Episode 9 Going Back Giving Back


Episode 9

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One of the things that I love about us Brits

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is our spirit of generosity.

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If I can give back to somebody who had a similar struggle to my own,

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then that's what I'd like to do.

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Last year, nearly three quarters of us gave to charity

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but what if you had the chance to go back

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and relive moments from your past?

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I wish I was 18 again!

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LAUGHTER

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I'm expecting Mum and Dad to walk out now and say hello, you know?

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Yeah.

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Moments which would inspire you to want to help someone today.

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I want to give back to those people that are going through that,

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that I went through in the beginning.

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If I can give something to somebody else

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that will change their lives, I would love to.

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Fantastic.

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Someone who had no idea this life-changing windfall was coming.

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I've got potentially her dream in my hand.

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How are you feeling?

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Nervous.

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'There'll be surprises...'

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-How are you?

-Very good!

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Thank you so much!

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Thank you.

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'..with acts of generosity that will change people's lives...'

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I'm really excited.

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We're all crying!

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-Do you need a hug as well?

-Yeah, thanks.

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LAUGHTER

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'..forever.'

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Brilliant!

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Somebody that just does that for people, it's amazing,

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it really is.

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This is Going Back Giving Back.

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Today, I'm going back in history,

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to uncover a really moving story, actually.

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It's a tale of fear and family secrets,

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and I'm hoping that by unlocking these mysteries,

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one person can change another's life forever.

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How will a daughter react when she hears for the first time

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why her father's illness was kept a secret?

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It was like something that you were ashamed of or it was a stigma.

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Yeah, well, I think people used to think that people were mad.

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But will his story inspire her to make a huge difference

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to someone else's life today?

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If you can withstand that,

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you can pretty much get through anything in life, can't you?

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Can she make life easier for one brave young girl?

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She was crying a lot, she was very upset, she went to sleep,

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and she woke up and she was just completely paralysed.

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'And the tension builds as we prepare for a massive surprise...'

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They have no idea that we're here, OK?

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Come on, let's go! I can't wait.

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'..with a gift that will transform her life.'

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-Thank you so much!

-It's a great pleasure.

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We're about to meet someone from the baby boomer generation,

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someone who was born into the golden age of post-war Britain,

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when there were opportunities at every corner.

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However, for this particular baby boomer,

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what was happening behind closed doors was a very different story.

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63-year-old Anne has made the huge decision to give something back.

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So I have asked her to meet me

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in the beautiful market town of Abergele,

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in the Welsh countryside.

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Her life today as a former college principal and senior civil servant

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is a stark contrast to her humble childhood,

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growing up in Moss Side, Manchester.

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-Hi, Anne.

-Hi, Aled.

-How are you?

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-Great to see you.

-Great to see you.

-What a lovely day.

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It's always like this, isn't it, in North Wales?

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-It's always like this in Wales, yes.

-THEY CHUCKLE

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Anne's desire to help someone is driven by her experiences

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of growing up with a disabled father.

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It must have been very tough for him.

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-Oh, incredibly.

-It was tough for you, of course, as a child

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-but also...

-It was tough for the family.

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As a young child, her dad was extremely ill.

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When he was five, he contracted TB, which left him with a severe limp.

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Despite being physically disabled,

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Anne's remarkable dad worked relentlessly in his butcher shop

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to take care of his young family.

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It was that that's what you did,

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you got on with life and you earned a living.

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You battle through.

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I think that that was quite a tough thing to do

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and a brave thing to do.

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I do admire him for that.

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And my mother, indeed.

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Already disabled when Anne was four,

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her father suddenly developed epilepsy,

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which meant he suffered massive seizures.

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This life-threatening condition was like a ticking time bomb,

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but her family kept it a secret from the outside world.

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Your family never really talked about the epilepsy, did they?

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No, epilepsy was never spoken about.

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In fact, I don't even think I heard

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the word "fit" or "seizure" mentioned.

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But maybe it was because

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it was something that was a bit of a stigma,

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it was associated with it,

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there was a lot of fear and worry about what it was...

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and so it was kind of best covered up,

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people didn't really talk about things in the same way then

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in the '50s and early '60s.

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Anne's mum was a strong and constant support to her dad.

