Star's Incredible Journey My Life


Star's Incredible Journey

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That's me, Tiana, with my big sister, Star.

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We've both got a rare condition called Osteogenesis Imperfecta,

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which we call Brittle Bones. This means we have to be

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really careful what we do, as our bones can break very easily.

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I've broken 37 times, but including my spine fractures, 45 times.

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Star has bow legs and she finds it hard to walk long distances

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and to climb stairs.

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To help her she wears her splints most of the time,

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and if she gets really tired, Star uses her wheelchair.

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This summer, my sister is facing a big, big challenge.

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Star is going on her first school trip ever, to Paris.

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She'll be away from us for the first time.

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Even though she's never walked more than two flights of stairs before,

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she will try to walk up over 700 steps to the top of the Eiffel Tower.

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I'm right underneath, it's massive and I'm feeling quite nervous.

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This is Star's Incredible Journey.

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My name is Star.

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I'm her sister, Tiana.

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BOTH: And we're from Manchester!

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When I was one, I leant over to reach for a toy and I broke my arm,

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and the next day I did the same thing, and I broke my other arm.

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Once I just banged my arm onto my knee

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and it snapped, just like that.

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When I was really young, I stood up and both my legs broke.

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I was walking out the bathroom, I twisted my ankle and it just broke.

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I slipped on some water, and I broke my femur, which is in my thigh,

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and I looked like a frog because I had a green cast on.

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Brittle Bones is a genetic condition.

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Genetic means that you are born with it

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and you can't catch it off someone like a disease,

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and if you go near someone with Brittle Bones,

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you won't get Brittle Bones yourself.

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Brittle Bones means our bones are weaker

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and not as strong as someone without Brittle Bones.

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They would have broken one or two bones in their entire life

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but I've broken nine bones and Star has broken 37 bones.

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Me, my little sister Tiana, and my mum have brittle bones.

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But my older sister, Jasmine, and my dad doesn't have it.

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There are about 800 children in the UK who have Brittle Bones like us,

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and because we've both got it, we understand each other really well.

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Tiana is talkative. She loves singing and dancing.

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Sometimes she can get a bit annoying, like other sisters can.

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Budge it, budge it.

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You don't put it back in, Tiana, don't cheat.

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Sometimes we get on with each other.

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Because we break really easily, there are things Star and I

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would love to do, but we just can't.

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I can't do contact sport.

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I can't do trampolining, bouncy castles.

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I can't go in big crowds, in case I get knocked.

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I can't go roller-skating.

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My legs usually ache if I do a bit of walking.

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Even with all of this,

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my big sister, Star, is going to be taking on a massive challenge.

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She's off on a school trip to Paris.

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It's my first time being away from home,

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it's my first time to be in Paris.

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And she is going to try to climb to the top of the Eiffel Tower.

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But she might not make it.

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I wanted to do some fund-raising for the Brittle Bones Society,

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and I thought that being sponsored to walk up the Eiffel Tower

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would be one of the best ideas.

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The tower is really big - it's over 324 metres tall

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and Star will have to use the stairs inside the legs of the tower

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to climb all the way up.

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That's 704 steps, 684 more than she's ever managed.

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I don't do that much walking,

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and I've never climbed that amount of steps before.

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I don't think I'll get all the way to the top of the Eiffel Tower, but I'll try.

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If she gets tired out, she'll have to go all way back down

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to the bottom of the steps, so I'm quite worried for her.

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Star read somewhere that it was 600 steps to the top of the Tower.

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'And even though she's only ever walked two flights of stairs..' Ready, go.

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'..we decide to work out how long it would take her to get to the top.'

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..eight, nine, ten, 11, 12, 13. 13 steps!

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600 divided by 13.

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46 times!

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You've got to walk up and down the stairs 46 times.

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STAR LAUGHS

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Go on!

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-Hurry up!

-One, two, three, four, five, six, seven, eight,

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nine, ten,

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11, 12, 13... Phew!

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It'll take you ten hours to climb up the Eiffel Tower!

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Star likes to help other people.

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That's why she's doing this

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and I want to help her raise as much money as possible.

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I'm going to be getting sponsors from the teachers in my school

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and other people.

