-one really knows. | 0:48:14 | 0:48:25 | |
The work I do here is tightly regulated. | 0:48:27 | 0:48:32 | |
I have an annual appraisal | 0:48:32 | 0:48:34 | |
and people keep a fairly close eye on my work. | 0:48:34 | 0:48:37 | |
Outside of places like this and other big NHS hospitals, | 0:48:37 | 0:48:40 | |
if you just go and see someone privately, | 0:48:40 | 0:48:46 | |
there are all manner of snake oil salesmen out there | 0:48:46 | 0:48:48 | |
and I think that worries me. | 0:48:48 | 0:48:57 | |
Hello! | 0:48:57 | 0:48:58 | |
Matt is seeing Glendon in the NHS clinic for the first time since | 0:48:58 | 0:49:01 | |
his brain surgery. | 0:49:01 | 0:49:04 | |
Well, look at this. | 0:49:04 | 0:49:06 | |
Can I give you a hug? I didn't do anything, mate. | 0:49:06 | 0:49:09 | |
You put everything in place for me. | 0:49:09 | 0:49:12 | |
I mean, I just... You know what I was down to. | 0:49:12 | 0:49:15 | |
Take a seat before you fall over. | 0:49:15 | 0:49:17 | |
I'm not falling over, I've been walking all day. | 0:49:17 | 0:49:20 | |
OK, all right, then. Well, before you get tired, then. | 0:49:20 | 0:49:22 | |
So, we need to talk about what we're going to do next. | 0:49:22 | 0:49:25 | |
We had talked about having another round of radiotherapy. | 0:49:25 | 0:49:27 | |
Yep. And we had talked about adding immunotherapy to it in the form | 0:49:27 | 0:49:32 | |
of Pembrolizumab. Yep. | 0:49:32 | 0:49:34 | |
Is that still what you want to do? | 0:49:34 | 0:49:36 | |
Yes. Fine. Unless there's another combination which has come out. | 0:49:36 | 0:49:39 | |
OK, this is the best I can do. | 0:49:39 | 0:49:41 | |
Let's make some informed guesses. | 0:49:41 | 0:49:44 | |
If it works, how long do I keep the schedule going? | 0:49:44 | 0:49:48 | |
They will give you two doses of Pembrolizumab, | 0:49:48 | 0:49:50 | |
one before and one after. | 0:49:50 | 0:49:53 | |
But do I keep carry on taking them for the rest of my life? | 0:49:53 | 0:49:56 | |
No, no, no. Two doses of Pembrolizumab. | 0:49:56 | 0:49:58 | |
Right. | 0:49:58 | 0:49:59 | |
Beyond that, I find it very difficult to justify continuing. | 0:49:59 | 0:50:03 | |
I mean, it's not a money thing, if it works, I will carry on doing it. | 0:50:03 | 0:50:07 | |
I know, I know. | 0:50:07 | 0:50:08 | |
You keep saying that to me. | 0:50:08 | 0:50:10 | |
INTERVIEWER: Have you made a sort of choice | 0:50:10 | 0:50:12 | |
about not giving Glendon exactly what he wants? | 0:50:12 | 0:50:14 | |
Are you trying not to bankrupt him? | 0:50:14 | 0:50:20 | |
Well, of course I'm trying not to bankrupt him. | 0:50:20 | 0:50:24 | |
One of the drugs he's interested in is just under ?30,000 a dose. | 0:50:24 | 0:50:29 | |
I don't think that there is enough data to justify its use. | 0:50:29 | 0:50:34 | |
Immunotherapy can be a bit funny in that... | 0:50:34 | 0:50:38 | |
because it sort of takes the brakes off your immune system... | 0:50:38 | 0:50:42 | |
Yep. And your immune system kicks off, it can give you lung problems, | 0:50:42 | 0:50:46 | |
kidney problems, heart problems, eye problems, skin problems... Yep. | 0:50:46 | 0:50:50 | |
..because essentially it depends which bit it decides. | 0:50:50 | 0:50:54 | |
Yes. I heard the liver was something... | 0:50:54 | 0:50:57 | |
Yes, and liver. Sign and print your name there. | 0:50:57 | 0:50:59 | |
Is it the role of the doctor to say, "Stop treatment"? | 0:50:59 | 0:51:02 | |
