Tony and Jane Nicklinson, Assisted suicide campaigners HARDtalk


Tony and Jane Nicklinson, Assisted suicide campaigners

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The headlines: The whereabouts of Colonel Gaddafi remains a mystery.

:00:06.:00:09.

US officials say that some senior members of the Colonel Gaddafi

:00:09.:00:16.

leadership were in a convoy heading to Niger.

:00:16.:00:20.

There have been fresh allegations surrounding the circumstances of

:00:20.:00:25.

the release of the Lockerbie bomber. It has been claimed that his

:00:25.:00:29.

release was discussed with the British Government and linked to a

:00:29.:00:38.

contract with the oil company BP. The transferor detainee is to some

:00:38.:00:43.

Afghan jails has been suspended following allegations of torture. A

:00:43.:00:47.

report says prisoners have been subjected to abuse, including being

:00:47.:00:57.
:00:57.:01:03.

beaten and given electric shocks. Those are the headlines.

:01:03.:01:09.

Now it is time for HARDtalk. Should the law ever give one human being

:01:09.:01:14.

the right to kill another? That is the question at the heart

:01:14.:01:18.

of this special edition of HARDtalk, which comes from the home of Tony

:01:18.:01:21.

and Jane Nicklinson. Tony is completely paralysed - he wants to

:01:21.:01:31.
:01:31.:01:35.

die. Jane wants to help him. Currently, British law stands in

:01:35.:01:39.

their way. If Tony were to be killed, would it be murder or

:01:39.:01:49.
:01:49.:01:57.

mercy? Tony and Jane Nicklinson were

:01:57.:02:05.

married 25 years ago. Six years ago their world was changed forever.

:02:05.:02:13.

Tony suffered a massive stroke at the age of 52. He survived, just,

:02:13.:02:19.

but was completely paralysed. The only movement he can control is in

:02:19.:02:22.

his eyes and his blinking but his brain and ability to think are

:02:22.:02:32.
:02:32.:02:46.

unimpaired. Letter...I...letter...A. Tony communicates using his eyes

:02:46.:02:50.

and blinks to pick out letters on a board. It is slow and, for him,

:02:50.:02:53.

deeply frustrating. Having lived like this for six years, he has had

:02:53.:02:57.

enough. He wants to die. As he cannot kill himself, he wants

:02:57.:03:00.

someone else to end his life for him. Right now, that would be

:03:00.:03:04.

called murder. Tony and Jane want British law changed to give him the

:03:04.:03:07.

right to die. Using a specially adapted computer, Tony explains to

:03:07.:03:10.

me his motivation. Tony Nicklinson, welcome to HARDtalk. I want to ask

:03:11.:03:20.
:03:21.:03:21.

you the most basic question of all. Why do you want to die? At the

:03:21.:03:25.

moment I want to die because I can see the future being worse for me

:03:25.:03:31.

than it is now. I fear the next 20 years also with trepidation. I

:03:31.:03:41.
:03:41.:04:01.

think this is as good as it gets and it is downhill from here. If I

:04:01.:04:05.

knew the comfort of suicide was available, who knows, I might not

:04:05.:04:09.

want to take my life. What I know is that not having a plan causes me

:04:09.:04:13.

anguish that the people who oppose me do not understand. I am fed like

:04:13.:04:17.

a baby with baby food, cannot do anything for myself and everything

:04:17.:04:21.

is a matter of routine. I will live like this for the rest of my life

:04:21.:04:25.

so is it any wonder I am not enthusiastic about living? You want

:04:25.:04:29.

somebody else to be given the legal right to kill you. Would that not

:04:29.:04:31.

create an extraordinarily dangerous precedent, particularly for the

:04:31.:04:35.

most vulnerable disabled people? course it is dangerous if it is not

:04:35.:04:40.

subscribe to the idea that just because it is difficult we should

:04:40.:04:44.

