Browse content similar to 01/03/2018. Check below for episodes and series from the same categories and more!
Line | From | To | |
---|---|---|---|
Hello. | 0:00:01 | 0:00:04 | |
It's Thursday. | 0:00:04 | 0:00:05 | |
It's 9 o'clock. | 0:00:05 | 0:00:06 | |
I'm Victoria Derbyshire. | 0:00:06 | 0:00:09 | |
Welcome to the programme. | 0:00:09 | 0:00:11 | |
Our top story today: Hundreds
of drivers have spent | 0:00:11 | 0:00:15 | |
the night stranded in snow
on the M80 in central Scotland | 0:00:15 | 0:00:17 | |
with more snow expected right
across the UK today. | 0:00:17 | 0:00:24 | |
We are in the car and we are warm.
There is nothing to look at. It is | 0:00:24 | 0:00:31 | |
like a car park. Everybody is trying
to sleep, I think. There aren't many | 0:00:31 | 0:00:36 | |
lights on. | 0:00:36 | 0:00:38 | |
We'll be looking at extra
payments people living | 0:00:38 | 0:00:40 | |
in fuel poverty can claim
during the cold weather. | 0:00:40 | 0:00:42 | |
Also this morning: It's one
of the most pressing | 0:00:42 | 0:00:44 | |
issues of our time. | 0:00:44 | 0:00:45 | |
Dementia. | 0:00:45 | 0:00:46 | |
This morning
we reveal new figures showing | 0:00:46 | 0:00:50 | |
1.3 million people will be living
with it in the UK by 2036. | 0:00:50 | 0:00:54 | |
I now prefer to email or text. When
I type it is as though dementia has | 0:00:54 | 0:01:03 | |
never entered my life. This morning
we will be joined by this group of | 0:01:03 | 0:01:08 | |
people who all live with dementia or
are professionals working in the | 0:01:08 | 0:01:11 | |
field. If you have this condition,
we definitely want to hear from you | 0:01:11 | 0:01:17 | |
this morning. Please get in touch in
the usual ways. | 0:01:17 | 0:01:22 | |
And the Home Office says
it is considering allowing a medical | 0:01:22 | 0:01:24 | |
cannabis trial to treat
a six-year-old boy with | 0:01:24 | 0:01:26 | |
a rare form of epilepsy. | 0:01:26 | 0:01:28 | |
We'll speak to Alfie
Dingley's parents before | 0:01:28 | 0:01:29 | |
the end of the programme. | 0:01:29 | 0:01:37 | |
Hello and
welcome to the programme. | 0:01:40 | 0:01:43 | |
We're live until 11am. | 0:01:43 | 0:01:50 | |
Really keen to hear
from you about your experience | 0:01:50 | 0:01:53 | |
of living with dementia this morning
| 0:01:53 | 0:01:55 | |
or if you care for someone who does. | 0:01:55 | 0:01:57 | |
Please do get in touch | 0:01:57 | 0:01:59 | |
and if you're happy to speak on air
we'll try and get you on before | 0:01:59 | 0:02:03 | |
the end of the programme. | 0:02:03 | 0:02:04 | |
Use the hashtag VictoriaLIVE. | 0:02:04 | 0:02:07 | |
You can message us on Facebook. | 0:02:07 | 0:02:10 | |
Our top story today: | 0:02:10 | 0:02:12 | |
The Met Office has issued
a second red alert for snow, | 0:02:12 | 0:02:15 | |
this time for South Wales
and South West England. | 0:02:15 | 0:02:17 | |
This red warning means the extreme
weather poses a real risk to life. | 0:02:17 | 0:02:20 | |
In Scotland, hundreds of drivers
have spent the night stranded | 0:02:20 | 0:02:22 | |
on snowbound motorways. | 0:02:22 | 0:02:24 | |
Some were stuck for
more than 15 hours. | 0:02:24 | 0:02:25 | |
Others have been stranded overnight
near Skegness in Lincolnshire | 0:02:25 | 0:02:31 | |
where police say even snowploughs
can't get through and military | 0:02:31 | 0:02:33 | |
vehicles have been deployed. | 0:02:33 | 0:02:40 | |
Let's get the latest
from our correspondents. | 0:02:40 | 0:02:42 | |
Catriona Renton is in Glasgow. | 0:02:42 | 0:02:47 | |
Good morning. It is really cold
here. You can probably see the | 0:02:47 | 0:02:51 | |
powdery snow floating by behind us
but it is really cold and it is very | 0:02:51 | 0:02:55 | |
quiet. Because of the snow, of
course. People have heeded the | 0:02:55 | 0:03:01 | |
warning this morning and there is
very little traffic on the roads. | 0:03:01 | 0:03:05 | |
The people stranded overnight,
people are doing their best to sort | 0:03:05 | 0:03:08 | |
out that situation. People were
stranded at Glasgow airport | 0:03:08 | 0:03:12 | |
overnight and the airport is hoping
to open at three o'clock this | 0:03:12 | 0:03:16 | |
afternoon. Two thirds of schools in
Scotland are closed today, I | 0:03:16 | 0:03:20 | |
understand. Again that is tens of
thousands of children that will have | 0:03:20 | 0:03:23 | |
the day off school. More to tell you
about the red warning that we are in | 0:03:23 | 0:03:29 | |
the middle of hearing Glasgow. --
here in Glasgow. It is in central | 0:03:29 | 0:03:38 | |
and southern Scotland at the moment
and it is due to be called off at | 0:03:38 | 0:03:41 | |
ten o'clock this morning but there
is still an amber weather warning | 0:03:41 | 0:03:44 | |
for much of the day until six
o'clock tonight. We are told not to | 0:03:44 | 0:03:48 | |
get too hopeful than either because
the forecast until the weekend is | 0:03:48 | 0:03:55 | |
for pretty bad weather, if not as
bad as it is now. People are bracing | 0:03:55 | 0:03:59 | |
themselves and hunkering down.
Really it is a day to stay in the | 0:03:59 | 0:04:02 | |
house and keep warm if you possibly
can. My colleague John Kay is in | 0:04:02 | 0:04:09 | |
Truro. I feel your pain. Good
morning from Cornwall. A lot of | 0:04:09 | 0:04:15 | |
people woke up in the south of
England in Southland midway of this | 0:04:15 | 0:04:19 | |
morning and looked out of the window
and thought it wasn't too bad. | 0:04:19 | 0:04:22 | |
Powdery snow falling but what is all
the fuss about? Maybe we shouldn't | 0:04:22 | 0:04:26 | |
have closed all the shops and
businesses and schools and doctors | 0:04:26 | 0:04:30 | |
surgeries. But in the last few
minutes the latest warning has come | 0:04:30 | 0:04:32 | |
from the Met Office to say that they
still believe this will be a very | 0:04:32 | 0:04:38 | |
bad storm in this part of the
country. They have issued this red | 0:04:38 | 0:04:42 | |
alert, the most severe warning, for
a sliver that goes from South Wales | 0:04:42 | 0:04:47 | |
through Cardiff across the Bristol
channel and into northern Somerset, | 0:04:47 | 0:04:52 | |
Weston-Super-Mare, into Somerset
itself, across Exmoor and Dartmoor | 0:04:52 | 0:04:57 | |
and into Devon. That bright red zone
that you will see on the maps that | 0:04:57 | 0:05:01 | |
we have already seen in Scotland.
Not just heavy snowfall but also | 0:05:01 | 0:05:05 | |
high winds. Emma Storm is coming
from the Bay of this gate across the | 0:05:05 | 0:05:11 | |
south. -- survey of Biscay. It means
high winds and drifting conditions, | 0:05:11 | 0:05:21 | |
blizzards. The question is working
out where that will happen. In this | 0:05:21 | 0:05:25 | |
part of the country there are remote
rural communities and keeping roads | 0:05:25 | 0:05:28 | |
open in those areas will basically
be impossible. They are having to | 0:05:28 | 0:05:33 | |
prioritise to work out which routes
they can keep running. In most | 0:05:33 | 0:05:37 | |
places it is a little bit of dusty
snow right now but it will get much | 0:05:37 | 0:05:40 | |
heavier as the day goes on and into
the evening and then again tomorrow | 0:05:40 | 0:05:44 | |
and potentially into tomorrow night
as well. That is what they are | 0:05:44 | 0:05:48 | |
worried about, not just the instant
snowfall, but the accumulation over | 0:05:48 | 0:05:52 | |
hours and hours. It is the first red
warning for snow that I can remember | 0:05:52 | 0:05:56 | |
in Devon and parts of Somerset over
the last few years. We have had read | 0:05:56 | 0:06:02 | |
warnings for flooding, notoriously
four years ago, but it is the first | 0:06:02 | 0:06:05 | |
one that level for snow, I think.
That is the situation in the | 0:06:05 | 0:06:10 | |
south-west of England. Let's go to
Phil Bodmer in Yarm in north | 0:06:10 | 0:06:16 | |
Yorkshire. Good morning. The snow in
the North East is falling thick and | 0:06:16 | 0:06:20 | |
fast. You can see just how much
there is on this car. That shows you | 0:06:20 | 0:06:23 | |
the level of snow that we have had.
Police in north Yorkshire are | 0:06:23 | 0:06:28 | |
warning drivers not to travel if at
all possible. Driving conditions on | 0:06:28 | 0:06:32 | |
many routes are abysmal. The A66
Scotch corner is closed currently. | 0:06:32 | 0:06:38 | |
Lincolnshire Police say drivers are
being warned not to travel if they | 0:06:38 | 0:06:42 | |
don't have to. Pretty much every
road throughout the county is | 0:06:42 | 0:06:47 | |
impassable and gritters and snow
ploughs have been out all morning. | 0:06:47 | 0:06:49 | |
In Yarm itself the main centre is
clear and perhaps you can see on | 0:06:49 | 0:06:54 | |
that shot that the road is clear.
Snow ploughs and gritters have been | 0:06:54 | 0:06:59 | |
through all morning. Leeds Bradford
Airport has cancellations this | 0:06:59 | 0:07:02 | |
morning and there are problems on
the railways as elsewhere in the | 0:07:02 | 0:07:05 | |
country. If you are setting out
today, the advice is to take time, | 0:07:05 | 0:07:09 | |
make sure you are prepared, take
extra clothing and a blanket if you | 0:07:09 | 0:07:13 | |
can and be prepared for a longer
journey than normal. Thank you. We | 0:07:13 | 0:07:22 | |
will keep you updated with the
latest situation throughout the | 0:07:22 | 0:07:24 | |
morning and a full weather forecast
for you just before ten o'clock. Now | 0:07:24 | 0:07:27 | |
the rest of the news with Annita
McVeigh. Good morning. | 0:07:27 | 0:07:40 | |
Theresa May will meet Donald Tusk
for a working lunch this morning. | 0:07:40 | 0:07:46 | |
Tomorrow she is expected to release
more detail of her vision for | 0:07:46 | 0:07:50 | |
Britain's future relationship with
the EU. Independent inquiry into | 0:07:50 | 0:07:54 | |
child sexual abuse will publish its
first completed report this morning. | 0:07:54 | 0:07:59 | |
The findings will focus on the
forced migration and abuse of | 0:07:59 | 0:08:02 | |
thousands of children, many of whom
were in care, who was sent to | 0:08:02 | 0:08:06 | |
Australia, New Zealand, Canada and
Africa following the Second World | 0:08:06 | 0:08:09 | |
War. The British and Australian
governments have apologised but | 0:08:09 | 0:08:13 | |
today's report is likely to condemn
the programme and highlights the | 0:08:13 | 0:08:16 | |
failure to detect and prevent the
abuse. | 0:08:16 | 0:08:22 | |
The Home Office says
it is considering allowing a medical | 0:08:23 | 0:08:25 | |
cannabis trial to treat
a six-year-old boy with | 0:08:25 | 0:08:27 | |
a rare form of epilepsy. | 0:08:27 | 0:08:28 | |
It previously turned down requests | 0:08:28 | 0:08:29 | |
by the family of Alfie Dingley,
from Warwickshire, | 0:08:29 | 0:08:31 | |
to legally take the drug. | 0:08:31 | 0:08:34 | |
But now ministers say
they are exploring every option, | 0:08:34 | 0:08:37 | |
following a meeting with the family. | 0:08:37 | 0:08:38 | |
An option could be a three-month
trial, led by Alfie's doctors | 0:08:38 | 0:08:43 | |
and based on sufficient
and rigorous evidence. | 0:08:43 | 0:08:51 | |
For the first time acid
is described as a highly | 0:08:52 | 0:08:56 | |
dangerous weapon --
in new sentencing guidelines. | 0:08:56 | 0:09:02 | |
The advice for judges
and magistrates | 0:09:02 | 0:09:05 | |
in England and Wales has
been updated in the wake | 0:09:05 | 0:09:08 | |
of a surge in attacks
using corrosive substances. | 0:09:08 | 0:09:10 | |
Offenders are now likely
to face stiffer penalties. | 0:09:10 | 0:09:12 | |
The American retail
giant Walmart says it | 0:09:12 | 0:09:15 | |
will tighten its policy on firearms
sales as Donald Trump tells | 0:09:15 | 0:09:18 | |
Congress it's time to act. | 0:09:18 | 0:09:20 | |
The President stunned
some politicians | 0:09:20 | 0:09:22 | |
in his own Republican party
by telling them on live TV not to be | 0:09:22 | 0:09:26 | |
so afraid of the pro-gun lobby. | 0:09:26 | 0:09:28 | |
He said he wanted what he called
a strong reform bill | 0:09:28 | 0:09:31 | |
but stuck by his suggestion
of arming some teachers. | 0:09:31 | 0:09:34 | |
Spotify,
the world's largest music streaming | 0:09:34 | 0:09:35 | |
service has filed paperwork to start
trading its shares | 0:09:35 | 0:09:37 | |
on the New York Stock Exchange. | 0:09:37 | 0:09:39 | |
The Swedish company
which has a database | 0:09:39 | 0:09:44 | |
of 30 million songs will
undertake what's known | 0:09:44 | 0:09:46 | |
as a direct listing letting
investors and employees sell | 0:09:46 | 0:09:49 | |
shares without needing
an intermediary. | 0:09:49 | 0:09:50 | |
Spotify - which launched in 2008 -
now has over seventy | 0:09:50 | 0:09:52 | |
one million paying subscribers,
with even more using their free | 0:09:52 | 0:09:55 | |
advertisement supported service. | 0:09:55 | 0:09:56 | |
Shoppers have until
midnight tonight to spend | 0:09:56 | 0:10:02 | |
paper ten-pound notes featuring
Charles Dickens before | 0:10:02 | 0:10:04 | |
they cease to be legal tender. | 0:10:04 | 0:10:11 | |
The Bank of England says
there are still 200 million | 0:10:11 | 0:10:13 | |
of them in circulation. | 0:10:13 | 0:10:14 | |
They have been phased out
since last September | 0:10:14 | 0:10:16 | |
and replaced by polymer notes
depicting Jane Austen. | 0:10:16 | 0:10:24 | |
And finally there were 11 wins
for the BBC's journalism at | 0:10:25 | 0:10:31 | |
the Royal Television Society Awards
last night including not one | 0:10:31 | 0:10:34 | |
but two awards for this programme. | 0:10:34 | 0:10:35 | |
Victoria Derbyshire was named
Network Presenter of the Year | 0:10:35 | 0:10:38 | |
and she also picked up the gong
for best interview of the year, | 0:10:38 | 0:10:40 | |
for football abuse. | 0:10:40 | 0:10:42 | |
Congratulations, Victoria. Thank
you. I want to thank you for | 0:10:42 | 0:10:45 | |
following coverage of our stories on
Facebook and the BBC News website. | 0:10:45 | 0:10:50 | |
We really appreciate your support.
Thank you. We really want you to get | 0:10:50 | 0:10:54 | |
in touch with us this morning if you
have experience of living with | 0:10:54 | 0:10:57 | |
dementia, whether it is yourself or
you care for somebody in your family | 0:10:57 | 0:11:01 | |
or placement with this condition. It
is one of the most pressing issues | 0:11:01 | 0:11:06 | |
of our time. We are talking about it
a lot this morning and we would love | 0:11:06 | 0:11:11 | |
to hear your experience. We want to
talk to you if you are happy to come | 0:11:11 | 0:11:14 | |
on air. | 0:11:14 | 0:11:19 | |
Use the hashtag VictoriaLIVE | 0:11:21 | 0:11:24 | |
and if you text, you will be charged
at the standard network rate. | 0:11:24 | 0:11:27 | |
(ANI OFF) | 0:11:27 | 0:11:30 | |
Let's get the sport. Eddie Jones has
been talking about the physical and | 0:11:30 | 0:11:34 | |
verbal abuse he experienced. Yes,
England lost to Murrayfield in the | 0:11:34 | 0:11:41 | |
Six Nations championship on
Saturday. He was returning south | 0:11:41 | 0:11:45 | |
from Edinburgh, got an early train
on Sunday morning. He was heading to | 0:11:45 | 0:11:49 | |
Manchester because he was a guest of
Sir Alex Ferguson at the Manchester | 0:11:49 | 0:11:52 | |
United match when they beat Chelsea.