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My target is £894, because I think that's how high

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the Eiffel Tower is in feet.

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I'll sponsor Star at least one or two pounds

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because I'm trying to save up my money.

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So that's two pounds from ME,

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but Star will need to go flat out at school tomorrow to get her friends to sponsor her.

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It's eight o'clock and it's time for Star to go to school.

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She usually wears her splints to get around.

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They're like plastic legs.

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They go in your shoes and they go up the back of your leg.

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When I first got my splints,

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I didn't want anyone to know about them, so I wore pants for school so I could hide them.

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Now, nine months later, I think I've told most people.

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Most of them have guessed now

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and they're not bothered, so I feel less embarrassed wearing them now.

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'Because of her brittle bones, Star doesn't walk to school with her friends.

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'She goes a taxi on her own.'

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Star always arrives early

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so the other students don't bump into her and break her bones.

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This would be a disaster,

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so she is always helped by her friend Megan

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and Learning Support Assistant Mrs Taylor.

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What's your first lesson today, madam?

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'Miss Taylor is a teaching assistant.

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'She takes care of me during the school day.

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'We get along really well. She's, like, the best teacher.'

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-So how much are you hoping to raise for your sponsor form?

-£984.

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-Very good, are you on target for getting that money?

-I don't know.

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Star can't play in the playground or walk around the corridors

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with other students, either, so she has to wait until everything is quiet.

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What have you got now?

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-French.

-Come on, then.

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Miss Taylor takes me to my lessons

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so I'm not in a rush, so I'm in the classroom before the bell goes.

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BELL RINGS

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Star is having her last French lesson before her trip to Paris.

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OK, year eights, you're going to start having your French conversation

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so that you're ready for when we go to Paris to make sure

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you can talk French all the time we're there.

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Star, what was it you wanted to know?

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We need to know what "to walk up 600 steps" is.

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OK, what's "to do"?

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-Fais...

-"Faire", well done,

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"Je voudrais faire". "Fais" is I do.

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"Je voudrais faire" - I would like to do - "600 steps"?

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CHILDREN: Je voudrais faire...

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-Six...

-Six...cent...

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-..cent...

-..marches.

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-I don't think we would LIKE to!

-STAR LAUGHS: We'll rephrase that!

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Shall we tell Star she's crazy? Tu es folle!

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Great, girls.

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I leave lessons five minutes before the bell

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so I don't get involved in the big rush.

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BELL RINGS

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At break and dinner, I stay in one room. When it's summer,

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and I'm inside school, it sometimes annoys me

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because I want to be outside with everyone else.

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If I was outside, I could get bumps, which could lead to breaking.

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'Star's friends Megan and Shania are helping round up some classmates

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'to complete her sponsorship form.'

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I think she's gone past...

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'As it's too risky for Star to go outside,

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they're bringing friends to her.'

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-Can I sponsor you £5, please?

-Yeah.

-I'll sponsor you £3.

-Thank you!

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What are you raising money for, Star?

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-The Brittle Bones Society.

-You all right?

-Hiya!

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Thank you.

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Thank you.

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-Thank you. Thank you.

-See ya.

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Thank you. Thank you.

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..30, 40, 50, 60, 70...

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Does that say 70 or 10?

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10. 'It went really well because from today,

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'I've got over £200'

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thanks to everyone in my class.

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£263.20.

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That's really good.

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Star has to spend lots of time away from the rest of her friends,

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which is sometimes lonely for her,

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but Mrs Taylor is always there to help out.

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I get support in technology,

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because if it's wood, it means sawing wood. I can't do that

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because my arms ache. And then cooking, if I'm making something,

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they ache quite a lot.

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In netball, I stay in one part of the court,

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and I can play and get involved, but I don't go near the others.

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But my sister still needs to raise money

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and she'll take any opportunity to reach her sponsorship target.

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-You want sponsorship? What for?

-Walking up the Eiffel Tower.

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Walking up the Eiffel Tower? Definitely?

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You're not going to catch the lift all the way up? You sure?

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If my wife sponsors you £10, Miss Barrett has to sponsor you £20!

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She earns more than me, we can change it!

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'With all this sponsorship, Star better make sure she makes it to the top!'