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She passed away 15 years ago,

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but her 90-year-old father lives in a residential home near Anne.

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It's their resilience and ability to get on with life

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despite her dad's disabilities

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that is inspiring Anne to give something back today.

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Have you thought about the enormity of what you are doing,

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the fact that you could change somebody's life forever?

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Um...

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-Well, I...

-It's pretty big, isn't it?

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I hope, I hope that...

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..however big a change it is to somebody,

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it does help and it makes a difference.

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In order to focus your mind on the task ahead,

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I think it might be a good idea

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if we take a journey back in time as well.

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Are you willing to come with me?

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-I'm willing to come with you.

-I'm glad you said that.

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-Shall we head off?

-OK, let's do that.

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I've parked just over there. Right, here we go.

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We are taking Anne back in time to help her understand

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where her father's resilience and strength comes from.

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As a family, they hardly talked about his disabilities

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but his was a childhood blighted with illness.

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I'm hoping that discovering the reality of what her dad went through

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will reinforce Anne's desire to help someone today.

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So, the million-dollar question - any idea where we are going?

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-I think I might have worked it out.

-Oh, really?

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Well, because, first of all, Abergele is not a big place,

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and I have just seen a sign that says hospital and...

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"Abergele" and "hospital" have a particular resonance

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for me and my family because my father was here from age five.

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As a young child, Anne's father was diagnosed with TB,

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a highly contagious disease.

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From as early as 1911 through to the 1950s,

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patients like Anne's dad were separated from their parents

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and sent to sanatoriums to be treated.

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How long was he there for?

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I think about five years, from age five to ten.

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I certainly know he went in '31

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and I have a picture of him in 1934

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and he's aged eight.

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Ah, OK.

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In that picture, he's standing up, for the first time, with his mum

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-after three years of laying down...

-Goodness me.

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..and not being able to move.

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That must have been pretty momentous.

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I don't think he came home then, I think it was another year or two.

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Today, TB is easily treated with antibiotics but at the time,

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it was believed that fresh air and rest was the best cure,

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so the children were made to stay in bed at all times.

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In many cases, for years.

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The disease mainly affects the lungs,

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but it can also infect other parts of the body, including bones,

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which is what happened to Anne's dad.

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And what impact did the TB have on him?

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He was left with a physical disability,

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in that he had one leg that was longer than the other...

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-Ah, OK, right.

-..so he always had to have his shoes built up.

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By the late 1950s, with the introduction of the BCG vaccination,

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TB became preventable and curable with medical advances

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so the sanatoriums were closed down.

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Guess what, you were right.

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LAUGHTER

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You were very crafty, weren't you? You saw that hospital sign.

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I just noticed, yes.

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This is Anne's first visit to the Abergele Sanitorium.

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So will the revelations of what her father experienced here

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at such a young age inspire her to want to help someone in need today?

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-How do you feel being here?

-What a building, goodness gracious.

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You've only got to imagine that in 1930.

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My dad arriving here

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as a five-year-old little boy with his mum and dad in tow.

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-Must have been terrifying, don't you think?

-So scary.

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It probably wasn't a sunny day like this,

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it was probably grey and rainy, and, you know,

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you were going to be left here when your parents go back to Manchester.

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-Goodness.

-So would they visit him then?

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I think they did come and visit him but only weekly,

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and if they were lucky,

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because I think there was a bus that came from Manchester

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and brought the parents of all the children that were left here.

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I know my grandfather had a motorbike at some point,

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and they were able to visit, but I think it was weekly visits,

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nothing more than that, maybe even longer.

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It doesn't bear thinking about, does it, these days?

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I mean we're talking pre-National Health Service, aren't we,

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and the understanding of the need of children to be with their parents

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to actually make a recovery better in a family environment,

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to be totally separated,

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it really must have felt like Velcro being torn apart, I'm sure.

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Did he ever talk about it?

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No, no. Even now, we have to encourage him to say things,

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although he does a lot more now.

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When my sister and I were growing up,

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we were aware that my dad had been in hospital,

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but he never really mentioned it and he just got on with life,

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so we never asked him about it, obviously.

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-Shall we go and have a little wander?

-Yeah, that'd be great.

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-Are you OK?

-Yes.

-It is quite overwhelming, isn't it?