It was on that train, travelling by | 0:11:52 | 0:11:57 | |
himself in standard class, he got a
bit of verbal abuse and he said it | 0:11:57 | 0:12:03 | |
was physical as well. This footage
is when he got off the train and | 0:12:03 | 0:12:08 | |
Manchester Oxford Road, surrounded
by Scotland fans, who harangued him | 0:12:08 | 0:12:11 | |
on the way to the taxi. We have
taken out some of the swearing. | 0:12:11 | 0:12:20 | |
SHOUTING AND CHEERING. He says that
is it. He said he always liked | 0:12:25 | 0:12:30 | |
taking selfies and engaging with
fans but he will never take public | 0:12:30 | 0:12:33 | |
transport again after that incident.
He also pointed to the comments | 0:12:33 | 0:12:38 | |
before the match from former
international Gavin Hastings, one of | 0:12:38 | 0:12:42 | |
the Scotland prop is, talking about
hating the English. He says that | 0:12:42 | 0:12:49 | |
incites certain behaviour and that
ties in. The Scottish rugby union I | 0:12:49 | 0:12:55 | |
appalled by the verbal abuse
suffered by Eddie Jones and the | 0:12:55 | 0:12:59 | |
disgusting behaviour of those
involved. They say it does not | 0:12:59 | 0:13:02 | |
represent the values of the sport
and the fans. The dignity Eddie and | 0:13:02 | 0:13:06 | |
the team showed on Saturday is in
stark contrast to this ugly | 0:13:06 | 0:13:10 | |
incident. We hope not to see that
again. Of course Eddie Jones | 0:13:10 | 0:13:13 | |
deciding he can't be seen like that
in public again. There were lots of | 0:13:13 | 0:13:19 | |
goals at Wembley in the FA Cup last
night and people talking about the | 0:13:19 | 0:13:23 | |
video assistant referee again. Yes,
Spurs manager Mauricio Pochettino | 0:13:23 | 0:13:29 | |
called it embarrassing. This was the
fifth round replay against League | 0:13:29 | 0:13:32 | |
One Rochdale. Spurs comfortable
winners in the end but the first | 0:13:32 | 0:13:36 | |
half was one VAR decision after
another. The referee, Paul Tierney, | 0:13:36 | 0:13:40 | |
the boys in his head Graham stopped,
the VAR for the night. The match was | 0:13:40 | 0:13:48 | |
so stop and start. There was a
penalty awarded with VAR and then | 0:13:48 | 0:13:52 | |
ruled out and VAR used again for
that. Five minutes added on at the | 0:13:52 | 0:13:56 | |
end of the first half for all those
delays. Is that really good for the | 0:13:56 | 0:14:01 | |
game? Here is the Spurs manager. I
think we have the best referees in | 0:14:01 | 0:14:08 | |
Europe or in the world and the
referees are so good. But I don't | 0:14:08 | 0:14:12 | |
know if this system will help them
or create more confusion. | 0:14:12 | 0:14:21 | |
or create more confusion. If you
watched this half, more confusion | 0:14:21 | 0:14:22 | |
than help. Football is the context
of emotion and if we are going to | 0:14:22 | 0:14:29 | |
kill this emotion I think we are
going to change the game. Mauricio | 0:14:29 | 0:14:34 | |
Pochettino was quite measured there.
He would have been angrier if they | 0:14:34 | 0:14:37 | |
had lost because it was 1-1 at
half-time. Then the snow fell and | 0:14:37 | 0:14:41 | |
Spurs raced away with it. Fernando
Llorente scored a hat-trick in 12 | 0:14:41 | 0:14:46 | |
minutes. The perfect hat-trick,
right foot, left foot, head. Spurs | 0:14:46 | 0:14:51 | |
won 6-1 and they are into the
quarterfinals and they will play | 0:14:51 | 0:14:56 | |
Swansea. And at the world cycling,
we have another medal from the | 0:14:56 | 0:15:05 | |
Kennys. We were looking forward to
seeing them in action in the | 0:15:05 | 0:15:09 | |
Netherlands. Six months after having
a baby, Laura Kenny helped the women | 0:15:09 | 0:15:14 | |
qualify second greatest for the team
pursuit. There could be a medal | 0:15:14 | 0:15:18 | |
later. Jason Kenny got the silver in
the team spirit. He had an 18 month | 0:15:18 | 0:15:25 | |
lay-off after the Olympics and he
thought about retiring. That was | 0:15:25 | 0:15:28 | |
back in 2016. But they came second
to the Netherlands. Another medal | 0:15:28 | 0:15:35 | |
round his neck. I will be back with
the headlines in the next half an | 0:15:35 | 0:15:38 | |
hour. | 0:15:38 | 0:15:44 | |
hour. We are talking about one of
the most pressing issues of our | 0:15:44 | 0:15:48 | |
time, dementia.
Dementia is caused when the brain is | 0:15:48 | 0:15:52 | |
affected by diseases and can include
symptoms like memory loss, | 0:15:52 | 0:15:57 | |
difficulty speaking of thinking. By
the middle of this century, 1.3 | 0:15:57 | 0:16:01 | |
million people will be living at
home with dementia in this country. | 0:16:01 | 0:16:06 | |
According to new figures seen by
this programme. Alzheimer's is a | 0:16:06 | 0:16:12 | |
form of dementia and the Alzheimer's
Society expects the number to double | 0:16:12 | 0:16:16 | |
by 2036 and to keep on rising as the
population gets older and treatments | 0:16:16 | 0:16:22 | |
improve.
Later this year, the Government will | 0:16:22 | 0:16:26 | |
set out how to pay for social care
in our old age. | 0:16:26 | 0:16:33 | |
Three years ago, we gave video
cameras to three people with | 0:16:33 | 0:16:35 | |
dementia. We have gone back to them
and asked them to do the same again. | 0:16:35 | 0:16:42 | |
They are here with us this morning
along with others living with | 0:16:42 | 0:16:46 | |
dementia, some of their relatives
and those who care for people with | 0:16:46 | 0:16:50 | |
the disease. We will talk about what
it is like to live with dementia and | 0:16:50 | 0:16:54 | |
how we as a country can best pay the
care and those living with this | 0:16:54 | 0:17:00 | |
challenging disease.
First, here is a film they have made | 0:17:00 | 0:17:03 | |
for you. | 0:17:03 | 0:17:12 | |
To my mind, my way of thinking...
You happen to take any positive you | 0:17:12 | 0:17:22 | |
can to having such a cruel disease.
In 2040 quack -- In 2014, we gave | 0:17:22 | 0:17:30 | |
video cameras to three people
recently diagnosed with dementia. | 0:17:30 | 0:17:33 | |
What are we looking at? It is the
moon, isn't it? | 0:17:33 | 0:17:42 | |
Three years later, we asked them to
look back at what has changed in | 0:17:42 | 0:17:46 | |
that time.
That is you talking. Yes. | 0:17:46 | 0:17:53 | |
This is the story of what it is like
to live with Alzheimer's disease, | 0:17:53 | 0:18:00 | |
from the minds of the people most
affected. | 0:18:00 | 0:18:06 | |
Wendy Mitchell was diagnosed with
Alzheimer's at just 57, in 2013. | 0:18:12 | 0:18:19 | |
In her first set of video diaries
three years ago, she was still | 0:18:19 | 0:18:25 | |
working as an NHS administrator.
This is where I had my first | 0:18:25 | 0:18:28 | |
experience of what dementia can do
to your brain. I came out of my | 0:18:28 | 0:18:34 | |
office and I didn't have a clue
where I was. I decided to walk away | 0:18:34 | 0:18:39 | |
and down the corridor, hoping that
no one would come out and notice | 0:18:39 | 0:18:46 | |
there was something wrong. And so I
went through the end door and into | 0:18:46 | 0:18:52 | |
the wash room. Because that was the
only door that was a locked door. | 0:18:52 | 0:19:03 | |
It showed someone at an earlier
stage, someone left -- less hesitant | 0:19:03 | 0:19:12 | |
than I am now, and simply talking
normally. | 0:19:12 | 0:19:19 | |
normally. Whereas now I have to
think more about the words that are | 0:19:20 | 0:19:23 | |
coming out of my mouth.
Wendy had to give up work earlier | 0:19:23 | 0:19:35 | |
than she really wanted, she moved
from a town house in York to a small | 0:19:35 | 0:19:39 | |
village near one of her daughters.
When I moved, all the houses looked | 0:19:39 | 0:19:44 | |
the same, and I would get confused
as to which one I lived at. I would | 0:19:44 | 0:19:52 | |
constantly walk up my neighbour's
path. | 0:19:52 | 0:19:56 | |
So, to make it clear which house was
my house, I simply put the -- Put | 0:19:56 | 0:20:05 | |
forget-me-not tiles each side of my
door, to show me which one was mine. | 0:20:05 | 0:20:11 | |
I always like it to untangling a
fine necklace. If you are having a | 0:20:11 | 0:20:21 | |
good day, you can sit and untangle
the Notts won by one. If you are | 0:20:21 | 0:20:27 | |
having a bad day, it is like when
you are feeling impatient, and you | 0:20:27 | 0:20:34 | |
simply cannot untangle it and the
more you try, the worse it becomes. | 0:20:34 | 0:20:39 | |
I always tell myself it is not me,
it is the disease. And I simply sit | 0:20:39 | 0:20:48 | |
quietly and wait for the fog to
left. | 0:20:48 | 0:20:54 | |
-- lift.
Yes, I stopped answering the phone, | 0:20:54 | 0:20:59 | |
I don't know, properly a year or
more. | 0:20:59 | 0:21:03 | |
When I answered it, people can't see
me, so they can't see me thinking. I | 0:21:03 | 0:21:13 | |
now prefer to e-mail or text. When I
type, it is as though dementia has | 0:21:13 | 0:21:23 | |
never entered my life because that
part of me isn't broken yet. | 0:21:23 | 0:21:29 | |
If you are going to give one piece
of advice to someone who has just | 0:21:29 | 0:21:32 | |
been diagnosed with dementia, what
would it be? | 0:21:32 | 0:21:37 | |
I always think of it as, yes, it is
definitely a bad diagnosis to get | 0:21:37 | 0:21:47 | |
but if you can think of it as a
different life, a life of adapting | 0:21:47 | 0:21:53 | |
to the challenges that dementia
throws at you, then it can still be | 0:21:53 | 0:22:00 | |
filled with laughter and adventures
and almost a new way of living. | 0:22:00 | 0:22:10 | |
It was the most amazing experience
because I have no fear anymore. I | 0:22:13 | 0:22:17 | |
always think I face my biggest fear
by facing dementia. | 0:22:17 | 0:22:26 | |
Keith Oliver was diagnosed with
Alzheimer's in 2010. In the first | 0:22:32 | 0:22:38 | |
set of video diaries he filmed for
us he had just retired as a head | 0:22:38 | 0:22:42 | |
teacher in Canterbury.
For some time I have struggled to a | 0:22:42 | 0:22:45 | |
member by that I have cleaned my
teeth, shade, combed my head in the | 0:22:45 | 0:22:49 | |
morning when I get up. So what I now
do is I put everything out of the | 0:22:49 | 0:22:54 | |
box, use it and as I have used it
plays it back in the box again. | 0:22:54 | 0:23:00 | |
I have changed in some ways and some
of those changes have been brought | 0:23:00 | 0:23:03 | |
on by dementia. I see the same
person who physically looks like me, | 0:23:03 | 0:23:11 | |
who is saying the things I was
saying at the time, and I still | 0:23:11 | 0:23:15 | |
believe in. But now I feel less able
to express myself as well as I did | 0:23:15 | 0:23:22 | |
then.
It is a lovely walk, this, along the | 0:23:22 | 0:23:32 | |
beach, and then around the harbour.
I get such a lot from it. It gives | 0:23:32 | 0:23:38 | |
me time to think, to contemplate, to
try to sort something out in my mind | 0:23:38 | 0:23:44 | |
that are bothering me. Watching
these boats rocking in the water | 0:23:44 | 0:23:50 | |
reminds me of how some days it is
for me walking and standing and | 0:23:50 | 0:23:56 | |
trying to keep my balance.
Any experience of dementia I have | 0:23:56 | 0:24:03 | |
sometimes brought on by being
depressed, by being isolated, being | 0:24:03 | 0:24:09 | |
lonely, frustrated. They are the
best friends of each other. Dementia | 0:24:09 | 0:24:14 | |
and depression are big allies and
the only way dealing with that is | 0:24:14 | 0:24:19 | |
through support, people coming into
my world to help me. | 0:24:19 | 0:24:31 | |
Books have always been important in
my life, for relaxation, learning. I | 0:24:31 | 0:24:37 | |
am a hoarder of books. | 0:24:37 | 0:24:44 | |
am a hoarder of books. Here is one
that I read a couple of years ago | 0:24:44 | 0:24:48 | |
about something very close to my
heart which is Nottingham Forest. | 0:24:48 | 0:24:52 | |
Reading the books 30 years later
brings back those memories that I | 0:24:52 | 0:24:59 | |
have of those happy days.
It is getting harder. I read a lot | 0:24:59 | 0:25:12 | |
but remember very little. I even
don't remember what books I bought, | 0:25:12 | 0:25:17 | |
there are occasions I go into a book
shop and I have bought the book home | 0:25:17 | 0:25:22 | |
and realised at home I have read it
before. | 0:25:22 | 0:25:31 | |
Some days I will use the metaphor of
the weather, some days are faulty | 0:25:31 | 0:25:35 | |
and even within those foggy days it
is like driving in fog, the fog | 0:25:35 | 0:25:40 | |
comes down and it lifts, it is
patchy. That is what dementia is | 0:25:40 | 0:25:45 | |
often like. Even today, I am
experiencing that talking to you. | 0:25:45 | 0:25:50 | |
Some of my charity of thinking is
coming and going as I am sitting | 0:25:50 | 0:25:55 | |
here now, talking and thinking about
today. | 0:25:55 | 0:26:02 | |
today. I have lost my train of
thought, you will have to ask me | 0:26:04 | 0:26:07 | |
that again.
Last time around I finished the | 0:26:07 | 0:26:12 | |
interview asking if you would
remember our conversation, will you | 0:26:12 | 0:26:17 | |
remember this conversation?
Again, the same answer, I will | 0:26:17 | 0:26:21 | |
remember how this conversation made
me feel. The actual subject matter, | 0:26:21 | 0:26:26 | |
no, I won't.
Christopher has been living with | 0:26:26 | 0:26:34 | |
Alzheimer's for more than a decade
now. | 0:26:34 | 0:26:41 | |
now. His wife Veronica filmed this
first set of video diaries outside | 0:26:41 | 0:26:45 | |
their home in Dorset three years
ago. At some point, it hit you over | 0:26:45 | 0:26:52 | |
there, that is when you have to
decide what to do. Yes, you had to | 0:26:52 | 0:26:56 | |
cope.
There is ask, do you recognise us? | 0:26:56 | 0:27:01 | |
You are looking rather severe, like
a magistrate! That is you talking. | 0:27:01 | 0:27:13 | |
Yes, I mean, everything has changed.
It is so sad. But you mustn't dwell | 0:27:18 | 0:27:28 | |
on that because otherwise you would
be sad all the time and I mustn't be | 0:27:28 | 0:27:32 | |
sad to you because you are positive.
What has changed, do you feel | 0:27:32 | 0:27:37 | |
different?
Yes. And you know you still have | 0:27:37 | 0:27:46 | |
lots of feelings although you may
not be able to put it into words | 0:27:46 | 0:27:50 | |
like you used to. | 0:27:50 | 0:27:57 | |
We are on the quay Paul harbour,
sitting in the sunshine -- Poole. | 0:27:57 | 0:28:06 | |
And Christopher is having fish and
chips. | 0:28:06 | 0:28:10 | |
It is not the easiest thing to eat.
We are now in the car. The seat belt | 0:28:10 | 0:28:17 | |
is always a bit of a mystery, put
your belt on, darling. Can you put | 0:28:17 | 0:28:23 | |
your belt on? Put your belt on.
Your belt. | 0:28:23 | 0:28:34 | |
Your belt. Here, that is right. That
is right. Like everything, this gets | 0:28:34 | 0:28:40 | |
forgotten every single time.
Well done, you have done it. | 0:28:40 | 0:28:47 | |
Without that disabled badge?
Life would be a lot more stressful, | 0:28:47 | 0:28:50 | |
yes. When we first got the blue
badge, I was a little bit feeling, | 0:28:50 | 0:28:57 | |
it says disabled on it, and
Christopher doesn't look disabled, | 0:28:57 | 0:29:02 | |
so I was sort of half thinking
somebody might one day a cost us, | 0:29:02 | 0:29:08 | |
which happened. You are not
disabled, this man said, as we were | 0:29:08 | 0:29:13 | |
parking. So I left Christopher on
the pavement and I trotted down the | 0:29:13 | 0:29:16 | |
pavement and I said to that, repeat
that. And I said it louder, very | 0:29:16 | 0:29:22 | |
slowly he mumbled, you are not
disabled. You change places with me | 0:29:22 | 0:29:28 | |
24 hours Hutcheon for 24 hours --
you change places with me for 24 | 0:29:28 | 0:29:36 | |
hours.
