04/02/2016 Victoria Derbyshire


04/02/2016

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Hello it's Thursday, it's 9.15, I'm Joanne Gosling,

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Support for families whose babies are stillborn or die shortly death

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are "not good enough" - that's the view of a Government

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minister after an investigation for this programme revealed

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There is a real value in bereavement suites, in bereavement midwives and

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a real need for a clear bereavement pathway.

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That was the Conservative MP Antoinette Sandbach.

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In a special investigation for this programme she meets the people

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determined to bring bereaved parents better support.

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Also ahead; David Cameron pledges an extra ?1.2 billion of aid

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The announcement comes as a new poll suggests attitudes in the UK

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are hardening; 40% of people now say we should accept fewer refugees.

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And the mum who took the Government to court and won.

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Her son developed a sleep disorder from a swine flu jab,

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Hello, welcome to the programme, we're on BBC 2 and the BBC

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We'll keep you across the latest breaking and developing stories.

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We'll be live as world leaders gather for a donor conference

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in London in an attempt to raise over ?6 billion for those affected

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Some 70 leaders are expected to attend the conference,

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the fourth of its kind, including UK Prime Minister David Cameron

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As ever your contributions are really important

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Texts will be charged at the standard network rate.

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And of course you can watch the programme online wherever

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you are, via the bbc news app or our website bbc.co.uk/victoria.

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A Government minister has admitted to this programme that bereavement

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services for families whose babies are stillborn or die shortly

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It follows an investigation for us by the Conservative MP

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Antoinette Sandbach who found services were "patchy" with some

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You might remember that in 2009 Antoinette's son Sam died

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In an emotional speech she told the House of Commons there was no

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bereavement counselling available where she lived and she only got

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help when a charity paid for a counsellor to visit her home.

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At the moment it is up to hospital trusts to decide what kind

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of bereavement support they offer parents and as Antoinette has

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discovered for this programme improvements need to be made.

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Antoinette's film obviously deals with an upsetting subject; it's

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about 15 minutes long and, as you'll see, she comes

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across people who are determined to offer excellent support

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I'm Antoinette Sandbach, Conservative M. I spoke in the

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Commons about the death of my son. The night my son died, I woke to

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find him not breathing. I looked at a flatline in the ambulance for 20

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minutes. A crash team was waiting for me but it was too late. The

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consultant Ne-Yo natal doctor was calm and a reassuring presence and

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the nursing staff were patient. I readily agreed to a postmortem as I

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wanted to know exactly what had happened. Staff at the hospital were

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wonderful, but I found myself in a plain room with questions being

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asked of me. I was told that I had to wait for the police. I had left

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in such a panic that I'd left my telephone behind and I couldn't

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remember any telephone numbers and was there on my own. I called the

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number for the charity and they organised counselling for me. That

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counselling was a lifeline and I owe a huge debt of gratitude to John

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from the Alder Centre at Alder Hey Hospital as there was no counselling

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available in North Wales. I was overwhelmed by the response

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from members of the public and I wanted to go out and see what the

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issues were facing other parents in the same situation as me.

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We know that bereavement services across the country are patchy and

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some parents who desperately need help and support are not able to

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access it. So I've come here to the Alder Centre in Liverpool at Alder

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Hey Children's Hospital to see the gold standard of care that they

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offer bereaved parents. Hello, how are you... Lovely to see

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you. It's been far too long. How are you? I'm doing well. Thanks to you!

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Are you ready to show me around this wonderful facility? Yes, I am, I am.

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There you go. Thank you. I think you will find that what we

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have here in this part of the country is unique. We will support

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any bereaved parent who can get to us here in Liverpool. There's a lot

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of areas that don't have bereavement support.

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A lot of parents do say that if it wasn't for counselling support, they

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would feel they would have been on medication for maybe a long time.

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It's my experience that I was offered medication rather than

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counselling? Yes. And I felt that I was grieving, not depressed? Yes,

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and that is what I tell the parents that come here, you know, and I

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think any hospital should be providing a counselling service. If

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it can't be provided in hospitals, certainly it should be in the local

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area. Child death helpline, this is Deb...

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If we are on call, our target is to be in the hospital within an hour of

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being notified of the child having died. Once the family have settled,

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then we'd say, when you're ready, you can go through and see your

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child, your baby. This is the room they'd come to and here they can

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just spend precious time with their child, it's their space to do what

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they want really. We'd support them, but we'd also give them private

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time. We do things like hand and footprints with them if that's what

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they would like, locks of hair, we can take very special photographs

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for them maybe of the baby's hand in mum's hand and dad's hand.

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I found it very difficult that, not that I was being treated like a

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criminal, but that there was, the fact of the criminal investigation,

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I found that very difficult. I think our primary role is to be an

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advocate for the person so actually we can intervene and ask the police

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to pause and wait and see, mum needs some space, please give her that

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space. I'm on my way to meet a mum who lost

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her baby at 11 weeks and to see what her experience was of bereavement

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care. The hospital were great. The day she

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passed aawas amazing, they cleared the whole ward and brought a sofa in

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and she was with us. She, after that, we did a footprint and cleaned

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her, wrapped her in a blanket. And gave you a memory box? Yes, which

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was lovely. As soon as we'd left the hospital, there was nothing there. I

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rang an organisation who gave me five or six numbers of local

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charities, organisations, to speak to, and I rang them. Every time, I

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had to tell my story which was painful, more than painful at that

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time. But I had five noes and it was horrendous and I went through the

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story every time. I remember coming downstairs, telling my family and

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being mortified. I was so upset because I just needed this support

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very early and I was getting no, no, no, because she was too old, too

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young, didn't day of the right thing, and it was just horrendous.

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In terms of the difference of before you got professional counselling and

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afterwards, what kind of difference did that make to you emotionally?

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Well, it was huge really because Isabelle died on 3rd January, I saw

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somebody I think mid toll the end of March -- middle to the end of March

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and she was fantastic. In that period, I didn't know what I was

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doing. I needed a guidance how to do this basically and then, as soon as

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I saw her, she had almost mapped it out like a structure and said, this

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is what you feel, you may not, I told her what I was feeling, she

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said that's normal, that's fine, and it was like a huge relief, a huge

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relief. And if only I'd had that at the beginning, it was still a

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painful, painful time, but that took the burden off a little bit. Because

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I could understand what I was feeling, she made me understand what

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I was feeling. Isabelle was very like Mark, my

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husband, features the same really and Emily was very like me. I

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remember Sam had very big feet. My boy's definitely going to be in the

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Welsh rugby team, I thought. It's lovely isn't it? It is lovely, all

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those things are just lovely memories. They're all we have? Yes.

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Minister, it's clear that those parents who arrive at hospital

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following on from a sudden infant death often don't have access to a

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bereavement suite. Are you looking to change that? So the problem is

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that it's still not good enough. You might have some hospitals where

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there is a good bereavement suite but not a full-time bereavement

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nurse, where there might not be good counselling after a death. We need

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to make sure we've got a really joined up pathway in all hospitals

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so that we provide consistent support and help to mothers and

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families for the entire duration that they require it. Whilst there

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is a lot of great work going on in this country, and actually some of

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the best research in the world is going on here, it's clear that there

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was massive variation across the country, which meant that compared

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to other countries, it's not enough. Some charities work on the

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counselling because it's not available on the NHS. What are you

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doing to ensure the NHS can work in partnership with the charities? I

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hope very much That the ?350 million that we are giving for perinatal

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health will go to make sure the services are more sustainable. We

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don't want to lose the amazing work being put in by charities around the

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country, because actually, it's often those mothers and families

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who've had experience of still birth and Ne-Yo natal death who're best

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able to help mothers and families going through that. -- neonatal.

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Some hospitals can only provide the facilities with the charity money.

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I've come here to see what has been achieved by parent power.

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Hello, I'm Antoinette. Shall we take a seat? Have you come far? No,

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fairly local. One of the hardest part was being on

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the delivery suite, hearing the babies crying, hearing of the

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parents celebrating. We were in amongst it, and that was painful,

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knowing that we would never hear Abigail Crier, never get that

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celebration, because we lost her before she had even been with us. Do

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you think it is appropriate that the funding needs to come from the

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charitable sector? I think it is hard for the NHS, they have got

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limited budgets and are trying to stretch them through the services

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they provide. Is bereavement care seen as a luxury item? I don't know,

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it shouldn't be, but it seems to be. This is our delivery suite, we have

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5000 birds here, and currently we have ten birthing rooms which will

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be for the mothers having normal, healthy pregnancies, and just down

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the corridor is our bereavement suite, which is where mothers

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deliver. What difference have David and Joe and their charity, Abigail's

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Footsteps,, made to this hospital? Being able to develop the

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bereavement suite is undoubtedly huge, thank you very much to them.

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This is for the memory box, something she can take away with

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her, a baby that, when she got pregnant, she loved from the very

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minute. It is the loss of a future, isn't it? Absolutely, and

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registering that for her. Oh, a pink, fluffy poodle!

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I have met so many amazing parents on this journey, all, like me,

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trying to make a difference, and what it has shown is that there is a

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real value in bereavement sweets, bereavement midwives, and a real

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need for a clear bereavement pathway. It has been quite difficult

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and emotional for me, this journey, but I am absolutely determined to

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fight with others to make sure those improvements are made, and made for

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people around the country. You can watch and share that film

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online via our programme page. And if you need support

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after watching Antoinette's story there are details on how

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to get help there too. You can also ring the

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Child Death Helpline - they offer

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a freephone service. You can contact them

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on 0800 282 986. Antoinette will be here later

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in the programme along with a woman who has raised thousands

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to build a bereavement suite Lots of you getting in touch. One

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tweet, amazing insight into support for bereaved parents. John says, my

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ex-wife had a stillbirth more than 40 years ago, we had nobody to help

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and moved on. One e-mail, excruciating to watch the story of

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Antoinette's loss, more funding in this area is vital.

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A ten-year-old boy wins a payout after developing

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a rare sleeping condition following a swine flu vaccination.

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Josh Hadfield and his mum will be speaking to us shortly.

:19:16.:19:18.

The BBC understands that a UN panel has found Julian Assange

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is being wrongly detained at the London embassy

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What does this mean now for the WikiLeaks founder?

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The UK will double its funding for Syrian refugees who have fled

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It is pledging an extra ?1.2 billion by 2020 to help some

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of the people who have fled to neighbouring countries such

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70 countries are meeting in London this morning for a conference

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The energy regulator is to investigate allegations

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that the charity Age UK has been selling unfavourable gas

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and electricity deals to elderly people in return for money.

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It concerns the energy supplier aeon, Age UK denies the claim.

:20:14.:20:21.

A murder inquiry has been launched after a man was shot dead

:20:22.:20:24.

during an attempted robbery at a warehouse

:20:25.:20:27.

Police were called after receiving reports that several masked men

:20:28.:20:31.

A man in his 50s, who was found with a gunshot wound at the scene,

:20:32.:20:36.