not do it. There are plenty of examples around the world where it

:04:44.:04:47.

has been done successfully and we can look to them for guidance. I

:04:47.:04:51.

have devised a scheme that shows promise so that if I go, anybody

:04:51.:05:01.
:05:01.:05:04.

can. I do not say it is easy, just possible. Pro-lifers often say this

:05:04.:05:08.

would open the floodgates. Nonsense. Do you really believe that the non-

:05:08.:05:13.

disabled, who can legally commit suicide... This is Tony before his

:05:13.:05:17.

stroke - an active sportsman, a bit of an adventurer and proud father

:05:17.:05:20.

of two daughters. Now Jane and a team of helpers have to do

:05:20.:05:30.

everything for him. 24 hours a day, seven days a week. He is not

:05:30.:05:33.

terminally ill but despite the love in this home he is terminally fed

:05:33.:05:37.

up with his life. That is something that Jane Nicklinson has to live

:05:37.:05:46.

with. Jane Nicklinson, welcome to to me his despair, his sense of

:05:46.:05:54.

hopelessness. How hard is it for you to deal with your own husband

:05:54.:06:04.

saying that sort of thing? It is very hard. It is not unexpected.

:06:04.:06:08.

From the day he was taken ill, we knew what the prognosis was and the

:06:08.:06:13.

day would come that this is what he would want. That is the kind of

:06:13.:06:17.

person he is. You sort of get used to it in a way. We have been

:06:17.:06:21.

thinking about Tony's death for the last six years. It does not make it

:06:21.:06:29.

easier but you get used to it. his despair deepened over time? In

:06:29.:06:37.

the very early days, I do not think he was aware of the prognosis.

:06:37.:06:41.

was one of the first things he said to me when he started using his

:06:41.:06:51.
:06:51.:06:52.

communication board. I do not think it has gotten worse. It was bad

:06:52.:06:57.

from the word go. Tony says he wishes he had not been saved by the

:06:57.:07:01.

doctors those six years ago when he had that terrible stroke. Do you

:07:01.:07:09.

say the same thing? Do you wish the doctors had not saved him? That's

:07:09.:07:15.

tricky. Yes and no. At the time when it happened, my daughters were

:07:15.:07:25.
:07:25.:07:31.

with me and we all said we do not want to live like this. It is a

:07:31.:07:34.

terrible thing to say but, yes, I wish the doctors hadn't saved him.

:07:34.:07:39.

If we have a good day, maybe not but if it is what he wants it is

:07:39.:07:44.

what I want. We have a little sense of how you and Tony live your daily

:07:44.:07:47.

lives. What are the biggest frustrations for Tony in his daily

:07:47.:07:50.

life? His biggest frustration is not being able to to communicate.

:07:50.:07:54.

He always said if he could speak it would not be so difficult. It is

:07:54.:07:57.

just everything is total frustration for him. For him and

:07:57.:08:04.

also for you. In a different way for me. For him it is day-to-day

:08:04.:08:14.
:08:14.:08:18.

life, getting up, eating. For me it is frustrating because seeing him

:08:18.:08:23.

like this, what life has become for us... What I am getting at... We

:08:23.:08:28.

will get to the legal issues in a minute. It is strange to talk about

:08:28.:08:32.

Tony when he is right here with us. Tony clearly believes his life has

:08:32.:08:36.

been ruined. The question for you is whether you believe your life

:08:36.:08:46.
:08:46.:08:48.

has been ruined too? I suppose so, yes. I cannot say no because it has.

:08:48.:08:58.
:08:58.:08:58.

We had so many dreams of the things we were going to do. Yeah. (CRIES).

:08:58.:09:04.