We live in a society where people are used to being able to have what | 0:51:02 | 0:51:06 | |
they want, and health care is not like that. | 0:51:06 | 0:51:10 | |
It's difficult because part of our job is to own the uncertainty, | 0:51:10 | 0:51:17 | |
to say, "Here are the options and I will recommend A, | 0:51:17 | 0:51:20 | |
"I will recommend B," | 0:51:20 | 0:51:22 | |
even when in your heart of hearts you are not entirely certain. | 0:51:22 | 0:51:26 | |
In all honesty, I'm not an idiot. | 0:51:26 | 0:51:30 | |
Somewhere along the line, it's going to be not treatable. | 0:51:30 | 0:51:33 | |
Yes, but my aim | 0:51:33 | 0:51:35 | |
is, where it's appropriate, | 0:51:35 | 0:51:37 | |
is to give you treatment to keep you well for as long as possible. | 0:51:37 | 0:51:41 | |
It's all we can do. That's all I want to hear. | 0:51:41 | 0:51:44 | |
I'm a realist. You're a very optimistic realist. | 0:51:44 | 0:51:47 | |
Thanks. Nice to see you. | 0:51:47 | 0:51:56 | |
How are you feeling about the prospect | 0:51:56 | 0:51:58 | |
of getting the immunotherapy drugs? | 0:51:58 | 0:52:02 | |
It's like going to the bookies really, basically. | 0:52:02 | 0:52:05 | |
You can't turn around and say, | 0:52:05 | 0:52:06 | |
"Oh, yeah, you're on a sure-fire winner here." | 0:52:06 | 0:52:10 | |
What I'm trying to do is kick this cancer further down the line. | 0:52:10 | 0:52:14 | |
The further I can kick it down the line, the more studies go on, | 0:52:14 | 0:52:18 | |
there's more chances of drugs being approved, which are clinically more | 0:52:18 | 0:52:21 | |
effective, so that's why you do it. | 0:52:21 | 0:52:27 | |
Hi, is that the 15th chemo unit? | 0:52:27 | 0:52:31 | |
Hi, I'm calling from pharmacy, | 0:52:31 | 0:52:33 | |
just to say that the immunotherapy | 0:52:33 | 0:52:34 | |
for Glendon is ready to be collected. | 0:52:34 | 0:52:39 | |
I didn't want to go to my grave without covering every angle. | 0:52:39 | 0:52:47 | |
Hello. | 0:52:47 | 0:52:48 | |
Hello. It's for the 15th floor. | 0:52:48 | 0:52:50 | |
INTERVIEWER: You grew up expecting the NHS to always be there for you. | 0:52:50 | 0:52:54 | |
Yeah. Do you feel the NHS is still there for you? | 0:52:54 | 0:52:57 | |
For the everyday stuff, very much so. | 0:52:57 | 0:53:03 | |
So you're staying here, yes? OK. | 0:53:03 | 0:53:10 | |
Hi. Just want to pay for Glendon's treatment. | 0:53:10 | 0:53:20 | |
INTERVIEWER: How does that feel? | 0:53:24 | 0:53:26 | |
It's what needs to be done to get the treatments. | 0:53:26 | 0:53:33 | |
Do you think the hospital, knowing that it's a bit of a gamble, | 0:53:33 | 0:53:36 | |
there's no guarantee... | 0:53:36 | 0:53:42 | |
Do you mean, should they offer him this? | 0:53:42 | 0:53:44 | |
Yes. They've taken a lot of money from you. | 0:53:44 | 0:53:46 | |
Yeah, but it's hope for him, | 0:53:46 | 0:53:47 | |
and if I went home tomorrow with no treatment or forward plans, | 0:53:47 | 0:53:50 | |
I don't think he would cope. | 0:53:50 | 0:53:52 | |
He would give up. | 0:53:52 | 0:54:00 | |
INTERVIEWER: Are you all right? SNIFFLING: Yes. | 0:54:00 | 0:54:02 | |
Just that it is hope, and, you know, it might not work. | 0:54:02 | 0:54:05 | |
In fact, it probably won't work. | 0:54:05 | 0:54:06 | |
Well, I don't know, I don't like to get too optimistic. | 0:54:06 | 0:54:09 | |
But, erm... | 0:54:09 | 0:54:12 | |
You know, if it even | 0:54:12 | 0:54:18 | |