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-No, it will be fantastic.

-Come on, let's go.

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'This is obviously a very moving visit for Anne.

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'Even today her dad Norman is reluctant to speak

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'about what life was like for him here,

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'but we've arranged for someone to meet us who remembers it very well.'

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-I might have a little surprise for you here as well.

-Right.

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I hope you like surprises.

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Come and meet this gentleman.

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How are you?

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-Very nice to see you.

-Nice to see you, sir.

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-Hello.

-I'm David.

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-Hello, I'm Anne, good to meet you.

-Very nice to meet you.

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David has one thing in common with your father.

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-Right.

-Which is?

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-I was an ex-patient here, I was in from 1945 to 1950.

-Really?

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-Gosh.

-What was it like?

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Well, we knew nothing else.

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And you lay in your bed?

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Yeah, just strapped down on a frame.

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-Yeah, that's what Dad says.

-Yeah, on a frame, yeah.

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-Strapped down?

-Strapped down.

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-The cure at the time was complete stillness and fresh air.

-That's right, yeah.

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And that's what you got - strapped down on your frame

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and shoved out, hail, rain or shine.

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If it was raining, you were under the veranda.

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-If it wasn't, you were out.

-Out there.

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The Abergele Sanatorium was opened in 1931,

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specifically to treat children with TB from Manchester.

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The disease thrived in overcrowded industrial slums,

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and reached epidemic proportions in the north-west of England,

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killing tens of thousands of people.

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It was hoped moving children to the countryside would cure them.

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How old were you, David, when you came here?

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-I was...three when I came here.

-My dad was five when he came here.

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-Eight when I went out.

-Yeah, and Dad was about ten.

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That must have been quite scary, wasn't it?

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Again, it was all we knew.

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How was it saying goodbye to parents and things like that?

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It was a bit heart-wrenching,

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cos you knew you weren't going to see your mum and dad

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-until next weekend, next Sunday.

-That's right.

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It's amazing that you're smiling about it.

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For someone of my generation,

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the idea of being strapped down in your bed and wheeled out,

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as you say, rain or shine, it sounds absolutely horrendous,

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you know, being on your own without your parents.

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Well, you had your mate next door, we were all pals.

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We were like brothers and sisters, you know what I mean?

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David's parents kept a record of his time at the sanatorium,

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regularly taking photos that depict what it was like here.

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What have you got in here?

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Basically, really, my stuff.

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-That is me in plaster.

-Yeah, exactly.

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-So, what? They plastered you...?

-Oh, yeah.

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Some children with TB had radical operations to fuse joints and bones

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to stop the disease from spreading.

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It then meant huge parts of their bodies

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were covered in plaster while the bones recovered.

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Look at that! I had no idea!

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That wasn't so bad, really.

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The worst part was having your plaster replaced -

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that was horrible.

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It was like laying in a swamp for two days while you dried out,

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-it was terrible.

-So this plaster would be from here...

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-From here, to here.

-Oh, my goodness me.

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-Gives you a bit of insight into what your dad went through.

-Doesn't it?

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David's first-hand account is bringing to life

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what Anne's dad must have experienced from the age of five to ten

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and I'm hoping will fuel her desire to give something back.

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-So where are you going to take us?

-I'm going to take you to the ward,

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the babies ward and then the ward that I was on for the duration.

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-Where was that, down here?

-Yeah, yeah.

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So this is where your dad would've been then.

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I know, exactly, in here.

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Even though the sanatorium closed 60 years ago,

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the building has not changed

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so Anne can see exactly where her father was cared for as a young boy.

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How do you feel, coming here now, knowing this is where your dad was?

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It is incredibly moving.

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It's very moving to think of these little boys in his case,

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and in your case, David,

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actually lying flat on their backs in beds,

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wheeled in and out, according to the weather,

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but mostly, it sounds as if you were wheeled out

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because the fresh air was to cure the TB.

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It was stillness and fresh air.

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It's a good explanation to me as to why my dad is so cheerful

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and so hardy, and I don't know whether you are the same.

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If you can withstand that,

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you can pretty much get through anything in life, can't you, really?

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And so I think it must have developed incredible resilience.

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David has given Anne a vivid insight into what her dad lived through

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as a child with TB in the 1930s.

