13/02/2017 Inside Out South


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I don't understand how it is a people lost their lives aren't


disabled. Town-mac we want to go to work, it's like getting that help in


young women from Brighton who fought young women from Brighton who fought


hard cancer on a YouTube. She has left her legacy and her videos, as


yet let a resounding impact on me as well. And we turn back the clock as


they take a tour of one of Dorset hidden villages. Welcome to Inside


Out. If you visit the struggle to get


around, your car to be a lifeline. Some people having their Motability


the car is taken away after new assessments decide that they are not


disabled enough to qualify. What's going on? Portsmouth, a popular spot


for petrol heads. Especially if you've had a few modifications.


Becky, Trevor and Adam are all amputees. All three have they cast


thanks to the Government's notability scheme. It hits 40 this


year. -- Motability scheme. They fear the brakes could be slammed on


any moment. And their wheels will be taken away. How you go to carry your


cityscape and yorker the? I have fallen over a few times. Thank you.


GB forgiving father get our free amputees would count as disabled.


Doing slopes and grass, it's a strange sensation. It is lethal. But


it seems they might not be disabled enough for the new personal


independence payment of PIP which has replaced the old disability


benefit. The man who came out to assess said to me, if you had both


legs amputated, you wouldn't have any problems getting PIP, you'd be


classified as disabled. Side got to get both amputated. Before Becky


lost her leg, she had several operations and had been on crutches


for seven years. She qualified for a car to help live independently. But


now, with a prosthetic leg, she could lose her car. If they can


might not be disabled enough, they don't classify a pathetic leg as a


walking aid. Wheelchairs, crutches, there was a classified as walking


aids. Apparently legs aren't. That I've had this car, it has given me


everything, I can get to hospital appointments, not relying on friends


or family, or buses which when possible for me with my scooter. So


this has given me my freedom back. I can get out and about. Becky had to


pay the first ?1800, then the car is funded by a ?55 a week allowance.


it is hand controls, so I have to it is hand controls, so I have to


constantly pool this lever which does the acceleration. For me to


break, I have to lever back. I also break, I have to lever back. I also


have a knob up here because I can't physically tiring a sharp corner. At


the same time as pulling the accelerator. I can't drive a normal


car, so without PIP, I'm gay to be very stuck. -- getting to be. And it


is it about 20 metres unaided highlight that qualify for


Motability. Like Becky says, a prosthetic leg isn't classified as


an eight. As what's more than 20 an eight. As what's more than 20


metres, that means I have to hand the car back. It's terrible. What


today is a good day, Becky says her today is a good day, Becky says her


prosthesis is heavy. She gets in rashes and blisters from wearing it,


, so can't always use it. It doesn't matter that I might have my leg off


tomorrow or Thursday. They are only concerned about the fact I can walk


every so often. That would take my car away. The new PIP asset that is


aimed at saving the public money, but Philip Connolly of Company Mac


says removing peoples Motability is a false economy. Denying them the


opportunity to use the car and that the vehicle has got to be


counter-productive. These people will become more reliant on


statutory services, which is more expensive. They also lose a lots of


choices and control in a lives. Consequence is to put people, make


them prisoners of their properties, putting them under house arrest.


That is a description Leah Debus recognises all too well. Leah lost


her leg any motorbike accident five years ago. She got a pathetic and a


Motability car which allowed her to work full-time. Just feel the weight


of it. Tumours ago, she had her PIP assessment. Their decision is that I


am not entitled to any mobility at all. Her car was taken away so she


can now log work and is now totally relied on benefits. I had to turn


down a new job that I've managed to get, I been for an interview, was


offered the job, was excited to start it, but due to relocation I


couldn't get there without my vehicle. I think the most striking


thing... Sorry, the must be shaking thing is actually how hard I pushed


myself these last five years, how hard I have worked to walk, go back


to work, live my life, and I feel like I've been penalised for that.