Don't take it, darling, drink it, | 0:29:36 | 0:29:46 | |
careful.
It is hot. That is your tea. | 0:29:46 | 0:29:55 | |
That is right.
Are you a caper that? Are you happy, | 0:29:55 | 0:29:59 | |
darling, I am asking if you are
happy? I don't think you frustrated. | 0:29:59 | 0:30:07 | |
Sometimes I think he is frustrated,
yes. Sometimes you get cross. Not | 0:30:07 | 0:30:13 | |
often. All you basically happy?
Yes. Yes, I think you are. | 0:30:13 | 0:30:20 | |
This is one of the things I am
deeply sad because I don't have a | 0:30:20 | 0:30:27 | |
name. What I called? And he laughs,
and he says, what did you say? What | 0:30:27 | 0:30:38 | |
am I called? Are you going to have
another go? What am I called? I | 0:30:38 | 0:30:48 | |
can't remember. | 0:30:48 | 0:30:49 | |
The fact that Christopher's speech
is clearly not what it was, I mean, | 0:30:57 | 0:31:02 | |
speech and communication... It is
lonely, yes. It is quite lonely. But | 0:31:02 | 0:31:09 | |
then he doesn't realise that. So
it's not as though you are living | 0:31:09 | 0:31:16 | |
with somebody who is doing something
to make you feel like that. It's not | 0:31:16 | 0:31:20 | |
like that at all. You see, there is
definitely interaction and feeling. | 0:31:20 | 0:31:26 | |
That hasn't gone. If I say I love
you. Do you love me? Do you love me? | 0:31:26 | 0:31:36 | |
Am I getting too close? Go on, kiss
me. Yes. | 0:31:36 | 0:31:45 | |
me. Yes. Wow. Gosh. With us now is
an audience including some of the | 0:31:46 | 0:31:51 | |
people that you saw in that film and
there is a mixture of emotion in | 0:31:51 | 0:31:54 | |
this room, I think. There are some
people wiping their eyes because | 0:31:54 | 0:31:57 | |
they had tears in their eyes.
Veronica, you have tears in your | 0:31:57 | 0:32:01 | |
eyes but you also smiling, as is
Christopher. Hello, Christopher. | 0:32:01 | 0:32:06 | |
Thank you so much for coming on the
programme again. How do you react to | 0:32:06 | 0:32:11 | |
what you have seen? I don't mind who
speaks first. I rally watch myself | 0:32:11 | 0:32:18 | |
on the television now. -- I've
rarely watched myself recently. It | 0:32:18 | 0:32:30 | |
is always a shock what I see. We
don't have this image of ourselves | 0:32:30 | 0:32:33 | |
in our head which is what I see on
the television. Were you shocked? | 0:32:33 | 0:32:42 | |
Yes. I never watch myself normally.
And you always tend to think back to | 0:32:42 | 0:32:53 | |
how you were, especially when there
was the comparison with the earlier | 0:32:53 | 0:32:56 | |
film and now. It just brings it home
a little bit more, the changes. What | 0:32:56 | 0:33:04 | |
is it like for you and Christopher
to watch yourselves then and now? I | 0:33:04 | 0:33:08 | |
think | 0:33:08 | 0:33:13 | |
think we've filmed some jollier
bits. Those bits are rather | 0:33:14 | 0:33:17 | |
tear-jerking. It isn't as bad as
that, is it question that -- it | 0:33:17 | 0:33:23 | |
isn't as bad as that, is it? We have
a lot of fun. That is where we used | 0:33:23 | 0:33:29 | |
to sail. We get about. We went to
Mexico this summer. Why not? The | 0:33:29 | 0:33:35 | |
other thing to say as well is that
the film illustrates how different | 0:33:35 | 0:33:42 | |
we all are but how similar we all
are as well. There are certain | 0:33:42 | 0:33:46 | |
things that we said and we have
experienced that are common to all | 0:33:46 | 0:33:49 | |
of us in that film but also the way
we deal with it is an element of | 0:33:49 | 0:33:53 | |
similarity but also different as
well. Over the course of the | 0:33:53 | 0:33:58 | |
programme we are going to talk about
living with dementia. How we pay for | 0:33:58 | 0:34:02 | |
such care and its impact on the
health service and society in | 0:34:02 | 0:34:05 | |
general. You get in touch through
the programme if you or a family | 0:34:05 | 0:34:09 | |
member has dementia. | 0:34:09 | 0:34:13 | |
Still to come: | 0:34:13 | 0:34:15 | |
How is the cold snap
affecting people that | 0:34:15 | 0:34:17 | |
struggle with their bills? | 0:34:17 | 0:34:19 | |
We'll hear from people affected
by fuel poverty and discuss | 0:34:19 | 0:34:24 | |
what help is on offer. | 0:34:24 | 0:34:29 | |
Our final visit to Hawkswood Primary | 0:34:29 | 0:34:31 | |
Pupil Referral Unit,
as I talk to some of the children | 0:34:31 | 0:34:33 | |
about life at the school
and their hopes for the future. | 0:34:33 | 0:34:37 | |
Time for the latest news. | 0:34:37 | 0:34:40 | |
The BBC News headlines this morning: | 0:34:40 | 0:34:42 | |
The Met Office has issued
a red weather warning | 0:34:42 | 0:34:47 | |
for Devon, Somerset and the southern
half of Wales, meaning imminent | 0:34:47 | 0:34:50 | |
loss of life is possible. | 0:34:50 | 0:34:51 | |
A separate red weather
warning is in place | 0:34:51 | 0:34:53 | |
for Scotland's central belt. | 0:34:53 | 0:34:54 | |
The snow continues to cause
problems across the UK. | 0:34:54 | 0:34:56 | |
Hundreds of schools are closed
in south Wales, southern | 0:34:56 | 0:34:58 | |
England and Scotland. | 0:34:58 | 0:34:59 | |
Our reporter John Kay
sent us this from Truro. | 0:34:59 | 0:35:05 | |
The latest warning has come from the
Met Office saying that they still | 0:35:05 | 0:35:09 | |
believe this is going to be a very
bad storm in this part of the | 0:35:09 | 0:35:12 | |
country. They have issued this red
alert, severe, the most severe | 0:35:12 | 0:35:16 | |
warning, a red warning for a sliver
that goes from south Wales to | 0:35:16 | 0:35:22 | |
Cardiff, across the Bristol channel,
through North Somerset, | 0:35:22 | 0:35:25 | |
Weston-Super-Mare, down through some
assert itself, across Exmoor and | 0:35:25 | 0:35:29 | |
Dartmoor and into Devon. That bright
red zone that you will see on the | 0:35:29 | 0:35:32 | |
maps all day. | 0:35:32 | 0:35:37 | |
maps all day. In Scotland hundreds
of people have been trapped in their | 0:35:38 | 0:35:40 | |
cars on the M18 a Glasgow. Some
attract for 15 hours. Others have | 0:35:40 | 0:35:47 | |
been stranded in Lincolnshire and
forecasters are warning of snow to | 0:35:47 | 0:35:51 | |
come across the UK. Where the red
alerts remain in force, people are | 0:35:51 | 0:35:55 | |
advised not to venture out. In other
news: The President of the EU | 0:35:55 | 0:36:01 | |
Council Donald Tusk has warned UK
can't have trade with the EU if it | 0:36:01 | 0:36:07 | |
is outside the single market and
customs union. The warning comes | 0:36:07 | 0:36:11 | |
following the publication of the
EU's draft withdrawal treaty. The | 0:36:11 | 0:36:16 | |
independent inquiry into child
sexual abuse will publish its first | 0:36:16 | 0:36:21 | |
completed report this morning. The
findings will focus on the forced | 0:36:21 | 0:36:24 | |
migration and abuse of thousands of
children, many of whom were in care, | 0:36:24 | 0:36:29 | |
who were sent to Australia, New
Zealand, Canada and Africa following | 0:36:29 | 0:36:33 | |
the Second World War. The British
and Australian governments have | 0:36:33 | 0:36:36 | |
apologised but today's report is
likely to condemn the programme and | 0:36:36 | 0:36:39 | |
highlights the failure to protect
and prevent the abuse. | 0:36:39 | 0:36:47 | |
and prevent the abuse. This
programme has discovered new figures | 0:36:47 | 0:36:51 | |
which underscores the scale of
suffering of those living with | 0:36:51 | 0:37:00 | |
dementia. | 0:37:00 | 0:37:06 | |
The Home Office says
it is considering allowing a medical | 0:37:06 | 0:37:09 | |
cannabis trial to treat
a six-year-old boy with | 0:37:09 | 0:37:11 | |
a rare form of epilepsy. | 0:37:11 | 0:37:12 | |
It previously turned down requests | 0:37:12 | 0:37:13 | |
by the family of Alfie Dingley,
from Warwickshire, | 0:37:13 | 0:37:15 | |
to legally take the drug. | 0:37:15 | 0:37:16 | |
But now ministers say
they are exploring every option, | 0:37:16 | 0:37:19 | |
following a meeting with the family. | 0:37:19 | 0:37:20 | |
An option could be a three-month
trial, led by Alfie's doctors | 0:37:20 | 0:37:23 | |
and based on sufficient
and rigorous evidence. | 0:37:23 | 0:37:26 | |
The American retail
giant Walmart says it | 0:37:26 | 0:37:29 | |
will tighten its policy on firearms
sales as Donald Trump tells | 0:37:29 | 0:37:31 | |
Congress it's time to act. | 0:37:31 | 0:37:32 | |
The President stunned
some politicians | 0:37:32 | 0:37:37 | |
in his own Republican Party
by telling them on live TV not to be | 0:37:37 | 0:37:41 | |
so afraid of the pro-gun lobby. | 0:37:41 | 0:37:43 | |
He said he wanted what he called
a strong reform bill | 0:37:43 | 0:37:46 | |
but stuck by his suggestion
of arming some teachers. | 0:37:46 | 0:37:49 | |
There were 11 wins for
the BBC's journalism at | 0:37:49 | 0:37:54 | |
the Royal Television Society Awards
last night including two | 0:37:54 | 0:37:56 | |
awards for this programme. | 0:37:56 | 0:37:58 | |
Victoria Derbyshire
was named Network Presenter | 0:37:58 | 0:38:00 | |
of the Year and she also picked up
the gong for best interview | 0:38:00 | 0:38:03 | |
of the year for football abuse. | 0:38:03 | 0:38:05 | |
That's a summary of
the latest BBC News. | 0:38:05 | 0:38:12 | |
Thank you for your messages about
dementia. This email from Mark: I | 0:38:12 | 0:38:16 | |
look after my mum who was diagnosed
with outsiders several years ago. | 0:38:16 | 0:38:20 | |
The council have been a huge help
but I have experienced the whole | 0:38:20 | 0:38:23 | |
calyx of life in the modern world in
the UK which breaks down when it | 0:38:23 | 0:38:28 | |
comes to dementia. I have difficulty
proving my mother's identity, | 0:38:28 | 0:38:32 | |
visiting her, connecting different
care services together. I keep | 0:38:32 | 0:38:35 | |
getting referred to online help and
even after expelling to people that | 0:38:35 | 0:38:40 | |
my mother has Alzheimer's, they
still try and ask her memory | 0:38:40 | 0:38:43 | |
questions. I care for my mum because
it is a pleasure but it hurts that | 0:38:43 | 0:38:47 | |
there is little recognition in even
things like tax codes that | 0:38:47 | 0:38:51 | |
recognises that in fact looking
after a person with advanced | 0:38:51 | 0:38:54 | |
dementia is a far more stressful and
training thing than looking after | 0:38:54 | 0:38:57 | |
children. Catherine says: I am one
of the lucky ones. As I am | 0:38:57 | 0:39:04 | |
self-employed and my dad has a
reasonable pension, while we | 0:39:04 | 0:39:08 | |
struggle financially, I am able to
care for my dad myself. Both my | 0:39:08 | 0:39:12 | |
parents had dementia and I care for
them both, starting in 2012, until | 0:39:12 | 0:39:16 | |
my darling man passed away in 2015.
I am 54 and single. -- my darling | 0:39:16 | 0:39:22 | |
mother passed away in 2015. I love
them more than I can say. We now | 0:39:22 | 0:39:27 | |
live with my dad. The problem is
unless you have the money, it is a | 0:39:27 | 0:39:31 | |
lottery and the social care system
is broken. My heart breaks for those | 0:39:31 | 0:39:34 | |
without family for whom life with
dementia must be unbearable. We are | 0:39:34 | 0:39:39 | |
going to talk about some of those
specific issues, the fractured | 0:39:39 | 0:39:42 | |
health and social care system, and
the difficulty in getting outside | 0:39:42 | 0:39:46 | |
help after ten o'clock this morning.
Please continue to send your own | 0:39:46 | 0:39:51 | |
experiences. Sent us an email. You
can message us on Facebook and | 0:39:51 | 0:39:55 | |
Whatsapp as well. Now we have more
sport. Hello. The headlines: The | 0:39:55 | 0:40:02 | |
England rugby union head coach Eddie
Jones said he was physically and | 0:40:02 | 0:40:04 | |
verbally abused returning by train
from the Kolkata defeat to Scotland | 0:40:04 | 0:40:11 | |
at the weekend. This is footage of
him being harangued at Manchester | 0:40:11 | 0:40:16 | |
Oxford road train station. --
Calcutta Cup defeat. The Scottish | 0:40:16 | 0:40:23 | |
union said it is disgusted and
appalled. Eddie Jones said he will | 0:40:23 | 0:40:29 | |
not take public transport again.
Manchester United beat Rochdale 6-1 | 0:40:29 | 0:40:36 | |
-- Tottenham Hotspur beat Rochdale
6-1 and will now play Swansea in the | 0:40:36 | 0:40:41 | |
quarterfinals. Andy Murray could be
back in the practice court that the | 0:40:41 | 0:40:47 | |
end of this month. As since is time
Olympic champion Jason Kenny won | 0:40:47 | 0:40:51 | |
silver in the team sprint at the
track cycling World Championships in | 0:40:51 | 0:40:55 | |
the Netherlands. His wife Laura will
be bidding for a medal in the team | 0:40:55 | 0:40:59 | |
pursuit later today. I will be back
after ten o'clock. Thank you. | 0:40:59 | 0:41:07 | |
Hundreds of drivers have spent
the night stranded in snow | 0:41:07 | 0:41:10 | |
on the M80 and adjoining motorways
in central Scotland. | 0:41:10 | 0:41:12 | |
Some have been stuck
for more than 15 hours. | 0:41:12 | 0:41:14 | |
Others have
been stranded overnight | 0:41:14 | 0:41:15 | |
near Skegness in Lincolnshire
and forecasters are warning of more | 0:41:15 | 0:41:18 | |
snow to come across many parts | 0:41:18 | 0:41:19 | |
of the UK. | 0:41:19 | 0:41:23 | |
Yesterday, we invited Bryan,
a homeless man living | 0:41:23 | 0:41:31 | |
on the streets of central London
for 18 years, into our studio. | 0:41:32 | 0:41:35 | |
This was him yesterday
afternoon as snow continued | 0:41:35 | 0:41:37 | |
to fall in the capital. | 0:41:37 | 0:41:38 | |
He told us he'd worken up yesterday
morning with one inch | 0:41:38 | 0:41:41 | |
of snow all over him. | 0:41:41 | 0:41:42 | |
He was also incredibly grateful
for all your messages | 0:41:42 | 0:41:44 | |
of support you sent him. | 0:41:44 | 0:41:47 | |
We will keep in touch with him. | 0:41:47 | 0:41:49 | |
Many people living
at home struggle too. | 0:41:49 | 0:41:50 | |
One in ten people in England
live in fuel poverty. | 0:41:50 | 0:41:55 | |
That's where the amount a household
pays for fuel leaves them | 0:41:55 | 0:41:57 | |
below the poverty line. | 0:41:57 | 0:42:00 | |
When weather drops below a certain
level it triggers extra payments | 0:42:00 | 0:42:02 | |
for people claiming some benefits. | 0:42:02 | 0:42:04 | |
But many don't know about it
and therefore don't claim. | 0:42:04 | 0:42:10 | |
Who is entitled? | 0:42:21 | 0:42:24 | |
You have to be over 65
and also qualify for pension | 0:42:24 | 0:42:27 | |
credit. | 0:42:27 | 0:42:29 | |
How much? | 0:42:29 | 0:42:32 | |
You get up to £300,
depending on age. | 0:42:32 | 0:42:37 | |
How to claim. | 0:42:37 | 0:42:39 | |
Most get it automatically. | 0:42:39 | 0:42:40 | |
Some have to claim. | 0:42:40 | 0:42:45 | |
For details, see gov.uk/
WinterFuelPayment. | 0:42:45 | 0:42:51 | |
Cold weather payments. | 0:42:51 | 0:42:59 | |
Let's talk to Jodie Hullah,
a mum of a 19-month-old, | 0:44:03 | 0:44:05 | |
who sometimes can't afford
to heat her home. | 0:44:05 | 0:44:09 | |
Andria Efthimiou has asthma
and ended up being hospitalised | 0:44:09 | 0:44:11 | |
when her home got too cold. | 0:44:11 | 0:44:13 | |
And Ruth London from the charity
Fuel Poverty Action. | 0:44:13 | 0:44:16 | |
Thank you for coming on the
programme. How often do you go | 0:44:16 | 0:44:22 | |
without hot water and heating?