The BBC understands that a UN panel investigating whether WikiLeaks

:20:37.:20:39.

founder Julian Assange is 'unlawfully detained'

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at an embassy in London has ruled in his favour.

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Mr Assange says he expects to be able to walk free

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from the Ecuadorian embassy, where he's been living for three

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A Government minister has told this programme that bereavement services

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for families whose children are stillborn or die shortly

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It follows an investigation by the Conservative MP

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Antoinette Sandbach who found services were 'patchy' with some

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John Watson has all the sport for us now, and news of Tyson Fury throwing

:21:07.:21:12.

What is happening? champion of the world, Tyson Fury

:21:13.:21:27.

has threatened to quit the sport. It came in and interview

:21:28.:21:36.

has threatened to quit the sport. It his victory over Vladimir Critchlow.

:21:37.:21:37.

He says he does not want his victory over Vladimir Critchlow.

:21:38.:21:46.

hear from him later on. We will also touch on last night's

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hear from him later on. We will also from the Premier League, one of

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hear from him later on. We will also Newcastle, lost last night. Perhaps

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that not having the immediate effect they wanted. And we will hear from

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Jamie Jones-Buchanan of Leeds Rhinos, and interesting story. They

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begin their title defence later tonight following the floods over

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Christmas, they have not been able to train on their pitches. Not the

:22:17.:22:21.

best preparation for them ahead of the start of the new season. All of

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that to come at 10am. Thank you.

:22:25.:22:28.

David Cameron is to double the UK's aid spending for Syrian refugees,

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as more than 70 world leaders gather in London for talks

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Britain is promising an extra ?1.2 billion of aid for Syrians

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who have fled to neighbouring countries to escape the civil war.

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The announcement comes as a new poll suggests attitudes in the UK

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are hardening - two in five people here now say we should

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The United Nations is attempting to raise more than ?6 billion

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to help fund aid operations for the 4.6 million refugees

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who have fled Syria and are in need of assistance.

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With no end to the conflict in sight, Caroline Hawley looks

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at the grim statistics that define the crisis.

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Syria is the worst humanitarian crisis of our time. I will give you

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some figures, but all this is about, actually, is people dying.

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Before the war there were about 22 million people living in Syria.

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About half of them, half of them, had to clear they -- flee their

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homes, that is 11 million people uprooted. It really is huge, the

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population of Greece, Portugal or Belgium. More than 4.5 million of

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them have crossed into other countries. Next door in Lebanon,

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every fifth person is a Syrian refugee. The vast majority are

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fleeing not the so-called Islamic State but President Assad's regime.

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Take that in. While IS get all the attention, they are not the main

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humanitarian problem. In Syria it self more than 2 million children

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are living under siege or in areas that aid agencies cannot reach. Some

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have starved to death, some tortured to death, in all over a quarter of a

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million people have been killed. Around a third of

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million people have been killed. civilians. 13,000 of them were

:24:33.:24:41.

children. The UN says it will need $8 million to spend on the

:24:42.:24:44.

humanitarian crisis this year. Last year it got only half the money it

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asked for, but even if it got everything it asks for the reality

:24:50.:24:53.

is with the conflict carrying on many, many more Syrians are going to

:24:54.:24:54.

be killed. We can speak now to three Syrians

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living here in the UK. Haid Haid, a masters student

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who moved here from Syria Fardous Bahbouh, a translator who's

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been here for five years. And Reem Assal, who's going to be

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attending the conference later. Haid, tell us your situation macros

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you left Syria after the war broke out, went to Lebanon and have now

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come here? In 2011 I started participating in demonstrations

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against Assad. I had to go and serve in the army but refused to do that

:25:37.:25:44.

so I had to macro options, go out and kill people, or to be killed, or

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to leave the country, so I left the country. I stayed in Lebanon on the

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four years and I'm here to be my masters now. You had a relatively

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straightforward departure from the country and arrival here. When you

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look at the situation now, how do you feel about others and about your

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position? It is extremely difficult right now, because Turkey has closed

:26:07.:26:13.

its border with Syria since March 2015, almost a year now. Jordan has

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closed its border for more than three years now. It is extremely

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difficult for any Syrian to be able to enter Lebanon since January 2015,

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so what we are seeing now is that civilians who need to leave are

:26:28.:26:33.

trapped inside Syria, so it is a completely different story. To be

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able to get out of Syria, people have to be able to survive being

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shot not only by Assad forces but by security forces or by immigration

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officers from Turkey or Jordan or even Lebanon when they try to

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smuggle in illegally to these countries. Reem, what is your story?

:26:54.:27:02.

I was born in the UK but lived most of my life in Syria. In the

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beginning of the uprising I was engaged right from the start, so on

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the background of the activism I was had for questioning a couple of

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times in June 2000 and 11. After that, I had to flee the country, my

:27:23.:27:27.

family insisted upon that. I was fortunate because I'm a British

:27:28.:27:30.

citizen so it was straightforward for me, I came back to the UK, which

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is not the case for the majority of Syrians, who have to risk their

:27:40.:27:47.

lives, throw themselves in the seed to reach outside the country. You

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have got a lot of family still in Syria bowed you have been here for

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five years? I have family and friends all over Syria, I was a

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student in Syria, -- I was a teacher in Syria, and it is so hard to see

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it, there is biting, and we are very thankful and very grateful to the

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donors and Syrian friends who are gathered today in London. We need

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more focus on a political solution and a real end to the war, because

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we Syrians just wanted our rights, our dignity, our freedom, we were

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peaceful in our demonstrations but the regime didn't like this, and

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brutally killed everybody until the revolution had unfortunately become

:28:46.:28:53.

militarily. Now, the situation is very bad and the only baby can reach

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an effective political solution is through civilian protection, so be

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card only hold talks if there is no real feeling of civilian protection.

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That could only happen through ending the siege and through air for

:29:09.:29:17.

besieged areas, and also through the immediate stop of indiscriminate

:29:18.:29:23.

killing, mainly through bombardments, through Assad bombs

:29:24.:29:31.

and the Russian bombing the Syrians. They say they are fighting Isis,

:29:32.:29:35.

however if you look at the maps where the Russian bombs are landing,

:29:36.:29:39.

they are landing when the opposition are, so very little of this has gone

:29:40.:29:44.

on to Isis. And the third point is the release of the detailing is.

:29:45.:29:49.

Many Syrians who spoke for their freedom were detained. We have

:29:50.:29:54.

political detailing is and want to see them freed. I have two cousins

:29:55.:29:59.

who were detained because they were distributing food through a besieged

:30:00.:30:05.

town, and we don't know where they are. These two brave men were only

:30:06.:30:10.

helping with distributing food, they have family, children, and we have

:30:11.:30:13.

no idea where they are, so we need to know what is going on with the

:30:14.:30:21.

detainees. Haid, what do you want to come out of the conference today,

:30:22.:30:24.

there is talk about raising a huge amount of money to help those in

:30:25.:30:28.

need of help? First full I want to thank the UK for what they did, it

:30:29.:30:35.

is extremely helpful. But what we have been seeing here is talks on

:30:36.:30:40.

the humanitarian level. I think what we need to do is work on two

:30:41.:30:45.

different aspects on top of this, the first one is to work on the

:30:46.:30:50.

protection of refugees and Syrians outside of Syria, in Lebanon I was

:30:51.:30:53.

not able to renew my residency so I had to leave will stop many people

:30:54.:30:58.

cannot leave Lebanon because they have nowhere else to go, they are

:30:59.:31:03.

trapped within Lebanon, more than 800,000 Syrians don't have legal

:31:04.:31:13.

residency, Lebanon in January 20 12th imposed new regulations and are

:31:14.:31:16.

not allowing Syrians to do that because you have to pay around $200.

:31:17.:31:20.

So when you talk about protection, what do you mean? A legal framework

:31:21.:31:26.

in order to, first of all, acknowledge that they are refugees

:31:27.:31:30.

in those countries. Until now, Lebanon, Jordan and Turkey don't say

:31:31.:31:34.

that we are refugees, they say we are guests. We need to focus on

:31:35.:31:39.

having legal frameworks to acknowledge that we have refugees

:31:40.:31:44.

and to acknowledge the rise and the things the refugees have to do.

:31:45.:31:48.

Protection of civilians inside Syria is an issue. What we have been

:31:49.:31:54.

talking about here, about the barrel bombs and indiscriminate attacks, we

:31:55.:31:57.

have to stop this from happening, we have to guarantee that humanitarian

:31:58.:32:00.

aid will be have to guarantee that humanitarian

:32:01.:32:03.

besieged areas, 52 have to guarantee that humanitarian

:32:04.:32:07.

49 are besieged by the Assad regime. We are talking about one million

:32:08.:32:10.

people who don't have access to food. We need to do something about

:32:11.:32:17.

it. The UN has resolutions, more than three resolutions, that give

:32:18.:32:20.

them the justification, the legal justification in order to go

:32:21.:32:23.

them the justification, the legal those people without even an

:32:24.:32:27.

approval from the Syrian regime, but they are not able to do that because

:32:28.:32:31.

they think it's risky in order to do that without the regime guaranteeing

:32:32.:32:34.

that they'll not be attacked. So what we need here is to have food to

:32:35.:32:41.

be airdropped to those people because they are saying it's not

:32:42.:32:45.

possible. We have to look at other options. Let's, the UN have been

:32:46.:32:54.

dropping assistance to besieged areas for years or to hard-to-reach

:32:55.:32:58.

areas, so let's start doing this in order to give those people at least

:32:59.:33:02.

the hope that international community and those countries are

:33:03.:33:06.

willing to go and help you when there is a need for that.

:33:07.:33:12.

At a time when every country is bombing Syria, including the UK, why

:33:13.:33:17.

it's easy to decide to throw bombs on Syrian people when it's very hard

:33:18.:33:25.

and reluctant to drop food? If I may, Joanne narks I would like to go

:33:26.:33:28.

back to today's conference and to link it to the ground. Today we are

:33:29.:33:34.

pledging funds. Actually, a colleague of mine who works on the

:33:35.:33:40.

ground was saying yesterday that we are speaking today of improving

:33:41.:33:44.

education, providing education to children, but actually what happens

:33:45.:33:47.

is, a school is set up, you know, on the ground, all is good, children

:33:48.:33:51.

start to attend. Then suddenly the school is bombed. Everything is lost

:33:52.:33:56.

and we have to restart. So, unless we tackle the problem at the root,

:33:57.:34:00.

even if we get all the funds that... But this is about schools in

:34:01.:34:06.

neighbouring countries? ? No, on the ground in Syria. OK. So unless we

:34:07.:34:11.

tackle the problem at the root, even if we get all the funds pledged,

:34:12.:34:16.

we'll need double the amount next year because the crisis is growing.

:34:17.:34:20.