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It's incredible to think how he dealt with his childhood disability

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with such positivity

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and Anne can finally understand where her dad's strength comes from,

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and it's what's driving her to want to support somebody today.

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-You've been a gentleman, thanks so much.

-You're welcome, sir.

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It's been good, hasn't it?

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It's been utterly fantastic, thanks so much.

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-So how do you feel now?

-Well, what an afternoon.

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I'm deeply moved by having been here,

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very grateful, and it's just fantastic.

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It's a magical place, isn't it?

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Has it, in a way,

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reinforced the idea that you want to help other people?

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Oh, yeah, this is just inspirational

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and if I can give something to somebody else

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-that will change their lives, I'd really love to.

-Fantastic.

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Thank you.

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Coming here to North Wales and to the sanatorium,

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where her dad spent his early childhood,

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has really impacted on Anne.

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Her dad's always been very guarded about his experiences here.

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For the first time,

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I feel that Anne has a clear idea of what he went through.

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This place, obviously, made him the man he is today.

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Armed with a new knowledge of what life was like in a sanatorium

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has made Anne even more determined to want to help someone.

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Coming up, we've been on the hunt for someone

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whose story will resonate with Anne and we think we've found them.

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She's an inspirational young girl whose childhood, like Anne's dad's,

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has been overshadowed by disability.

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Her family thinks we're making a programme about children with disabilities.

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They have no idea the real reason behind Anne's visit -

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that they could be in for a life-changing gift from her.

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Hello, girls. Hello, Harriet. I'm Anne, nice to meet you.

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So the big question is, how will they get on?

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But first, Anne wants to meet up with a key person

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who's inspiring her to give back.

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Hi, Dad.

0:17:470:17:49

Hi, darling. You OK?

0:17:490:17:51

-Yeah, yeah.

-Good, good.

0:17:510:17:54

Anne is visiting her 90-year-old dad Norman

0:17:540:17:56

at his residential home.

0:17:560:17:58

She's hoping that, finally,

0:17:580:17:59

he'll open up to her about his time in the sanatorium.

0:17:590:18:03

Look, Dad, thanks for doing this.

0:18:050:18:07

I just want to talk a bit about yesterday when I went to Abergele,

0:18:070:18:12

which I realised I'd never, ever done,

0:18:120:18:15

even though we went to Wales quite a lot.

0:18:150:18:17

Do you remember very much about it?

0:18:170:18:20

A considerable amount, in various ways.

0:18:200:18:23

After learning about the types of treatment

0:18:250:18:28

given to children at the sanatorium,

0:18:280:18:30

Anne now wants to know exactly what her dad went through.

0:18:300:18:34

I was...

0:18:340:18:35

..put on a frame.

0:18:370:18:39

Your feet were actually bound and taped

0:18:390:18:44

and threaded through the bottom of the ring,

0:18:440:18:47

and then it was tipped to an angle of 30, 40 degrees.

0:18:470:18:50

The results of the frame did quite a lot of damage to...

0:18:500:18:55

-..the tops of both my feet...

-Right.

0:18:570:19:00

..because the actual strappings

0:19:000:19:03

had bitten themselves into the flesh...

0:19:030:19:06

-Gosh!

-..of my feet.

0:19:060:19:08

Did you have to go into plaster?

0:19:080:19:11

Eventually, yes.

0:19:110:19:13

So it must been quite frightening, all of that?

0:19:130:19:17

But TB was just one life obstacle Norman had to deal with.

0:19:180:19:21

His young life continued to be blighted by illness

0:19:210:19:24

when he developed epilepsy when Anne was just four.

0:19:240:19:27

The treatment he received was brutal.

0:19:270:19:29

The way of treating it in those days

0:19:310:19:34

was electric shock treatment through the head

0:19:340:19:37

or possibly injections into the spine.

0:19:370:19:40

-Right.

-They tried for a long while to actually get into my spine,

0:19:400:19:47

joining the lower regions of my spine

0:19:470:19:53

and were not successful

0:19:530:19:55

and gave it up eventually.

0:19:550:19:57

But it wasn't just a fear of the extreme treatment

0:19:590:20:01

that made the family keep his epilepsy a secret.

