10/01/2017 BBC Wales Today


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Welcome to Wales Today. Our top stories:


A new treatment fund to get new drugs to patients more quickly.


Welcome news for people who've suffered delays in getting


It would enable me to get on with my life a bit easier


But there'll be disappointment for some patients still waiting


Swansea's billion pound tidal lagoon.


More than 20 companies urge the UK Government to give the go ahead.


Euro 2016 saw famous faces in the arrivals lounge -


Cardiff Airport lands a 16% increase in passengers.


In tonight's sport: Alex Thomson from Bangor in the toughest sporting


event in the world - sailing around the globe non-stop,


You certainly feel isolated when you are down here.


There is nobody to rescue you, nobody to help you,


The only things around you are birds and albatrosses.


And Diana and Pavarotti leant their support in the early days.


The founder of Ty Hafan children's hospice, Suzanne Goodall,


Patients in Wales will get access to new medicines more quickly


than any other part of the UK following the launch


That's according to the Health Secretary,


who's announced an extra ?16 million a year to help patients


access new medicines within two months of them


It follows concerns that health boards have been too slow


Here's our health correspondent Owain Clarke.


Even though he was diagnosed with multiple sclerosis 20 years ago,


Simon from Llantrisant has always tried to live life to the full. He's


travelled the world. I've sat with the mountain gorillas in Rwanda,


watched humpback whales of Alaska. But those experiences are now just


memories. It is a struggle to get showered, to get washed and changed


in the morning. Even a simple task like that just completely wipe you


out. But he thinks a drug which helps ease muscle spasms could help


him. It was recommended for use in the Welsh NHS to under half years


ago but Simon blames a row about who pays for it means his doctor has not


been able to prescribe it. It is extremely frustrating. I've actually


been off work for the last six weeks and the thought that this drug could


possibly help me with the spasms to the point where it would enable me


to get on with my life a bit easier. Hundreds of new drugs and treatments


are developed every year but the NHS can't afford to pay for them all so


it is the responsibility of two expert organisations to assess the


benefits and the cost. They are called the National Institute for


health and care excellence and the all Wales medicines strategy group.


If they say no, you either have to be a special case for treatment or


pay for it privately. But if they decided treatment is cost-effective,


it should be on the NHS as a matter of course. But that doesn't always


happen straightaway. There have been significant challenges by health


boards in terms of their planning. And there ability to Horizon scan


these medicines. I think today perhaps will remove some of the


obstacles to the challenges that the health boards found themselves


facing in terms of the financial challenges. The Welsh government


will give the NHS an extra ?60 million a year to start delivering


new medicines within two months while health boards plan how to pay


for them over the longer term. If you have a really high cost medicine


which is approved, you can then have a timeline with different health


boards being able to deliver that medicine. This will mean that there


will be a consistent delivery across the country. He also says the system


here can be used to treat all conditions and will be fairer than


in England and Scotland, where drugs funds are in place but for specific


conditions like cancer or rarer illnesses. So ground-breaking stuff?


Genuinely ground-breaking. Better than the system in England,


Scotland, more effective, and people will receive the proven medication


on a much quicker basis. But patients hoping this fund will play


for unapproved drugs that could help them will be disappointed. If we


simply decided that regardless of the price, anything will be


available, we would be very quickly in trouble with our inability to


control the drugs budget. But others insist they needs to be other


investment. It is that broader ongoing support that people will


need from their nurses, from their neurologist, from appointments.


Since April this year, 35 new treatments have been approved for


use in the Welsh NHS to help patients with conditions ranging


from arthritis to HIV. The pace at which new medicines are developed is


phenomenal. The problem is that the NHS at times has struggled to keep


up. We've reported many times of people


moving to England to get drugs that What's the impact of this


announcement on them? Many of those stories about patients


who wanted access to cancer medicines in particular in England


from the English Cancer Drugs Fund, that fund was set up initially as a


way for paying for often expensive drugs that had not been approved as


cost-effective. But the costs of that fund spiralled. It was changed


quite significantly. And now decisions about costs are central to


it. The Welsh government tell me if you just look at cancer medicines,


for example, if they now get funded through the revised English


mechanism, they will also come under the new wealth fund, so there will


be a greater degree of parity, although the Welsh government will


claim its fund is there as it will be able to pay for speedier access


to all kinds of medicines for all kinds of different conditions. But


there will be people listening and watching tonight thinking, I have


got an illness, I know there is a drug out there, it's very expensive,


it's not been approved as cost-effective, will this fund pay


for that? The simple answer is no. They have to make a request to


another mechanism. It has been criticised as unfair and a postcode


lottery. It is being reviewed and the outcome is expected soon.