That's one thing. Another important point that I would like to really

:34:21.:34:26.

stress on is the importance, and I can't stress enough on the

:34:27.:34:32.

importance, putting the Syrians at the forefront of either to find

:34:33.:34:37.

their needs, their prytys, how the funds should be spent and in the

:34:38.:34:44.

implementation of the projects on the ground, because no-one else

:34:45.:34:54.

knows Syria better than Syrians -- priorities, how the funds should be

:34:55.:34:59.

spent. In order to find peace on the ground, it has to come from Syrians

:35:00.:35:02.

itself. The British Government believes the focus should be on

:35:03.:35:07.

helping people in the region, rather than allowing more refugees to come

:35:08.:35:12.

to this country, the numbers here would be 20,000 over five years. How

:35:13.:35:16.

do you see that debate? Do you think that the British Government is right

:35:17.:35:19.

to say that the most important thing is to give people in the region that

:35:20.:35:24.

they don't want to leave? I think it's a double responsibility. Now

:35:25.:35:31.

it's a reality. People are fleeing, are leaving, are throwing

:35:32.:35:34.

themselveses in the sea you know, risking their lives. We should

:35:35.:35:37.

tackle this problem. There is no point of just ignoring that and

:35:38.:35:42.

pretending that, well it's not the problem, we can't help them stay in

:35:43.:35:47.

the region because the neighbouring countries can't take endless

:35:48.:35:52.

numbers. Like in Lebanon, there are almost, you know, now... One third.

:35:53.:35:58.

Yes, one third of the population, so they are burdening the neighbouring

:35:59.:36:01.

countries. One third of the total population? No, no, one third of the

:36:02.:36:08.

Lebanese population because Lebanon has around 4 million Lebanese and

:36:09.:36:13.

you have 1.2 or 1.3 million Syrian refugees. A third of the population

:36:14.:36:17.

of the countries are refugees now, you see, so we need actually to work

:36:18.:36:24.

in parallel on both helping them by stopping the root of the conflict,

:36:25.:36:28.

that would be in my opinion the best thing to do. They'll stop fleeing

:36:29.:36:35.

their countries. No-one wants to leave their homes, you know, they'd

:36:36.:36:41.

rather stay if they can. My parents are still inside Syria, they don't

:36:42.:36:45.

want to leave, although it's extremely difficult. So are my

:36:46.:36:49.

parents. You see, that would be the ideal thing, but then, until then,

:36:50.:36:57.

there is no point of just denying those that are willing to leave a

:36:58.:37:10.

safe passage to reach the EU or elsewhere because it's not making

:37:11.:37:13.

any sense. These are human beings, their lives are important as well.

:37:14.:37:18.

Give them rights once they reach here. Thank you. We are out of time

:37:19.:37:24.

unfortunately, but we appreciate you all coming in. Thank you very much.

:37:25.:37:29.

Just to tell you, we are hearing, ahead of that conference, Germany's

:37:30.:37:37.

made a new pledge of 1.2 billion euro for Syria. That will go some

:37:38.:37:41.

way to help hitting the target that they are hoping to raise at the

:37:42.:37:44.

conference. We'll have more coverage a little later.

:37:45.:37:51.

Still to come today; does more need to be done to help families

:37:52.:37:54.

The MP discovered bereavement services were patchy.

:37:55.:38:06.

The BBC understands that a United Nations panel investigating

:38:07.:38:08.

whether Wikileaks founder Julian Assange is 'unlawfully

:38:09.:38:12.

detained' at an embassy in London has ruled in his favour.

:38:13.:38:14.

Mr Assange took refuge in the Ecuadorian embassy more

:38:15.:38:18.

than three and a half years ago to avoid extradition to Sweden.

:38:19.:38:21.

An official announcement is due tomorrow.

:38:22.:38:24.

Our correspondent Richard Lister is outside the embassy.

:38:25.:38:35.

Explain more, Richard - why was the UN looking at this and specifically

:38:36.:38:41.

what was it looking at, because he took the decision to walk into the

:38:42.:38:49.

embassy there? Yes he did but the Equadorian

:38:50.:38:56.

government gave him political asylum meaning in theory he should be able

:38:57.:39:00.

to go to Ecuador and live there without fear of being extradited to

:39:01.:39:05.

the US which of course is Mr Assange's greatest concern because

:39:06.:39:09.

the FBI is looking into his release of sensitive information through his

:39:10.:39:13.

WikiLeaks group. Now, that's the case as far as Mr Assange is

:39:14.:39:18.

concerned, he said he should be free to go to Ecuador but the moment he

:39:19.:39:22.

sets foot outside this embassy, he'd be arrest sod he asked the UN

:39:23.:39:25.

working group to look into whether or not his rights have been

:39:26.:39:28.

infringed and the BBC understands they'll say tomorrow that yes, his

:39:29.:39:32.

rights as somebody who's been granted political asylum have been

:39:33.:39:35.

infringed, he should be allowed to go to Ecuador. Therefore many

:39:36.:39:40.

Assange will say to the government, you need to give me my passport,

:39:41.:39:44.

assure me that I won't be extradited to Sweden or the US and let me go to

:39:45.:39:49.

Ecuador. The UK is not legally bound by the decisions of this working

:39:50.:39:53.

group and already today, the police have said if Mr Assange sets foot

:39:54.:39:56.

outside the embassy, he will be arrested. So what will happen?

:39:57.:40:04.

Wing we are looking at a stalemate frankly Joanna, more of the same. Mr

:40:05.:40:08.

Assange knows he'll be arrested if he leaves this embassy where he's

:40:09.:40:14.

been since June 2012 and the UK Government's said so far that they

:40:15.:40:17.

have an obligation to arrest him because he's skipped his bail

:40:18.:40:21.

conditions and also because they plan to extradite him to Sweden who

:40:22.:40:25.

want to question him in relation to the sexual assault allegations. I

:40:26.:40:30.

think we are looking at a stalemate unless Mr Assange says he's had

:40:31.:40:33.

enough in there or unless the British Government decides that it

:40:34.:40:37.

will abide by this ruling by the UN when it's made public tomorrow.

:40:38.:40:39.

Thank you very much. With me is Vaughan Smith,

:40:40.:40:43.

a good friend of Julian Assange, who allowed him to seek refuge

:40:44.:40:46.

in his home in 2010. What do you think about the latest

:40:47.:40:55.

development? Well, I hadn't heard that the decision had been in Julian

:40:56.:40:58.

Assange's favour, I've just heard that now on your programme and I'm

:40:59.:41:02.

absolutely thrilled if that's the case. I want to see this matter

:41:03.:41:07.

resolved, I think we all need to see this matter resolved. It's

:41:08.:41:10.

unacceptable to have Julian Assange sitting in this embassy in this

:41:11.:41:13.

manner. It doesn't change anything though

:41:14.:41:18.

does it, because it doesn't have any authority over the UK authorities? I

:41:19.:41:21.

hope it does change something. Actually I do think it does change

:41:22.:41:25.

something, it certainly changes something in the international

:41:26.:41:29.

opinion about him. This is the highest authority that Julian

:41:30.:41:33.

Assange can appeal to, you know. It's a tribunal that's effectively

:41:34.:41:40.

determined in favour a Washington Post journalist detained in Iran,

:41:41.:41:47.

Aung San Suu Kyi. If they cherry pick, aren't they doing what they

:41:48.:41:52.

are accusing Julian Assange of, of ignoring situations that don't suit

:41:53.:41:55.

us. I hope Julian Assange gets freedom. Effectively what happens if

:41:56.:42:00.

this decision is as you have reported it, he's been reported as a

:42:01.:42:03.

dissident and maybe we don't like them in our country, maybe we like

:42:04.:42:07.

to see them elsewhere. But he put himself in detention in the embassy

:42:08.:42:12.

because he wanted to avoid extradition and the prospect of

:42:13.:42:15.

criminal proceedings? He claims asylum. He got diplomatic asylum so

:42:16.:42:23.

he's reek newsed... But not for political reasons is it, it was

:42:24.:42:26.

related to potential charges? No, no, no, that's the way it's been

:42:27.:42:31.

presented but I contest that. Interestingly, the legislation that

:42:32.:42:34.

he was extradited on has completely changed. If he was to go through it

:42:35.:42:40.

now, he wouldn't be extradited, it's highly unlikely. How do you contest

:42:41.:42:45.

that it wasn't to do with allegations made against him in

:42:46.:42:49.

Sweden, rather than... Well, he has claimed that they are politically

:42:50.:42:56.

motivated and that actually they're completely unfair. He was granted

:42:57.:43:03.

political asylum by Ecuador and consequently now, this tribunal's

:43:04.:43:05.

apparently found in his favour, they have looked at the facts completely

:43:06.:43:09.

independently. We should recognise it. You can't just hark back to the

:43:10.:43:14.

idea that we are going to cherry pick this, that it's OK for a

:43:15.:43:17.

dissident in another country but when we've got one here and the

:43:18.:43:20.

international tribunal determine that, that we can't recognise it, of

:43:21.:43:23.

course we should recognise it. What sort of country are we? ! It does

:43:24.:43:27.

look like the stalemate will continue? I hope not. That he'll

:43:28.:43:32.

remain in that embassy? It's appalling if that's the case, I

:43:33.:43:37.

really hope not. Surely as a country, you know, we participated

:43:38.:43:40.

in the working group. Our country and the Swedes submitted evidence so

:43:41.:43:43.

we have recognised the process, surely we recognise the UN, why

:43:44.:43:48.

can't we abide by its rulings when we are accusing Julian Assange... A

:43:49.:43:53.

quick word on him as a friend and how he is having lived in that

:43:54.:43:58.

confinement for this time? I think his health is poor. When I last saw

:43:59.:44:03.

him, he said it was much worse than prison because he had no access to

:44:04.:44:09.

outside space at all. So I must say, he's quite pail and rather unhealthy

:44:10.:44:14.

and I think he's suffered horribly -- pale. I think it's time for us to

:44:15.:44:19.

acknowledge that we have a dissident in our country and we've got to let

:44:20.:44:23.

him free. Vaughan Smith, thank you very much.

:44:24.:44:27.

Let's get the latest weather update with Carol Kirkwood.

:44:28.:44:35.

You are a long way over there. I should run over.

:44:36.:44:42.

What is happening with the weather? The weather has been so up and down

:44:43.:44:43.

this week. I am The weather has been so up and down

:44:44.:44:48.

lot of it has to do with the jet stream. We talk about the jet stream

:44:49.:44:53.

often, a ribbon of fast-moving air, 30,000 feet up in the atmosphere

:44:54.:44:59.

roughly where planes fly and it will help you get back from America on a

:45:00.:45:04.

plane than it helps you get there. You can see how it's undulating at

:45:05.:45:10.

the moment. The jet stream is the boundary layer between warm and cold

:45:11.:45:12.

air and the bigger boundary layer between warm and cold

:45:13.:45:15.

in the temperature, the bigger the boundary layer between warm and cold

:45:16.:45:17.

jet stream. We talked about this when we were talking about

:45:18.:45:18.

jet stream. We talked about this that. You can see some big kinks in

:45:19.:45:26.

that jet stream, so that shows that it is very mobile. What you find in

:45:27.:45:31.

kinks like that, we have got low pressure

:45:32.:45:33.

kinks like that, we have got low have been rattling across the

:45:34.:45:36.