0:20:010:20:04

It was also the social mind-set of the time.

0:20:040:20:06

People didn't really talk about epilepsy then, did they?

0:20:080:20:11

-No, not at all, no.

-Is that your recollection of it?

0:20:110:20:14

-Yes, very much so.

-It was like something that you were ashamed of

0:20:140:20:17

-or it was a stigma?

-Yeah.

0:20:170:20:18

Well, people used to think that people went mad.

0:20:180:20:23

Yes, it was associated with madness.

0:20:230:20:25

Because it's a shivery movement, you know?

0:20:250:20:27

The whole body goes, I understand.

0:20:270:20:29

It's only recently that attitudes towards epilepsy have changed.

0:20:310:20:35

For years, there was a huge stigma surrounding the condition,

0:20:350:20:38

and many were left unemployed or sent to workhouses or asylums.

0:20:380:20:42

In the late 19th century, as understanding of the illness grew,

0:20:460:20:49

epileptic colonies were opened to offer employment and treatment.

0:20:490:20:53

Men worked the land and learned trades,

0:20:550:20:58

while women did domestic chores in the home.

0:20:580:21:01

But for Norman, having spent five years in a sanatorium as a child,

0:21:010:21:05

the family lived in fear of him being sent to another institution,

0:21:050:21:09

which explains why he wanted to keep his condition a secret.

0:21:090:21:13

Dealing with TB and dealing with epilepsy...

0:21:170:21:21

..are two big barriers in life.

0:21:230:21:26

Well, yes, I suppose they are in some ways.

0:21:260:21:30

All I can say is that you've got a very positive attitude

0:21:300:21:34

to dealing with what many people would feel

0:21:340:21:37

is huge adversity and a huge blow to life.

0:21:370:21:40

The way you've dealt with those, I think, is truly inspirational

0:21:400:21:44

and I think you should acknowledge that.

0:21:440:21:46

Well, if that's a help to anybody, I don't mind.

0:21:460:21:48

It's been a great help to me.

0:21:480:21:50

I really was quite moved by talking to my father.

0:21:570:22:01

I was moved by how much, in a way, he has

0:22:010:22:07

affected me and my desire to want to help another.

0:22:070:22:13

So I'm very motivated to help somebody else now.

0:22:130:22:16

Going back and understanding what her dad went through as a child

0:22:210:22:24

has been emotional for Anne.

0:22:240:22:26

You've only got to imagine my dad arriving here

0:22:280:22:31

as a five-year-old little boy. It must have been...

0:22:310:22:34

-So scary!

-..terrifying, don't you think?

0:22:340:22:36

And she's finally discovered why his epilepsy was kept a family secret.

0:22:380:22:43

People used to think that people went mad.

0:22:430:22:46

Yes, it was associated with madness.

0:22:460:22:49

Uncovering all this has helped focus her mind.

0:22:490:22:52

This is just inspirational,

0:22:520:22:54

and if I can give something to somebody else

0:22:540:22:56

-that will change their lives, I'd really love to.

-Fantastic.

0:22:560:22:59

I think this has been a real revelation for Anne,

0:23:040:23:07

learning about the treatment her father received at the sanatorium

0:23:070:23:10

and the fear he must have felt about being sent back to an institution

0:23:100:23:14

because of his epilepsy.

0:23:140:23:16

It's no wonder his family kept his disabilities a secret.

0:23:160:23:20

Anne's father showed real courage trying to live

0:23:200:23:22

as normal a life as possible.

0:23:220:23:24

And it's this strength, I reckon,

0:23:240:23:26

that's driving Anne on to want to give something back today.

0:23:260:23:29

Of course, there are many people

0:23:290:23:31

who could benefit from Anne's generosity

0:23:310:23:33

but we've found someone whose story, we think,

0:23:330:23:35

will strike a chord with Anne.

0:23:350:23:37

They are a family determined to live life regardless of their situation.

0:23:370:23:41

They're a remarkable family.

0:23:410:23:42

Hi, baby!

0:23:460:23:47

In a Northamptonshire village lives Harriet,

0:23:480:23:51

a severely disabled child who relies entirely on her mum, Jane,

0:23:510:23:55

and sisters Sophie, 19, Chloe, 17, and Emmylou, who's nine.