Sometimes it can be two or three | 0:44:22 | 0:44:29 | |
days. Other times it can be longer
and other times shorter. It all | 0:44:29 | 0:44:33 | |
depends what the weather is like and
when I get paid. Explain why you | 0:44:33 | 0:44:39 | |
have to make the decision to keep
heating and hot water off in certain | 0:44:39 | 0:44:43 | |
periods. Just because we can't
afford it. I put as much money as I | 0:44:43 | 0:44:47 | |
can onto my meter and sometimes it
is not enough. We ran out of gas and | 0:44:47 | 0:44:54 | |
then we have no hot water is heating
or I have to make the decision | 0:44:54 | 0:44:57 | |
whether Will we be cold during the
day or in the evening. How does that | 0:44:57 | 0:45:08 | |
affect your 19-month-old? She gets
body quite a bit. At the moment he | 0:45:08 | 0:45:15 | |
has a cough and cold and it is hard
but there is nothing you can do | 0:45:15 | 0:45:18 | |
about it. You had to give up work
when you are pregnant because of | 0:45:18 | 0:45:22 | |
various pregnancy issues. You are in
a privately rented flat and | 0:45:22 | 0:45:26 | |
Universal Credit is paid to you and
after rent you are left with £100 a | 0:45:26 | 0:45:30 | |
week for food, gas, electricity,
clothes, anything else your child | 0:45:30 | 0:45:37 | |
needs. Yes, probably less than that. | 0:45:37 | 0:45:43 | |
The cold weather payment means an
extra £25 for you, what difference | 0:45:43 | 0:45:49 | |
will that make?
I think it means we will get an | 0:45:49 | 0:45:57 | |
extra two days of heating and hot
water. | 0:45:57 | 0:46:00 | |
How do you feel about that? I don't
know. The situation is there isn't | 0:46:00 | 0:46:08 | |
much do -- much I can do to change
it. It is one of those things you | 0:46:08 | 0:46:14 | |
get on with. You don't have a
choice. | 0:46:14 | 0:46:22 | |
Jodi, I am going to bring in Andria
in the studio. Is your attitude the | 0:46:22 | 0:46:28 | |
same, it is what it is?
Absolutely. You don't even notice | 0:46:28 | 0:46:34 | |
what is happening. For example, my
daughter started coming home from | 0:46:34 | 0:46:39 | |
school and going straight to bed. I
thought she was hiding from me. She | 0:46:39 | 0:46:44 | |
said she was cold. I was really
shocked. Because the me it is called | 0:46:44 | 0:46:50 | |
but you get into a trooper load. I
have had asthma the over 50 years. | 0:46:50 | 0:47:00 | |
-- trooper mode. Even though I have
had to go to casualties because of | 0:47:00 | 0:47:06 | |
my respiratory system, it becomes a
way of life. But this is dangerous. | 0:47:06 | 0:47:14 | |
They wanted to take me in, I was
worried about my daughter. | 0:47:14 | 0:47:22 | |
worried about my daughter. If you're
respiratory rate is at 48, people | 0:47:22 | 0:47:25 | |
have heart attacks. They gave me
some diazepam. Is that directly | 0:47:25 | 0:47:30 | |
linked to you not putting the
heating on? | 0:47:30 | 0:47:33 | |
Absolutely. | 0:47:33 | 0:47:37 | |
Absolutely. It is tough. But it is
difficult to notice. And knowing | 0:47:38 | 0:47:44 | |
other people are in a more difficult
situation because of money. It is | 0:47:44 | 0:47:50 | |
tragic. Thousands of people are
dying from fuel poverty every year. | 0:47:50 | 0:47:54 | |
Then something is really wrong.
In terms of deaths from cold | 0:47:54 | 0:48:02 | |
weather, we have the latest figures
from 2017, sorry, 2016, over that | 0:48:02 | 0:48:11 | |
winter period.
It was 11,000 last winter. It is | 0:48:11 | 0:48:16 | |
outrageous, it should not be our way
of life that people are dying | 0:48:16 | 0:48:21 | |
because they cannot afford to keep
their homes warm. Some of the Chief | 0:48:21 | 0:48:27 | |
Executive is earn more in their
bonus and most people spend all year | 0:48:27 | 0:48:32 | |
on their energy. It is not
sustainable. There are natural | 0:48:32 | 0:48:39 | |
disasters and unnatural disasters.
Fuel poverty is an unnatural | 0:48:39 | 0:48:44 | |
disaster. People having the cladding
removed, put on their buildings, | 0:48:44 | 0:48:49 | |
because it was not safe, like
Grenfell Tower. Now they are | 0:48:49 | 0:48:55 | |
freezing because they are in tower
blocks with no protection from the | 0:48:55 | 0:49:00 | |
elements.
That was installation. Cladding and | 0:49:00 | 0:49:07 | |
installation are vital to keeping
homes warm -- insulation. If you | 0:49:07 | 0:49:15 | |
look at the weather now, climate
change is also an unnatural | 0:49:15 | 0:49:20 | |
disaster. If we are going to keep
warm, the other extreme is heat | 0:49:20 | 0:49:27 | |
waves, if we are to survive we need
to address that and the prices | 0:49:27 | 0:49:31 | |
people are paying and the terribly
low levels of income, the fact | 0:49:31 | 0:49:37 | |
people cannot afford to keep their
home one, people on benefits, then | 0:49:37 | 0:49:44 | |
they get sanctioned and had nothing
at all to put in the meter. And you | 0:49:44 | 0:49:53 | |
lose your heat, the food in your
fridge and freezer, your ability to | 0:49:53 | 0:49:57 | |
charge your phone, the things our
daily lives depend on, these are not | 0:49:57 | 0:50:04 | |
things we should say, that is life,
I have to get on with it. | 0:50:04 | 0:50:09 | |
We have to change that. The
Government would say they are | 0:50:09 | 0:50:14 | |
bringing in environmental measures.
And they would say they will cap | 0:50:14 | 0:50:21 | |
fuel bills which will help.
It has taken a couple of years since | 0:50:21 | 0:50:25 | |
they started talking about it. It
depends how much the cap on energy | 0:50:25 | 0:50:32 | |
bills is. They say energy prices are
about to go up again which could | 0:50:32 | 0:50:37 | |
wipe out the difference. We do want
a cap but it is not a solution. | 0:50:37 | 0:50:45 | |
Energy is much too important to be
left to the fans ripping us off as | 0:50:45 | 0:50:49 | |
the Government has said.
One comment, the Winter Fuel Payment | 0:50:49 | 0:50:57 | |
is positive but not enough, those of
us who are low paid and in work | 0:50:57 | 0:51:02 | |
simply take the hit driving us
further into poverty. It is heat or | 0:51:02 | 0:51:07 | |
eat. For anyone watching now
struggling to keep warm, what is | 0:51:07 | 0:51:13 | |
your advice?
It is hard to give personal advice. | 0:51:13 | 0:51:22 | |
Everyone has thought of the
immediate solution, hot water | 0:51:22 | 0:51:28 | |
bottles, insulating foil behind the
radiators, draught proofing is | 0:51:28 | 0:51:34 | |
important. Make sure you are on the
best tariff you can find. If you are | 0:51:34 | 0:51:39 | |
in debt and struggling to repay,
sometimes you can adjust the rate of | 0:51:39 | 0:51:45 | |
repayment so you are paying a bit
more in summer but less now. There | 0:51:45 | 0:51:49 | |
are little things. But the bigger
things that the individual can't do, | 0:51:49 | 0:51:56 | |
is to deal with the energy crisis,
the benefits sanctions, the low | 0:51:56 | 0:52:02 | |
income, the fundamental cause, lack
of insulation in our homes, bad | 0:52:02 | 0:52:11 | |
boilers, and ultimately climate
change. | 0:52:11 | 0:52:14 | |
Thank you. | 0:52:14 | 0:52:23 | |
Coming up. | 0:52:23 | 0:52:28 | |
How to deal with an ageing
population many of whom have | 0:52:28 | 0:52:32 | |
dementia, a huge rise in people
expected to be living with dementia | 0:52:32 | 0:52:36 | |
in the next years, we will hear from
people living with it. | 0:52:36 | 0:52:43 | |
All this week, we've
brought you an insight | 0:52:43 | 0:52:45 | |
into the work of Hawkswood Primary
pupil referral unit | 0:52:45 | 0:52:47 | |
in north-east London. | 0:52:47 | 0:52:49 | |
It's a place where children
as young as four are taught | 0:52:49 | 0:52:51 | |
when they are in danger
of being permanently excluded | 0:52:51 | 0:52:54 | |
from their mainstream schools. | 0:52:54 | 0:52:57 | |
For our last film this week,
I caught up with some | 0:52:57 | 0:53:00 | |
of the children at lunchtime to talk
about life at the school | 0:53:00 | 0:53:03 | |
and their hopes for the future. | 0:53:03 | 0:53:07 | |
I met seven-year-olds
Logan and Kyan, along | 0:53:07 | 0:53:09 | |
with Andrew who's nine. | 0:53:09 | 0:53:12 | |
So where do we go first? | 0:53:15 | 0:53:16 | |
So we go here. | 0:53:16 | 0:53:17 | |
Come on. | 0:53:17 | 0:53:20 | |
Do you know my favourite fish? | 0:53:22 | 0:53:24 | |
What's your favourite fish. | 0:53:24 | 0:53:25 | |
Tuna, definitely. | 0:53:25 | 0:53:27 | |
Oh! | 0:53:27 | 0:53:29 | |
Hi, guys. | 0:53:29 | 0:53:32 | |
How's it going? | 0:53:37 | 0:53:39 | |
How do you find it
here at the school? | 0:53:39 | 0:53:42 | |
It's a good place. | 0:53:42 | 0:53:44 | |
It helps you to behave. | 0:53:44 | 0:53:48 | |
You get guidance, and Miss Mannakee
is a very good teacher. | 0:53:48 | 0:53:51 | |
Is she? | 0:53:51 | 0:53:52 | |
Yeah. | 0:53:52 | 0:53:53 | |
And she shows tough love. | 0:53:53 | 0:53:54 | |
Tough love. | 0:53:54 | 0:53:56 | |
What does that mean for you,
what does that mean? | 0:53:56 | 0:54:00 | |
Well, tough love means,
um, it's pretty tough, | 0:54:00 | 0:54:02 | |
it's discipline. | 0:54:02 | 0:54:03 | |
If you're being unsafe,
they restrain you. | 0:54:03 | 0:54:05 | |
They restrain you. | 0:54:05 | 0:54:06 | |
Has that ever happened to you? | 0:54:06 | 0:54:08 | |
It has happened a lot of times. | 0:54:08 | 0:54:10 | |
It isn't very nice. | 0:54:10 | 0:54:12 | |
It's not comfortable. | 0:54:12 | 0:54:15 | |
Andrew, are you going back
to mainstream school soon, is | 0:54:15 | 0:54:17 | |
that right? | 0:54:17 | 0:54:18 | |
How do you feel about that. | 0:54:18 | 0:54:23 | |
Well, I feel good, happy that I've
come a long way, and now I'm | 0:54:23 | 0:54:28 | |
going back to mainstream,
because Miss Mannakee has helped me | 0:54:28 | 0:54:31 | |
since I was in year three. | 0:54:31 | 0:54:33 | |
Ah. | 0:54:33 | 0:54:35 | |
Can you remember what
you used to be like? | 0:54:35 | 0:54:43 | |
I used to think I was just bad,
if anyone does a little thing, | 0:54:43 | 0:54:46 | |
sticks their tongue out
of me, I used to flip. | 0:54:46 | 0:54:48 | |
But now I just ignore. | 0:54:48 | 0:54:49 | |
Now I just ignore
and tell the teacher. | 0:54:49 | 0:54:51 | |
I don't fight any more. | 0:54:51 | 0:54:53 | |
And what about you? | 0:54:53 | 0:54:56 | |
Why do you think you used
to get cross or angry, or | 0:54:56 | 0:54:59 | |
anxious? | 0:54:59 | 0:55:03 | |
Every time it was a different
reason, but now I just | 0:55:03 | 0:55:06 | |
feel I made the choice to do it now. | 0:55:06 | 0:55:08 | |
So you make good choices now. | 0:55:08 | 0:55:09 | |
Yeah. | 0:55:09 | 0:55:13 | |
But sometimes I do it a little bit. | 0:55:13 | 0:55:15 | |
Only like a tiny bit. | 0:55:15 | 0:55:17 | |
I don't do a big big reaction. | 0:55:17 | 0:55:18 | |
Logan, what about you? | 0:55:18 | 0:55:23 | |
I used to get restrained so much. | 0:55:23 | 0:55:29 | |
And Andrew, can you remember why
you used to get cross and angry | 0:55:29 | 0:55:32 | |
when you were in your old school? | 0:55:32 | 0:55:37 | |
What do you think was going on? | 0:55:37 | 0:55:38 | |
Um I wanted my own way. | 0:55:38 | 0:55:41 | |
I knew I had anger issues but any
little thing I used to get angry | 0:55:41 | 0:55:45 | |
at. | 0:55:45 | 0:55:46 | |
I didn't know why. | 0:55:46 | 0:55:47 | |
But since I've come
here my behaviour has | 0:55:47 | 0:55:49 | |
improved a lot. | 0:55:49 | 0:55:50 | |
When I mean a lot, I mean a lot. | 0:55:50 | 0:55:52 | |
Yeah? | 0:55:52 | 0:55:53 | |
Brilliant. | 0:55:53 | 0:55:54 | |
If it wasn't for Miss
Mannakee I'd probably | 0:55:54 | 0:55:56 | |
be the same... | 0:55:56 | 0:55:57 | |
Do you feel proud of yourself? | 0:55:57 | 0:56:00 | |
Yeah, but I mostly feel proud
of Miss Mannakee for helping | 0:56:00 | 0:56:03 | |
me. | 0:56:03 | 0:56:04 | |
Ah. | 0:56:04 | 0:56:05 | |
That's a very, very
lovely thing to say. | 0:56:05 | 0:56:07 | |
Very lovely. | 0:56:07 | 0:56:08 | |
How does your mum think
you've got on here? | 0:56:08 | 0:56:13 | |
She's very proud
of me, I've improved. | 0:56:13 | 0:56:14 | |
Wow. | 0:56:14 | 0:56:19 | |
Do you feel calmer as well
now, would you say? | 0:56:19 | 0:56:22 | |
Not with... | 0:56:22 | 0:56:23 | |
You still don't like that... | 0:56:23 | 0:56:26 | |
Do you? | 0:56:26 | 0:56:32 | |
When Miss Mannakee told me
to actually try dinner I actually | 0:56:32 | 0:56:35 | |
liked it. | 0:56:35 | 0:56:36 | |
So that's another thing that
Miss Mannakee helped me with. | 0:56:36 | 0:56:38 | |
Is that Miss Mannakee? | 0:56:38 | 0:56:39 | |
That's Miss Mannakee there. | 0:56:39 | 0:56:40 | |
OK. | 0:56:40 | 0:56:42 | |
Miss Mannakee. | 0:56:42 | 0:56:43 | |
I'm hearing a lot about you. | 0:56:43 | 0:56:44 | |
Yeah. | 0:56:44 | 0:56:45 | |
They are, they are loving
you, I have to say. | 0:56:45 | 0:56:51 | |
Yesterday when I went home,
I heard Mum say, I don't know | 0:56:51 | 0:56:56 | |
how you've dealt with me,
like she doesn't know how | 0:56:56 | 0:56:58 | |
I learned this quick. | 0:56:58 | 0:57:02 | |
Did you explain to Mum how
you managed to learn quickly? | 0:57:02 | 0:57:04 | |
You need to tell me why
you learned quickly. | 0:57:04 | 0:57:06 | |
Because of your tough love. | 0:57:06 | 0:57:09 | |
Because I gave tough
love, and what else? | 0:57:09 | 0:57:12 | |
What did you need to do? | 0:57:12 | 0:57:15 | |
Give up and start crying? | 0:57:15 | 0:57:18 | |
What did you do. | 0:57:18 | 0:57:19 | |
Never give up. | 0:57:19 | 0:57:20 | |
Oh, I love that. | 0:57:20 | 0:57:22 | |
I say that to my kids,
never give up. | 0:57:22 | 0:57:25 | |
So listen. | 0:57:25 | 0:57:26 | |
I'm done. | 0:57:26 | 0:57:28 | |
Look at you eating
your apple, good boy. | 0:57:28 | 0:57:31 | |
Thank you so much for
inviting me for lunch. | 0:57:31 | 0:57:33 | |
It's OK. | 0:57:33 | 0:57:34 | |
Thank you. | 0:57:34 | 0:57:35 | |
It's been really, really
lovely to meet you. | 0:57:35 | 0:57:38 | |
I'm just going to get
some pudding now, would | 0:57:38 | 0:57:40 | |
that be all right? | 0:57:40 | 0:57:41 | |
Miss, please may I go up? | 0:57:41 | 0:57:43 | |
Thank you. | 0:57:43 | 0:57:51 | |
And thank you so much
to the staff and pupils | 0:57:51 | 0:57:55 | |
at Hawkswood Primary School
who opened up their doors to us. | 0:57:55 | 0:58:01 | |
Let's get the latest
weather update with Carole. | 0:58:01 | 0:58:07 | |
It has the potential to be the
coldest day in March in the UK ever? | 0:58:08 | 0:58:14 | |
That is right. As well as that, we
have also got a few weather | 0:58:14 | 0:58:19 | |
warnings.