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-Good luck.

-Thank you very much. Well done.

-Thank you.

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Every three months,

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Star and I have two days off school, which sounds great, but it's not.

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We have to go to hospital for medicine that strengthens our bones.

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We'd break even more if we didn't do this.

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-What bed are we in?

-11 and 12, down at the bottom as usual.

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I know when I'm due to come in to hospital because my legs and back start aching.

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The worst part of the treatment is having my cannula because it hurts,

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but I've got used to it now cos I've been coming so long.

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'A cannula is a small tube that is put into our hand using a needle

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'and it gives us our medicine.

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'I hate having mine fitted!'

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Star's first!

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I don't want to do it first. Her, please!

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Come on, Star, let's get you sorted. Jump on here.

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'I've been going to Sheffield Children's Hospital since I was two

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'but I still get scared about having my needle.'

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Brave, you, aren't you?

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All done.

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There we go. Perfect.

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'Tiana gets really scared about having her needle,

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'so I have to comfort her while she gets her needle, cos she gets stressed.'

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Let's have your hand.

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Good girl.

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Very brave, weren't she, Star?

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-You making sure I do it correctly?

-Yep.

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Actually, I don't like looking away.

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Shall we tape it up?

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At last, it's over, and we can go back to our beds.

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We're hooked up to our medicine for four hours,

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and all me and my sister can do is wait...

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..and wait...and wait.

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'At night, I don't get much sleep.

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'It's not very comfortable

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'when I'm meant to sleep at night, and I've got to find a new position to sleep in.'

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'Even though the treatment strengthens our bones and helps with pain,

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'I still really don't know if Star will be strong enough to climb the Eiffel Tower.

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'It's two days until the climb

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'and we're off to another hospital to see more specialists, Angela and John.

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'They're going to check if my sister's legs are strong enough to carry out her challenge.'

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What training have you been doing?

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Have you been doing all your physio exercises?

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-Mm-hmm.

-Yeah? She's a liar!

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-Have you been going up and down the stairs?

-No.

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So can we just check your splints, is that all right, if we do that first? They're very worn.

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-I think these had better be padded before this special trip, don't you?

-Yeah.

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'John is adjusting Star's splints

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'to help her have the best chance of finishing the climb.'

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All right, shall we have a look at your walking there?

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Well done, and back.

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-OK.

-That is good, that.

-Just come and stand in front of me.

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-So you can see why we still need the splints.

-Yeah.

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Because they support her foot there.

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'The splints help to reduce the pain when Star walks

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'and that's going to be really important.'

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..Walking with your padded splints on then? Much better.

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-They do look better, don't they?

-Yeah. John's done a good enough job to get you to the top.

-Hopefully!

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'In just two days' time we'll see if they'll be up to the job.'

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-No problem, see you later, Star.

-See you later.

-See you.

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'Because of her splints Star can't wear the clothes she wants to

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'and she finds it annoying.'

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'If I have to wear my splints, I can't wear certain pants or jeans

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'and I can't wear'

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my favourite shoes because my splints won't fit in them.

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'But Mum has got a solution - new shoes!'

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Put that over your foot and then start lacing them back up

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and then you can be trendy and fold them over.

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-They'll make my feet look massive.

-They won't.

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My mum didn't want me to go. She's really worried about it.

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I think she's just nervous about if I break over there

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and what she'd have to do.

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I am worried that she will fracture and it might ruin the trip.

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I'm worried about her getting tired, but she's just determined.

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'I'm excited about being away from home for the first time.'

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I can show my mum how independent I can be.

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Right, ice packs. If your ankle or anything gets swollen,

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or your knees, then I've got you some support bandages.

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I know I'm being mad but you've just got to be careful.

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Ankle support, knee support, ice box... She's being VERY careful!

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I got you plasters in case your shoes are rubbing.

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You don't have to take all of them.

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-SHE LAUGHS

-Why are you laughing?

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You're taking the mickey out of me now! They might come in useful.

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'I think my mum's nervous'

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and worried and scared about me going away because it's my first time away from her.

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My first time away from home.

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She'll probably cry!

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'In just 12 hours, my sister will be off to France

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'and we still haven't raised enough money.'