First Minister Carwyn Jones says there is no Plan B if steelworkers


reject the current offer being made to them by Tata.


The deal includes new commitments for investment at Port Talbot


but would also result in cuts to the pension scheme.


Plaid Cymru says it's unacceptable and it should be


Let's talk to our political editor Nick Servini.


Just yesterday, the unions called for politicians to stay out of this.


No sign of that today. That's right, and everybody will be aware of the


uncertainty surrounding the steel industry in 2016. Tata have given


renewed commitments for ?1 billion worth of investments. But the sting


in the tail for the steel workers is that there will be cuts to the


pension schemes. They will be balloted on this later in the month.


Plaid Cymru have been very vocal on this. They say conditions for the


steel industry are much better now than they were, these terms are


unacceptable, they should be rejected by the staff. That has


prompted an indignant response from union officials with a very blunt


message, saying to politicians, keep your noses out of it, these are


tough personal decisions. What we saw today in the First Minister's


Questions of 2017, which Carwyn Jones, not entirely listening to


that advice, because while he didn't explicitly urge steelworkers to


support the deal, he did say there is no plan B, he did say this is the


only deal on the table, and he did say this is the best way of


preserving jobs in the sector. He made it abundantly clear that he


believes the best deal for the steelworkers is to support this. In


truth, it was probably unrealistic to expect the politicians to stay


out of this. In other words, steelworkers can expect plenty of


people to give them advice now on which way to vote in the weeks


ahead. Thank you. More than 20 industrial companies


have urged the UK Government to go ahead with the planned ?1.3 billion


Swansea Bay tidal lagoon. In a letter to the Financial Times,


they say it could start a new era An independent review


into the viability of generating electricity from tidal lagoons


will be published on Thursday. Here's our economics


correspondent Sarah Dickins. This is how Swansea Bay's tidal


lagoon might look when it's built. Using the tide, the energy of the


moon, to generate power for electricity. Tidal lagoon power


wants to build a six mile breakwater wall that will trap water. As the


tide falls, it will empty, powering a bank of 16 turbines. The plan is


to generate enough electricity to power 155,000 homes for the next 120


years. The price tag is ?1.3 billion and the company promises to spend


half of that in Wales. It also says they will be 2200 manufacturing and


construction jobs. The lagoon was given planning consent 18 months ago


but has been held up because of negotiations with the UK Government


about the price it will guarantee for the electricity that the lagoon


will feed into the National Grid. The Swansea Bay project will be the


first of its kind and if it gets the go-ahead, tidal lagoon power wants


to build another five lagoons at sites including Cardiff, Newport and


Colwyn Bay, which would create 35,000 jobs in Wales. But it is all


on hold while ministers wait to hear the results of the independent Henry


Review into the economic viability of tidal lagoon power.


And the conclusions of that independent review


It has been very detailed, it has been going on for months, and their


team have talked to people across Wales and the UK about the


implications of this new industry, not just for energy generation but


how much renewable energy, at what cost, what it means for jobs and


what it means for the environment. We'll get the recommendation of the


review on Thursday morning and I'm told we will also get a statement


from the UK Government. In other words, we will hear what will be


happening to the Swansea Bay tidal lagoon and we might well here what


would happen to the industry after that because we know that the


company behind Swansea wants a network of about six lagoons across


the UK as well as things they would be planning abroad. And support a


day from 20 companies, writing this letter to the Financial Times. How


significant is that? They are 20 industrialists employing more than


42,000 people. I think this really shows the level at which industry is


wanting to see this happen on many levels. Some will benefit directly


from that, of course, but they really feel this is an opportunity


for the UK. One of the companies is one I have spoken to before in


Pembrokeshire that has really suffered from the decline of oil and


sees this as an opportunity for a new industry. These businesses that


have been tendering for work and have been talking to Charles Hendry,


they stretch the breath of Wales, friend temperature to Chepstow, and


also in North Wales as well. We need to remember that it would still need


a Marine license and there are significant lobbies in the


environmental and the fish lobby who are not happy with the proposals.