One which is about to expire across | 0:58:19 | 0:58:25 | |
central Scotland, Tayside and Fife,
but anyone for heavy snow and | 0:58:25 | 0:58:31 | |
blizzards across Devon, Somerset and
South Wales. | 0:58:31 | 0:58:36 | |
We are about to lose the one across
Central Scotland but we still have | 0:58:36 | 0:58:41 | |
amber be prepared in all these areas
including Northern Ireland, for snow | 0:58:41 | 0:58:47 | |
which will be blowing and feeling
bitterly cold. | 0:58:47 | 0:58:50 | |
An amber warning across the
south-west, Hampshire and the south | 0:58:50 | 0:58:55 | |
Coast, for snow and wind but this is
the red one, the top level of | 0:58:55 | 0:59:02 | |
warning the Met Office ever issues.
If you are out, bear that in mind, | 0:59:02 | 0:59:06 | |
there will be some atrocious
conditions with blizzards, blowing | 0:59:06 | 0:59:10 | |
snow, because the wind is gale-force
winds. | 0:59:10 | 0:59:15 | |
Through the morning, we will
continue with the snow, across | 0:59:15 | 0:59:20 | |
southern England, through Wales and
the potential for significant | 0:59:20 | 0:59:24 | |
snowfall across areas in that red
morning, up to 20 centimetres, about | 0:59:24 | 0:59:31 | |
eight inches, plus more than double
that in some areas. Moving | 0:59:31 | 0:59:38 | |
northwards, the risk of another
dangerous element, freezing rain. | 0:59:38 | 0:59:43 | |
We have strong winds, these
temperatures may be what you see on | 0:59:43 | 0:59:50 | |
your thermometer but wait for the
wind chill, it will feel more like | 0:59:50 | 0:59:59 | |
-13 in Birmingham. Wrap up warmly is
the message if you are stepping out | 0:59:59 | 1:00:05 | |
today.
Heading into the evening, we still | 1:00:05 | 1:00:09 | |
have snow across the south-west,
Wales, snow showers across the North | 1:00:09 | 1:00:15 | |
and east, a keen wind, some drier
conditions, the risk of freezing | 1:00:15 | 1:00:21 | |
rain, and a cold night, temperatures
well below freezing. | 1:00:21 | 1:00:26 | |
Tomorrow, a little bit of let up in
amounts of snow but it will still be | 1:00:26 | 1:00:31 | |
snowing, with showers across the
north and east. Through the day, | 1:00:31 | 1:00:37 | |
this snow will drift slowly north
eastwards. Later in the afternoon, | 1:00:37 | 1:00:44 | |
we think the snow will be in a line
from London up to Liverpool Bay and | 1:00:44 | 1:00:50 | |
all points south, with a lot of snow
across central areas. If you are | 1:00:50 | 1:00:55 | |
out, bear that in mind. It will feel
better. For the weekend, it will | 1:00:55 | 1:01:02 | |
still be cold but less in the south.
Nonetheless we are still looking at | 1:01:02 | 1:01:09 | |
the risk of snow, perhaps not as
heavy. | 1:01:09 | 1:01:16 | |
Hello. | 1:01:18 | 1:01:19 | |
It's Thursday. | 1:01:19 | 1:01:20 | |
It's 10 o'clock. | 1:01:20 | 1:01:21 | |
I'm Victoria Derbyshire. | 1:01:21 | 1:01:23 | |
Our top story today -
a second red weather warning has | 1:01:23 | 1:01:25 | |
been issued for heavy snow,
this time for South Wales | 1:01:25 | 1:01:28 | |
and South West England
with more snow expected | 1:01:28 | 1:01:29 | |
across the UK. | 1:01:29 | 1:01:31 | |
It is a little bit of dusty snow
right now that it will get much | 1:01:31 | 1:01:34 | |
heavier as the day goes on and into
the evening and again tomorrow and | 1:01:34 | 1:01:37 | |
potentially into tomorrow night as
well. That is what they are worried | 1:01:37 | 1:01:40 | |
about. Not just the instant snowfall
but the accumulation of hours and | 1:01:40 | 1:01:45 | |
hours. We will speak to some of you
affected by the weather. And also an | 1:01:45 | 1:01:50 | |
employment lawyer who will tell you
your rights if you can't get to work | 1:01:50 | 1:01:53 | |
because of bad weather. It is a
condition that will affect 1 million | 1:01:53 | 1:01:57 | |
people in the UK by 2036. We look at
the pressures of living at home with | 1:01:57 | 1:02:02 | |
dementia for the individuals and
their loved ones. What am I called? | 1:02:02 | 1:02:09 | |
Oh. Are you going to have another
go? Tell me what I am called. I | 1:02:09 | 1:02:14 | |
can't... You can't remember. You
can't remember what I'm called, | 1:02:14 | 1:02:20 | |
darling. We will be joined by this
group of people who all live with | 1:02:20 | 1:02:25 | |
dementia or are professionals
working in the field. If you care | 1:02:25 | 1:02:28 | |
for a relative with this condition
we definitely want to hear from you | 1:02:28 | 1:02:31 | |
this morning. Please get in touch in
the usual ways. The Home Office | 1:02:31 | 1:02:36 | |
considering allowing a medical
cannabis trial to treat a | 1:02:36 | 1:02:39 | |
six-year-old boy with a rare form of
epilepsy. | 1:02:39 | 1:02:46 | |
We'll speak to Alfie Dingley's
parents before the end of the show. | 1:02:50 | 1:02:54 | |
Here is the latest BBC News with
Annita McVeigh. Good morning. | 1:02:54 | 1:03:00 | |
The Met Office has issued
a red weather warning | 1:03:00 | 1:03:02 | |
for Devon, Somerset and the southern
half of Wales meaning imminent | 1:03:02 | 1:03:05 | |
loss of life is possible. | 1:03:05 | 1:03:06 | |
A separate red weather
warning is in place | 1:03:06 | 1:03:08 | |
for Scotland's central belt. | 1:03:08 | 1:03:09 | |
The snow continues to cause
problems across the UK. | 1:03:09 | 1:03:11 | |
Hundreds of schools are closed
in south Wales, southern | 1:03:11 | 1:03:13 | |
England and Scotland. | 1:03:13 | 1:03:14 | |
Phil Bodmer is in Yarm
in North Yorkshire. | 1:03:14 | 1:03:20 | |
The snow here in the North East is
falling thick and fast. You can see | 1:03:20 | 1:03:25 | |
how much there is on this car, and
that just shows you the level of | 1:03:25 | 1:03:29 | |
snow we have had. Police in north
Yorkshire are warning drivers not to | 1:03:29 | 1:03:33 | |
travel if at all possible. They say
driving conditions on many routes | 1:03:33 | 1:03:37 | |
are abysmal and the A66 that Scotch
Corner is closed currently. | 1:03:37 | 1:03:42 | |
Lincolnshire Police say once again
drivers are being warned not to | 1:03:42 | 1:03:45 | |
travel if they don't have to because
pretty much every road throughout | 1:03:45 | 1:03:50 | |
the county is impassable. | 1:03:50 | 1:04:01 | |
Gritters and snow ploughs have been
out all morning. In Yarm itself, the | 1:04:01 | 1:04:04 | |
main centre is clear. You can see on
the top shot now that the road is | 1:04:04 | 1:04:07 | |
clear. Snow ploughs and gritters
have been through all morning. Leeds | 1:04:07 | 1:04:10 | |
Bradford Airport has some
cancellations this morning and there | 1:04:10 | 1:04:12 | |
are problems on the railways as
elsewhere in the country. If you are | 1:04:12 | 1:04:14 | |
setting out today, the advisers to
take time. Make sure you are | 1:04:14 | 1:04:16 | |
prepared and take extra clothing a
blanket if you can and be prepared | 1:04:16 | 1:04:23 | |
for a longer journey than usual.
Thousands of people in Scotland have | 1:04:23 | 1:04:26 | |
been trapped in cars in Scotland
overnight on the M80 in Glasgow. | 1:04:26 | 1:04:31 | |
Some were trapped for 15 hours.
Others have been stranded near | 1:04:31 | 1:04:36 | |
Skegness in Lincolnshire and
forecasters are warning of more snow | 1:04:36 | 1:04:38 | |
to come across many parts of the UK.
Where the red alerts remain in | 1:04:38 | 1:04:43 | |
place, people are advised not to
venture out. In other news: The | 1:04:43 | 1:04:47 | |
President of the EU Council, Donald
Tusk, has warned UK can't have | 1:04:47 | 1:04:52 | |
frictionless trade with EU European
Union if it is outside the market | 1:04:52 | 1:04:55 | |
and single -- customs union and
single market. This programme has | 1:04:55 | 1:05:06 | |
uncovered exclusive new figures that
underscore the scale of the | 1:05:06 | 1:05:09 | |
challenge of people suffering from
dementia and their carers. By the | 1:05:09 | 1:05:12 | |
middle of the century, 1.3 million
people will be living at home with | 1:05:12 | 1:05:16 | |
dementia in the UK, a sharp rise
from the 540,000 currently living | 1:05:16 | 1:05:21 | |
with dementia at home. | 1:05:21 | 1:05:26 | |
For the first time acid
is described as a highly | 1:05:26 | 1:05:29 | |
dangerous weapon in new
sentencing guidelines. | 1:05:29 | 1:05:32 | |
The advice for judges
and magistrates | 1:05:32 | 1:05:33 | |
in England and Wales has
been updated in the wake | 1:05:33 | 1:05:35 | |
of a surge in attacks
using corrosive substances. | 1:05:35 | 1:05:37 | |
Offenders are now likely
to face stiffer penalties. | 1:05:37 | 1:05:39 | |
The American retail
giant Walmart says it | 1:05:39 | 1:05:41 | |
will tighten its policy on firearms
sales as Donald Trump tells | 1:05:41 | 1:05:44 | |
Congress it's time to act. | 1:05:44 | 1:05:47 | |
The President
stunned some politicians | 1:05:47 | 1:05:49 | |
in his own Republican Party
by telling them on live TV not to be | 1:05:49 | 1:05:52 | |
so afraid of the pro-gun lobby. | 1:05:52 | 1:05:54 | |
He said he wanted what he called
a strong reform bill | 1:05:54 | 1:05:57 | |
but stuck by his suggestion
of arming some teachers. | 1:05:57 | 1:06:03 | |
There were 11 wins for the BBC's
journalism at the royal television | 1:06:03 | 1:06:07 | |
society awards last night including
two for this programme. Victoria | 1:06:07 | 1:06:12 | |
Derbyshire was named network
presenter of the year and she also | 1:06:12 | 1:06:14 | |
picked up the gong for best
interview of the year for the | 1:06:14 | 1:06:17 | |
football abuse story. That is a
summary of the latest BBC News. More | 1:06:17 | 1:06:23 | |
at 10:30am. Thank you. It must have
been a good night last night because | 1:06:23 | 1:06:27 | |
I have no idea where my glasses are.
I have left them somewhere in the | 1:06:27 | 1:06:32 | |
capital city of this country. We
have so many messages from you about | 1:06:32 | 1:06:35 | |
dementia. Thank you very much. We
will talk more about it in the next | 1:06:35 | 1:06:40 | |
half an hour. This tweet says your
report on life with dementia is a | 1:06:40 | 1:06:44 | |
difficult but worthwhile watch. A
lot of people with experiences of | 1:06:44 | 1:06:52 | |
neurological conditions will
recognise aspects of how it affects | 1:06:52 | 1:06:54 | |
them. Gary says moving stories from
families in this living with | 1:06:54 | 1:06:58 | |
dementia special. Emotional in so
many ways. Rebecca had: So painful | 1:06:58 | 1:07:03 | |
watching the dementia diaries on
Victoria Derbyshire. I can't imagine | 1:07:03 | 1:07:06 | |
how it feels for the person and
their partner. Joe has emailed to | 1:07:06 | 1:07:10 | |
say I am watching your programme and
finding the focus on dementia very | 1:07:10 | 1:07:13 | |
informative. It is brilliant,
informative and also emotional. Both | 1:07:13 | 1:07:17 | |
my grandmother and mother-in-law had
the condition. I saw them slowly | 1:07:17 | 1:07:21 | |
lose their identity. It was soaked
that. Adam says: My mum had dementia | 1:07:21 | 1:07:29 | |
from 2009 at 2014. What a
destructive type of disease. It was | 1:07:29 | 1:07:34 | |
so sad to have the shell of a loved
one left over from a very loving | 1:07:34 | 1:07:39 | |
mother. We coped as well as we could
and so many restrictions. Sadly her | 1:07:39 | 1:07:43 | |
final week was made worse by
appalling end of life care. The | 1:07:43 | 1:07:47 | |
programme can only go to raise
awareness of such a debilitating | 1:07:47 | 1:07:51 | |
disease that affects more than just
the sufferer. Please tell as many | 1:07:51 | 1:07:54 | |
people as possible. That is what we
plan to do today. Your experience is | 1:07:54 | 1:08:00 | |
so valuable. We are going to hear
from experts of people caring for | 1:08:00 | 1:08:09 | |
dementia sufferers and we will talk
to experts who are looking at curing | 1:08:09 | 1:08:11 | |
the disease, which is the aim one
day but we are long way from that. | 1:08:11 | 1:08:15 | |
If you want to get in touch, you are
very welcome. Use the hashtag. If | 1:08:15 | 1:08:20 | |
you are texting, you will be charged
at the standard rate. Now the sport. | 1:08:20 | 1:08:25 | |
The England rugby union head coach
Eddie Jones said he was physically | 1:08:25 | 1:08:28 | |
and verbally abused by returning by
train from Scotland on Sunday. | 1:08:28 | 1:08:32 | |
England lost their Six Nations match
at Murrayfield the day before. He | 1:08:32 | 1:08:37 | |
suffered abuse on the train from
Edinburgh. This is footage of him at | 1:08:37 | 1:08:41 | |
Manchester Oxford Road Haitian being
harangued and sworn at by a group of | 1:08:41 | 1:08:47 | |
men. -- train station. He then
attended the Manchester United match | 1:08:47 | 1:08:55 | |
as a guest of Sir Alex Ferguson
before continuing his journey to | 1:08:55 | 1:08:57 | |
London by train when he was abused
again. Our rugby union reporter | 1:08:57 | 1:09:02 | |
Chris Jones is here. This is quite
shocking. Part of Eddie Jones's | 1:09:02 | 1:09:07 | |
modus operandi, he likes to engage
with the fans and he likes having | 1:09:07 | 1:09:10 | |
selfies. Clearly this happened on a
couple of legs of his journey south. | 1:09:10 | 1:09:16 | |
He also pointed out some pre-match
comments, from former players, a | 1:09:16 | 1:09:24 | |
Scottish prop, saying the England
hating message, he says that | 1:09:24 | 1:09:27 | |
insights certain behaviours. Yes,
and he also spoke about an interview | 1:09:27 | 1:09:33 | |
that the great Gavin Hastings gave.
He said Scotland would love to win | 1:09:33 | 1:09:40 | |
to rob Eddie Jones's nose in the
dirt. Some would say that is pretty | 1:09:40 | 1:09:45 | |
freaked Calcutta Cup sparring but
Jones feels it created an atmosphere | 1:09:45 | 1:09:47 | |
of animosity. Jones was travelling
south from Edinburgh, away to the | 1:09:47 | 1:09:56 | |
game at Old Trafford between
Manchester United and Chelsea. We | 1:09:56 | 1:10:00 | |
had BBC footage about him being
accosted at Manchester Oxford Road, | 1:10:00 | 1:10:05 | |
and British Transport Police have
confirmed there was an incident | 1:10:05 | 1:10:07 | |
reported on the train down from
Manchester to London. Scottish rugby | 1:10:07 | 1:10:12 | |
union have sent out a very strong
statement saying they are appalled | 1:10:12 | 1:10:15 | |
and disgusted by the reactions in
the video. And the RFU, while | 1:10:15 | 1:10:21 | |
welcoming the Scottish statement,
and appreciating their support, they | 1:10:21 | 1:10:25 | |
will not make any further comment.
