Hanes Heti, 5 oed, sydd wedi derbyn triniaeth arloesol i osod mewnblaniad ar ei ymenydd i'w galluogi i glywed. The first child in Wales to receive new pioneering surgery to allo...
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-Every day is different with Heti.
-She makes us smile.
-She can walk,
-she can laugh, she can cry.
-She's no different from anyone else.
-Some people still say, "Poor thing."
-But she's a real madam, just like
-any other five-year-old girl.
-There's no need
-for people to pity her at all.
-A Voice for Heti
-Ty Pica Farm, Horeb,
-..home to Heti and her family.
-At first glance,
-Heti is no different...
-..from any other
-But it became apparent early on...
-..that there was
-a problem with her hearing.
-We realized almost immediately.
-They carry out aural
-screening tests for every new-born.
-the first test at the hospital.
-They said, "Don't worry, we'll
-visit you at home in a fortnight.
-a build-up of mucous in her ears."
-They tested her
-when she was a fortnight old...
-..and she failed that test too.
-I started thinking,
-'What's going on here?'
-A week later...
-..it was confirmed
-that Heti was completely deaf.
-We were shocked and dismayed.
-It was something you couldn't
-do anything about at the time.
-You just had to accept it.
-No-one wants their children
-to have impairments...
-..especially when they're new-born.
-everyone wants a healthy baby...
-..with no health worries.
-We were shocked and disappointed
-and got really down at times.
-Heti? Where's Heti?
-It was hard to deal with
-because we knew nothing.
-We had to learn sign language.
-It was like
-learning a new language...
-..to a child that
-you yourself weren't familiar with.
-It was like learning French,
-so it was difficult.
-It was confirmed
-that the conventional treatment...
-..of a cochlear implant
-wasn't an option for Heti.
-We went to Cardiff...
-..where she had
-an MRI scan and a CT scan.
-The results came back
-and they found she had no nerves...
-..between her ears and brain,
-which is exceptionally rare.
-I remember how I felt.
-I'd hoped that the cochlear implants
-that it wasn't an option...
-..was worse for me...
-..than finding out initially
-that she was deaf.
-Heti? Do you want any bread?
-No. OK, nothing.
-Shortly after receiving the news...
-..Rhys and Elin found out
-about a new treatment called ABI...
-..or Auditory Brain Implant, a
-pioneering treatment in Manchester.
-It would involve inserting
-an implant into Heti's brain.
-A treatment, if successful...
-..would enable her
-to hear for the first time...
-..but one which could also be
-I didn't want it to begin with...
-..because it sounded too dangerous.
-But you were keen for us...
-..to find out more about it
-before making a decision.
-So that's what we did.
-I always think that if you
-don't try, then you'll never know.
-There was a 50/50 chance -
-it was a dangerous operation.
-But you try to do the best
-for your child.
-We went through
-two or three horrible days...
-..because all we did was watch
-her sleep until she came round.
-She didn't look well.
-a seven or eight-hour operation.
-The day of the operation
-It's not a nice experience
-took about six or seven hours.
-I remember seeing the surgeons come
-into the high-dependency unit...
-..where we were staying,
-and seeing their faces.
-They were smiling and I thought,
-'Thanks goodness, everything's OK.'
-I get very emotional about it.
-It was a major operation
-for someone so small.
-Yes, she was so small...
-..and you were
-putting her life in their hands.
-But we had faith
-in the surgeon, didn't we?
-He was confident.
-Heti is the first child in Wales...
-..to receive this special implant...
-..and one in only a handful
-of children in Britain.
-There's a magnet in here.
-It attaches to the side of her head.
-Within it is a disc...
-..very similar to this...
-..and a much smaller lead than this.
-On top of that
-is a small electrode...
-..that's been placed
-on Heti's brainstem.
-I usually put the lead on first.
-This dot here
-connects with this dot here...
-..in case someone forgets
-how it's attached.
-In the beginning,
-I used to take ages doing this...
-..but now it's become part of
-getting dressed in the morning.
-This goes up here, doesn't it, Heti?
-This goes on her head like that.
-This part is just something
-to help it stay on her ear.
-We also put sticky double-sided tape
-on the back...
-..and then that goes...
-Put it on!
-You're being cheeky! Typical!
-Come on, put it on.
-That's supposed to go
-on the side of her head.
-It astounds me...
-..when I get reports
-back from school...
-..saying what she's done or said.
-Every day is different with Heti.
-She makes us smile, don't you, Hets?
-The operation was a major success...
-..and Heti was able to hear.
-Her communication skills
-needed to be developed...
-Where's your coat?
-Look, it's Michael. Hello.
-She's been in school
-for a year and a half.
-She started sooner than expected...
-there was room at the unit.
-She's very happy there. It's
-made a world of difference to her.