Thank you. A community regeneration


charity in Aberavon has had its Welsh Government funding


suspended whilst police investigate allegations


of a misuse of public funds. NSA Afan, based in Sandfields


in Port Talbot, is being investigated by South Wales Police,


who have arrested and bailed a 35-year-old woman from the area


on suspicion of theft. Work begins this week on a pump


to protect hundreds of flood-hit In December 2013, around


400 people were forced to leave their homes when severe


storms breached sea defences. It's the third and final phase


of more than a million pounds of improvements by Denbighshire


Council. Two search and rescue helicopters


based in Caernarfon have been temporarily grounded. Because cars


are being forced to carry out urgent safety inspections on the tail


rotors after an accident involving a similar helicopter on a North Sea


oil rig last week. A new replacement terminal could be


built at Cardiff Airport The plan was announced as a rise


in passenger numbers Four years ago, amid falling


numbers, the airport was bought by the Welsh Government


for ?52 million. Our business correspondent Brian


Meechan is there for us tonight. There aren't that many people here


tonight, Jamie, so science perhaps that there is still room for


improvement. Small airports in recent years have really struggled


and we have seen some go to close down. Such as Blackpool and


Plymouth, where they have closed down commercial flights. Other


airports have really succeeded, such as Manchester and Edinburgh. The


question is whether the Welsh government intervention can turn


Cardiff from a struggling airport to a larger, more successful one. There


was more positive news today. Few passengers using Cardiff Airport


in 2016 received a welcome like the national football team


returning from the Euros but more and more travellers went


through its doors last year. Cardiff Airport has seen


an increase of 16% in passenger That means over 1.3 million


travellers in 2016. That had an impact of over


?100 million on the local economy. Those heading to sunnier shores


today say they have noticed improvements from the investment


at the airport but want to see more. I don't know how much


is here when you go through now. It has changed from three


or four years ago. It's starting to be


a lot more places to go. We had to go from Bristol other


years because there has not been any The current terminal is more than 45


years old and in reality it hasn't fundamentally changed much


from what it looks like today. The limitations of the current


building is one of the reasons the airport is planning to build


a new one in the next ten years. We have invested heavily,


we have significantly improved the experience and the facilities


here but there is a limit to what we can do so we have got


long-term ambitious plans for the business and really


to enable us to get to where we want to be,


a new replacement terminal will be a significant part of the master


plan as we go forward. The airport is paying


back loans at commercial rates on money borrowed


from the Welsh Government It has already started discussions


with state-owned investment funds and pension funds


to take a share in the business which would help fund


the new terminal. But what would a private


investor want to see? Private investors are going to want


to see that they are going to get a return on their investment


so it's imperative that airport operators are able to provide


evidence that there is not only a current customer base


but that this base is going to be sustained, that there is a real


will for the airlines to operate These are the sort of requirements


the operator will need to give Cardiff Airport has a target


of 2 million passengers a year It will have to constantly


improve what it's offering in order to achieve that,


given the range of other There has been a debate ultimately


about what should happen if the Welsh government ownership is able


to turn this around. I spoke to the economy secretary today, Ken Skates,


and he dismissed any idea of it being sold on to the private sector


completely, or even giving up 50-52 the private sector. He said it will


continue to be driven by the Welsh government, but he said he will be


happy to see investment coming in from the private sector, those


pension funds in particular, if that means being able to help with the


infrastructure and the facilities. Much more to come before


seven o'clock: Alex Thomson from Bangor


in the toughest sporting event in the world -


sailing around the globe non-stop And Diana and Pavarotti


leant their support. The founder of Ty Hafan children's


hospice, Suzanne Goodall, has died. If you have a minor injury that


needs medical attention and live in North Wales,


you can make use of a new mobile phone app that shows


waiting times at hospitals. Live Wait is designed to relieve


pressure on busy A departments and persuade people to use smaller


health centres instead. Originally designed for use


in hospitals in Staffordshire, the Live Wait app now includes


North Wales. Type in your postcode and it


will tell you how busy If your problem isn't too serious,


you could choose to use a quieter What we are trying to do


with technology is do whatever we can to inform the public


about all the services At the moment it could be that


people are unaware that their local hospital has been upskilled


with regards to nursing staff or facilities so if they had to come


here before they don't any more. Eleri Pugh has brought her mother


to Bangor's A department today. She thinks relieving


pressure on staff If they come to a big hospital


like this, perhaps they think they can see a minor injuries doctor


or they come to the major A and they don't know who to see


so they come here first. But the minor injuries


units, they are good. The app designers believe many


people are not aware that A is not Staff say that although Ysbyty


Gwynedd might be closer, 25 miles away at this minor injuries


unit, there is no wait. At this centre near Porthmadog,


staff can treat a range I think people see the emergency


departments as the next option They don't realise there


is a Community Hospital out there that can deal with a lot


of conditions so they need to be educated and it


will work well, I'm sure. The most serious life-threatening


problems will still get prioritised in busy departments but for everyone


else, the power to keep waiting times to a minimum


could be at your fingertips. Tonight's sport now.