They've taken it away from me. They've made it impossible nearly to


live that life. I just don't understand how they can say that I


don't have enough of a disability to warrant Motability. I don't


understand how they can say people who have lost their limbs aren't


disabled. And lost his leg a year ago after an illness he had since


childhood. It's hard to get your head around this sort of thing when


it happens. You don't think it will happen to you. Until a member of


Parliament is in this situation, nothing will get done. My name is


Trevor Jones, used to drive trucks. It got worse and worse, I had to be


taken off in February last year. We taken off in February last year. We


have paid our taxes and paid it, we need help. Go to is in the gutter.


-- don't throw us in the gutter. Travellers entitlement to PIP is


worked out after a medical assessment with a task, the company


and Pensions. This is the D-Day, and Pensions. This is the D-Day,


this is where I'm going into the effort I'll be assessed. Whether I


can cope, and that. I'm a bit nervous. Every time I been in there,


this is the fourth time, every time it is not the right answer. You've


got to fight. He will find out in the next few weeks if he believes


his car. In the meantime, he is keen to show just how tough it will be to


get around if it has to go. It is even worse getting out, because your


leg will twist. You can get caught under the pedal. I have done. It's


not nice when you follow via. -- fall over. People think you're


cars are currently being handed back cars are currently being handed back


at an unprecedented rate of roughly 800 a week. Here's the... This is


the early when around the area, otherwise I got to go all the way


around, which has two time and effort. I got a go slow because if


my front wheel 's catch, as you go. And I've done that twice. Trevor


wanted to find out from the Government why so many people are


losing their cars after a PIP assessment. The Department for Work


and Pensions pensions with only give a statement. Having lost her car,


Leah was keen to see it. This is what they say. Decisions are made


after considering evidence from the claimant and GP, anyone who


disagrees can appeal, and in most cases any mind leaving a Motability


scheme is eligible for a one off payment of up to ?2000 to help meet


their needs. Green but you make of that? As I was like, have some


money, pat you on the back. It's ridiculous. Leah plans to appeal the


decision. Motability says more than half of those who do I get any cars


back. Just one more battle thousands of disabled people could do without.


Ever since I've become disabled, I've had to fight, and now it's


getting to the stage where they are just taking cars from people,


because you can walk. Yeah, I can walk, but I give everything to have


my leg and back, to have a normal life. We want to go to work and get


back, we don't want to feel sorry for ourselves, that's not what this


is about. It's about getting that help to get on with life. And be


part of society, not feel like an outcast or, you know,... I think of


a high chance of losing my car. They have early initiative in saving


money. -- they are only interested. Still to come, it is man versus van


in one of Dorset 's hidden villages. A teenager with cancer tried to help


others in a situation. Charlotte died last year but 11 inspirational


legacy, some of which has only just been discovered by her family.


I'm just like any other typical teenage girl but I have a twist.


16-year-old Charlotte had been diagnosed with


But rather than hide away, she decided she was going to use


the power of social media to tell the world what was


But I found when I had cancer and wanted some advice videos,


In June she said, "I think I'm going to start a YouTube


channel," and I said "What are you going to talk about?"


and she said "My journey, my cancer," and it


I've had purple hair, no hair, long dark and shiny hair.


Black lips, red lips, dry cracked from chemo lips.


So I had finished my exams and then I was planning to go on to college.


It was actually on the day of prom that I was diagnosed,


Charlotte posted more than 100 videos in the two


The early ones were watched a few hundred times.


By the time Charlotte lost her battle with cancer,


people all over the country ? indeed from around the world ?


So yeah, sorry for these random snippets.


I don't know, maybe this is the way I vlog, literally


picking up the camera, up and down, up and down.


Her videos were nominated for a prestigious online


video award, and then, remarkably, Charlotte's family


found dozens of unedited, unseen video files on her camera.


I inherited her DSLR camera which was very special to her,


it was her window onto the world, and I went through her stuff


and I've had this memory card for months, and I found a new folder


I think most poignant for me is how frank they are, how honest.


When it came to wearing them, this one was definitely more comfortable.


This is the way that I am, this is how I look and there


Hi guys, I wanted to make a video today...


But with the type of tumour Charlotte had, her condition


Nothing is really working or happening.


