Hannah Taith Fawr y Dyn Bach


Hannah

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Transcript


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-I'm James Lusted.

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-I'm 24 and I have Diastrophic

-Displasia, a rare form of dwarfism.

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-I live at home with my parents

-and brother Phil.

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-Phil has the same condition as me.

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-I don't allow my disability

-to hold me back.

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-In fact, I hate the word disabled.

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-In this series, I'll travel Wales

-to meet other disabled people...

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-..to experience life

-through their eyes.

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-Subtitles

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-While I was surfing

-various websites...

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-..I came across a girl

-from Cardigan, Hannah.

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-She's the youngest girl in Wales

-who uses a guide dog.

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-It will be interesting to meet

-someone with a visual impairment...

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-..to see how they function...

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-..how they cope around the house

-and go from place to place...

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-..all sorts of things.

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-I'm keen to contact the society...

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-..and hopefully meet up

-with Hannah.

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-I'm Hannah Stevenson,

-I'm 16 and I come from Cardigan.

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-This is my guide dog, Osi.

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-I've had Os for a year and a half,

-when I started Year 11.

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-He's been brilliant.

-I really enjoy having him.

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-I couldn't be without him.

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-He likes wandering around

-on the school bus.

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-He's great in school.

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-Everybody knows Os!

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-Find the door.

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-They don't fuss around him

-when the harness is on.

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-Once it's off, he lies down

-and people say hello to him.

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-He likes attention.

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-Perhaps I shouldn't rely

-so heavily on Os.

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-In a way, we rely on each other.

-I look after him and feed him.

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-But he works for me and

-makes a difference to my life.

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-I help him and he helps me.

-We're a team.

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-There you are, Os. On you go.

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-It's a busy period for Hannah.

-She's studying for her A levels.

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-I'm doing Mathematics, Physics,

-Geography and a Baccalaureate.

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-The adaptations made by the school

-are a great help to her.

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-My Note Taker is a Braille laptop.

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-I can go on Word or surf the Net...

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-..and it reads it back to me.

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-Any work I'm expected to do

-is first handed to a teacher...

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-..who changes it from print

-into Braille with an embosser.

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-Os sleeps in the lessons.

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-Once, in a Geography lesson,

-Os was growling in the corner.

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-He was talking in his sleep!

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-Do you want water?

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-Hannah's sight has deteriorated

-since she started in school.

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-When I came here,

-at eleven years of age...

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-..I could see a person

-in front of me.

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-I could see pictures and colours,

-and walk around school on my own.

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-But by Year 9 and 10,

-my sight began to deteriorate.

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-My friends helped me more.

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-It was odd.

-I wasn't sure what was happening.

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-I've got friends and school.

-I'm happy.

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-I've got a great life

-and I'm enjoying it.

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-I can adapt. Sight is something

-small compared to everything else.

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-Hannah refuses to be held back.

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-After a long week in school, she

-goes to work in the local chip shop.

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-I work here once a week,

-on Friday nights, from 5 to 8.

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-I'm familiar

-with The Cardigan Arms by now.

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-I can find my way around.

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-People will help, if needed.

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-I'm familiar with the layout

-and know my way around.

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-Os wouldn't like it here.

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-It wouldn't be good for him to have

-too many chips and sausages!

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-It would be rather cruel.

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-I couldn't concentrate

-if he was here.

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-Working is important.

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-It helps me to listen

-to other people and socialize.

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-I chat to different people.

-It teaches me the value of money!

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-I got up early after receiving

-an interesting invitation.

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-I've heard from Hannah.

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-I'm packing to go to Cardigan

-to spend time with her.

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-I'm looking forward to the journey.

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-It'll be interesting to see how

-she interacts with her guide dog...

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-..and how they cope with daily life.

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-While I'm driving to West Wales...

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-..Hannah meets her friend Debbie

-in the park.

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-They became close after meeting

-on a guide dog training course.