They said that Eddie Jones said all | 1:10:25 | 1:10:29 | |
he had to say yesterday when he
spoke to the British newspapers. But | 1:10:29 | 1:10:33 | |
they say he may not take public
transport in this way again and they | 1:10:33 | 1:10:37 | |
are going to make sure they can do
whatever they can to ensure his | 1:10:37 | 1:10:42 | |
security. They also point out that
Jones is keen to draw a line and the | 1:10:42 | 1:10:46 | |
absurd and move on. Thank you. --
draw a line under the episode and | 1:10:46 | 1:10:53 | |
move on. Mauricio Pochettino says
the use of VAR in their FA Cup win | 1:10:53 | 1:10:57 | |
at Wembley against Rochdale was
embarrassing. Referee Paul Tierney | 1:10:57 | 1:11:01 | |
used the system which has been
trialled in the cup competitions | 1:11:01 | 1:11:04 | |
this season to allow a goal,
disallow a penalty and allow a | 1:11:04 | 1:11:11 | |
penalty. Five minutes of time added
on at the end of the first half to | 1:11:11 | 1:11:14 | |
allow for all the stoppages. The
Spurs boss feels the technology on | 1:11:14 | 1:11:18 | |
this occasion has been having a
negative affect on the game. It was | 1:11:18 | 1:11:24 | |
1-1 at half-time. A second-half
hat-trick in the space of 12 minutes | 1:11:24 | 1:11:29 | |
from Fernando Llorente so Spurs go
through 6-1 in the end. They will | 1:11:29 | 1:11:33 | |
now face Swansea in the
quarterfinals. I will be back with | 1:11:33 | 1:11:38 | |
the sport headlines a bit later. | 1:11:38 | 1:11:44 | |
Three years ago we gave video
cameras to three people living with | 1:11:55 | 1:12:00 | |
dementia to film their lives. They
did so and they are back with us | 1:12:00 | 1:12:03 | |
this morning along with others
living with dementia, some of their | 1:12:03 | 1:12:06 | |
relatives, those who care for people
with the disease as well. We will | 1:12:06 | 1:12:10 | |
talk about what it is like to live
with dementia and how we as a | 1:12:10 | 1:12:13 | |
country can best pay for that care
for this challenging disease. First, | 1:12:13 | 1:12:18 | |
this is Jim with some facts and
figures. | 1:12:18 | 1:12:25 | |
The number of people being cared for
with dementia in their own homes is | 1:12:44 | 1:12:47 | |
expected to rise by 1.3 million by
2051 according to new projections | 1:12:47 | 1:12:53 | |
showing by this programme. What
impact will that have on health | 1:12:53 | 1:12:57 | |
services and society in general?
Well, it is now thought one in every | 1:12:57 | 1:13:01 | |
three people born today in 2018 will
develop dementia in their lifetime. | 1:13:01 | 1:13:08 | |
It is already the leading cause of
death for women in the UK and the | 1:13:08 | 1:13:12 | |
second leading cause of death for
men after heart disease. By 2040, it | 1:13:12 | 1:13:17 | |
is predicted more people will die of
dementia in this country than all | 1:13:17 | 1:13:20 | |
cancers combined. Then there is the
cost to society, currently put at | 1:13:20 | 1:13:27 | |
£26 billion a year in care and
treatment, which again is expected | 1:13:27 | 1:13:31 | |
to double by 2040. At the moment,
most of that cost is paid for by the | 1:13:31 | 1:13:36 | |
people with the disease. If you live
in England or Northern Ireland and | 1:13:36 | 1:13:42 | |
you have assets over £23,250, you
are currently expected to pay the | 1:13:42 | 1:13:48 | |
social care bill yourself. The rules
are slightly different in Wales and | 1:13:48 | 1:13:53 | |
Scotland, where the amount is Zeb
Taia. This summer the government | 1:13:53 | 1:13:56 | |
should start the process of
reforming the entire system in | 1:13:56 | 1:14:03 | |
England. As for the cost to the
health service, one in four hospital | 1:14:03 | 1:14:07 | |
beds is now used by someone with
dementia. 69% of people living in a | 1:14:07 | 1:14:12 | |
private care home have the
condition. It is not just about | 1:14:12 | 1:14:16 | |
those living with the disease. 25
million people in this country now | 1:14:16 | 1:14:20 | |
have a family member or close friend
with dementia. 700,000 directly care | 1:14:20 | 1:14:25 | |
for somebody affected. Both members
that are set to increase rising over | 1:14:25 | 1:14:32 | |
the next 50 years. Can I introduce
you again to Wendy Mitchell, Keith | 1:14:32 | 1:14:37 | |
Oliver and Christopher, who are all
living with dementia and have been | 1:14:37 | 1:14:41 | |
filming their lives for you?
Veronica is Christopher's wife. | 1:14:41 | 1:14:46 | |
Jennifer is also here. She is a GP
who has been diagnosed with | 1:14:46 | 1:14:49 | |
dementia. And we have got Brenda
over here. She was diagnosed three | 1:14:49 | 1:14:54 | |
years ago. She is with her husband
Stephen. We will introduce you to | 1:14:54 | 1:15:00 | |
some of our other guests in the
course of the next half an hour. I | 1:15:00 | 1:15:07 | |
want to talk to you about the
challenges of living with dementia. | 1:15:07 | 1:15:12 | |
One example is when you were
accosted after parking in a disabled | 1:15:12 | 1:15:18 | |
space?
It was rather embarrassing. Maybe | 1:15:18 | 1:15:21 | |
the gentleman who accused us, with
dementia, you don't look disabled, | 1:15:21 | 1:15:27 | |
you don't look ill. Christopher can
walk which used to be a criteria for | 1:15:27 | 1:15:32 | |
the blue badge. The stress of going
places, big car parks is taken away | 1:15:32 | 1:15:41 | |
by the blue badge, it is essential.
The Government is running something, | 1:15:41 | 1:15:46 | |
looking at it again.
Is there a stigma surrounding | 1:15:46 | 1:15:50 | |
dementia?
You are nodding? I think there is a | 1:15:50 | 1:15:56 | |
great stigma, I am afraid. People do
not talk about dementia a lot of the | 1:15:56 | 1:16:01 | |
time.
Why is that? A lot of people are | 1:16:01 | 1:16:07 | |
very frightened of dementia. What
you have shown in these films is it | 1:16:07 | 1:16:11 | |
is not frightening, it is part of
life, and a lot of people are going | 1:16:11 | 1:16:17 | |
to have some form of dementia. We
must get used to it and accept it | 1:16:17 | 1:16:22 | |
and talk about it. If you avoid
talking about it, you avoid the | 1:16:22 | 1:16:28 | |
understanding of all the people
around you. We want everybody to | 1:16:28 | 1:16:33 | |
make this country dementia friendly
so we welcome people with dementia, | 1:16:33 | 1:16:40 | |
we talk about it, we change policies
to make sure people with dementia | 1:16:40 | 1:16:45 | |
and those who care for them, people
like Veronica, have an understanding | 1:16:45 | 1:16:51 | |
relationship with neighbours, with
police, with shop assistants, with | 1:16:51 | 1:16:57 | |
people we come across every day.
Wendy, you are an incredible | 1:16:57 | 1:17:05 | |
illustration of living with
dementia, and the adjustments you | 1:17:05 | 1:17:09 | |
have made, including moving house.
Did you want to move house? | 1:17:09 | 1:17:15 | |
Did you feel forced? No, I was
definitely forced. Dementia forced | 1:17:15 | 1:17:20 | |
me in one way because I used to live
in a busy centre of York. And I hope | 1:17:20 | 1:17:28 | |
everyone realises dementia isn't
just about memory, but lots of other | 1:17:28 | 1:17:33 | |
senses are affected as well. And
hearing was one of my first. It just | 1:17:33 | 1:17:39 | |
became too chaotic, it made me
anxious to be in that busy situation | 1:17:39 | 1:17:46 | |
which I used to love.
So, I had to move somewhere quiet. | 1:17:46 | 1:17:50 | |
But also financially, I still had a
mortgage when I was diagnosed. | 1:17:50 | 1:17:57 | |
People often forget, when you are
diagnosed, you still have a | 1:17:57 | 1:18:07 | |
mortgage, young children, I was
working. So no one would have given | 1:18:07 | 1:18:12 | |
me a mortgage under those
circumstances, with living alone. So | 1:18:12 | 1:18:18 | |
I had to move to a cheaper part of
the country to be able to still have | 1:18:18 | 1:18:22 | |
a house.
What about other experiences? | 1:18:22 | 1:18:27 | |
In a long-distance sense, you look
after your mum who has dementia, who | 1:18:27 | 1:18:33 | |
is 91.
She has been in care for over six | 1:18:33 | 1:18:36 | |
years. Before that she was living
alone at home. I would say with | 1:18:36 | 1:18:42 | |
symptoms of dementia for up to 20
years. People assume that dementia | 1:18:42 | 1:18:49 | |
is all about memory loss, getting
confused about names, dates, money. | 1:18:49 | 1:18:54 | |
That is part of it. In her case, she
has mixed Alzheimer's and vascular | 1:18:54 | 1:19:00 | |
dementia. Troubling symptoms were
along the paranoid spectrum, having | 1:19:00 | 1:19:09 | |
fears and delusions, irrational
emotional responses, the kind of | 1:19:09 | 1:19:13 | |
things that come and go. You can't
obviously point to them as a | 1:19:13 | 1:19:18 | |
disease. Sometimes it seems like an
irrational flare-up in your | 1:19:18 | 1:19:23 | |
relationship and then you move on.
Can I ask how you managed to get | 1:19:23 | 1:19:28 | |
your mother into a care home?
It was immensely difficult, too hard | 1:19:28 | 1:19:33 | |
to explain in a sound bite. It was a
long process and I wouldn't have | 1:19:33 | 1:19:39 | |
been able to do it if she had still
been able to be independent. It was | 1:19:39 | 1:19:44 | |
only when she got into crisis. She
wasn't safe to be left on her own. | 1:19:44 | 1:19:53 | |
And going out, driving, not being
visibly disabled, our life had | 1:19:53 | 1:19:58 | |
shrunk down. By that time, the only
places we could go well where I | 1:19:58 | 1:20:03 | |
could park right outside and go
straight in because I couldn't leave | 1:20:03 | 1:20:07 | |
her to park the car somewhere else.
Effectively you had to use | 1:20:07 | 1:20:12 | |
subterfuge to get your mum into
care? | 1:20:12 | 1:20:15 | |
Part of her symptoms are she hasn't
been able to recognise the symptoms | 1:20:15 | 1:20:21 | |
herself. She would be antagonistic
to anyone raising it. Understandably | 1:20:21 | 1:20:26 | |
because if you think someone is
raising an issue you are afraid of | 1:20:26 | 1:20:30 | |
but you don't think it is an issue
at all, of course you would be | 1:20:30 | 1:20:35 | |
angry. I could never plan things
with her. Everything I organised for | 1:20:35 | 1:20:40 | |
her, in the end I did behind her
back with social workers, clinical | 1:20:40 | 1:20:46 | |
psychiatrists, occupational
therapists, ultimately with the care | 1:20:46 | 1:20:51 | |
home. All of us employing a degree
of subterfuge to get her to accept | 1:20:51 | 1:20:55 | |
the things by that stage she needed.
Jennifer, was it you who found | 1:20:55 | 1:21:05 | |
yourself wandering along a bridge?
You are going to a tube station and | 1:21:05 | 1:21:10 | |
you found you weren't in the right
place and didn't know where you | 1:21:10 | 1:21:13 | |
work? -- know where you work?
I didn't know where the exit was on | 1:21:13 | 1:21:21 | |
the platform. I kept going up and
down the bridge because I didn't | 1:21:21 | 1:21:25 | |
know. So many people say we look all
right and don't understand how | 1:21:25 | 1:21:32 | |
difficult life can be.
And who helped you? Nobody, until | 1:21:32 | 1:21:37 | |
the person waiting to meet
eventually came to find me. By which | 1:21:37 | 1:21:41 | |
time the station was deserted and I
were still wandering up and down | 1:21:41 | 1:21:44 | |
over the bridge because I did not
know how get out. Can I add, there | 1:21:44 | 1:21:52 | |
was an important word, rationality.
That is one of the things you | 1:21:52 | 1:21:58 | |
mention robs me of Sundays. I find
it very alien from what I used to be | 1:21:58 | 1:22:05 | |
like. An example is, the other day,
I felt nobody cared. It was a really | 1:22:05 | 1:22:12 | |
foggy day and I sensed nobody cared.
My consultant came to visit me at | 1:22:12 | 1:22:17 | |
home because I wasn't well. This is
my psychiatrist. And I gave him all | 1:22:17 | 1:22:25 | |
guns blazing about how I felt nobody
cared. I felt horrible because this | 1:22:25 | 1:22:30 | |
poor chap has come to see me at home
and he truly does care, and I spoke | 1:22:30 | 1:22:36 | |
about not caring. I did clarify, it
is the system that appears not to | 1:22:36 | 1:22:42 | |
care. The individuals within the
system are giving an enormous amount | 1:22:42 | 1:22:46 | |
of care. We will talk about the
system in a moment. You talk | 1:22:46 | 1:22:54 | |
powerfully in the film about
depression and dementia being best | 1:22:54 | 1:22:58 | |
friends, give us an insight? I have
never had depression in my life and | 1:22:58 | 1:23:04 | |
when I was first diagnosed, the
consultant, he didn't give me any | 1:23:04 | 1:23:08 | |
prescription for the uptime is but
an antidepressant. | 1:23:08 | 1:23:15 | |
an antidepressant. I took the
description but I never cashed it. I | 1:23:16 | 1:23:19 | |
have never taken an antidepressant.
When I did become depressed because | 1:23:19 | 1:23:25 | |
of the dementia I remember saying,
if I am going down I want my eyes | 1:23:25 | 1:23:29 | |
open. Because I don't want the cloud
to be made even more so by the | 1:23:29 | 1:23:40 | |
medication. I did come out of that.
Because of the people that surround | 1:23:40 | 1:23:47 | |
me, my wife, my family, and those
professionals who are doing their | 1:23:47 | 1:23:54 | |
best to help me.
I want to show you a little clip of | 1:23:54 | 1:24:00 | |
Wendy in a glider. When was this,
last year? | 1:24:00 | 1:24:04 | |
Probably, yes. Stupid question on my
part! | 1:24:04 | 1:24:10 | |
Let us play you this. | 1:24:10 | 1:24:13 | |
How good was that?
That was amazing. Did you have some | 1:24:17 | 1:24:22 | |
of the people saying to your
daughter, are you sure she will be | 1:24:22 | 1:24:24 | |
all right? I remember distinctly
because of the powerful emotion it | 1:24:24 | 1:24:31 | |
makes you feel. I was stood next to
them, and the pilot and technicians | 1:24:31 | 1:24:41 | |
spoke to my daughter and said, is
your mum really capable? Will she | 1:24:41 | 1:24:48 | |
take all the controls? | 1:24:48 | 1:24:54 | |
take all the controls? Is that
because people sometimes think | 1:24:54 | 1:24:56 | |
dementia equals madness? When people
think of dementia they often think | 1:24:56 | 1:25:03 | |
of the end stages and they forget
there is a beginning and a middle | 1:25:03 | 1:25:07 | |
and so much living to be done. All
the time. So they were just assuming | 1:25:07 | 1:25:14 | |
I had no control over myself.
Luckily, my daughter said, why don't | 1:25:14 | 1:25:21 | |
you ask her, she is stood here! Once
we had got over that initial | 1:25:21 | 1:25:30 | |
barrier, they started to relax a
little but it wasn't until we were | 1:25:30 | 1:25:33 | |
up in the sky and I was taking
photos and talking that I could see | 1:25:33 | 1:25:41 | |
the pilot behind me visibly relax
and start talking to me, instead of | 1:25:41 | 1:25:47 | |
wondering how on earth much longer
it was before we got down again. | 1:25:47 | 1:25:52 | |
Fantastic. I want to ask Carol if
you could introduce your | 1:25:52 | 1:25:58 | |
organisation, about the current
state of research into dementia, | 1:25:58 | 1:26:03 | |
treatments and cures, before we talk
about care for people with dementia | 1:26:03 | 1:26:07 | |
in this country. I am the Director
of Alzheimer's research UK, funding | 1:26:07 | 1:26:17 | |
research from really early
scientific research all the way to | 1:26:17 | 1:26:19 | |
the clinic. We are making
significant progress. We don't have | 1:26:19 | 1:26:25 | |
a cure but we are making progress.
We understand a lot more about the | 1:26:25 | 1:26:30 | |
pathology behind these diseases,
about the genetics, we understand a | 1:26:30 | 1:26:35 | |
lot more about the processes which
provides targets to develop drugs. | 1:26:35 | 1:26:41 | |
There are many drugs in development.
We all hope they will show | 1:26:41 | 1:26:47 | |
effectiveness and benefit in
patients. Is there anything on the | 1:26:47 | 1:26:50 | |
market now to help people manage
their dementia? There are | 1:26:50 | 1:26:55 | |
symptomatic treatments on the market
now. These treatments are effective | 1:26:55 | 1:27:01 | |
in a proportion of people but not
everybody. | 1:27:01 | 1:27:06 | |
What do they do? They slowed down
the decline in memory loss and the | 1:27:06 | 1:27:13 | |
appearance of behaviours. They don't
have any effect on disease | 1:27:13 | 1:27:16 | |
modification. They don't slow the
disease process or stop it. But they | 1:27:16 | 1:27:22 | |
really help with the symptoms. They
don't work in everybody but in some | 1:27:22 | 1:27:27 | |
they work for a significant period.
