26/01/2017 Look East


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26/01/2017

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Hello and welcome to the Look East late news.

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In the programme tonight: Living with ME - how research in Norwich

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could offer a real breakthrough and make the city an international

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It is very exciting, it is a hope that they could be a treatment for

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this devastating disorder. Voted through - the merger which has

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tonight created the biggest district And another cold night on the way

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but temperatures are on the rise. Join me later for all the details.

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Norwich is set to become an international centre of research

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Scientists here have told Look East today they are making real

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breakthroughs in finding a treatment for the condition, which is also

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It's thought 250,000 people across the country

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And the latest research is being crowd-funded by ME

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sufferers like Rosalind Amor from Bury St Edmunds.

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Arriving at Rosalind's home, the first thing you notice is the sign

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on the door. That is because Rosalind cannot tolerate too much

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noise or too much light. Rosalind was diagnosed with ME at the age of

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eight. She is now 25. Conversations have to be conducted in a whisper.

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It's awful ball boys feeling tired. And we cant heavy. Rosalind's health

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improved when she was 15. She could walk, stand and using a wheelchair

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outdoors, but four years ago, Rosalind had a relapse and today she

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cannot get out of bed, is fed by Chew and uses hand gestures to

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communicate. You must get down about how you feel. I don't want to spend

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my entire life in bed. Despite everything, Rosalind remains

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positive. She writes a blog for the invest in research charity and helps

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to raise money for them. Now that she can use an iPad and connect to

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the rest of the world again, immediately she is back in touch,

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part of the team and the fact she can contribute to the blog and

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writing is what she loves to do. I want to be a journalist. I've wanted

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to be a journalist since I was 17. Do you think that might come one

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day? Rosalind loves the outdoors, but has not been in the garden for

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years. She is following the developments in research closely but

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is also realistic about what the future might hold.

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In Norway they found that a drug normally used to treat cancer has

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And those scientists have been in Norwich today to talk

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about a trial of that same drug here.

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They've been working closely with those at

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Professor Simon Carding told me why what's been discovered

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I think it is very exciting because for the first time we have

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identified a possible treatment for this horrible disorder and it really

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highlights that there is probably something really fundamentally wrong

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with the immune system in these patients, which if that is held to

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be true, gives insight into potential therapies and

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interventions. What we are talking about is a cancer drug. That's

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right. It was by accident this drug was identified. A doctor was

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treating patients with lymphoma, some of which had ME, and he found

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that the symptoms of ME improved and that led to trolls to consolidate

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that finding. How does all this fit into what I know you have been

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focusing on and that is looking at the gut is the origin of this

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disease. It may be very difficult to appreciate, but the antibody therapy

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is targeted at removing cells in the body that produce antibodies. The

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trigger for producing these bad antibodies originate in the gut, so

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by eliminating the source you can provide an effective therapy. We are

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trying to identify what is the trigger. We would not be doing what

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we are doing today if it were not for the money offered by patients

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their selves so it is then that has allowed us to get to this point.

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Where do you go from here? We are interested in developing trials and

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we are looking at trying to replicate these really outstanding

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results that the Norwegians have here in this region with patients

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from the Norfolk and Suffolk region, so it is really exciting times for

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ME research and we are building Norwich as a centre of excellence

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for research. I know the last thing you want to do is offer falls hope,

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but how optimistic should patients with ME the feeling right now?

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Patients have a right to be optimistic. I have to be cautious

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but I am also optimistic. Next tonight, we now officially

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have the largest district council Waveney and Suffolk

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coastal agreed to merge. The new authority will be called

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East Suffolk Council. Our political correspondent

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Andrew Sinclair was at tonight's meeting in Melton near Woodbridge

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and we can join him now. They passed it by 33 votes to four.

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We don't think any council has voluntarily voted before to merge

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with another. Both authorities have been sharing staff and services for

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the last ten years so merging completely was the natural next

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step. And in merging they will save 1.3 million every year. It has taken

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a ten year partnership to convince both councils to merge and tonight

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's vote, the last in the process, was decisive. It means we will be

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better able to continue to deliver quality services in the future.

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Despite all the financial constraints local government has, we

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will be in a better place to deliver those services and that is what it

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is about. What does it mean for the residents? The councils say they

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would notice very little difference as both councils have been sharing

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services for many years. Just the name on the jackets will change.

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What would happen if you did not do this? We might have to look to cut

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services because of the finances that would not stack up, because as

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a wave Nice District Council we are struggling to set by Z is --

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budgets. I am of the opinion that the more local be better. Bad enough

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getting them to do something in this town let alone adding a few more. I

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think it is a good thing. The new council will stretch from Lowestoft

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to Felixstowe with two headquarters at Lowestoft and Melton. The council

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says there will be few job cuts but there will be up to 30 fewer

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councillors, something which worries opposition parties. If the

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councillors are reduced you will not have people who know what is going

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on in their communities so how can you represent people properly? This

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probably will not be the last merger. Other councils are thinking

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of following suit as the pressure of local government finance growth. The

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councils have voted and the plan goes to the Local Government

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Secretary for final approval. He will almost certainly say yes and

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when he does, or the final planning can take place and that the move

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Suffolk council will be up and running with elections in May 2000

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and 90. The Shadow Business Secretary

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and Norwich South MP has said he will not vote against triggering

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Article 50 next week. Clive Lewis represents

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a constituency which returned He's said today that

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he wants to take part but has not ruled out voting

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against the final deal That is what the Supreme Court

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decision is about, giving Parliament a say on that. I am going to do that

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in the interest of Norwich and when it comes to the final vote, I will

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make my decision based on what is in front of me.

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Coming up now, the weather with Alex, but from the rest

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Another very cold night across the region, some clear skies out there

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so temperatures below freezing. By the end of the night, cloud coming

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from the south so temperatures will recover but not before they get to

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lows of minus two Celsius. Milder air working its way towards us. It

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will still be a cold start to the day with a widespread frost and the

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chance of icy patches out there. As this feature moves northwards, we

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might get some light sleet or snow first thing. The middle part of the

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day looks dry and bright, still quite cold but with the evening,

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temperatures are expected to rise as we get more cloud and patchy rain

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coming in. The National weather is coming up but the outlook is it

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stays relatively mild for the weekend. Unsettled with some rain.

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Fairly windy, weekend. It's swings and

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roundabouts, higher temperatures but some rain as well.

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Good evening. It's been dry so far this January but as it draws to a

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close it looks like we will see some rain at last. It's been an

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interesting today a bitterly cold in Norfolk, way we kept the grey cloud

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all day and the grey cloud gave a dusting of snow in places. This is a

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lovely picture sent in from Sutton Coldfield. Rob Wales and much of

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Scotland it's been a beautiful day, lots of sunshine and temperatures,

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13 degrees compared with -2 under the cloud in East Anglia.

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