It also depends on the other direction

:45:37.:45:56.

It also depends on the the wind, low pressure dominating

:45:57.:45:56.

today, the wind coming from the wind, low pressure dominating

:45:57.:46:01.

direction, coming straight the wind, low pressure dominating

:46:02.:46:04.

Atlantic, from the seals, but also dragging a lot of cloud. I

:46:05.:46:07.

Atlantic, from the seals, but also have made that simple enough!

:46:08.:46:12.

Basically it will continue being changeable for a while? Right into

:46:13.:46:15.

the weekend it will be changeable and into next week as well. It

:46:16.:46:25.

causes trouble with what to wear! Today, though, it is fairly cloudy.

:46:26.:46:30.

We have got some beautiful pictures sent in by our weather Watchers,

:46:31.:46:34.

this is one from London earlier today, standard for what it is like

:46:35.:46:38.

in many parts of the UK although we do have some rain around. As I was

:46:39.:46:43.

saying to Joanna, it is mild, that milder air filtering steadily

:46:44.:46:48.

northwards. Usurping the cold air some of us had already this morning

:46:49.:46:52.

but not yet across Scotland and the far north of England. We had a

:46:53.:46:55.

weather front going through, taking rain with it, milder air following

:46:56.:47:00.

from that. A second introducing some rain as well, not particularly

:47:01.:47:05.

heavy. Later we will see heavy rain from the Atlantic. It is also

:47:06.:47:09.

breezy, as you can tell from the spacing on the isobars. A lot of

:47:10.:47:16.

cloud this morning, some breaks likely, down towards Kent and the

:47:17.:47:25.

East of Northern Ireland. Even into the afternoon you can see some

:47:26.:47:29.

showers across Wales and south-west England, a lot of cloud around,

:47:30.:47:33.

cloud generally across southern counties of England and into East

:47:34.:47:37.

Anglia, the Midlands, heading into northern England as well. Also the

:47:38.:47:42.

rain across northern England moving west to east, showers from Northern

:47:43.:47:45.

Ireland, the best chance of a break will be in the East. This rain

:47:46.:47:49.

moving steadily eastwards across Scotland, but look at the difference

:47:50.:47:54.

in the temperatures between West and North East, OP two in the Northern

:47:55.:47:58.

Isles this afternoon. Eventually the milder air will get into the

:47:59.:48:04.

Northern Isles. Tonight, cloudy and damp, then a can hear red band of

:48:05.:48:07.

rain across western Scotland and Northern Ireland in the shape of

:48:08.:48:11.

another weather front, and the wind. Them. Not a particularly cold night

:48:12.:48:17.

in prospect. That leads us into tomorrow morning, not a cold start

:48:18.:48:22.

to the day, and once again tomorrow will start on a cloudy note with

:48:23.:48:26.

some drizzle and some showers around. Meanwhile our band of rain

:48:27.:48:31.

across Scotland, northern England, will also move through Northern

:48:32.:48:35.

Ireland, heading slowly southwards. It may lead to localised flooding

:48:36.:48:39.

across south-west Scotland, some heavy rain as well across Cumbria,

:48:40.:48:45.

for example. Head of it, still a lot of cloud, windy wherever you are,

:48:46.:48:51.

but still relatively mild as well. If we move to the other side of his

:48:52.:48:55.

weather front, you can see it will still be cold enough for some snow

:48:56.:48:56.

on the hills. Hello, I'm Joanna Gosling and this

:48:57.:49:03.

is the Victoria Derbyshire show. Welcome to the programme

:49:04.:49:05.

if you've just joined us. The tragedy of a stillbirth or

:49:06.:49:07.

bereavement just after birth. Support for families whose babies

:49:08.:49:15.

are stillborn or die shortly after birth are "not good enough" -

:49:16.:49:18.

that's the view of a Government minister after an investigation

:49:19.:49:21.

for this programme revealed There is a real value in the

:49:22.:49:32.

treatment suites and bereavement midwives, and a real need for a

:49:33.:49:33.

bereavement hatchway. -- pathway. That was the Conservative MP

:49:34.:49:40.

Antoinette Sandbach. In a special investigation for this

:49:41.:49:42.

programme she meets the people determined to bring bereaved

:49:43.:49:46.

parents better support. David Cameron promises an extra ?1.2

:49:47.:49:55.

billion of aid for Syrian refugees. The money will go towards helping

:49:56.:50:00.

those who fled to Syria's neighbouring countries. We will be

:50:01.:50:03.

at a conference in London into the crisis this morning where more than

:50:04.:50:05.

70 world leaders are gathering. And the mum who took

:50:06.:50:09.

the Government to court and won - her son developed a sleep disorder

:50:10.:50:12.

from a swine flu jab, Germany has joined the UK in

:50:13.:50:38.

pledging extra funding for Syrian refugees have fled the Civil War.

:50:39.:50:40.

The UK is to double its funding for Syrian refugees who have fled

:50:41.:50:43.

It's pledging an extra ?1.2 billion to help those in camps in Jordan,

:50:44.:50:47.

70 countries meet in London this morning for a conference

:50:48.:50:51.

The energy regulator is to investigate allegations

:50:52.:50:53.

that the charity Age UK has been selling unfavourable gas

:50:54.:50:56.

and electricity deals to elderly people in return for money.

:50:57.:50:58.

It concerns a relationship with the energy supplier E.ON.

:50:59.:51:00.

A murder inquiry's begun after a man was shot dead during an attempted

:51:01.:51:05.

robbery at a Birmingham warehouse last night.

:51:06.:51:06.

Our correspondent Peter Wilson is at the scene. What happened?

:51:07.:51:13.

There is a murder investigation, West Midlands forensic teams have

:51:14.:51:17.

just arrived here in the dig the area of the city. Last night at

:51:18.:51:23.

6:40pm police were called, and they found the company director, 56 years

:51:24.:51:30.

old, lying in the road just behind me here. He had been shot by two

:51:31.:51:37.

masked men. Police said they don't know what type of firearm at this

:51:38.:51:41.

stage was used, they are appealing for anyone with information to come

:51:42.:51:46.

forward. It was at the height of the city's rush-hour, and his family

:51:47.:51:52.

have been informed. Police liaison teams are with them and at the

:51:53.:51:56.

moment the murder investigation is in full swing.

:51:57.:51:59.

The BBC understands that a UN panel investigating whether WikiLeaks

:52:00.:52:02.

founder Julian Assange is 'unlawfully detained'

:52:03.:52:03.

at an embassy in London has ruled in his favour.

:52:04.:52:06.

Mr Assange says he expects to be able to walk free

:52:07.:52:08.

from the Ecuadorian embassy, where he took refuge over three

:52:09.:52:11.

years ago, if the news is confirmed.

:52:12.:52:14.

A Government minister has told this programme that bereavement services,

:52:15.:52:19.

for families whose children are stillborn or die shortly

:52:20.:52:21.

It follows an investigation by the Conservative MP

:52:22.:52:28.

Antoinette Sandbach, who found services were 'patchy'

:52:29.:52:29.

with some parents unable to get help.

:52:30.:52:34.

John Watson has all the sport for us now, and news of Tyson Fury throwing

:52:35.:52:37.

Yes, a bit of a surprise, certainly not what we would have expected.

:52:38.:52:47.

Three months after becoming world heavyweight boxing champion

:52:48.:52:51.

Tyson Fury has threatened to quit the sport.

:52:52.:52:57.

In an interview with BBC Radio 5 Live this morning he says he's

:52:58.:53:03.

struggling to get motivated after his victory

:53:04.:53:05.

over Vladimir Klitschko in Dusseldorf back in November.

:53:06.:53:07.

He says he doesn't want the only reason to fight to be

:53:08.:53:10.

about the money, and still isn't sure whether he'll fight

:53:11.:53:12.

the Ukrainian boxer in a planned rematch in May.

:53:13.:53:14.

I don't know what I'm going to do at the moment. I haven't even cemented

:53:15.:53:20.

that I'm going to fight in a rematch, there is speculation about

:53:21.:53:23.

the rematch but it is even if I want to go ahead and fight again. I could

:53:24.:53:29.

walk away, Sail away into the sunset unbeaten, just live a normal life.

:53:30.:53:33.

It is what I decide to do, and I haven't decided yet.

:53:34.:53:36.

Newcastle United spent ?29 million on new players

:53:37.:53:38.

And that's from a club third from bottom in the Premier League.

:53:39.:53:49.

If Newcastle hoped that would lift them out of the danger zone,

:53:50.:53:52.

they were left disappointed as they were beaten 3-0

:53:53.:53:54.

It was a local lad who had the biggest say on the outcome,

:53:55.:53:58.

Everton midfielder Ross Barkley scoring twice.

:53:59.:53:59.

His second a cheeky chip from a penalty.

:54:00.:54:01.

With a massive TV deal kicking in next season,

:54:02.:54:04.

avoiding relegation has never been more important.

:54:05.:54:05.

Whether Newcastle can spend their way out of trouble

:54:06.:54:07.

Chelsea's topsy-turvy season shows signs of improvement.

:54:08.:54:17.

Since Jose Mouinho's sacking, they've gone on a seven

:54:18.:54:20.

Diego Costa came closest as they were held to a goalless

:54:21.:54:23.

Second-placed Aberdeen's win over table-toppers

:54:24.:54:36.

The goal of the game came from Jonny Hayes

:54:37.:54:42.

with this goal from 25 yards in a 2-1 win that trims the gap

:54:43.:54:45.

at the top of the Premiership to three points.

:54:46.:54:48.

The Super League season begins tonight, and it's been far

:54:49.:54:50.

from ideal preparation for champions

:54:51.:54:54.

Leeds Rhinos, who still haven't been able to return to their training

:54:55.:54:56.

pitches after they were flooded in December.

:54:57.:54:58.

They begin the defence of their title later,

:54:59.:55:00.

Despite the obvious disruption to their pre season plans,

:55:01.:55:04.

Jamie Jones Buchanan says some good has come out of their predicament.

:55:05.:55:06.

When you're training ground gets uprooted by a torrent of water, it

:55:07.:55:14.

is difficult, obviously. Our full training ground has been destroyed,

:55:15.:55:18.

we're finding alternative grounds to do our few sessions, which hasn't

:55:19.:55:26.

been too bad. We have built a lot of bridges, got a lot of friends, no

:55:27.:55:32.

shortage of invites, so we have used some local commercial gyms, private

:55:33.:55:36.

James, and the best thing for me was being back in my amateur club,

:55:37.:55:41.

getting a nostalgic feel training where it all started.

:55:42.:55:45.

Katie Swan became Britain's youngest ever Fed Cup player at the age of 16

:55:46.:56:00.

Hello, thank you for joining us this morning.

:56:01.:56:06.

Welcome to the programme if you've just joined us.

:56:07.:56:08.

We're on BBC Two and the BBC News Channel until 11am.