-Come on then. Quick, Dadi!
-Heti travels to Parcyrhun
-Primary School in Ammanford....
-a special unit for deaf children.
-Off you go, Heti. Let's see
-what number Heti's going to choose.
-Which one, I wonder?
-Heti's fully at home here...
-..and her speech
-is developing well...
-..which is a comfort
-to Elin and Rhys.
-Come and stand here.
-Why are you feeling like a number
-10? You're obviously very happy.
-Because it was your birthday.
-How old are you? How old?
-Five. Good girl. OK.
-She's no different to us.
-She can hear and she only hears what
-she wants to hear sometimes too!
-If she doesn't want to hear...
-..she pulls the magnet off herself.
-She'll clip it back on sometimes...
-..but she uses it
-to her advantage, to be honest.
-She does what she wants with it.
-Before she had it, she could've
-stood next to a jumbo jet...
-..and she wouldn't
-have heard a thing.
-Without her implant,
-she hears nothing.
-When she's wearing the device,
-she hears 30 decibels...
-..which is staggering.
-It's like loud whispering -
-that's how they describe it.
-She can hear the required amount
-of decibels to hear speech.
-Duck. Duck. Good girl.
-She has the ability
-to develop her speech.
-That's incredible because
-when she first had the implant...
-..the doctor said,
-"What are your expectations?"
-We said we wanted her
-to hear environmental noise.
-He said, "You've got the right
-attitude because I can't promise...
-"..that she'll hear
-anything more than that."
-She passed that stage a while ago.
-Anything she hears on top of that
-is a bonus, really.
-Heti's the first child
-that we know of in Wales...
-..to have this hearing device.
-a learning curve for us all.
-She's surpassed our expectations
-with environmental sounds.
-I think she's got places to go.
-We've reached one milestone,
-we'll go to the next one.
-We're always looking how to move on.
-What any child needs in the base,
-that child will have.
-Heti is special,
-as they all are here.
-They all have
-their tailor-made curriculum...
-..to whatever they need,
-as you can see.
-Shall we do it again or not?
-Shall we do it again or not?
-Do you want to do something
-different? What do you want to do?
-Would you like to get a book?
-Go and get a book. Go and get one.
-Delyth Evans is
-a peripatetic teacher of the deaf.
-She has also been supportive
-to Heti and her family...
-..and was present
-in the early sessions...
-..to assess how much Heti
-could hear with the implant.
-The therapist told Elin,
-"We're going to turn it on...
-"..to see if Heti responds."
-I remember looking at the audiology
-man, thinking, 'Will it work?'
-We tried it and waited.
-He turned it on
-and the first thing Heti did...
-..was turn to look
-where the sound was coming from.
-It was a wailing siren
-and she turned towards it.
-It was lovely to see because
-it had never happened before.
-It was lovely to see, I have to say.
-It was an unforgettable day
-in my career.
-Delyth, the teacher of the deaf...
-..took me to the unit
-at Ysgol Parcyrhun...
-was only a couple of months old.
-a world of difference to me...
-..to see deaf children
-..like every other child.
-another there like Heti...
-..who had no nerves
-between her ears and brain.
-Just seeing her
-being completely normal...
-..was of great comfort to me.
-Three years ago, Heti
-underwent revolutionary surgery...
-an implant in her brain...
-..to enable her
-to hear for the first time.
-It was a difficult decision
-for her parents.
-It was a big decision to make.
-might question our decision...
-..and wonder why we didn't let Heti
-decide for herself when she's older.
-But it would've been
-too late by then.
-The doctor in Manchester...
-..said she was
-an ideal candidate to have it...
-..because she had no other problems,
-no special educational needs.
-To get the best out of the implant,
-she needed it before she was two.
-Heti now had partial hearing.
-A remarkable fact for a child
-who was born completely deaf.
-The next challenge
-was to develop her speech skills...
-..at a specialist centre
-We come here once every fortnight.
-We've been coming here regularly
-for just over a year.
-It's made such a difference...
-..to the way
-Heti listens and hears...
-..and makes sense of the sounds
-she can hear with the implant.
-It's been incredible.
-It's been incredible.
-Shall we get a book about a shark?
-It's a journey of
-almost four hours by car one way...
-..that we make every fortnight.
-It means taking a day off work
-for Rhys or myself.
-My mother or Rhys' mother comes to
-keep Heti company in the back seat.
-It takes a lot of effort...
-the financial cost, of course.
-Do you want Mami to do it?
-Rub, rub. Are you rubbing it?
-specialist speech therapy...
-..to the children at this unit...
-..which is a new approach
-to teaching children...
-..instead of the usual
-speech therapy given at home.
-They use specific techniques...
-..to get the child to listen
-and use the hearing they have...
-and do all kinds of things...
-..without having to sign.
-..and the fish,
-and they all say, "No, no, no."