Here's Tomos. It's the toughest sporting


event in the world - sailing around the globe non-stop


single-handed with no help. Alex Thomson from Bangor is doing


just that and is contention to win Tonight, after 65 days alone


on the ocean, he's in second place, More people have been in outer space


and up Mount Everest than have And in the vast oceans, a Welshman


is hoping to make history - become the first outside France


to win the Vendee Globe. You certainly feel isolated


when you are down here. There's nobody to rescue you,


nobody to help you, The only things around


you are birds and albatrosses. 29 boats set off from the north-west


of France on November the 6th. Those that do will have travelled


28,000 miles across the Atlantic, Indian and Pacific oceans,


before getting back to the Atlantic It's remarkable that Alex Thomson


is still in this race. Yesterday morning, I was dozing


and there was an almighty bang, While in the lead, he hit something


and the boat was badly damaged. Alex thought he would limp


home in tenth but he has clawed his way back,


100 miles behind the leader with less than 3,000 miles


to the finish line. Alex Thomson's boat is built


for speed, not for comfort. He doesn't have a toilet,


no kitchen either, It looks like something


you might give your baby. Alex needs to eat up


to 7,000 calories a day. He sleeps no more than


20 minutes at a time. The reason, when he's sleeping,


the boat goes more slowly. It's nine weeks since Alex last


saw his wife and two young children # Crashing through the waves,


in a 16 mono hull. # Not a soul in sight,


but the day is never dull.# There have been other


high points too. This was captured by one of Alex's


rivals off Cape Town. Alex Thomson says it has been


like a war on the water at times He's completed 90% of the race


and this week we'll see whether a sailor from Bangor


can overcome the odds and win the hardest sailing race


of them all. A date for your diary,


and Lee Selby will defend his world IBF featherweight title


for the third time against Jonathan Barros on January


the 28th in America. Selby, who's from Barry,


wants to emulate the likes of Lennox Lewis and Joe Calzaghe


and win in Las Vegas. After a 12 month absence,


Elfyn Evans from Dolgolleau will compete in all 13 rounds


of this year's World The first round gets underway


at Monte Carlo later this month. The woman who spearheaded a campaign


to open the first children's hospice Suzanne Goodall founded


Ty Hafan in 1999 - a centre which has supported


hundreds of families For the last 18 years,


Ty Hafan has been looking after life-limited children,


young people and their families, ensuring they make the most


of every precious moment. And it was all made possible by this


woman, Suzanne Goodall. After retiring as an occupational


therapist, she spent the next 11 years realising her vision to set


up a children's hospice for Wales. Princess Diana became Ty Hafan's


first patron and persuaded Pavarotti to give a concert to raise money


to build it in 1995. Thankfully, with all the wonderful


people who have helped us along the way and very excellent,


committed staff and all our friends, Today in the chapel at Ty Hafan,


a solitary candle was lit She will be remembered for her huge


compassion for families but very much making sure that children


and families have the service She's in the fabric of the building,


in everything we do. This really will be her legacy,


that she has supported paediatric palliative care and brought it


forward so much in Wales. There are butterflies


dotted around the hospice near Barry that she founded,


a metaphor of the short but beautiful life they manage


to create for the children here. Ty Hafan is now in talks


with the Royal College of Nursing in Wales


to create an annual award that would recognise


excellence in nurses working Suzanne Goodall, who's


died at the age of 95. Sue's got the forecast


tonight and talk of snow Our weather has been fairly quiet of


late but by the end of the week wintry weather on the way. It will


turn colder with the risk of rain, sleet and snow for some parts of


Wales. Tonight, some dry spells, the odd spot of patchy rain, mist and


fog pick-up overnight. Not too cold at 6-8 C. These are fairly frequent


-- friends and they clear. The winds turn more north-westerly. These


isobars are close together, signalling colder winds. Tomorrow, a


few early showers. They should clear. Turning dry and brighter but


the emphasis is on the wind. Very strong north-westerly. They could


reach gale force along the coast. Six Celsius in Gwyneth Glyn ten in


Cardiff. But the whinger will make it feel colder than that. Tomorrow


largely dry but as we get into the cold air, a chance any showers could


turn wintry, mainly over high ground, but temperatures starting to


drop. And then the pressure chart shows this frontal wave coming in


from the south-west on Thursday falling mainly as rain but where it


meets the cold air, snow is possible. But huge uncertainty about


the position of this system. So this is a snapshot for Thursday. Don't


take the graphics too literally. Some brighter spells but the


likelihood of showers for some and where the front meets the colder


air, a Met Office warning that any showers could be a wintry mix of


rain, sleet and snow. Very hard to pinpoint but it will be cold and


windy. For the end of the week, we keep those north-westerly winds. A


coming from Iceland. These friends bring an ongoing risk of wintry


showers. Also the risk of thunder. I'll have an update


for you here at 8pm and again after the BBC News


at 10pm. From all of us on the


programme, good evening.


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