:56:09.:56:11.

Your contributions are really welcome to our programme.

:56:12.:56:13.

Texts will be charged at the standard network rate.

:56:14.:56:15.

Wherever you are you can watch our programme online

:56:16.:56:17.

via the BBC News app or our website, bbc.co.uk/victoria.

:56:18.:56:24.

A Government minister has admitted to this programme that bereavement

:56:25.:56:28.

services for families whose babies are stillborn or die shortly

:56:29.:56:30.

It follows an investigation for us by the Conservative MP

:56:31.:56:36.

Antoinette Sandbach who found services were "patchy",

:56:37.:56:38.

with some parents unable to access help.

:56:39.:56:42.

You might remember that in 2009 Antoinette's son Sam died

:56:43.:56:44.

In an emotional speech, she told the House of Commons

:56:45.:56:51.

there was no bereavement counselling available where she lived

:56:52.:56:53.

and she only got help when a charity paid for a counsellor

:56:54.:56:57.

At the moment it is up to hospital trusts to decide what kind

:56:58.:57:05.

of bereavement support they offer parents and,

:57:06.:57:09.

as Antoinette has discovered for this programme,

:57:10.:57:11.

In a moment we'll talk to Antoinette, but first

:57:12.:57:14.

I'm Antoinette Sandbach, MP, and I spoke in the House of Commons

:57:15.:57:22.

The night my son died I woke to find him not breathing.

:57:23.:57:27.

Arriving at hospital looking at a flat line in the ambulance

:57:28.:57:30.

for over 20 minutes, a crash team was waiting for me,

:57:31.:57:32.

We will support any bereaved parents that can get to us

:57:33.:57:46.

What we found, there are lots of areas which do not

:57:47.:57:57.

Some parents have said if it wasn't for counselling and support,

:57:58.:58:02.

they feel they would have been on medication for maybe a long time.

:58:03.:58:05.

That was my experience, I was offered medication

:58:06.:58:07.

I felt I was grieving, not depressed.

:58:08.:58:10.

As soon as we left the hospital, there

:58:11.:58:29.

I was so upset because I just needed the support, very early,

:58:30.:58:43.

and I was getting no, no, no, because she was too old,

:58:44.:58:46.

too young, did not die of the right thing.

:58:47.:58:48.

Minister, it is clear that those parents who arrived at hospital

:58:49.:58:54.

following on from a sudden infant death often don't have access

:58:55.:58:58.

The problem is a smaller one than it was some years ago,

:58:59.:59:05.

You might have some hospitals where there is a good bereavement

:59:06.:59:12.

suite but there is not a full-time bereavement nurse,

:59:13.:59:21.

where there might not be good counselling after the death,

:59:22.:59:23.

so we need to make sure that we have a really joined up

:59:24.:59:26.

so that we provide consistent support and help to mothers

:59:27.:59:31.

It has been quite difficult and emotional for me,

:59:32.:59:34.

this journey, but I'm absolutely determined to fight with others

:59:35.:59:36.

to make sure that those improvements are made and made for people

:59:37.:59:39.

You can watch and share that film online via our programme page.

:59:40.:59:48.

And if you need support after watching Antoinette's story

:59:49.:59:53.

there are details on how to get help there, too.

:59:54.:59:57.

You can also ring the Child Death Helpline -

:59:58.:59:59.

You can contact them on 0800 282 986.

:00:00.:00:10.

And when it is with me in the studio. First, let's go to David

:00:11.:00:17.

Cameron, talking about Syria ahead of that conference.

:00:18.:00:21.

Maintain services and create jobs for their own people. As we all

:00:22.:00:25.

know, the long-term solution to the crisis in Syria can only be reached

:00:26.:00:30.

with a political transition to a new Government that meets the needs of

:00:31.:00:34.

all its people, and we must continue to work towards that, however

:00:35.:00:39.

difficult it may be. While we pursue a solution to this horrific

:00:40.:00:43.

conflict, we can also take vital steps now which will make a real

:00:44.:00:47.

difference to people's lives today and long into the future. We can

:00:48.:00:58.

provide the help that Syrians need with pledges of aid, food and

:00:59.:01:00.

medical supplies that will quite literally saved lives this year and

:01:01.:01:02.

in the years ahead. We can provide refugees with the opportunities and

:01:03.:01:06.

skills they need to make a life for themselves and their families in

:01:07.:01:09.

their host communities, giving them a viable alternative to remain in

:01:10.:01:12.

the region and equipping them for the date they can eventually return

:01:13.:01:14.

home to We can support the host countries

:01:15.:01:24.

that are showing huge generosity in providing refuge to Syrians with no

:01:25.:01:27.

choice but to flee destruction. Before we turn to the steps we can

:01:28.:01:32.

take together, take a moment to remind ourselves just what five

:01:33.:01:36.

years of conflict has meant for Syria and for the millions of people

:01:37.:01:38.

who're suffering as a result. We'll leave that conference now,

:01:39.:01:54.

that is the opening of the international donor conference in

:01:55.:01:58.

London, hoping to raise ?6.2 billion for those affected by the war in

:01:59.:02:01.

Syria. We'll have more on that a little later. Let's return to our

:02:02.:02:06.

discussion about the sort of care that is available for parents after

:02:07.:02:10.

they lose a baby, whether it's through stillbirth or shortly after

:02:11.:02:15.

the child was born at a very young stage in their lives.

:02:16.:02:17.

Let's talk now to Dot Smith, head of maternity, Medway Maritime

:02:18.:02:21.

Judith Abela, acting chief executive of the Sands charity.

:02:22.:02:26.

Antoinette Sandbach, Conservative MP, whose son died

:02:27.:02:29.

And Annika Dowson, whose daughter was stillborn.

:02:30.:02:38.

Thank you all for joining us. Antoinette, just heartbreaking to

:02:39.:02:44.

watch you talking in the Commons about what you went through. Tell us

:02:45.:02:50.

about your experience, if you will, going back to the moment after you

:02:51.:02:56.

discovered Sam was dead? You went to the hospital. What was it like and

:02:57.:02:59.

what help was available for you? Well, the crash team were waiting

:03:00.:03:04.

for me but it became apparent quite quickly that they were unable to

:03:05.:03:07.

help and I was put in a room that I would describe as a waiting room, a

:03:08.:03:12.

sofa and two chairs, very plain walls and left there for quite a

:03:13.:03:19.

long time. At the hospital, I was given a leaflet from the a charity

:03:20.:03:25.

and ultimately it was that leaflet that I contacted the charity several

:03:26.:03:28.

days after, but I spent four-and-a-half hours in that room

:03:29.:03:35.

and didn't really get a huge amount of support. I had to wait for the

:03:36.:03:39.

police and it was a very difficult time. I think that's what's

:03:40.:03:46.

motivated me to try and see what the best practise is out there so it's

:03:47.:03:50.

been lovely to meet Dot on this journey and see how well Medway are

:03:51.:03:55.

doing and also to go to Alder Hey who have fantastic services

:03:56.:04:00.

available, the really kind of gold standard service that should be

:04:01.:04:03.

available elsewhere in the country. Tell us more about what it was that

:04:04.:04:08.

took you on that path from that intense personal grief to a

:04:09.:04:12.

determination that nobody should have to experience the sort of thing

:04:13.:04:18.

you had? Well, really, I got so much support through counselling. But it

:04:19.:04:23.

took time to come? Yes and it was only because of the charity that

:04:24.:04:26.

funded it and commissioned it from Alder Hey that I was able to access

:04:27.:04:31.

that counselling because that support wasn't available in Wales

:04:32.:04:35.

where I was then living. I think if you heard what Amelia was saying

:04:36.:04:41.

about being told by various people that she wasn't suitable for support

:04:42.:04:47.

from their charity because her circumstances weren't right,

:04:48.:04:52.

actually what's clear is that, as the minister identified, is a clear

:04:53.:04:55.

pathway and I'm really delighted we have the political will now from the

:04:56.:05:00.

Department of Health to look at it and a substantial funding

:05:01.:05:03.

commitment. That gives us a really important opportunity to get things

:05:04.:05:08.

right. Annika, your daughter Gypsy was

:05:09.:05:12.

stillborn in 2008. How were you treated in the hospital through that

:05:13.:05:18.

traumatic time? The medical staff, the midwives and everything, they

:05:19.:05:22.

were really good and very supportive, but the room that I was

:05:23.:05:26.

actually in was at the end of a corridor of the maternity unit and

:05:27.:05:32.

in the same corridor was the theatre. I was in the room for three

:05:33.:05:37.

days an in those days I could hear the mums in the rooms adjacent to me

:05:38.:05:42.

giving birth and I could hear the babies' screams which was really

:05:43.:05:47.

hard. I know when I was in labour, I was in a lot of pain and I needed a

:05:48.:05:52.

midwife but I could also hear a mum screaming and she needed help and

:05:53.:05:55.

knowing that she was having a live baby, I told the midwife to go to

:05:56.:06:00.

her and she came back half an hour later and Gypsy's head was already

:06:01.:06:05.

coming out. I didn't feel that... I was important enough is the wrong

:06:06.:06:08.

word but that's how I felt and that that mum needed the care. Now if the

:06:09.:06:14.

room hadn't haven't have been there, I wouldn't have known that. Maybe

:06:15.:06:16.

then I would have felt I was important to ask for that midwife to

:06:17.:06:22.

help me through that pain. I've no doubt that they would have stayed,

:06:23.:06:26.

it's just how I felt. Dot, Antoinette has already spoken of you

:06:27.:06:31.

and the work that you do. Listening to what happened to Annika, it's

:06:32.:06:38.

just heart-breaking hearing women who've been athletic through these

:06:39.:06:41.

experiences. It sounds like a simple thing that could be put right, not

:06:42.:06:46.

having the women in an environment where they can hear other women

:06:47.:06:50.

giving birth? When I listen to the stories, it resonates with the

:06:51.:06:54.

stories that local women tell us at Medway. We have come through a long

:06:55.:06:58.

journey, we are still on it, we have made some mistakes but also learnt

:06:59.:07:01.

from the feedback to get the mistakes corrected. I think that's

:07:02.:07:05.

where we are now, in that position where our services are being

:07:06.:07:10.

developed in response to what the women tell us, what... So you have

:07:11.:07:14.

sound proofed the bereavement programme? Absolutely. So our women

:07:15.:07:21.

have told us the same story as Annika's just told us. Equally ewe

:07:22.:07:26.

had an inspection from the Care Quality Commission that criticised

:07:27.:07:29.

the facilities in 2013 and we were really lucky that our Trust

:07:30.:07:34.

supported us in the developments, so we refurbished our suite which is on

:07:35.:07:38.

the delivery suite but totally sound proofed now, it enables the woman to

:07:39.:07:41.

have that dignity and privacy in what she deserves is a really

:07:42.:07:46.

traumatic experience. We heard from Ben Gummer that even sometimes when

:07:47.:07:49.

the infrastructure is in place, the staff are not in place. What are the

:07:50.:07:52.

staffing levels and do you have the resources? We have worked really

:07:53.:07:56.

hard to look at how we can best support both the mothers going

:07:57.:08:00.

through the experience but equally the midwives that support them on

:08:01.:08:03.

that journey so we have been really lucky to be able to fund a

:08:04.:08:07.

bereavement midwife who has the support of admin staff because it's

:08:08.:08:11.

a multifaceted path way that we need to address. Her function is really

:08:12.:08:17.

around supporting the mother, having been direct contact for her but

:08:18.:08:23.

equally training the midwives in best to support... Could all

:08:24.:08:27.