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Who's sponsored today at school, Tiana?

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One teacher sponsored me five and then another sponsored £10.

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'We've got a target of £984 to raise but we'll only get all the money

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'if Star makes it to the top of the tower.'

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649, and what is 984 take 649?

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-Got to do your maths.

-335.

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SHE EXHALES

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Can we do it?

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Can you do it?

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'As Star is off to Paris in the morning,

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'it's up to Mum and me to round up the sponsors to hit our final target.'

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'It's seven o'clock and this is it.

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'Star's first school trip ever is about to begin.'

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I want you to text me

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when you get to your ferry, text me when you get to France.

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You're climbing the Eiffel Tower tomorrow.

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-Do you know how big it is?

-Massive.

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-This suitcase does my head in.

-I can't drag it cos then it'll fall.

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Mmm...

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So she's got bandages and she's got plasters, about 500.

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-Don't worry about it.

-That's why her case is that big.

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She's got a chemist in there!

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And she's off.

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It's a really long way to Paris - about 500 miles -

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and it's going to take them the whole day to get there.

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The coach takes seven hours to get to Dover

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and then they're catching the ferry to cross the Channel to France.

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Oh my gosh, big boat.

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It's the first time Star has been on a ferry

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and she needs to take care she doesn't slip and break a bone.

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-It's gorgeous.

-There's a boat over there. I didn't even notice!

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Then there's two over there and one over there. Two, one and one.

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An hour and a half later, Star arrives in France.

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She's still got seven hours before she gets to the hotel in Paris.

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-There's mine! I'm tired.

-I just want my bed.

-Can I have the key, then?

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We set off at seven and we've been travelling for 15 hours

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and we've only just got to the hotel.

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I'm climbing the Eiffel Tower tomorrow

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and I'm feeling a bit nervous.

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I'm going to try my best to get the top.

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It's the big day.

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Mum and I are back at home waiting for Star and Shania to call -

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we've got some exciting news for them.

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-Hia. You all right?

-BOTH: Yeah.

-Star has raised over £140 at school.

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You've got about £850 at the moment.

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-That's well good!

-I know.

-When you get back, you should thank

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all the teachers at our school.

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-I'll go to your school.

-Bonne chance.

0:18:510:18:54

That's "good luck" in French, we've been learning! Good luck, Star.

0:18:540:18:59

-Be careful.

-See ya.

0:18:590:19:01

Star has to make sure her splints are on properly

0:19:010:19:05

if she's going to get through the biggest day of her life.

0:19:050:19:09

I think there's a chance that I'll get all the way to the top.

0:19:090:19:12

-Ready to go?

-Yeah.

0:19:120:19:14

There are so many things to see in Paris, but Star'd better be careful

0:19:170:19:21

she doesn't tire herself out,

0:19:210:19:23

or she won't be able to achieve her challenge.

0:19:230:19:26

I'm making of scrapbook of Paris.

0:19:260:19:29

Star and her friends are also taking a boat trip along the River Seine,

0:19:290:19:33

where they get their first glimpse of the enormous Eiffel Tower.

0:19:330:19:37

-Oh my gosh, it's big!

-I know.

0:19:410:19:44

-We still walking up it?

-Think you can do it?

0:19:470:19:51

I don't know, but I'm going to try and go all the way to the top.

0:19:510:19:54

-I'm a bit scared. What about you, are you still excited?

-Yeah!

0:19:540:19:58

I'm ready.

0:19:580:20:00

-Bonjour!

-'With the climb less than an hour away,

0:20:020:20:06

'will Star be fit enough to take it on?'

0:20:060:20:09

-I need a quick sleep before I walk up the Eiffel Tower.

-No, you don't.

0:20:150:20:19

Star uses her wheelchair if she's really tired, so things must be bad.

0:20:190:20:24

I use my wheelchair if I'm going on a long trip where it includes

0:20:240:20:28

a lot of walking, but I really don't like using it

0:20:280:20:31

because I feel embarrassed, because people stare at me when I'm in it.

0:20:310:20:35

Star sees the Eiffel Tower close-up for the first time

0:20:350:20:38

and she and the others who are climbing with her - Shania, Lucy

0:20:380:20:41

and Mrs Taylor realise what they have let themselves in for.