This gets more and more difficult. Therefore, it would be better for

:09:04.:09:10.

you if Tony were to die, to use that right to die. I do not want

:09:10.:09:15.

him to die. There is no way that I want him to die. I see what his

:09:15.:09:23.

life is. Maybe I do want him to die, not at the moment but the time will

:09:23.:09:30.

come when he has had enough of life. OK, if it is what he wants then

:09:30.:09:36.

that is fine. Let's talk about the legal issues. Right now, of course,

:09:36.:09:39.

given his disabilities, Tony does not have the option of taking his

:09:39.:09:47.

own life. He cannot do that. If someone was to help him, that would

:09:47.:09:52.

be murder. Is it your and Tony's wish to fundamentally change the

:09:52.:10:01.

law? If I help Tony to die I would be charged with murder. It would be

:10:01.:10:05.

no different if I killed someone in cold blood. We want the law

:10:05.:10:09.

changing. So-called mercy killings should be treated differently. A

:10:09.:10:15.

change in the law on murder - that is what we are after. That is a

:10:15.:10:21.

really profound change, isn't it? You are saying the law would in

:10:21.:10:25.

some way have to create an avenue for somebody to be allowed to take

:10:25.:10:29.

another person's life. Given our tradition of war, our notions about

:10:29.:10:32.

the sanctity of life, it would be extraordinarily difficult and a

:10:32.:10:42.
:10:42.:10:42.

radical thing to do. How do you think it would be done? I am not

:10:42.:10:46.

sure where we are going for now. It is in the pipeline and we are

:10:46.:10:50.

discussing it with our solicitors. They feel we do have a case. Why

:10:50.:10:54.

should Tony be denied the right to take his own life? It is what he

:10:54.:10:58.

wants and what he is asking for. There should be some system in

:10:58.:11:04.

place. We are not saying it should be legalised point blank, going out

:11:04.:11:12.

and killing someone and say, they told me they wanted to die. There

:11:12.:11:22.
:11:22.:11:23.

would have to be a stringent procedure in place. You and Tony

:11:23.:11:27.

have talked about this in detail. You would have to. Would you be the

:11:27.:11:34.

one to end his life? I think so, yes. I want to be the one to do it.

:11:34.:11:39.

He does not want me to. He wants to make it legal for other people to

:11:39.:11:44.

do it so I do not have to. He wants me to give him a sedative and then

:11:44.:11:48.

someone else come in and give him the euthanasia so I would not have

:11:48.:11:53.

to do it and he would not have to see me. You would have to have a

:11:53.:11:59.

doctor's agreement to be involved. Doctors have made it plain time and

:11:59.:12:02.

time again they will not countenance being involved in the

:12:02.:12:09.

explicit taking of life in this way. It would not necessarily have to be

:12:09.:12:15.

a doctor. I could do it. I think I could. I have been asked this so

:12:15.:12:23.

many times. I think I could do it. I am sure there are doctors out

:12:23.:12:30.

there that would come forward. argument against it is that it

:12:30.:12:33.

opens up an extraordinarily dangerous precedent, that if it

:12:33.:12:35.

becomes, in certain situations, legal to kill the disabled, the

:12:35.:12:38.

most vulnerable in our society, that very soon some vulnerable

:12:38.:12:42.

people may feel that almost they are obliged to take the option of

:12:42.:12:52.
:12:52.:12:56.

choosing death. Not if there was some sort of scheme in place. It

:12:56.:13:02.

would obviously have to be very carefully thought out. There would

:13:02.:13:07.

have to be a process you would have to go through to be able to do it.

:13:07.:13:10.

Tony has devised a scheme of his own. Whether it is that was

:13:10.:13:15.

something similar, it would have to be carefully thought. If there can

:13:15.:13:20.

be a way for it to be done, why can anyone else take their life but

:13:20.:13:24.

Tony cannot? He knows what he wants to do but he physically cannot do

:13:24.:13:31.

it. You say he knows what he wants to do. Another argument from those

:13:31.:13:36.

in the religious community and others is that minds can be changed.

:13:36.:13:44.