Brenda hello. Thank you for being so | 1:27:27 | 1:27:36 | |
patient. Diagnosed three years ago
and involved in medical trials. If | 1:27:36 | 1:27:43 | |
you say so, yes. Can you tell us a
little bit? | 1:27:43 | 1:27:48 | |
It gets me out of the house and I go
to various places, with Stephen, of | 1:27:48 | 1:27:55 | |
course. And sometimes I am looked
from head to toe, other times they | 1:27:55 | 1:28:00 | |
ask me questions, but I don't really
remember what has happened will stop | 1:28:00 | 1:28:08 | |
I just go with the flow. Can you
tell us a little bit? To go back, | 1:28:08 | 1:28:14 | |
Brenda says she goes with the flow.
When she was first diagnosed, she | 1:28:14 | 1:28:19 | |
was very angry. After a few months
she had an epiphany where she said | 1:28:19 | 1:28:24 | |
to me one day, I am coming out,
literally. And when she came out, | 1:28:24 | 1:28:32 | |
she was completely different, all of
the anger had gone, she didn't mind | 1:28:32 | 1:28:35 | |
talking about it to people.
Yesterday we have to fill in lots of | 1:28:35 | 1:28:41 | |
questionnaires for the research, we
did one yesterday, asked on a scale | 1:28:41 | 1:28:47 | |
of one to ten where do you consider
yourself in happiness, where did you | 1:28:47 | 1:28:50 | |
put yourself, do you remember?
Nearly ten. She decided on eight | 1:28:50 | 1:28:57 | |
because she said there is room for
improvement. But she always feels | 1:28:57 | 1:29:01 | |
very happy. When she was first
diagnosed, it seemed to be automatic | 1:29:01 | 1:29:14 | |
the patient is put on an
antidepressant. Brenda was angry, | 1:29:14 | 1:29:21 | |
she wasn't depressed. It took a few
months. We persuaded the memory | 1:29:21 | 1:29:26 | |
clinic and doctor to take her off
the antidepressants, there was no | 1:29:26 | 1:29:30 | |
need for it. And she doesn't need it
now. As far as the tiles are | 1:29:30 | 1:29:37 | |
concerned, Brenda does willingly
volunteer for quite a few trials, | 1:29:37 | 1:29:41 | |
some of which are sponsored by
Alzheimer's research UK. She is | 1:29:41 | 1:29:47 | |
subjected to all sorts of
indignities she is happy with, being | 1:29:47 | 1:29:52 | |
hung up in answers, involved in
balance studies, constant brain | 1:29:52 | 1:29:56 | |
scans.
It gets me out of the house. Thank | 1:29:56 | 1:30:01 | |
you so much. | 1:30:01 | 1:30:09 | |
you so much. I want to talk about
the current state of care for people | 1:30:09 | 1:30:12 | |
with dementia in the UK. One in four
people in a hospital bed is someone | 1:30:12 | 1:30:18 | |
with dementia.
Is that the right place for them? My | 1:30:18 | 1:30:24 | |
dad died last year, in hospital for
the last six months of his life. He | 1:30:24 | 1:30:30 | |
was in a care home prior to that.
The experience chimes with the | 1:30:30 | 1:30:38 | |
subterfuge and going against his
will, he would have rather stay at | 1:30:38 | 1:30:43 | |
home, but my mum had cancer and
could not care for him. Once he went | 1:30:43 | 1:30:47 | |
into hospital, the care home said
they would not have him back because | 1:30:47 | 1:30:53 | |
his level of need had increased to
the point where they could not | 1:30:53 | 1:30:57 | |
manage, which | 1:30:57 | 1:30:57 | |
My mother died last February, so it
was down to me to look at care homes | 1:31:09 | 1:31:12 | |
and pick one. I was quite surprised
to find that wasn't the case. | 1:31:12 | 1:31:17 | |
Actually the care homes would come
and assess him. So they pick you or | 1:31:17 | 1:31:21 | |
not as the case may be? Exactly.
Each time it was the same thing. | 1:31:21 | 1:31:28 | |
They couldn't manage his night-time
wondering. He was in a hospital | 1:31:28 | 1:31:32 | |
environment which was not
necessarily... It was an alien | 1:31:32 | 1:31:36 | |
environment. It probably wasn't
showing him how he would have been | 1:31:36 | 1:31:41 | |
if he had been settled and familiar.
He would be awake a lot of the night | 1:31:41 | 1:31:46 | |
and sleeping during the day and he
would get very agitated and he would | 1:31:46 | 1:31:49 | |
want to walk up and down the
corridor but because he was so | 1:31:49 | 1:31:53 | |
confused and disorientated, somebody
had to be with him all the time. The | 1:31:53 | 1:31:56 | |
ward he was on was appropriate for
people with dementia but in a risk | 1:31:56 | 1:32:03 | |
averse way. But in an ideal world,
are you saying as experts, because | 1:32:03 | 1:32:08 | |
of your personal experiences and
because you are caring for someone | 1:32:08 | 1:32:11 | |
or the organisation you work for,
that being a hospital just because | 1:32:11 | 1:32:16 | |
you have dementia is not the right
place? Absolutely. I work for the | 1:32:16 | 1:32:22 | |
Alzheimer's Society and we know who
people who stay in hospital with | 1:32:22 | 1:32:26 | |
dementia can stay there from twice
to seven times as long because the | 1:32:26 | 1:32:29 | |
community support is not there. Some
of the numbers we have talked about, | 1:32:29 | 1:32:34 | |
there are 500,000 people living in
their own homes with dementia, and | 1:32:34 | 1:32:38 | |
they have told the Alzheimer's
Society that 85% would like to stay | 1:32:38 | 1:32:41 | |
in their own homes for as long as
possible. By 2050 we will have 1.3 | 1:32:41 | 1:32:46 | |
million people living with dementia
in their homes. Their individual | 1:32:46 | 1:32:50 | |
support needs need to be there.
Either we address them sensibly, | 1:32:50 | 1:32:55 | |
more affordably in the community or
we are going to have the greater | 1:32:55 | 1:32:59 | |
crisis on the NHS which is
avoidable. Ago. People with dementia | 1:32:59 | 1:33:05 | |
can live in their own homes
independently, individually, as you | 1:33:05 | 1:33:09 | |
have illustrated and you are
illustrating, but we have got to pay | 1:33:09 | 1:33:13 | |
for professionals to go in and help
them do what, for example? It can be | 1:33:13 | 1:33:19 | |
a whole range of support. As Keith
said, there is support for living | 1:33:19 | 1:33:23 | |
with dementia and reducing
isolation. You can have group | 1:33:23 | 1:33:26 | |
activities and one-to-one support
and as dementia progresses, it can | 1:33:26 | 1:33:30 | |
move into the health needs, the
health support. What we can but hope | 1:33:30 | 1:33:34 | |
is now we have, with Jeremy Hunt,
the Health Secretary, and he is | 1:33:34 | 1:33:41 | |
responsible for health care and
social care, and this is the first | 1:33:41 | 1:33:43 | |
time the two have been put together
and we need the resources properly | 1:33:43 | 1:33:47 | |
but this is not just this government
but successive governments for 20 | 1:33:47 | 1:33:50 | |
years. That is the challenge. Mike,
you run a care home. What is your | 1:33:50 | 1:33:55 | |
view? I had something about care in
the community? It is a challenge as | 1:33:55 | 1:34:00 | |
well because it is about having
enough staff to look after people in | 1:34:00 | 1:34:04 | |
their own home. There was a report
last week which showed we cannot | 1:34:04 | 1:34:09 | |
recruit enough people. It is not
just care homes which has its own | 1:34:09 | 1:34:13 | |
challenges but it is the community
as well, making sure people have | 1:34:13 | 1:34:17 | |
better care. You are a politician,
crossbench peer, former director of | 1:34:17 | 1:34:24 | |
Age Concern. How should we pay for
this in the future? I think Jeremy | 1:34:24 | 1:34:30 | |
Hunt has got to bring together
health and social care funding. I | 1:34:30 | 1:34:34 | |
think we have got to start using the
taxation system to help us with | 1:34:34 | 1:34:38 | |
that. Very importantly. Income tax?
Yes. National Insurance? Everybody? | 1:34:38 | 1:34:47 | |
Everybody who can. And we have got
to encourage people to stay at home | 1:34:47 | 1:34:52 | |
but that doesn't mean you're care
workforce, those people, have got to | 1:34:52 | 1:34:54 | |
be properly paid, recognised as
being indispensable in this sort of | 1:34:54 | 1:35:00 | |
case. Dave? It is not just about
staff and professional carers. A lot | 1:35:00 | 1:35:07 | |
of people living with dementia are
supported by family members. | 1:35:07 | 1:35:11 | |
Particularly for people in black and
ethnic minorities, they are being | 1:35:11 | 1:35:15 | |
supported on a voluntary basis,
either by family members or by | 1:35:15 | 1:35:20 | |
neighbours or members of the
community. The challenges they face, | 1:35:20 | 1:35:25 | |
they don't really understand how
dementia works. They are very | 1:35:25 | 1:35:29 | |
worried about it. They often feel it
is not something that they can talk | 1:35:29 | 1:35:36 | |
about in their communities at all. I
think that is an area that is really | 1:35:36 | 1:35:41 | |
left out of a lot of the
conversation when people talk about | 1:35:41 | 1:35:45 | |
the cost of dementia, because they
are bearing the cost of dementia out | 1:35:45 | 1:35:48 | |
of their pockets every day. I want
to bring in Doctor Eileen Burns, a | 1:35:48 | 1:35:55 | |
hospital doctor | 1:35:55 | 1:36:00 | |
hospital doctor and President of The
Geriatrics Society. Where is the | 1:36:01 | 1:36:04 | |
best place for people to be treated,
helped and supported, and how do we | 1:36:04 | 1:36:09 | |
pay for it? We really need to start
planning in a much more sensible and | 1:36:09 | 1:36:14 | |
structured way than we have done
today for the future population. We | 1:36:14 | 1:36:18 | |
know that the population is ageing
and we know in particular the very | 1:36:18 | 1:36:22 | |
elderly group, the group in whom
dementia is most prevalent, are | 1:36:22 | 1:36:26 | |
increasing the fastest, and if we
don't start planning now, we really | 1:36:26 | 1:36:30 | |
are going to be in the soup, as my
colleague said. We need to think | 1:36:30 | 1:36:34 | |
about different models of care.
Currently many people with dementia | 1:36:34 | 1:36:37 | |
end up in a hospital setting because
something happens. Perhaps they have | 1:36:37 | 1:36:41 | |
a fall, they develop an infection,
it may or may not be the best place | 1:36:41 | 1:36:46 | |
for them at that time. Sometimes
people with dementia will need acute | 1:36:46 | 1:36:51 | |
hospital care, just like any of us
might do. If they don't need | 1:36:51 | 1:36:54 | |
hospital care but there is a crisis,
we need more alternatives rather | 1:36:54 | 1:36:59 | |
than just 909, ambulance, A&E,
hospital | 1:36:59 | 1:37:07 | |
ward. In many parts of the country
that is the only pathway we have. We | 1:37:19 | 1:37:22 | |
need alternatives to help people not
going to hospital if that is | 1:37:22 | 1:37:24 | |
appropriate and alternatives to help
people get back out of hospital in a | 1:37:24 | 1:37:27 | |
timely way. As has been mentioned,
when people get stuck in hospital, | 1:37:27 | 1:37:29 | |
they become less well, despite
everything we try and do an hospital | 1:37:29 | 1:37:32 | |
to avoid unwanted effects. We know
this, politicians know this, the | 1:37:32 | 1:37:34 | |
population knows this. It is
grabbing at by the scruff of the | 1:37:34 | 1:37:38 | |
neck and sorting it. Those things
you pointed out, we know, don't we? | 1:37:38 | 1:37:43 | |
I am frustrated in a way because I
have been involved for 30 years and | 1:37:43 | 1:37:47 | |
we have done a lot of talking. My
fear is that there will be another | 1:37:47 | 1:37:52 | |
delay when the green paper comes up.
We have got to get on with it | 1:37:52 | 1:37:56 | |
quickly. We are very good at talking
in this country and not very good at | 1:37:56 | 1:38:01 | |
action quick enough. The talking
takes up far too much time. The | 1:38:01 | 1:38:08 | |
public is saying enough is enough.
We are expecting a green paper, | 1:38:08 | 1:38:12 | |
government paper on social care in
the not too distant future. Ron | 1:38:12 | 1:38:19 | |
occur? It is a long journey for a
lot of people. -- Veronica? The | 1:38:19 | 1:38:29 | |
train, as people call it. At first
the diagnosis is brilliant and there | 1:38:29 | 1:38:32 | |
is a lot of post diagnosis care, but
as you travel on the train, I mean, | 1:38:32 | 1:38:38 | |
Christopher was diagnosed ten years
ago and he had it two years before | 1:38:38 | 1:38:40 | |
that while we try to find out what
it was. We are getting to a stage | 1:38:40 | 1:38:47 | |
where we want specialist clinical
help. That is totally different from | 1:38:47 | 1:38:49 | |
anything we have met so far. That is
what we really need to stay at home. | 1:38:49 | 1:38:56 | |
As you say, we can go into hospital
for a short time but it is to be | 1:38:56 | 1:39:00 | |
avoided as possible. Everybody has
that experience. There are very few | 1:39:00 | 1:39:06 | |
Admiral nurses. The cinema, that is
what we need. The funding of that | 1:39:06 | 1:39:14 | |
end of it. There has been a lot of
stuff about the beginning, you must | 1:39:14 | 1:39:18 | |
get diagnosed and talk about it, it
has become a thing, and we now need | 1:39:18 | 1:39:22 | |
to grab the thing and sort it. For
our children and grandchildren. | 1:39:22 | 1:39:30 | |
Sorry, Keith. Very briefly? It is
appalling that such a significant | 1:39:30 | 1:39:37 | |
disease as Alzheimer's, at point of
diagnosis you are then discharged! | 1:39:37 | 1:39:41 | |
That is criminal and crazy. There is
no care plan. I don't think most | 1:39:41 | 1:39:46 | |
people know that. It is true. There
is no care plan given for most | 1:39:46 | 1:39:51 | |
people until they hit a crisis and
then a care plan is developed. That | 1:39:51 | 1:39:56 | |
care plan, I know from my experience
of 35 years in education, if I had | 1:39:56 | 1:40:01 | |
children in my care, in my school,
who required additional support and | 1:40:01 | 1:40:05 | |
help, we would have a plan to give
them that. We would give them that | 1:40:05 | 1:40:09 | |
where it would make a difference.
One final thought. I am so sorry. I | 1:40:09 | 1:40:16 | |
will bring it back to the personal,
if I may? Jennifer, go ahead. You | 1:40:16 | 1:40:20 | |
are so right. We have got to get in
at the beginning. Doctors, with | 1:40:20 | 1:40:25 | |
stroke, we didn't used to do very
much but nowadays we do and we put a | 1:40:25 | 1:40:28 | |
lot of effort into it and there is a
window of opportunity at the | 1:40:28 | 1:40:31 | |
beginning. It goes down as time goes
on and it is the same with dementia. | 1:40:31 | 1:40:37 | |
If we can get it right at the
beginning and do something rather | 1:40:37 | 1:40:40 | |
than just having a diagnosis, we can
make a tremendous difference. There | 1:40:40 | 1:40:44 | |
is so much that can still be done. I
want to thank you all, very much. | 1:40:44 | 1:40:53 | |
Dave, Sally, Tim, Keith, Wendy,
Christopher, Veronica, Carol, | 1:40:54 | 1:40:59 | |
Stephen, Eileen, thank you for
coming on the programme. We could | 1:40:59 | 1:41:02 | |
have talked for longer, I know. I am
so grateful for your time and | 1:41:02 | 1:41:06 | |
patience this morning. Thank you
very much. And thank you for your | 1:41:06 | 1:41:10 | |
comments. This email from Jenny: I
have never got in touch with you | 1:41:10 | 1:41:14 | |
before but I wanted you to know
about my mother who was diagnosed | 1:41:14 | 1:41:18 | |
with dementia in 2010. It is a long
story but I had to sell her home and | 1:41:18 | 1:41:21 | |
she has been in a residential home
for two years and now a nursing home | 1:41:21 | 1:41:26 | |
for two more. The only thing she has
left is an ability to swallow baby | 1:41:26 | 1:41:33 | |
food and breathe. She does not know
me or anyone else. It has been a | 1:41:33 | 1:41:37 | |
battle all the way through. I really
worry for people who have no one to | 1:41:37 | 1:41:41 | |
fight their corner. When you contact
social services, they just tell you | 1:41:41 | 1:41:45 | |
there is no money at the end of the
conversation and you are left to | 1:41:45 | 1:41:49 | |
sort things out. Very scary for our
futures. Heartbreaking issue and so | 1:41:49 | 1:41:53 | |
well covered by you this morning.