0:20:410:20:46

-Oh!

-Oh my gosh!

-Is it as big as what you thought it was?

-A lot bigger.

0:20:460:20:51

I'm right underneath - it's massive and I'm feeling quite nervous.

0:20:510:20:56

I think I'll achieve the first level,

0:20:560:20:58

-but it's well bigger than I thought it'd be.

-It's going to be tiring.

0:20:580:21:02

I get out of breath really quickly.

0:21:020:21:03

Star's first challenge is the climb up to level one. That's 347 steps!

0:21:030:21:10

Then, if she's not too tired,

0:21:100:21:13

it's another 357 steps to the final level two.

0:21:130:21:18

I'm scared.

0:21:180:21:20

Miss, look at that! Oh, my gosh!

0:21:200:21:22

The rest of Star's class is taking a much quicker route - the lift.

0:21:220:21:26

That will get them to the top in minutes.

0:21:260:21:29

-Star's brave, taking the stairs.

-I wouldn't like to go up the steps -

0:21:290:21:32

I'd be too tired, but I think Star'll be able to do it.

0:21:320:21:36

-It looks like it's going to be a VERY long climb.

-Right, here we go.

0:21:360:21:40

-I'm tired already!

-Don't say that!

0:21:420:21:44

Star sets off climbing the stairs really fast

0:21:440:21:48

and Mrs Taylor is worried.

0:21:480:21:51

-Just go slow.

-I don't like this. How many have I done?

-Going past 40 now.

0:21:510:21:57

What have we got to now? 100!

0:22:010:22:02

She's going so quickly, she's already halfway to the first stage.

0:22:020:22:07

-140.

-How are you feeling?

-A bit nervous.

0:22:070:22:12

I've just done 140 steps. I'm a bit tired, but I'm OK.

0:22:130:22:17

-How many have we done now?

-170.

-170!

-Whoo! Oh, my gosh. 230.

-Wow.

0:22:170:22:24

Wow. 250, I think.

0:22:240:22:29

That is scary. Oh, my gosh - there's no banister!

0:22:290:22:32

-There we go!

-320. First floor! Whoo!

0:22:320:22:35

-Right, can we do the second one?

-Star's made it to the first level -

0:22:370:22:40

that's more steps than she's ever climbed before!

0:22:400:22:43

I really didn't think she'd make it this far!

0:22:430:22:46

-Is it as good as what you thought it'd be up here?

-Better!

0:22:460:22:49

I want to do the second now.

0:22:490:22:52

But she's actually only halfway there

0:22:520:22:54

if she wants to hit her goal of reaching the top.

0:22:540:22:59

At home, Mum and I are waiting for the call from the top

0:22:590:23:01

of the Eiffel Tower IF Star makes it.

0:23:010:23:04

-How do you think she's doing?

-I think she's doing well.

0:23:040:23:07

-Do you think she's aching yet?

-Yep.

-Do you think she's in pain?

-Yeah.

0:23:070:23:12

-Do you?

-Kind of.

-I think she'll be OK.

-I feel a bit nervous sick.

0:23:120:23:17

-Do you? I do. I've got butterflies.

-Can I go to the loo?

-No!

0:23:170:23:21

Star's slowed right down and it looks as if

0:23:240:23:26

she's going to struggle to get much further.

0:23:260:23:30

-Her classmates are already on their way down.

-Just keep going.

0:23:300:23:34

-You'll be fine.

-Keep going.

-Well done, star - you can do it.

0:23:340:23:38

Keep going, you're doing great.

0:23:380:23:41

I think she'll do it - she's got enough bravery.

0:23:410:23:44

We've sponsored her, so I'm sure she will.

0:23:440:23:47

It is quite hard, cos we've just walked down from the second floor.

0:23:470:23:50

She gets involved in everything. I think, yeah, she will make it.

0:23:500:23:55

She looked like she is doing great.

0:23:550:23:57

Kaya said you've got another 600 steps to do, she went, "What?"

0:23:570:24:02

Star is really tired now.

0:24:020:24:05

She's been climbing for over an hour and must be in pain.