Tony could change his mind. Have you discounted that? You could say

:13:44.:13:47.

that about straightforward suicide. Suicide is legal for able-bodied

:13:47.:13:51.

people. Their minds could be changed if things were different.

:13:52.:13:58.

Why is ordinary suicide legal? relatives of suicide victims would

:13:59.:14:03.

say, if only I had that opportunity to talk them out of it, to make the

:14:03.:14:07.

case that it was the wrong option to take. If only, I might have

:14:07.:14:11.

saved them. Because Tony cannot do it for himself, society, starting

:14:11.:14:17.

with you, has that option to try and persuade him. He has been like

:14:17.:14:21.

this for six years and he has not changed his mind yet. Who knows, in

:14:21.:14:29.

the future? That is life, isn't it? I know Tony, for example, using his

:14:29.:14:35.

computer, is writing his memoirs. You have described how he is

:14:35.:14:37.

enjoying that process of remembering his past life, writing

:14:38.:14:43.

about it, some of the adventures you two had together. That suggests

:14:43.:14:48.

to me that there is still a way to get some enjoyment out of life and

:14:48.:14:52.

that seems important. It is not enough, though, is it? It is not

:14:52.:14:59.

enough for him. He wants to say something. Can I do it? Yes, of

:14:59.:15:05.

course. Letter 'W', letter 'H'... (CONTINUES SPELLING) What... If...

:15:05.:15:15.
:15:15.:15:15.

Apology for the loss of subtitles for 40 seconds

:15:15.:15:55.

What... I... Feel... Is... Not... The... Same... As... Ordinary? I

:15:55.:15:59.

think I know what you are saying. The reason why Tony wants to commit

:15:59.:16:03.

suicide cannot be solved. This is as good as life is ever going to be

:16:03.:16:08.

for him. An argument made by those who oppose the kind of legal

:16:09.:16:12.

changes you want to see is that palliative care can make your life

:16:12.:16:18.

better. There are ways in which care can improve the quality of

:16:18.:16:28.
:16:28.:16:32.

your life. Is it too late for that now? We have had specialists here.

:16:32.:16:36.

There is nothing really. Everyone is different. We all have different

:16:36.:16:40.

expectations from life. If you knew Tony before, he is an ex-rugby

:16:40.:16:43.

player, life of the party, adventurer, we travelled around the

:16:43.:16:47.

world, he was good at his job. All the things he loved about life he

:16:47.:16:53.

cannot do. I just wonder how far you are prepared to go, the two of

:16:53.:17:02.

you, when it comes to see him through this wish to die. After we

:17:02.:17:06.

see through the court case, the only option Tony has is to starve

:17:06.:17:16.
:17:16.:17:21.

You are referring to the fact it is legal to assist suicide in

:17:21.:17:27.

Switzerland. Could Dignitas create a system where it could be an

:17:27.:17:34.

assisted suicide? I have been in touch with them and what they said

:17:34.:17:42.

they could set up a system and he could operate it with a switch.

:17:42.:17:46.

question is, if that is a possibility, of course it would

:17:46.:17:49.

take money, if that is a possibility, why spend so much time

:17:49.:17:59.
:17:59.:18:00.

and effort going through the British courts? Everything I have

:18:00.:18:03.

seen in the court papers, from traditional verdicts in the past to

:18:03.:18:07.

the words of judges, it suggests it is highly unlikely they will modify

:18:07.:18:11.

the law on murder. Tony does not see why he should go to Switzerland

:18:11.:18:15.

to die. He wants to die at home with his family around him, not in

:18:15.:18:18.

some strange country. The journey itself would be incredibly

:18:18.:18:24.

traumatic for him. Why should he have to? I asked you some very

:18:24.:18:27.

sensitive questions about your feelings about Tony's death and

:18:27.:18:30.

whether, to be brutal about it, if Tony's end would be a release for

:18:31.:18:40.
:18:41.:18:43.

you. That raises the issue of vested interests from those around

:18:43.:18:52.