Merseyside wives not be trained for this... That's... If there's one in

:08:28.:08:32.

particular covering everybody, it's obviously a limitation? That's

:08:33.:08:36.

exactly what our approach is. We have a bereavement midwife who

:08:37.:08:40.

facilitates the training for all our midwives in our unit so whichever

:08:41.:08:44.

midwife is allocated to that woman, she has got an insight and

:08:45.:08:48.

understanding how best to support the lady having her baby and that

:08:49.:08:53.

mother in her experience going through the bereavement pathway.

:08:54.:09:02.

Judith, your charity's fundamental in supporting hospitals in providing

:09:03.:09:05.

what the hospitals need isn't it? Yes. Do you think that's right that

:09:06.:09:09.

charities are stepping in? I think it's very difficult. Obviously, it's

:09:10.:09:14.

a huge resource that's needed to be able to get the standard needed

:09:15.:09:21.

across the country. At the moment, the charity sector is plugging a lot

:09:22.:09:24.

of that gap. You can see the amazing work that can happen at the unit,

:09:25.:09:29.

but it's still too inconsistent and, unless charities are there at the

:09:30.:09:32.

moment, then nothing will happen to improve the standard of care. We are

:09:33.:09:37.

able to start working and develop the work that we have been doing

:09:38.:09:41.

with the Government to try to get much more funding in place and get

:09:42.:09:45.

consistency across the country. There are simple things that can be

:09:46.:09:49.

done to improve the care for my bereaved parent, it doesn't have to

:09:50.:09:53.

take huge resources. What is happening on that funding? I'm

:09:54.:09:59.

delighted that the minister has committed ?350 million to preparing

:10:00.:10:03.

the mental health there and that kind of support will help parents

:10:04.:10:08.

particularly on the counselling pathway following on from leaving

:10:09.:10:11.

the hospital because it's not just what happens at the hospital, it's

:10:12.:10:17.

the after-care following that. Is it right that charities do have to

:10:18.:10:21.

provide the level of support they do? Charities have real specialist

:10:22.:10:29.

expertise and I found, I mean Annika's done amazing work

:10:30.:10:31.

fund-raising for her hospital and parents want to do something in

:10:32.:10:35.

memory of their child and I think what's exciting about what the

:10:36.:10:38.

Government's announcing is that they are trying to work in partnership so

:10:39.:10:43.

that those local initiatives can really thrive and help support,

:10:44.:10:50.

because then there's a top-down thing and it allows parents to get

:10:51.:10:54.

involved and be part of it. I think that's important for the parents

:10:55.:10:56.

too. In the end, there is obviously a

:10:57.:11:01.

point where the medical staff in a hospital have to end what they do

:11:02.:11:07.

and the parents have to move on and get help from elsewhere? How can

:11:08.:11:13.

that be smooth? Well, that is where the value of the bereavement midwife

:11:14.:11:17.

is, very often they'll have linked into the organisations and

:11:18.:11:21.

communities. So it's a case of simple sign-posting then sometimes

:11:22.:11:24.

is it? And commissioning the counselling services. That's where

:11:25.:11:28.

there are real gaps at the moment, that there are not necessarily the

:11:29.:11:31.

counselling services available in the community and I'm very excited

:11:32.:11:35.

about the funding that will now mean that there's the opportunity to

:11:36.:11:41.

commission those services. What is important for midwives to be told in

:11:42.:11:45.

caring for a parent after they've lost a child, because obviously

:11:46.:11:49.

anybody that goes into that profession is caring, but there'll

:11:50.:11:53.

be a right and wrong way to handle something so sensitive? I think one

:11:54.:11:57.

size doesn't fit all and it's understanding how you can speak to a

:11:58.:12:00.

mother and her family and gain a really good connection and then work

:12:01.:12:07.

with her to achieve her choices. Our midwives are trained on actually all

:12:08.:12:10.

the services that we provide so that she can signpost the mother to the

:12:11.:12:15.

next phase. She'll also support her in consent for a very difficult

:12:16.:12:20.

decision on whether to do a postmortem or not, she'll then also

:12:21.:12:25.

support the mother in caring for her baby in the first hours after

:12:26.:12:29.

delivery and it's about actually acknowledging that this is a birth

:12:30.:12:32.

experience, albeit very sad, this woman's going through the same

:12:33.:12:35.

physical processes of having just had a baby and it's being able to

:12:36.:12:39.

put that all into a very individualised package for each

:12:40.:12:41.

woman. That's what the training does, it talks about the difficult

:12:42.:12:45.

conversations that you have to have, it talks about the difficult ways

:12:46.:12:48.

that you manage the whole family to support each and every individual

:12:49.:12:51.

because they're all going through that experience with that mother, so

:12:52.:12:58.

it's really about being very human on this life-influencing journey

:12:59.:13:01.

that will actually resonate and have an impact going forward to the next

:13:02.:13:06.

pregnancies. Also about giving the midwives and any health professional

:13:07.:13:11.

coming into contact with a bereavement family being able to

:13:12.:13:14.

communicate properly. We have done work for a long time with the

:13:15.:13:19.

professionals and it's about the communication skills, making the

:13:20.:13:23.

health professionals aware of the unique impact the death of a baby

:13:24.:13:26.

can have and also helping them support that family and make

:13:27.:13:30.

memories. It's the sign-posting to ongoing support circumstances and

:13:31.:13:34.

the difficult conversations, so it's empowering the midwives to be able

:13:35.:13:37.

to support the families properly. I think a lot of midwives still

:13:38.:13:40.

haven't had access to that training. They still don't have the confidence

:13:41.:13:45.

to be able to work with and support parents properly and, rather than be

:13:46.:13:49.

too scared of saying the wrong thing so they don't say anything, it's

:13:50.:13:53.

about giving them the skills and confidence to be able to go in

:13:54.:13:57.

there, talk to the family and help them through the situation. There is

:13:58.:14:03.

a huge anxiety about midwives getting it wrong. Thank you all very

:14:04.:14:07.

much. Lots of people getting in touch. Tweet from Debra, so much

:14:08.:14:12.

more needs to be done, very moving. Hugh has tweeted saying very

:14:13.:14:20.

important piece on parental bereavement, very dignified and

:14:21.:14:25.

eloquent. Antoinette, I knew nothing of your experience, moved by your

:14:26.:14:29.

stoicism and inspire bid your strength. A ten-year-old has won

:14:30.:14:41.

?120,000 in damages after a swine flu left him with -- swine flu

:14:42.:14:47.

The main news For the this morning: problems. For the

:14:48.:14:58.

Germany has joined the UK with a big new pledge of aid for Syrian

:14:59.:15:03.

Britain's sending an extra ?1.2 billion for millions

:15:04.:15:05.

of people in camps in Jordan, Lebanon and Turkey.

:15:06.:15:08.

70 countries meet in London this morning for a conference

:15:09.:15:10.

The energy regulator is to investigate allegations

:15:11.:15:12.

that the charity Age UK has been selling unfavourable gas

:15:13.:15:15.

and electricity deals to elderly people in return for money.

:15:16.:15:17.

It concerns a relationship with the energy supplier E.ON.

:15:18.:15:20.

A murder inquiry's begun after a man was shot dead during an attempted

:15:21.:15:27.

robbery at a Birmingham warehouse last night.

:15:28.:15:28.

Our correspondent Peter Wilson is at the scene.

:15:29.:15:38.

sorry, he was earlier, he is not now.

:15:39.:15:41.

The BBC understands that a UN panel investigating whether WikiLeaks

:15:42.:15:43.

founder Julian Assange is 'unlawfully detained'

:15:44.:15:45.

at an embassy in London has ruled in his favour.

:15:46.:15:47.

Mr Assange says he expects to be able to walk free

:15:48.:15:50.

from the Ecuadorian embassy, where he took refuge over three

:15:51.:15:52.

years ago, if the news is confirmed.

:15:53.:15:54.

A Government minister has told this programme that bereavement services,

:15:55.:15:56.

for families whose children are stillborn or die shortly

:15:57.:15:59.

It follows an investigation by the Conservative MP

:16:00.:16:04.

Antoinette Sandbach, who found services were 'patchy'

:16:05.:16:07.

with some parents unable to get help.

:16:08.:16:10.

Let's catch up with all the sport now.

:16:11.:16:19.

Tyson Fury talking about his future? Absolutely, we're not sure if it is

:16:20.:16:26.

a threat or something he will follow through on.

:16:27.:16:27.

Tyson Fury has threatened to quit boxing, just three months

:16:28.:16:30.

after becoming world heavyweight champion.

:16:31.:16:31.

After beating Wladimir Klitchko in Dusseldorf in November,

:16:32.:16:37.

he says he might walk away from the sport and says he's

:16:38.:16:40.

undecided about whether he'll fight Klitchko

:16:41.:16:41.

If Newcastle hoped that spending ?29 million on new players

:16:42.:16:45.

would lift them out of the Premier League relegation

:16:46.:16:47.

zone, they were left disappointed as they were beaten 3-0

:16:48.:16:50.

What a result in Scotland as second placed Aberdeen beat table toppers

:16:51.:16:58.

The goal of the game came from Jonny Hayes,

:16:59.:17:01.

with this goal from 25 yards in a 2-1 win that trims the gap

:17:02.:17:04.

at the top of the Premiership to three points.

:17:05.:17:10.

Katie Swan became Britain's youngest ever Fed Cup player at the age of 16

:17:11.:17:20.

After coming into the team to replace your who is ill at the

:17:21.:17:32.

moment. I'm sure Judy Murray will be delighted.

:17:33.:17:38.

Let's go back to the Syria crisis, David Cameron has made an

:17:39.:17:42.

impassioned plea for more funds to help those fleeing the horrific

:17:43.:17:46.

conflict in Syria. He was speaking at a donor's conference in London

:17:47.:17:49.

which began this morning with delegates from more than 70

:17:50.:17:53.

countries. David Cameron said that displaced people had to be helped to

:17:54.:17:56.

return to their homes. The UK and Germany have announced big increases

:17:57.:18:00.

this morning in their aid the Syrians. Ben Brown is at the

:18:01.:18:04.

conference, we can join him there now.

:18:05.:18:10.

David Cameron in those remarks you showed a few minutes ago was saying

:18:11.:18:15.

there was a need to give those Syrian refugees who are in the camps

:18:16.:18:20.

in countries like Jordan, Turkey, Lebanon, countries neighbouring

:18:21.:18:23.