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-On you go, on you go.

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-Here you are. Hello! Are you OK?

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-I'm fine. How's things going?

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-Yeah, good thanks.

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-Hello Osi, good boy!

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-Let the dogs off for a run?

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-Let the dogs off for a run?

-

-Tarka would like that.

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-They can play together for a bit.

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-Ready?

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-Ready?

-

-Yes. Go!

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-Os!

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-I've got no idea where they are.

-Hold on, one of them's here.

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-Osi and Tarka are big friends.

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-Hannah and Debbie believe

-it's vital for the dogs to play...

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-..before going back to work.

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-WHISTLE

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-Os!

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-Find the door.

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-What's this?

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-I think it's a top.

-No, it's a dress.

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-It's a nice dress.

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-I like to have an idea

-what I want when I'm shopping.

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-I look around, sometimes I'm lucky!

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-Some skirts here, Debs.

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-I feel the clothes

-because I can't see them.

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-I can work out whether they're

-a T-shirt, trousers, frock or shoes.

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-I don't know until I touch them.

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-Feel that.

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-Feel that.

-

-That's like lace, but not lace.

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-I don't know what that is!

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-I put clothes in front of me

-to check whether they fit.

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-I ask Mam if she's with me.

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-When it's just Debbie and me, it's

-hard to tell the colour or pattern.

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-We don't know. We try to guess

-and hope for the best!

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-On an early trip to Cardiff,

-I didn't know my way around.

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-Debbie nor I knew

-what shops to go to.

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-We went to a bank, a goldsmith -

-we didn't want any of these!

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-We found a shop we liked.

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-On you go, Os.

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-After arriving in Carmarthen, I met

-Hannah and Osi in the local market.

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-Hello! I'm James. Nice to meet you.

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-How do you manage

-in places like markets?

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-I enjoying seeing

-the various stalls.

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-If I don't know it, it can be odd.

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-I feel everything on all the stalls.

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-The stall owners can't understand

-why I'm touching everything.

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-If it's food, I can smell it -

-I know not to touch it!

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-They wouldn't be happy

-if I touched the food!

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-These places are quite tricky

-for me.

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-Everything is so high

-and they don't always see me.

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-They think I'm a child.

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-Do you get mistaken for a child?

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-Sometimes, but they apologize.

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-There are nice cakes here!

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-Bara brith!

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-A famous Welsh cake!

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-I like cakes.

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-I'm used to people staring at me

-when I'm out.

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-I wanted to hear

-Hannah's experiences.

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-Do you mind people stopping you

-and asking questions?

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-I don't mind that.

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-I don't like it when people

-try to do something for me.

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-They say, "You can't do this."

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-I get stubborn

-and want to do it more.

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-Do you mind when people

-do anything to you?

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-Sometimes, people are fine with me.

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-Usually, when I'm walking down

-a street or I'm in a new place...

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-..where people don't know me,

-they pat me on my head.

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-It's natural for children

-to stare at someone who's different.

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-I get fun out of it.

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-Life is for living and having fun.

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-Yes!

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-In Part Two, I'll get

-to know Hannah and her family.

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-How has Osi, the guide dog,

-changed their lives?

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-.

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-Subtitles

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-Subtitles

-

-Subtitles

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-I'm in Moorfields Eye Hospital

-in London...

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-..for treatment for the glaucoma.

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-How are you doing, Hannah?

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-How are you doing, Hannah?

-

-Yeah, I think it's good.

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-I first came here

-when I was a week old.

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-I had surgery

-when I was 10 days old.

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-We're used to it.

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-We come every fortnight,

-sometimes every week.

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-We might take a month off

-when we don't have to come.

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-It varies.

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-It varies.

-

-Yes.

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-You're still using

-quite a lot of drops.

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-You're managing OK with that.

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-You're managing OK with that.

-

-Yes.

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-Every visit to the London hospital

-is different for Hannah.