Thank you. This email from Glenys. | 1:41:53 | 1:41:58 | |
My husband was diagnosed without
same as five years ago. It is so | 1:41:58 | 1:42:02 | |
true that every sufferer experiences
the disease in different ways. Some | 1:42:02 | 1:42:10 | |
people are very chatty when we go to
Alzheimer's Society events, but some | 1:42:10 | 1:42:15 | |
are very silent. I thought my
husband would watch with me and we | 1:42:15 | 1:42:20 | |
could discuss it but he says what he
always says when I suggest watching | 1:42:20 | 1:42:24 | |
TV, I have seen this programme
before and he is genuinely convinced | 1:42:24 | 1:42:28 | |
that he has. Unfortunately for me he
has returned to his jigsaw puzzle. | 1:42:28 | 1:42:34 | |
And from Sally: My dad was diagnosed
without thymus in 2013. I liken it | 1:42:34 | 1:42:39 | |
to having a child. As time moves on
you move into a different phase and | 1:42:39 | 1:42:43 | |
you can hardly remember the days
before and it becomes normal. It is | 1:42:43 | 1:42:47 | |
heartbreaking. What I find most
hardest try to keep my mother in | 1:42:47 | 1:42:50 | |
good spirits because she is his main
carer. My dad is living in his own | 1:42:50 | 1:42:55 | |
world really and seems fairly
content. My mother is so upset all | 1:42:55 | 1:42:59 | |
the time and depressed. My siblings
and I find that difficult. We just | 1:42:59 | 1:43:10 | |
feel helpless as there is only so
much we can do with young children | 1:43:10 | 1:43:13 | |
of our own. There has also been a
real reluctance from her to seek | 1:43:13 | 1:43:16 | |
help which we find so frustrating.
It has really changed my perspective | 1:43:16 | 1:43:18 | |
on life and to live each day with
positivity. Take that trip, spend | 1:43:18 | 1:43:22 | |
that money, have those experiences,
as you never know what life will | 1:43:22 | 1:43:25 | |
bring. Absolutely. It is not a dress
rehearsal. I have some breaking news | 1:43:25 | 1:43:32 | |
to bring you. The first is to do
with Prince William, the Duke of | 1:43:32 | 1:43:37 | |
Cambridge. Kensington Palace has
announced that he will visit Israel, | 1:43:37 | 1:43:41 | |
Jordan and the occupied Palestinian
territories this summer. The visit | 1:43:41 | 1:43:45 | |
is at the request of Her Majesty's
government and has been welcomed by | 1:43:45 | 1:43:50 | |
the Israeli, Jordanian and
Palestinian authorities. Further | 1:43:50 | 1:43:52 | |
details will be announced in due
course. And MI5 has reduced the | 1:43:52 | 1:43:58 | |
threat level to Great Britain from
Northern Ireland related terrorism | 1:43:58 | 1:44:01 | |
from substantial to moderate, which
means that a terrorist attack is | 1:44:01 | 1:44:08 | |
possible but not likely. MI5 has
reduced the threat level to the UK | 1:44:08 | 1:44:12 | |
from Northern Ireland related
terrorism from substantial to | 1:44:12 | 1:44:14 | |
moderate, which means an attack is
possible but not likely. | 1:44:14 | 1:44:20 | |
The Home Office says it's
considering allowing a medical | 1:44:20 | 1:44:23 | |
cannabis trial to treat
a six-year-old boy with | 1:44:23 | 1:44:25 | |
a rare form of epilepsy. | 1:44:25 | 1:44:26 | |
Alfie Dingley, from
Kenilworth in Warwickshire | 1:44:26 | 1:44:27 | |
suffers up to 30 violent
seizures a day. | 1:44:27 | 1:44:33 | |
His mother took him
to the Netherlands to take | 1:44:33 | 1:44:37 | |
a cannabis-based medication
in September and says while there | 1:44:37 | 1:44:39 | |
his seizures reduced in number,
duration and severity. | 1:44:39 | 1:44:44 | |
The Home Office had so far
denied six-year-old Alfie Dingley | 1:44:44 | 1:44:47 | |
access to the drug due to it
being a banned substance. | 1:44:47 | 1:44:50 | |
Alfie's mum Hannah Deacon
joins me on the programme. | 1:44:50 | 1:44:58 | |
thank you for talking to us.
Why have they changed their mind? | 1:45:01 | 1:45:10 | |
Well, we had a very good meeting on
Monday with the Home Office Minister | 1:45:11 | 1:45:19 | |
and his advisers, and also our MP
who has been extremely helpful with | 1:45:19 | 1:45:23 | |
organising everything for us.
We were presented with this option | 1:45:23 | 1:45:28 | |
about the fact we could use the
medication that three months under | 1:45:28 | 1:45:32 | |
the clinician in the UK, to show its
effectiveness, and after that point, | 1:45:32 | 1:45:40 | |
apply for a Home Office license so
Alfie could use it in the country. | 1:45:40 | 1:45:45 | |
We have done five months of the
trial in Holland where we had a | 1:45:45 | 1:45:49 | |
report done by our paediatric
urologist, but they feel they want a | 1:45:49 | 1:45:54 | |
UK clinician to do a trial as well.
We are very positive they have given | 1:45:54 | 1:46:00 | |
us this lifeline. I think they see
what a serious issue we have here. | 1:46:00 | 1:46:07 | |
How important it is Alfie does not
go back into being severely ill as | 1:46:07 | 1:46:11 | |
he was before we went to Holland. I
hope we get this action plan into | 1:46:11 | 1:46:17 | |
place quickly. We have been told it
will be within a month so we hope | 1:46:17 | 1:46:21 | |
that will happen.
Could you describe for our audience | 1:46:21 | 1:46:26 | |
what it is like you as Alfie's mum
when he has a seizure? | 1:46:26 | 1:46:35 | |
Well, just to clarify, Alfie has a
condition which is genetic which | 1:46:35 | 1:46:39 | |
causes cluster seizures, he was
having a cluster of severe seizures | 1:46:39 | 1:46:46 | |
every four to ten days. Not every
day but when he does they are very | 1:46:46 | 1:46:52 | |
aggressive, he doesn't breed and
they don't stop without intravenous | 1:46:52 | 1:46:57 | |
steroids. -- breathe. We can't
manage it at home, we go to A&E. By | 1:46:57 | 1:47:09 | |
the time we get to our local
hospital 15 minutes away he could | 1:47:09 | 1:47:13 | |
have had five seizures. It is a very
aggressive presentation and be | 1:47:13 | 1:47:18 | |
anything that stops it is
intravenous steroids. The worst | 1:47:18 | 1:47:22 | |
thing I have experienced. I did it
for two years come every week, | 1:47:22 | 1:47:28 | |
watching my child suffer. It is not
something any parent should have to | 1:47:28 | 1:47:33 | |
go through, or child. He is a very
brave, strong little boy. But his | 1:47:33 | 1:47:41 | |
body won't last forever if UK -- if
he is injected with steroids every | 1:47:41 | 1:47:46 | |
week.
The Home Office says the Government | 1:47:46 | 1:47:51 | |
has huge sympathy, the policing
minister wants to explore every | 1:47:51 | 1:47:57 | |
option and has met with you to
discuss treatments but no decisions | 1:47:57 | 1:48:01 | |
have been made and any proposal
would need to be led by senior | 1:48:01 | 1:48:06 | |
clinicians using sufficient and
rigorous evidence. No decisions have | 1:48:06 | 1:48:11 | |
been made after the child is what
that means, isn't it? | 1:48:11 | 1:48:18 | |
Yes, they are still on the fence a
little bit, which is upsetting. We | 1:48:18 | 1:48:23 | |
have been given this option. I want
a commitment from them they are | 1:48:23 | 1:48:28 | |
going to help Alfie. As a mother,
that is all I am, his mum, I am not | 1:48:28 | 1:48:35 | |
a politician, I am not an activist,
I am just a mother who is tired of | 1:48:35 | 1:48:42 | |
seeing my son suffer, and I have
found something that helps him. And | 1:48:42 | 1:48:46 | |
I want everyone to get together and
make this happen to him. It is his | 1:48:46 | 1:48:50 | |
human right to be well. This makes
him while. And I understand there | 1:48:50 | 1:48:59 | |
are legal sites, legislation, red
tape. But we need to act quickly and | 1:48:59 | 1:49:03 | |
I want some | 1:49:03 | 1:49:09 | |
I want some sincere help from the
Home Office, some commitment, sorry, | 1:49:10 | 1:49:15 | |
that they will make this happen. And
this is what they have offered us | 1:49:15 | 1:49:20 | |
and I want it to happen, quickly.
Thank you very much the talking to | 1:49:20 | 1:49:26 | |
us this morning.
Can I say one thing. Everyone | 1:49:26 | 1:49:31 | |
watching, please, if you support
what we are trying to do, please | 1:49:31 | 1:49:35 | |
follow us on Facebook, we have a
link where you can lobby your MP, | 1:49:35 | 1:49:42 | |
just fill your details in. We need
people power on this, we need our | 1:49:42 | 1:49:48 | |
MPs, and this will happen for him if
we come together and support him and | 1:49:48 | 1:49:53 | |
make it happen.
Thank you. | 1:49:53 | 1:49:55 | |
Thank you. | 1:49:55 | 1:50:00 | |
Thank you. The Government has
announced it will not press ahead | 1:50:00 | 1:50:03 | |
with the second part of the lettuce
and enquire into press standards and | 1:50:03 | 1:50:08 | |
regulations, the culture secretary
has told the House Of Commons there | 1:50:08 | 1:50:11 | |
will be no part two of the inquiry,
the inquiry set up into press | 1:50:11 | 1:50:19 | |
standards and regulations after
phone tapping claims around the News | 1:50:19 | 1:50:23 | |
Of The World which lets -- which led
to it closing. | 1:50:23 | 1:50:31 | |
So many of you have got in contact
with us about dementia. | 1:50:31 | 1:50:40 | |
Lewis is in Edinburgh. | 1:50:43 | 1:50:51 | |
Hilary is in Northern Ireland. | 1:50:55 | 1:51:00 | |
My sister, she would be six years
older than me but she helped me | 1:51:00 | 1:51:08 | |
whenever my care -- whenever my kids
were young and it is something for | 1:51:08 | 1:51:13 | |
me to help her back. Caring for her
is difficult, whenever I see my | 1:51:13 | 1:51:20 | |
nephew straggling. The bureaucracy
of social services, the office of | 1:51:20 | 1:51:26 | |
care and protection for the
management of her finances, the | 1:51:26 | 1:51:28 | |
Housing Executive in relation to
having her home adapted to meet her | 1:51:28 | 1:51:33 | |
needs. I was a care manager in
dementia care, and I currently work | 1:51:33 | 1:51:41 | |
in mental health. The difficulty I
understand is that when somebody's | 1:51:41 | 1:51:48 | |
environment isn't working for them,
then the care becomes more difficult | 1:51:48 | 1:51:54 | |
and that is when they are drawn to
nursing care. | 1:51:54 | 1:52:01 | |
She is a health professional says
she knows about these areas and she | 1:52:01 | 1:52:05 | |
finds it hard to bring the different
parts of the service together to | 1:52:05 | 1:52:11 | |
help her sister with dementia.
How will it be for the rest of us? | 1:52:11 | 1:52:16 | |
That was my experience, a total
minefield. Before my dad was | 1:52:16 | 1:52:21 | |
diagnosed, we didn't want to believe
this could be the case. We were told | 1:52:21 | 1:52:28 | |
to get on with it, so to speak. We
had a lot of help when I got in | 1:52:28 | 1:52:34 | |
touch with Alzheimer's Scotland.
They gave us the next steps to do. | 1:52:34 | 1:52:41 | |
In terms of banks, financial
institutions, they... Changing power | 1:52:41 | 1:52:49 | |
of attorney was good for us but it
was slow. | 1:52:49 | 1:52:54 | |
Thank you, both. | 1:52:54 | 1:53:01 | |
The Met Office has upgraded
its weather warning | 1:53:01 | 1:53:03 | |
for south Wales and south-west
England to red, as freezing | 1:53:03 | 1:53:06 | |
temperatures and snow
affect much of the UK. | 1:53:06 | 1:53:08 | |
It means lives are at risk. | 1:53:08 | 1:53:11 | |
Another red warning is already
in place in central | 1:53:11 | 1:53:16 | |
Scotland where hundreds of people
have been spending the night trapped | 1:53:16 | 1:53:19 | |
on the M80 in central Scotland
because of the snow. | 1:53:19 | 1:53:21 | |
Police are appealing to people
to stay put until help arrives. | 1:53:21 | 1:53:24 | |
Hundreds of schools are expected
to be closed for a second day, | 1:53:24 | 1:53:27 | |
across many parts of the UK. | 1:53:27 | 1:53:29 | |
Local authorities have been
struggling to keep roads clear | 1:53:29 | 1:53:31 | |
and many rail services
have been disrupted. | 1:53:31 | 1:53:34 | |
But the snow is, of course,
providing some beautiful images. | 1:53:34 | 1:53:36 | |
Have a look here at how the London
skyline was transformed by snow. | 1:53:36 | 1:53:44 | |
Leslie in Glasgow said she feared
she would die in chaos on the M80. | 1:54:15 | 1:54:21 | |
And Brian in North Lanarkshire said
he ignored red warning because he | 1:54:21 | 1:54:27 | |
couldn't not attend to his patients.
And Polly is an employment lawyer | 1:54:27 | 1:54:33 | |
who can tell you what rights you
have if you cannot make it into | 1:54:33 | 1:54:36 | |
work.
The weather was horrendous, it got | 1:54:36 | 1:54:41 | |
worse and worse. 18 hours.
Who helped you in the end? The | 1:54:41 | 1:54:51 | |
emergency services arrived at 5am
this morning with a cereal bar and | 1:54:51 | 1:54:57 | |
some water. After that, I followed
the trucks so we could get through. | 1:54:57 | 1:55:08 | |
There were no snowploughs, nothing.
We are showing your video which you | 1:55:08 | 1:55:15 | |
took from your phone just outside
your car. That was at 5am this | 1:55:15 | 1:55:21 | |
morning.
You are all right now? I am fine, a | 1:55:21 | 1:55:27 | |
bit tied.
-- tired. Why did you think you are | 1:55:27 | 1:55:35 | |
going to die?
The first few hours it was fine. | 1:55:35 | 1:55:40 | |
There was an amber warning, we are
used to this type of weather. Then | 1:55:40 | 1:55:43 | |
all of a sudden, the roads were
jammed. When I got past the | 1:55:43 | 1:55:54 | |
junction, there were two police
people, lorries had jackknifed, a | 1:55:54 | 1:56:01 | |
policewoman said, you need to pass
this card, if you can manage, you | 1:56:01 | 1:56:04 | |
need to go. The K, so I was turning.
Stupidly, I went. There were no road | 1:56:04 | 1:56:15 | |
markings. I was the only person I
could see for two hours. On the | 1:56:15 | 1:56:25 | |
other side, northbound, there were
people that, I was screaming for | 1:56:25 | 1:56:28 | |
someone to help. Nobody could stop.
Then the northbound traffic | 1:56:28 | 1:56:36 | |
disappeared, that was closed. It
took maybe three hours. Then the | 1:56:36 | 1:56:43 | |
trucks arrived, they overtook me and
I was able to go behind. Then we | 1:56:43 | 1:56:49 | |
were parked there for the night. You
had to attend to your patients, tell | 1:56:49 | 1:56:56 | |
us why?
At the time I was leaving | 1:56:56 | 1:57:04 | |
At the time I was leaving for work,
but getting back was a nightmare. I | 1:57:05 | 1:57:08 | |
ended up getting trapped on the
motorway the eight or nine hours but | 1:57:08 | 1:57:15 | |
hats off to the people who came out
of their houses to help us. Making | 1:57:15 | 1:57:22 | |
sure people were OK. The van driver
behind me was asking if children | 1:57:22 | 1:57:26 | |
wanted to make use of his fan to
sleep. Polly, please can you answer | 1:57:26 | 1:57:38 | |
this, can employers, can employees
legally refuse to come to work in | 1:57:38 | 1:57:43 | |
weather like this?
Technically, employees have a duty | 1:57:43 | 1:57:49 | |
to try to get to work and if they
don't attend, technically that is an | 1:57:49 | 1:57:55 | |
unauthorised absence. However,
common sense often prevails in this | 1:57:55 | 1:58:03 | |
situation, we are dealing with
serious circumstances. Employers | 1:58:03 | 1:58:06 | |
ultimately have a duty of care to
their employees's health and safety. | 1:58:06 | 1:58:12 | |
If you don't go, will you be played
-- will you be paid? | 1:58:12 | 1:58:17 | |
No. Thank you or your company today. | 1:58:17 | 1:58:21 | |
On the programme tomorrow. | 1:58:21 | 1:58:22 | |
We'll look ahead to Theresa May's
big speech on Brexit. | 1:58:22 | 1:58:30 |