Syria, to give them an opportunity to make a life for themselves. The

:18:24.:18:27.

Syrian war has been going for five years, a brutal civil war, no sign

:18:28.:18:31.

at the moment that it is coming to an end. These people could be in

:18:32.:18:37.

those countries for years to come and the international community in

:18:38.:18:40.

Europe especially is trying to persuade them to stay where they are

:18:41.:18:46.

in the region, not to join the mass flow of migrants into Europe, but

:18:47.:18:49.

one of the ways they are thinking of doing that is to provide more jobs,

:18:50.:18:54.

more educational opportunities for those refugees, 4.5 million refugees

:18:55.:18:59.

in those countries, Jordan, Lebanon and Turkey. It is hugely expensive

:19:00.:19:05.

of course, $9 billion is what the international community are being

:19:06.:19:08.

asked to come up with at this conference in London today, but

:19:09.:19:12.

there is huge pressure on those host countries. Jordan in particular,

:19:13.:19:17.

King Abdullah said this week in a BBC interview that, such is the

:19:18.:19:22.

influx of Syrian refugees into his country, the country is at boiling

:19:23.:19:28.

point and there is a dam that could burst at any time, you said, so

:19:29.:19:31.

pressure on the international community to help those countries,

:19:32.:19:38.

to create work for them, schools for the refugee children who are not

:19:39.:19:43.

going to school at the moment. It is expensive and in previous years

:19:44.:19:45.

donor's conferences like this have been asked to donate money and have

:19:46.:19:52.

only managed to get half of what was requested. This time there is an

:19:53.:19:55.

impetus on them to come up with the money they have been asked for.

:19:56.:20:00.

Thank you very much. We can speak now to a Conservative

:20:01.:20:06.

MP who sits on the Commons foreign Affairs Select Committee and have

:20:07.:20:10.

visited camps in Iraq. Also, from Damascus, Pascal, who

:20:11.:20:16.

works for the International committee of the Red Cross.

:20:17.:20:21.

?1.2 billion extra for the British Government, where has that come

:20:22.:20:26.

from? From the Department for International development, Justin

:20:27.:20:29.

Greening was on the airwaves this morning talking about the extra

:20:30.:20:33.

investment of at least ?1.2 billion, which takes our total investment to

:20:34.:20:43.

?2.3 billion. It is not extra money, it is coming from the existing aid

:20:44.:20:47.

budget? People will hear the figure and think, things are tight, where

:20:48.:20:52.

is the money coming from? This isn't just about money, if you look at

:20:53.:21:00.

what refugees go through, the trauma, they need shelter, security,

:21:01.:21:07.

food, medicine, but beyond that what tends to happen, they want work,

:21:08.:21:11.

they don't want hand-outs, they want to work, they want their children to

:21:12.:21:16.

go to school. They begin to think about moving after losing hope, the

:21:17.:21:20.

third year of being in a refugee camp, they think, my child cannot

:21:21.:21:25.

get education, I need an alternative, so what this conference

:21:26.:21:29.

is about is a new way to deliver some real opportunities and jobs,

:21:30.:21:34.

schooling, education. One of our very good ambassadors in the leather

:21:35.:21:39.

nun, Tom Fletcher, started an educational programme in refugee

:21:40.:21:43.

camps. It is that sort of innovation that I think is going to make a huge

:21:44.:21:47.

difference. David Cameron is passionate about this. He said this

:21:48.:21:50.

morning, we have got to tackle the root cause of the problem, the

:21:51.:21:54.

Geneva peace talks. If you cannot get peace

:21:55.:21:58.

Geneva peace talks. If you cannot revisiting this year after

:21:59.:22:01.

Geneva peace talks. If you cannot more and more aid money required, so

:22:02.:22:05.

we need to tackle the root cause. You have got to give these people

:22:06.:22:13.

hope to their communities. You said people will leave after three years,

:22:14.:22:17.

people are already leaving, a billion came to Europe last year.

:22:18.:22:22.

The sort of aid that is going that way to set up the assistance you are

:22:23.:22:28.

talking about is going to take time. In that period, should the UK do

:22:29.:22:32.

more in terms of taking in refugees whose lives are on hold, who are in

:22:33.:22:37.

desperate situations, who are coming to Europe already or will be

:22:38.:22:41.

thinking about it because there is no imminent sign of the relief that

:22:42.:22:48.

you describe? We are already taking 20 thousand people from those camps

:22:49.:22:56.

over five years, last year we took 3500 children through our normal

:22:57.:22:59.

processing of people who require refuge. I spoke to Lord Malloch

:23:00.:23:08.

Brown, one of the signatories of an open letter to the Government this

:23:09.:23:12.

week saying that the figure is simply not good enough. He says it

:23:13.:23:16.

should be more like 100,000 over five years. What is important is the

:23:17.:23:24.

welfare of those families and children. It is best to keep them

:23:25.:23:27.

close to their villages and have hope of return. 12 million Syrians

:23:28.:23:34.

have been displaced, overfull and a half million in camps. How many

:23:35.:23:38.

would you take, it won't solve the problem. You need two solutions, the

:23:39.:23:44.

peace process, the root cause, and secondly make the camps and the job

:23:45.:23:49.

opportunities and education them much better than it is today will

:23:50.:23:54.

stop that way, you have a good chance of giving them at least some

:23:55.:23:58.

hope of staying there and then returning home. In Sinjar, with the

:23:59.:24:05.

Yazidi 's who fled from Daesh, it has been liberated, there is a

:24:06.:24:14.

massive aid effort. Let's not outbid each other on numbers, let's do what

:24:15.:24:20.

is right by those people. On the numbers, generous donations from the

:24:21.:24:24.

UK as we have mentioned, also Germany offering a lot of money this

:24:25.:24:28.

morning. The amount of money being sought is higher than the figure

:24:29.:24:33.

that was put forward by the UN last year, 60% of that amount was not

:24:34.:24:38.

raised last year. As the debate changed enough for countries to be

:24:39.:24:43.

more generous this year in terms of the best way to deal with refugees

:24:44.:24:46.

will be looked at the numbers that have come to Europe, as we

:24:47.:24:51.

discussed? That is David Cameron's message today, to those leaders,

:24:52.:24:56.

over 60 prime ministers, 70 countries represented, the messages,

:24:57.:25:00.

follow us, we will share best practice with you, other countries

:25:01.:25:05.

are doing well, Norway, Germany, Kuwait, the UN sponsoring the

:25:06.:25:09.

conference will stop let's not allow ourselves to make pledges but then

:25:10.:25:15.

not deliver. The money has to be delivered, the UN launches these

:25:16.:25:20.

appeals and they only get 50% real delivery. That needs to change, the

:25:21.:25:24.

UK has led the way and David Cameron is determined to make sure other

:25:25.:25:29.

countries do the same. Let's bring in Pawel Krzysiek from the

:25:30.:25:31.

international community for the Red Cross, joining us from Damascus. How

:25:32.:25:37.

do you assess the situation in terms of the best way for the

:25:38.:25:44.

international community to help? I think the most important issue right

:25:45.:25:51.

now for the humanitarian agencies like the Red Cross is to access the

:25:52.:25:59.

people in need in this country. There are still too many places and

:26:00.:26:04.

too many people that we cannot reach with humanitarian aid. Yesterday, we

:26:05.:26:12.

entered the besieged town in Damascus where we saw desperation.

:26:13.:26:17.

That operation-macro also sought last month in other places in Syria,

:26:18.:26:25.

it is the example of what is going on in this country -- the grid that

:26:26.:26:36.

desperation I also saw last month. In terms of the fighting, the

:26:37.:26:38.

clashes, combat between various parties and also because

:26:39.:26:46.

humanitarian aid organisations like mine cannot access the people in

:26:47.:26:55.

need. Have there been food drops? Should there be airdrops of food and

:26:56.:27:04.

other aid? Airdrops is an extremely compensated operation, and, I don't

:27:05.:27:10.

go, being in my diet, I can hardly imagine how the airdrops could be

:27:11.:27:18.

done there. But there is a road there, which leads to the town,

:27:19.:27:24.

roads to many other places in Syria and aid can be brought in. What we

:27:25.:27:32.

need is the willingness of various parties to allow this aid in, and

:27:33.:27:39.

this is what the International Red Cross is pushing for. Yesterday we

:27:40.:27:47.

saw that it is possible but it is not enough in order for us to help

:27:48.:27:53.

those people on a regular basis, properly, we need to access those

:27:54.:28:02.

places regularly. When you talk about places like Madaya, people are

:28:03.:28:09.

stuck there, unable to leave, so what is generally happening with the

:28:10.:28:13.

refugee crisis? Are people able to leave with borders sealed? What we

:28:14.:28:18.

have seen is not only the people beeping outside Syria, which is an

:28:19.:28:28.

estimated over 4 million people, but many, many people are fleeing their

:28:29.:28:31.

homes and going from one place inside Syria to another. I remember

:28:32.:28:37.

in Aleppo, I think, in my last visit in November I met an old man living

:28:38.:28:46.

in eastern Aleppo, in an unfinished building, no walls, no windows, the

:28:47.:28:55.

Red Cross was working to seal this place. He told me, I lived in

:28:56.:29:01.

eastern Aleppo, that I had to leave, I went to Raqqa, then I had to

:29:02.:29:11.

leave, so I went to Western Aleppo, where the people were promising me

:29:12.:29:18.

flats and, as you can see, this is the flat, no windows and no doors.

:29:19.:29:23.

It is not only the problem of people fleeing outside but we are talking

:29:24.:29:29.

here about more than 8 million Syrians who are displaced

:29:30.:29:31.

internally, fleeing their homes, looking for a better life, and then

:29:32.:29:36.

cannot find it inside Syria because the situation is so dire. Pawel

:29:37.:29:41.

Krzysiek, thank you very much, Agro one, thank you. -- Nadhim Zahawi

:29:42.:29:49.

thank you. A mum from Somerset has become

:29:50.:29:50.

the first person to win compensation after her son developed

:29:51.:29:53.

a sleeping disorder Josh Hadfield was diagnosed

:29:54.:29:55.

with narcolepsy in 2010. His mum, Caroline, sought legal

:29:56.:29:58.

help to prove a link between the jab After a long fight, he's now

:29:59.:30:01.

been granted ?120,000. We can now talk to 10-year-old Josh

:30:02.:30:04.

and his mum, Caroline, who join us from

:30:05.:30:07.

Bristol this morning. Thank you both for joining us.

:30:08.:30:15.