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-She never knows what the doctor

-will say about her vision.

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-I've been coming often

-for the past couple of years.

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-It'll slow down once I'm older

-to every four or six months.

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-At the moment, we're here quite

-often. We've got to know London!

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-The damage to Hannah's eyes

-was caused by glaucoma.

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-It usually affects people

-far older than Hannah.

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-Fluid pressing on the eye nerves

-leads to impaired vision.

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-They check the eye pressure,

-and how much fluid is in the eyes.

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-They make sure it's OK.

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-If anything has changed, they

-want to find out what caused it.

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-Professor Khaw has treated Hannah

-since she was a baby.

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-They have a special bond.

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-He's a really nice doctor. I

-couldn't ask for a nicer doctor.

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-He assess through play,

-which puts me at ease.

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-She would often draw

-a picture on the train for him.

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-You ran over,

-all excited to see him.

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-Her eyes were wide open,

-and he could have a good look.

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-It's very good - 11 and 12.

-These operations are working well.

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-The London trip has been a success.

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-Hannah doesn't have to return

-to London for six months.

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-After shopping and

-swapping stories with Hannah...

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-..I've come to Cardigan

-to meet the family.

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-Hello! Are you OK?

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-Very well. And you?

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-Fine, thanks. Hello, Osi!

-Are you OK?

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-How are you? Welcome.

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-Thank you. It's a nice day.

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-It's great.

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-Did you have a good journey?

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-Did you have a good journey?

-

-Yes, thanks.

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-Tea or coffee?

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-Tea, please. Thanks.

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-Tea, please. Thanks.

-

-Tea or coffee, Mam?

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-The tea was good

-after a long journey.

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-I wanted to hear

-about Hannah's childhood.

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-Mam mentioned to me...

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-..that she knew before I was born

-that I had this condition.

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-When did you find out

-about Hannah's condition?

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-The day she was born.

-I didn't know beforehand.

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-I knew once they handed her to me

-that there was a sight defect.

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-I didn't know what it was.

-The doctors came that day.

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-A week later, she went

-to Moorfields to see Professor Khaw.

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-He diagnosed the glaucoma.

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-Did you think your life would change

-due to Hannah's condition?

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-It changed because there was a baby

-in the house! She was my firstborn.

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-I was delighted

-to have a little baby girl.

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-That was the biggest emotion,

-my love for her.

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-If she was visually impaired,

-it made no difference.

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-She was a darling and I loved her.

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-I would do anything for her.

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-Jackie hasn't treated Hannah

-differently.

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-Has Hannah ever felt different?

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-I don't dwell on it.

-It's part of my day to day life.

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-What's normal for one person

-is different from the next person.

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-It's something that's different

-about me. It's normal for me.

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-What can you see?

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-I can see light out of both eyes.

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-I can tell if it's sunny,

-and I know if it's day or night.

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-You've had Os for a while.

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-How would you describe life

-without him?

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-I could manage without him,

-because I'd have to.

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-I wouldn't choose to do it.

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-Os once injured his shoulder

-and couldn't work.

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-We went out for a meal.

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-I wanted to go to the toilet,

-but I couldn't go on my own.

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-I had to ask Mam or a friend.

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-If Os was with me, I could just go.

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-He gives me independence.

-He's company, too.

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-If you get one, you get the other.

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-Looking after a guide dog...

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-..requires following rules set

-by Guide Dog Wales.

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-Osi's diet is important, and

-Hannah weighs his food carefully.

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-WHISTLE

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-Good boy!

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-What's the difference

-between using a white stick...

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-..and having Os?

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-No-one spoke to me

-when I had a white stick.

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-People wondered what it was.

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-I bumped into people as I walked

-along, which wasn't nice for them.

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-With Os, I go around people.

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-People ask what he's like. It's

-not something they see every day.

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-People like dogs.

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-When I go somewhere on my own,

-he's an icebreaker.