somebody who is suffering, as Tony is. Can you see the danger is there

:18:52.:18:56.

that it might come to a point where, if the laws you wanted are passed,

:18:56.:18:59.

family members, others with an interest, they could be persuading

:18:59.:19:07.

vulnerable people to end their lives? I am sure that happens with

:19:07.:19:17.
:19:17.:19:20.

ordinary suicide cases. Ordinary suicide is not illegal. I am sure

:19:20.:19:23.

people are coerced into committing suicide. It could happen. What

:19:23.:19:26.

safeguards could you imagine to prevent it? The systems must be

:19:26.:19:32.

added to deal with that. I think that Tony has come up with the idea

:19:32.:19:36.

that the judge would have to be involved at every stage of the

:19:36.:19:39.

process and there would be months and months of a cooling-off period

:19:39.:19:42.

between an initial decision to allow the death and the actual

:19:42.:19:48.

implementation of that decision. Do you really believe that would be

:19:48.:19:54.

enough? I think so, yes. We all know what the pitfalls are and

:19:54.:19:59.

hopefully this system would be able to prevent those. Tony's life is

:19:59.:20:09.

hell, basically. He is being forced to live it. It is like a form of

:20:09.:20:14.

torture, you could say. There has to be a way that something could be

:20:14.:20:20.

sorted out. Each case has to be taken on its on merit. There are

:20:20.:20:24.

indications that the British public has a great deal of sympathy with

:20:24.:20:27.

many of the arguments you are making and, in the past, when there

:20:27.:20:31.

have been deaths which have been associated with this idea of mercy

:20:31.:20:34.

killing, jurors have tended to show sympathy for those behind those

:20:34.:20:44.
:20:44.:20:47.

killings in their verdicts. Does that make you consider the

:20:47.:20:50.

possibility of ignoring the law, in essence taking the law into your

:20:51.:20:58.

own hands, and relying on the sympathy of a jury? That is a big

:20:58.:21:04.

risk to take. As much as I love him, I am not sure if I am prepared to

:21:04.:21:09.

spend time in prison. He would not let me do it. It would have to be

:21:09.:21:15.

legal. I have got my children to think about. No, I could not do

:21:15.:21:25.
:21:25.:21:27.

that. Have you talked about it? has always made it very clear from

:21:27.:21:32.

the word go that there is no way he would let me do it because he would

:21:32.:21:37.

not want to risk it. I admire people that can do it. I know there

:21:37.:21:41.

have been some quite high profile cases recently. It takes a lot of

:21:41.:21:51.

guts to be able to do something like that. I personally could not.

:21:51.:21:58.

I wonder how some people would respond to this. You are a full-

:21:58.:22:01.

time carer, it dominates your life, you talk about your daughters, they

:22:01.:22:11.
:22:11.:22:16.

want to see their father but what do they say to you? They are 100%

:22:16.:22:22.

behind everything that we're doing. When we have talked about just

:22:22.:22:26.

doing it and breaking the law, they were horrified to think that I

:22:26.:22:34.

would even think about doing it. It is hard for them. It is very hard

:22:34.:22:39.

for them. They fully understand what their dad was like. They know

:22:39.:22:43.

what he was like before he was taken ill. He was a total

:22:43.:22:48.

embarrassment! But, they are totally behind us. You have the

:22:48.:22:52.

look of a wife who has lived the life with someone, loved someone,

:22:52.:22:56.

been with them for your adult life - in the course of this interview,

:22:56.:23:00.