-No, no, no, no.
-"We don't want to play.
-"You're too scary."
-But, Heti, look. What's that?
-Over 90% of children born deaf
-have hearing parents.
-What we need to do is furnish
-parents with all the information...
-..about possible different
-..and to also furnish them
-with the outcomes.
-I got it out.
-The first job we have to do
-is engage Heti's listening.
-So we have to motivate her...
-..to find something interesting
-in the sound...
-..that she's perceiving
-through her technology.
-Mam-gu has got no play dough.
-We want some play dough, Sarah.
-Hold out your hand, Mam-gu.
-Can we have some play dough, please?
-but that's quite a long sentence!
-Just hold out your hand
-and say play dough.
-Play dough, please.
-Play dough, please.
-You're so polite.
-No please and thank-yous
-in here, Mam!
-The reason is because Heti
-is at that stage of listening...
-..where the end of the sentence...
-..is going to be
-the thing she listens to best.
-So if you say, "Play dough, please,"
-she'll listen to the please.
-If you hold your hand
-and give the label...
-tells me you want it...
-..your mouth tells me the thing.
-Because so few children
-have the same implant as Heti...
-..it was difficult to know whether
-she'd pick up a second language.
-The school is English-speaking
-as well as this centre...
-..so we decided that we
-would speak more English to her.
-It was a tough decision to take...
-a Welsh-speaking family...
-..and I work
-through the medium of Welsh.
-It was a difficult decision...
-..but everyone understands
-it's for Heti's benefit.
-Hopefully she'll be able to pick up
-a second language. We don't know.
-Push it down. Push it down.
-The likely outcome for Heti is that
-her auditory brainstem implant...
-..is going to be
-an aid to her lip reading...
-..and her understanding of
-spoken speech through visual cues...
-some signed language as well.
-So it's a boost to her,
-to her understanding.
-I love working with Heti.
-She's an amazing little girl.
-She has great communicative ability,
-in any case...
-..and she's a great little thinker.
-Seeing Heti before this
-and how she is now...
-..goes to show that it's worth it.
-She's become a lot more vocal.
-She hears a lot more.
-She understands me telling her,
-She fetches the dolly and
-fetches her shoes if you ask her.
-She brushes her teeth
-and little things like that.
-she says Mami, Dadi, Gruff.
-She's starting to say
-simple little things too.
-Before this, she didn't say a word.
-she'll improve even more.
-It's definitely worth it,
-without a doubt.
-Despite the benefits
-of the therapy for Heti...
-..sessions are costly.
-Over the past year,
-Elin and Rhys' family and friends...
-..have come together to raise funds.
-It all started a year ago...
-..when my brother-in-law
-ran the Snowdonia Marathon...
-..and raised money for Heti.
-He raised 4,000,
-which was astounding.
-have happened since then.
-We held an auction and lots of local
-organisations have donated money.
-It means a lot to us as a family
-that people think so much of Heti.
-I have to say, she's very lucky.
-Come on, Rach! Well done!
-It's this noisy environment which
-continues to pose problems for Heti.
-She's not too keen.
-She's flicked the device off now.
-There's too much noise here for her.
-She doesn't like being
-in a noisy environment like this...
-..with lots of shouting
-and different sounds.
-But in the silence
-at home and at school...
-..she enjoys the fact that she
-can hear and makes the most of it.
-We're pleased she's had the implant.
-It was good.
-Was it good? How on earth
-did you get up that wall?
-Hiya, Heti. Are you OK?
-Hiya, Heti. Are you OK?
-She'll be doing it with us
-once she's old enough!
-Elin and Rhys have given
-their daughter Heti a chance...
-..to hear the world around her...
-..and they're also determined
-that she will lead a normal life.
-much older than she is now...
-..she'll be able to speak better.
-And understand things.
-That's what's important.
-She needs to mix with children.
-Though she's at Parcyrhun
-and we're in Carmarthen...
-..lots of her friends are up there.
-She's no different
-from anyone else now.
-She has her own personality
-and I wouldn't change her...
-..because that's the way she is.
-That's the personality
-we're used to.
-I wouldn't change her for the world.
-She's a unique character.
-She's very determined...
-..and I think that's a good thing...
-she's going to encounter problems.
-The fact she's determined will stand
-her in good stead for the future.
-But she's also very sweet.
-She's a real character.
-Seeing her and Gruff together
-is great. We're very lucky.
-about organizations and resources...
-..that advise and offer assistance
-to the deaf and hard of hearing...
-..visit our website -
-S4C Subtitles by Adnod Cyf.
Hanes Heti, 5 oed, sydd wedi derbyn triniaeth arloesol i osod mewnblaniad ar ei ymenydd i'w galluogi i glywed. The first child in Wales to receive new pioneering surgery to allow her to hear