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-It's not just Hannah's life that's

-been affected by Osi's presence.

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-How is it to have Osi in the house?

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-In the beginning, it was hard.

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-We weren't allowed

-to make a fuss of him.

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-But within a matter of months,

-it came easier.

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-Do you worry about Hannah?

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-Yes, if she was rushed to hospital.

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-She doesn't want people

-to worry about her.

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-She tries to sort it out herself.

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-Do you feel protective towards her,

-as her brother?

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-I'd be angry

-if someone was unkind to her.

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-She doesn't want to make a fuss.

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-She wants to carry on.

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-I help around the house

-like everyone else, washing up.

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-If Mam's late back from work,

-I'll get the supper.

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-I'll use anything

-I find in the fridge.

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-I clear up.

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-I've got no excuse not to clear up

-even though I try!

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-I could pretend I can't see dust,

-but it doesn't work.

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-Has the house been adapted for you?

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-Yes, a few things.

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-When I make a brew...

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-..there's a device to tell me

-when the mug is full.

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-It makes a noise

-and I know to stop!

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-There are bump-ons on the cooker,

-so I know where to press.

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-That's 80 degrees,

-100 degrees and 120 degrees.

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-I wanted to know what else Hannah

-has to help her around the house.

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-I can write faster on this.

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-Do you get longer to sit exams?

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-I get 100% extra.

-The Welsh exam was even longer.

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-I started at 8.30am

-and finished at 4.30pm.

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-It was supposed

-to be a two and a half hour exam.

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-Feel free to write something.

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-I'll try to write my name.

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-J is dot, 2, 4 and 5 - all together.

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-Like that.

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-I don't like the word disabled.

-How do you feel about that word?

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-I don't think I'm disabled.

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-I'm the same as everyone else,

-only slightly different.

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-Perhaps someone's got brown hair

-and someone else is blonde.

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-Someone can see, and I can't.

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-People have said hurtful things...

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-..but it's their fault,

-they know no better.

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-I'm the same as everyone else.

-It's their loss, not mine.

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-And space.

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-James.

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-That's what your name

-looks like in Braille.

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-Excellent.

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-I feel rather nervous today.

0:21:030:21:06

-I'm meeting Hannah

-in a High Rope Adventure Park.

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-Are you OK?

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-It's quite high!

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-I'm not very good with heights.

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-I'll be brave and just do it.

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-I'm never scared

-in places like this.

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-Is it easier that you can't see?

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-I think so.

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-I can't see how high I am!

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-I can!

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-Looking down is the same

-as looking up for me.

0:21:450:21:50

-Hannah is an adventurous girl -

-but I'm not quite as happy!

0:21:530:21:57

-JAMES CHUCKLES

0:22:040:22:05

-Bye bye!

0:22:060:22:08

-It's really good. I enjoyed that.

-Go on James, you next!

0:22:110:22:15

-You'll enjoy it - I hope so, anyway!

0:22:160:22:19

-Oh, my gosh!

0:22:230:22:25

-Oh, dear!

0:22:260:22:28

-The course

-was quite difficult for me.

0:22:370:22:41

-My legs and arms are short.

0:22:410:22:45

-But they're something

-I deal with on a daily basis.

0:22:460:22:51

-Sorry.

0:22:510:22:52

-Sorry.

-

-No, it's OK.

0:22:520:22:54

-Perfect. Thank you.

0:22:550:22:57

-That was fun.

0:22:570:22:59

-Meeting Hannah and her family

-has been a very special experience.

0:23:000:23:05

-I agree about something Hannah

-said the other day.

0:23:070:23:12

-We're not disabled.

0:23:120:23:14

-The word doesn't describe us.

0:23:140:23:19

-We adapt to our surroundings

-to make things easier for us...

0:23:210:23:26

-..to do what everybody else does.

0:23:260:23:29

-S4C Subtitles by Gwead

0:23:470:23:49

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0:23:500:23:50

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