Today I got some very bad news - it has grown from three or four


millimetres to three centimetres, which is obviously,


Her right hand side went paralysed, she couldn't move her leg,


she couldn't move her hand, her arm, and then slowly by slowly it


Unfortunatel,y things have taken a turn for the worse,


as in the medication I was on isn't working very well, so yeah, I'm


We went to see our consultant afterwards and he more or less


had his head in his hands, and he said it's very, very, very bad


The tumour is virtually all over the place now.


And we cried, and I think it was disbelief.


And she just looked at me and said, "Does that mean I'll never get


And I said I think it does, and she went back


to see her consultant, and I read on the notes, she said,


He said it seems the most likely outcome.


Charlotte was a phenomenal individual who, despite being faced


with certain death from her tumour, did not say "Oh well,"


She raised funds, she raised awareness, she pushed and pushed


and pushed right to the end, and what an amazing and humbling


experience it is for me, an adult and a neurosurgeon,


to see someone so young grasp the enormity of their diagnosis.


A celebration of beauty, life, positivity, bravery, generosity.


She was blogging, making videos on YouTube,


while she was describing her experience in an attempt to help


others who were going through the same thing.


And she was doing it in a very stylish way,


in a way I am certain has been very helpful for many, many, many


Many of Charlotte's friends before her diagnosis couldn't


cope with her illness, something she reflected on in her videos.


I've had 60's eyes, red eyes, dancing until dawn eyes.


Boy friends, me friends, never seen again friends.


But Charlotte made new friends online ? friends like Emily.


I met Charlotte through YouTube - I myself am a YouTuber,


and I went over to her channel and I looked at some of her videos,


and I loved what she created and I loved her personality,


I will probably get back to you guys when I see Emily.


I'm meeting her at Brighton station and she should be


I've still got all her texts, I've not deleted one single one.


I never will and she just said thank you so much,


I really value our friendship and I'm so grateful that


you are here for me, and that was the last text


She is still here in a way, she has left her legacy,


she's left her channel, her videos and she has left


a resounding impact on me as well that I am going to carry


That legacy and that impact now extend to the charity Charlotte's


They are raising money to raise awareness and fund research


into glioplastomas ? the type of brain tumour that Charlotte had.


My family have been there with me 110% and I just love


We're always going to come together as a sort of team


if you like, and I have just been incredibly blessed to


So I don't really know what else to say.


Anything else exciting happens, I will grab the camera again.


What a truly remarkable young women Charlotte was. Don't forget, if you


want to get in touch with the show, you can drop me an e-mail.


TRANSLATION: You'd be forgiven if you'd never heard of east Charlton.


You've probably never heard of East Chaldon,


Chaldon, but every year people travel thousands of miles


to visit one of Dorset's most hidden villages.


God once drove to East Chaldon in a delivery van like this one.


Although his was a Ford, and possibly more comfortable.


It took place in a novel called Mr Weston's Good Wine'


which was one of 70 books written in the village by nine


Throughout the 1920s and 30s Chaldon became


a magnet for famous authors, poets, sculptors and artists.


It began with the arrival of an impoverished hermit.


Theodore Francis Powys moved here for a quieter life.


At least that's what his brother Llewelyn tells us.


He took his stick from his chimney-corner and set out to find


some unpretentious village, where he would be altogether


Eventually he arrived at East Chaldon, which very possibly


is the most hidden village in Dorset.


Theodore lived here and used to hide behind bushes


when he was out walking, hoping not to bump into the locals.


He also planted onions in his garden to give the weeping ash


Despite his odd manner, he still proved quite popular.


I managed to meet some people who actually remembered


what it was like in the 1920s and 30s and they remembered Theodore


very fondly being rather hermit like he was more or less fully


accepted, although I think they thought he was probably


a little odd as he was so withdrawn and given to solitary walks.


He did observe the villagers and he did use them in his writing


but fortunately since most of them didn't read his books he got


away with it because not all the descriptions were very kind.


Although Theodore was a private man, celebrities from New York,


London and the South Coast wanted to meet him, some enjoying Chaldon


It was a hive of creative activity, which also attracted visits


from the famous adventurer and author Lawrence of Arabia.