gives Glen something to live for now... | 0:54:18 | 0:54:20 | |
..it's serving a purpose. | 0:54:20 | 0:54:25 | |
All ready, sir? | 0:54:25 | 0:54:28 | |
Here we go. Here we go. | 0:54:28 | 0:54:35 | |
I just want a normal life back. | 0:54:35 | 0:54:42 | |
I want to live to 70. | 0:54:42 | 0:54:43 | |
You know, something like that. | 0:54:43 | 0:54:45 | |
I don't want to die at 50. | 0:54:45 | 0:54:51 | |
Good. Fusing nicely. | 0:54:51 | 0:54:55 | |
You know, you've got to put up with what | 0:54:55 | 0:54:58 | |
you're given, and if I can keep it going longer, | 0:54:58 | 0:55:02 | |
that's what I'm going to bloody do. | 0:55:02 | 0:55:07 | |
INTERVIEWER: Are the NHS in an impossible situation? | 0:55:07 | 0:55:11 | |
Yes. | 0:55:11 | 0:55:13 | |
We are completely screwed. | 0:55:13 | 0:55:16 | |
The NHS is caught between some demographic pressures, so we have | 0:55:16 | 0:55:19 | |
a bigger population and an older population, | 0:55:19 | 0:55:21 | |
but we are also caught in a really nasty wedge in other ways. | 0:55:21 | 0:55:28 | |
Medical technology is developing, more treatments available, | 0:55:28 | 0:55:29 | |
patient expectations are going up, | 0:55:29 | 0:55:31 | |
but increasingly we are no longer able to meet them. | 0:55:31 | 0:55:41 | |
And this country has | 0:55:41 | 0:55:42 | |
skimped on health care for a long time. | 0:55:42 | 0:55:48 | |
Sometimes people talk about a two-tier system, | 0:55:48 | 0:55:49 | |
what does that mean to you? | 0:55:49 | 0:55:52 | |
Well, I mean, we run a two-tier system... | 0:55:52 | 0:56:00 | |
..and most of us would rather not do private health care. | 0:56:00 | 0:56:02 | |
I certainly never came into medicine with any intention of doing | 0:56:02 | 0:56:05 | |
any private work. | 0:56:05 | 0:56:09 | |
The best example of what happens when you have a lot of | 0:56:09 | 0:56:12 | |
private medicine is America. | 0:56:12 | 0:56:19 | |
It gets very poor outcomes. | 0:56:19 | 0:56:25 | |
ANGRY SHOUTING | 0:57:08 | 0:57:13 | |
Is she safe? Is she safe? | 0:57:13 | 0:57:16 | |
St Mary's A is experiencing | 0:57:16 | 0:57:17 | |
a sharp rise in mental health patients... | 0:57:17 | 0:57:21 | |
There are patients in the corridor at the moment | 0:57:21 | 0:57:23 | |
because we don't have enough bays. | 0:57:23 | 0:57:26 | |
..with one of its longest ever waiting-time breaches. | 0:57:26 | 0:57:28 | |
Just to highlight, the first psych patient's | 0:57:28 | 0:57:30 | |
now been in A for 22 hours. | 0:57:30 | 0:57:33 | |
It's not fair on her ultimately, or anybody else here either. | 0:57:33 | 0:57:36 | |
Do you know where you are? No. | 0:57:36 | 0:57:38 | |
Do you know where you are? | 0:57:38 | 0:57:43 | |
And the complex needs of an ageing population... | 0:57:43 | 0:57:46 | |
It's too much for me. | 0:57:46 | 0:57:47 | |
I want to look after him. | 0:57:47 | 0:57:49 | |
..sees more people than ever attending hospital in crisis. | 0:57:49 | 0:57:51 | |
Anyone in society that doesn't know where to turn, they will come to us. | 0:57:51 | 0:57:54 | |
In their eyes, we're seen as | 0:57:54 | 0:57:59 | |
the only people that can help them. | 0:57:59 | 0:58:04 | |
What choices would you make | 0:58:04 | 0:58:06 | |
when faced with complex health care decisions? | 0:58:06 | 0:58:09 | |
Visit our interactive pages to find out how you would respond. Go to... | 0:58:09 | 0:58:16 | |
..and follow the links to the Open University. | 0:58:16 | 0:58:25 |