Caroline, take us back to why you got the swine flu jab done in the

:30:16.:30:19.

first place? Initially we had it because the Government advice at the

:30:20.:30:23.

time was that all children under the age of five were classed as at high

:30:24.:30:29.

risk, and he was still four. We had a letter from our GP, giving us the

:30:30.:30:33.

information that the Government had advised. I did a few weeks of

:30:34.:30:39.

research on it to see if there was any adverse side effects, which, at

:30:40.:30:41.

the time, there was nothing reported. Narcolepsy was not flagged

:30:42.:30:48.

up to you at the time? You were not aware of that? Know, the only side

:30:49.:30:54.

effects I could find were a sore arm and disliked beaver, that was all

:30:55.:31:00.

there was. When did you realise something was wrong with Josh? Three

:31:01.:31:05.

weeks after the vaccination he went from being a healthy, energetic

:31:06.:31:10.

four-year-old to being one who just slept all the time. He was coming

:31:11.:31:14.

home from school and going to bed. You would not see him until the

:31:15.:31:19.

following day when the school was calling and saying, you have brought

:31:20.:31:25.

him into school and he is asleep in our later, come and collect him. I

:31:26.:31:29.

knew then something was wrong. How long did it can to find out what was

:31:30.:31:35.

wrong? It took lots of different tests, lots of different doctors,

:31:36.:31:42.

and we got the official written diagnosis in February 20 11.

:31:43.:31:57.

Hi Josh, tell us what it's like having narcolepsy? It's mostly bad.

:31:58.:32:04.

I don't like it when I have to go to sleep because I miss out on things

:32:05.:32:08.

that I quite like. So you just get very, very tired, do you? Yes.

:32:09.:32:18.

Caroline, once you'd found out that it was narcolepsy, what did you do

:32:19.:32:23.

with that information? It's taken you six years to get to the point of

:32:24.:32:26.

actually getting compensation over this? It did. Initially, when I

:32:27.:32:32.

found out what it was, I spoke to the doctors and said, could it be be

:32:33.:32:37.

anything to do with the vaccine and they were all like, no, no, no, no,

:32:38.:32:43.

and my thoughts were that it was because there was nothing else that

:32:44.:32:47.

had come into effect which could have caused the sleepiness. So I

:32:48.:32:54.

campaigned quite a lot and spoke to various different newspapers and

:32:55.:32:57.

tried to get the story out which we managed to do in April 2011. The

:32:58.:33:04.

first day that came out, I had five families contact me over the next 24

:33:05.:33:09.

hours to say, oh, my God, these symptoms are exactly the same as

:33:10.:33:12.

what is going on with my child, no-one knows what it is, I'm now

:33:13.:33:17.

going to take this article to the doctors and hospitals and we are

:33:18.:33:19.

going to try and get it tested for that. So in order to win the victory

:33:20.:33:24.

that you did and get compensation, what did you have to prove? We had

:33:25.:33:31.

to prove that Josh was more than 60% disabled because, according to the

:33:32.:33:36.

DWP, I'm a vaccine damage payment scheme, they have a 60% disablement

:33:37.:33:44.

level which they initially said Josh was not severely disabled enough and

:33:45.:33:50.

didn't reach that level. So we have very, very regular hospital

:33:51.:33:52.

appointments in London and sleep studies and all the rest of it, so

:33:53.:33:56.

we had to get everything done. Obviously I'd contacted a solicitor

:33:57.:33:59.

as well who worked very, very hard for us. Reports were done. How do

:34:00.:34:10.

you feel about the fact that you took the choice to get him

:34:11.:34:16.

vaccinated and it's had this impact? I feel incredibly guilty about it to

:34:17.:34:20.

be honest and I'll have to live with this for the rest of my life.

:34:21.:34:27.

Although I was trying to protect him, but his life has now been

:34:28.:34:31.

affectd and it's never, ever going to change. I feel guilty but the

:34:32.:34:36.

other part of me feels very angry about the fact that we have had to

:34:37.:34:39.

jump through so many hoops to try and get some sort of level of

:34:40.:34:45.

compensation for something which he never asked for and the vaccine I

:34:46.:34:49.

don't think was ever tested properly anyway.

:34:50.:34:56.

It's very, very mixed. ?120,000 of compensation. What does that mean to

:34:57.:35:02.

you? It all means that I can start putting a few things in place to try

:35:03.:35:06.

and set up a bit of a secure future for Josh. At the end of the day, I

:35:07.:35:15.

will do everything I can to support him but I'm not always going to be

:35:16.:35:18.

around. There's going to come a time when Josh will need to fend for

:35:19.:35:23.

himself so I need to try and put things in place for him long-term

:35:24.:35:28.

and for his future. Thank you very much, Caroline and

:35:29.:35:34.

Josh, Caroline said there she did not believe the vaccine was tested

:35:35.:35:36.

adequately. The Department of Work and Pensions

:35:37.:36:22.

initially decided against allocating compensation to Josh, a spokesman

:36:23.:36:23.

told the programme: The energy regulator, Ofgem,

:36:24.:36:37.

is to investigate claims about the relationship between Age

:36:38.:36:41.

UK, and the energy company, The Sun newspaper says the charity

:36:42.:36:43.

has been selling costly electricity and gas deals to elderly people and,

:36:44.:36:47.

in return, receiving millions Age UK has rejected the allegations,

:36:48.:36:50.

while Eon said its tariffs Our personal finance correspondent

:36:51.:36:58.

Simon Gompertz is here. Tell us what is alleged to have gone

:36:59.:37:12.

on here? The allegations in the Sun are that Age UK has brought 150,000

:37:13.:37:19.

older people into gas and electricity contracts that are too

:37:20.:37:22.

expensive, they are paying more than they need to. What they were was

:37:23.:37:27.

earlier last year, they brought out a two-year fixed rate deal, so you

:37:28.:37:31.

paid the same amount for two years to give you peace of mind, Age UK

:37:32.:37:37.

selling it, passing people on to the big supplier Eon for a certain price

:37:38.:37:41.

but it turned out by the end of the year that if people had been on

:37:42.:37:45.

Eon's cheapest price that they had on offer during that year, they

:37:46.:37:49.

would have been ?245 better off for the year. A considerable sum and not

:37:50.:37:56.

only that, Age UK was getting paid Commission for passing people on,

:37:57.:38:02.

that amounted to ?6 million for the year and, if you divide it by the

:38:03.:38:07.

number of people, it's roughly ?41 per customer that they passed on to

:38:08.:38:12.

Eon, so the claim is that people were paying too much and that Age

:38:13.:38:16.

UK, the charity, was getting a kick back for that. Are charities able to

:38:17.:38:25.

do that and take Commission for it? They can. Age UK sells equity

:38:26.:38:30.

release plans where you can tap into the value of your home, insurance,

:38:31.:38:34.

funeral plans, a lot of things that they make money from, the money is

:38:35.:38:40.

then used in the charity's activities, all of it is diverted

:38:41.:38:44.

there, but both Age UK and Eon have had their say about this today and

:38:45.:38:51.

Age UK first of all says it's been working with Eon for years and says:

:38:52.:39:24.

Eon adds that customers are not tied and can swap to a cheaper deal when

:39:25.:39:33.

they want to, they always work to ensure the tariffs are competitively

:39:34.:39:38.

priced. They say this type was the cheapest. They can switch without

:39:39.:39:42.

any charge which means they can pick a tariff that best suits their

:39:43.:39:47.

needs. Coming at a time when trust in charities has been an issue, is

:39:48.:39:53.

this going to be looked at, just in terms of whether it's advisable for

:39:54.:39:57.

there to be links between charities and business like this? Charities

:39:58.:40:03.

have really been under the Spotlight, primarily for fund-raise

:40:04.:40:06.

ing tactics using telephone cold-calling and that type of thing.

:40:07.:40:10.

This isn't about that. The same question arises as to what we want

:40:11.:40:13.

our charities to do when they raise funds, to we want them to be like

:40:14.:40:17.

commercial operations? After all, when they make a kick back or a

:40:18.:40:21.

commission from selling gas and electricity, they are sort of doing

:40:22.:40:25.

what those price comparison when sites on the Internet do when we

:40:26.:40:29.

want to switch suppliers because they get typically between ?30 and

:40:30.:40:35.

?60 a time if they pass on a customer to an energy company and

:40:36.:40:38.

that's in a sense what Age UK was doing. To we want our charities to

:40:39.:40:43.

be doing that, making money out of insurance and gas and electricity

:40:44.:40:46.

give than they use that money then for charitable purposes? Thank you,

:40:47.:40:47.

Simon. We've been discussing how Syrian

:40:48.:40:51.

refugees can be helped by the international community -

:40:52.:40:54.

as world leaders meet in London Earlier this week -

:40:55.:40:56.

over 100 senior figures signed a letter calling the government's

:40:57.:41:01.

response to the refugee I've been speaking to one

:41:02.:41:04.

of the signatories the former Foreign Office minister

:41:05.:41:09.

Lord Malloch Brown. Suddenly this isn't a problem far

:41:10.:41:17.

away and about humanitarian sympathy, it's an urgent political

:41:18.:41:21.

problem close to home. So I have no doubt that more money will be raised

:41:22.:41:26.

and I think the conference is timely and coming on the back of the

:41:27.:41:30.

postponement of the peace negotiations for Syria. I think it's

:41:31.:41:36.

also going to be accompanied by a recognition that this conflict's

:41:37.:41:39.

around for a while and therefore the refugee problem is around for a

:41:40.:41:44.

while. So you've signed a letter saying that the Government position

:41:45.:41:47.

here and the numbers that it's accepting, 20,000 over five years,

:41:48.:41:50.

is morally unacceptable, would you put a figure on it?

:41:51.:41:54.

I'm not sure there is a figure per say, but when we are taking less

:41:55.:41:58.

over five years than Canada, a country half our size is taking in

:41:59.:42:05.

one, you've got to realise that we are, proportionately way off. The

:42:06.:42:09.

Government's quite right to say that we can't just throw open our doors

:42:10.:42:14.

to everybody, there has to be very clear screening of people to make

:42:15.:42:19.

sure they are refugees, to make sure also that there are not terrorists

:42:20.:42:23.

in their number. The public has a right to be reassured that this

:42:24.:42:30.

problem is being well-managed, the in-flow is being managed. We have to

:42:31.:42:33.

look to our history, enormous success in the past that we have had

:42:34.:42:37.

with refugees who've come here, whether it was Jewish refugees or

:42:38.:42:51.

the Second World War, whether it was other situations. Has the debate

:42:52.:42:57.

become toxic? It has. What's needed is real

:42:58.:43:05.

leadershire from politicians, which is a combination of respect for laws

:43:06.:43:11.

and undertakings we have given, compared and combined with a

:43:12.:43:16.

willingness to be tough, humane but tough in dealing with those groups

:43:17.:43:18.

who don't qualify as refugees. Thank you for you company

:43:19.:43:24.

this morning and for Shona got in touch on the issue

:43:25.:43:34.

about bereavement counselling for parents after they lose a baby. She

:43:35.:43:39.

says she lost her baby at 31 and a half weeks, this was no formal

:43:40.:43:44.

counselling service or volunteers who'd lost a baby which she did find

:43:45.:43:49.

helpful, it helped her a lot and Cheryl's tweeted, great to see

:43:50.:43:52.

examples of excellent bereavement care.

:43:53.:43:53.

We'll be back tomorrow from 9:15 on BBC Two,

:43:54.:44:02.

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