I get a strong sense of a bond between you and Tony, yet, all of

:23:00.:23:10.
:23:10.:23:17.

our conversation's been about how to end his life. For you, you are

:23:17.:23:27.
:23:27.:23:28.

in an impossible position. I could be totally selfish and want him to

:23:28.:23:34.

carry on living but that would be selfish. I have got to do what he

:23:34.:23:40.

wants to do. I support him and I have to. If I did not support him

:23:40.:23:44.

when he needed me to support him, just the practicalities of that, I

:23:44.:23:47.

do support him and this is very hard but you're constantly talking

:23:47.:23:54.

about how your husband is going to die. We have been living with it

:23:54.:24:01.

for six years. It does become easier. The final thought, you are

:24:01.:24:05.

living in a very personal way with this but you're also dealing with

:24:05.:24:08.

the system, whether it is the legal system, politicians, the health

:24:08.:24:10.

service, doctors, ethicists, frankly, at the moment, nobody

:24:10.:24:20.
:24:20.:24:29.

wants to offer you what you really want. Everything that has happened

:24:29.:24:34.

with the legal case up until now has not been unexpected. It is what

:24:34.:24:40.

we have been expecting all the time. It is what happens from now that is

:24:41.:24:46.

important. We knew that this would probably be the outcome. They don't

:24:46.:24:51.

feel that we have a case. We knew that was going to happen. It is

:24:51.:24:55.

interesting to see what happens from now on. What that will be, I

:24:55.:25:00.

do not know yet. Have you got the strength to carry on with his

:25:00.:25:07.

caring? Yes, definitely. I think he quite enjoys it in a way, don't

:25:07.:25:12.

you? Jane Nicklinson ,and Tony as well, thank you both for being on

:25:12.:25:22.
:25:22.:25:42.

It is a very wet and windy day. Today should be a bit better than

:25:42.:25:45.

yesterday. There will still be some showers around and it will be

:25:45.:25:50.

fairly breezy for many. Some blustery winds still blowing. There

:25:50.:25:54.

will be some showers, mainly across western and northern parts of the

:25:54.:25:59.

UK. It is in the north and the west where we will see the showers

:26:00.:26:03.

through the first part of the morning. The south and east could

:26:03.:26:07.

get away with some brightness. Some sunny skies across the south of

:26:07.:26:13.

Wales, but in the north, it will be fairly cloudy. There will be a

:26:13.:26:16.

scattering of showers across Northern Ireland, with little if

:26:16.:26:20.

any brightness. The showers will also be there across northern and

:26:20.:26:24.

western parts of Scotland, but further east, it could be a bit

:26:24.:26:29.

drier. Temperatures in the morning about ten degrees. As we head down

:26:29.:26:33.

across northern England, showers will be gathering across the north-

:26:33.:26:38.

west, one or two mate sneak across the Pennines. There will be some

:26:38.:26:42.

fine weather across the south and east of England, even some pockets

:26:42.:26:49.

of sunshine. The winds still fairly brisk. A similar story as we move

:26:49.:26:53.

down towards the south-west. A largely dry start but fairly breezy.

:26:53.:26:57.

As the day goes on, we will continue to see the showers have

:26:57.:27:02.

been blown in on the wind. They will be concentrated across the

:27:02.:27:06.

northern part of the UK. That is not to say we will not see a few

:27:06.:27:10.

getting across to the more southern and eastern parts. But on the whole,

:27:10.:27:16.

many places here will be drier. Dr M Bridges Of the Day in the south-

:27:16.:27:21.

east, 18-19 -- top temperatures of the day. The show was will continue

:27:22.:27:28.

to gang together into some longer spells of rain. The rain could be

:27:28.:27:32.

fairly relentless for a while across Northern Ireland, north-west

:27:32.:27:37.

England and North Wales. It will be a bit drier to the north of

:27:37.:27:42.

Scotland and the south of England. A mild night when stay in to

:27:42.:27:47.

Thursday, but a little bit cheerier. For Thursday itself, we had the

:27:47.:27:51.

weather front draped across the UK, bringing some further rain across

:27:51.:27:55.

some central and southern parts, especially as the rain its --

:27:55.:27:59.

starts to push northwards. Temperatures rising slightly. By

:27:59.:28:04.

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