It was surprising how well they took it and really.


T E Lawrence when he visited, he visited on his motorbike


which was called boanerges and it made a terrific racket


and they didn't like the racket it made through the lanes,


They pretty well accepted it but they didn't know it was a little


strange I think that it wasn't happening elsewhere,


It wasn't long before Theodore's younger brother Llewelyn


followed to East Chaldon, dragging his wife Alyse Gregory


He'd been diagnosed with TB and spent much of his time writing


essays about Dorset, outdoors in shelters like this one.


Well I think he slept in here although...


It's not exactly hotel standards, is it?


He did sleep outdoors a lot and when he was up at the White Nose


he used to sleep in what would have been an upturned boat.


What's it like living in a place with such a strong link to the past


in as much as you must get people coming up and having


Yes I have people knocking on the door and asking you know


Do you sit here and admire the view or you're probably working too hard.


I sit here occasionally but my cat sits in it more than anything.


Now he's remembered in the village not just for his writing


or odd sleeping habits, but also for a rather generous


Upon my death, ?100 shall be used to establish a trust


and the interest paid to the nearest public house for free drinks after


That actually could have produced 50 or 60 pints of beer which in a small


place like Chaldon would actually have been a very good night out.


Every year a society named the Friends of Llewelyn Powys meet


It's just so much fun to meet all the people and learn the history


and you really feel like you're back in time to a certain extent and it's


You only see these people once a year so the relationship


the association becomes something very special, they're


I always say at this point that we're here to remember


Llewelyn Powys and toast his health, but his health is rather


beside the point these days and that it's his memory


So if everybody could raise their glasses and remember


Llewelyn Powys and thank him for all the many years of pleasure


he's given us here in the Sailor's Return.


Llewelyn loved the Dorset landscape, which heavily influenced his essays


This is what it's all about really isn't it?


It makes you feel alive up here It's gorgeous yeah just


You feel so special to actually be able to live and work


in this landscape and yeah, just feel very lucky really.


Do you enjoy it more because it's part of literature,


Yes I do, because it's like two layers you're seeing.


You're seeing the layer that's there which in itself is very


beautiful and then you've got a layer of how people have observed


Just looking at the landscape you can't, you can completely


understand why it inspired them and I think that literature written


about this area it, I think it adds a depth


appreciated this landscape as much as you or I have here at the moment


and it's just an absolute pleasure to be able to do that really.


Back in the 20s the landscape was not just beautiful,


Llewelyn wrote about his friend Walter Franzen, who whilst visiting


from New York fell to his death near the cliffs.


of desperate consciousness, where the herring gulls


never cease from crying, better in such a place than in


Nowadays the walk across the cliffs is a little less perilous,


and after a few swift pints at the pub, the friends


of Llewelyn Powys make their way to his grave on the coast


It's set completely in the landscape from which he himself is derived,


and you can't be in this area without hearing the echo


The most famous Powys brother was John Cowper,


nominated three times for a Nobel prize.


He spent much of his life in the states, where some


But it's Dorset where the Powys legacy lives on,


and where Llewellyn's wife Alyse buried him on the cliffs.


I feel I'm walking in the footsteps of my great aunt, she just did


things that other people didn't do.


you know she was an inspiration to me because well I'm a feminist


too, and maybe behind every great woman is a great man.


Llewelyn's grave sits on his beloved Dorset coastline,


Llewelyn himself, now a permanent part of the landscape.


It's very humbling, really and it's always,


and yet any great artist really just enriches the world and to know that


I'm part of that tradition is a very humbling thing.


that is all for now, we're back in two weeks' time because of the


football. Until then, goodbye. So, FA Cup next Monday, but we're back


on the 27th, when historian Greg Henderson will be exploring some in


the south 's lesser-known castles. Number you can't get inside the


castle, but this is about to change hands again so we've been granted


special access. Hello, I'm Alex Bushill


with your 90 second update. Drug abuse, violence


and faulty alarms. Just some of the major


security failings a BBC investigation has uncovered


at a Northumberland prison. Stay tuned for Panorama


after Eastenders.


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