0:24:050:24:09

I'm not sure if Mum and I will ever receive the call

0:24:090:24:13

from the top of the tower.

0:24:130:24:14

-We'll rest here a minute. Are you all right?

-Yeah.

0:24:140:24:19

-How's your legs?

-Aching a little bit, but I can carry on.

0:24:190:24:23

-Are you sure?

-Yes.

-Shoes not hurting or anything like that?

-No.

0:24:230:24:26

-Splints not rubbing?

-No.

-It's now been two hours,

0:24:260:24:29

but my sister is not someone to give up easily.

0:24:290:24:33

-All right?

-500.

-Like, 100 more to go.

-How long have you got to go?

0:24:330:24:39

-Like, 100.

-Unfortunately, there are actually 204 more steps to go.

0:24:390:24:44

Oh, my gosh!

0:24:440:24:45

550.

0:24:470:24:48

I thought you said there were only 600 steps!

0:24:510:24:54

No, I said there was about!

0:24:540:24:56

Mum and I had been waiting three hours.

0:24:560:24:59

We're really worried. We should've heard from my sister by now.

0:24:590:25:03

Listen, it's half-past three, I think she should be nearly there.

0:25:030:25:08

She should definitely... She can't climb for longer than this,

0:25:080:25:11

I don't think.

0:25:110:25:14

-650!

-Nearly there. Is anyone tired, because I am.

-Me!

-No.

0:25:140:25:20

My legs are killing.

0:25:200:25:22

Star has been climbing up 700 steps for 3½ hours.

0:25:220:25:27

But she's still not quite there yet.

0:25:270:25:29

-Whoa!

-Are you all right?

0:25:290:25:31

-Don't lose it on the last step. Don't lose it now!

-Done it!

0:25:310:25:35

My sister has made it!

0:25:350:25:37

This way.

0:25:370:25:40

Whoa!

0:25:400:25:41

She has climbed the Eiffel Tower!

0:25:410:25:44

-Star, you've done it - how's your legs?

-They're aching.

0:25:480:25:52

I need to sit down.

0:25:520:25:54

Luckily for my sister, to get to the very top of the tower,

0:25:540:25:59

you have to take the lift.

0:25:590:26:00

-You all right?

-Gosh.

0:26:030:26:05

What none of us knew is that there is actually one more set of stairs.

0:26:050:26:10

And if Star climbs these final few steps,

0:26:110:26:15

she'll have truly completed her challenge...

0:26:150:26:18

to reach the very top of the Eiffel Tower.

0:26:180:26:22

RINGING TONE

0:26:240:26:27

-Hello?

-Mum?

-'Yes?'

-I did it!

0:26:280:26:33

Oh, have you?

0:26:330:26:35

I'm dead proud of you.

0:26:370:26:38

Yeah, I'm at the top of the Eiffel Tower!

0:26:380:26:42

Well done, Star, are you all right? Are you in pain?

0:26:420:26:44

-'Are your legs aching?'

-Yeah.

0:26:440:26:47

-Miss Taylor's got some painkillers for you if you need them.

-OK.

0:26:470:26:50

-'Tiana wants to say something.'

-OK.

0:26:500:26:53

-I'm very proud of you.

-I love you, Star. You're so amazing.

0:26:530:26:59

Mum, you're making me cry!

0:26:590:27:01

-We're all sat here crying!

-I'm not!

-How do you feel?

0:27:030:27:06

-'Cold, tired and proud.'

-Cold, tired and proud?

0:27:060:27:10

You've reached your target, as well.

0:27:100:27:12

£985.

0:27:120:27:16

That's amazing!

0:27:170:27:19

Star's had an incredible journey.

0:27:190:27:21

She's been away from us for the first time ever,

0:27:210:27:25

she's been on her first school trip and although we really didn't think

0:27:250:27:29

she would, she's reached the top of the Eiffel Tower, which means

0:27:290:27:33

she's raised nearly £1,000 for other children with Brittle Bones.

0:27:330:27:37

'I'm really proud of you, you know.'

0:27:370:27:39

So am I.

0:27:390:27:40

'How do you feel?'

0:27:400:27:42

Really proud.

0:27:420:27:44

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