0:23:550:24:00

12-year-old Harriet has an extremely rare genetic disorder.

0:24:050:24:09

Although she has the mind of a 12-year-old,

0:24:090:24:12

she's trapped in her body and unable to use her limbs,

0:24:120:24:15

hold up her head or speak.

0:24:150:24:17

Just like Anne's dad,

0:24:210:24:22

Harriet's childhood has been overshadowed with disability,

0:24:220:24:26

albeit on a much more severe scale.

0:24:260:24:28

But while Anne's dad was sent away from his parents

0:24:310:24:34

to an institution to be cared for,

0:24:340:24:36

Harriet is surrounded by a loving and inspirational family.

0:24:360:24:40

And just like Anne's mum was a constant support

0:24:420:24:45

to her disabled father,

0:24:450:24:46

Harriet's mum, Jane, is her family's rock.

0:24:460:24:49

With these parallels, we've arranged for them to meet.

0:24:530:24:55

It feels a bit strange, but I'm excited

0:24:580:25:01

and I'm apprehensive, and I'm curious.

0:25:010:25:05

And I hope it's going to be lovely to meet them.

0:25:050:25:08

This is a hugely important meeting,

0:25:100:25:12

which could transform this family's life.

0:25:120:25:15

Let's hope Anne feels a connection between them.

0:25:150:25:17

-Hi, Jane, I'm Anne.

-Nice to meet you.

0:25:180:25:20

-Thank you for having us here.

-That's all right, come in.

0:25:200:25:23

Hi, girls. Hello.

0:25:250:25:26

Hello, Harriet, I'm Anne, nice to meet you.

0:25:260:25:29

-This is Emmylou.

-Nice to meet you, Emmylou, as well.

0:25:290:25:34

It's great to be here, thank you for having us.

0:25:340:25:37

Mum Jane thinks we're making a programme about children with disabilities.

0:25:390:25:42

Do you fancy a cup of tea?

0:25:440:25:45

I'd love a cup of tea, Jane, thank you.

0:25:450:25:47

-We can sit in the garden, actually, and have a chat out there.

-That would be delightful.

0:25:470:25:50

Do you want to carry on playing the computer?

0:25:500:25:52

Jane has absolutely no idea

0:25:520:25:54

that she could be in for a generous gift to help Harriet.

0:25:540:25:57

So, you know, your life changed drastically then, 12, 13 years ago.

0:26:000:26:07

So just tell me a little bit about that.

0:26:070:26:10

So, Harriet was fine when she was born.

0:26:100:26:13

Normal baby, nothing wrong with her at all.

0:26:130:26:17

And at nine months old, she developed a tremor

0:26:170:26:23

and it didn't go away so we took her to the doctors.

0:26:230:26:26

The GP, obviously, had a very good idea

0:26:260:26:28

that it was something to do with the brain,

0:26:280:26:30

because he spoke to the hospital immediately and got her straight in.

0:26:300:26:33

They did CT scans and everything immediately.

0:26:330:26:36

But, by the next day,

0:26:360:26:38

her hand had actually set itself like that and didn't move again.

0:26:380:26:42

-My goodness.

-She came home after a couple of weeks,

0:26:420:26:45

and literally 24 hours later, her other hand started doing that.

0:26:450:26:48

Oh...

0:26:480:26:50

They could not find what it was that was causing it.

0:26:500:26:52

They knew it was in the brain.

0:26:520:26:55

Doctors were completely baffled.

0:26:550:26:57

But then, things took a devastating turn for the worse

0:26:570:27:00

for little Harriet.

0:27:000:27:01

She was crying a lot, she was very upset.

0:27:020:27:04

She went to sleep and she woke up,

0:27:040:27:06

and she was just completely paralysed.

0:27:060:27:09

Oh, my goodness. And that was just overnight?

0:27:090:27:12

Yeah.

0:27:120:27:13

Within the space of a few hours,

0:27:130:27:15

nine-month-old Harriet was struck down by this mysterious illness.

0:27:150:27:19

Jane's world was turned upside down.

0:27:190:27:22

So, suddenly, she was like a newborn baby again -

0:27:240:27:26

couldn't hold her head up, couldn't sit up, couldn't do anything.

0:27:260:27:29

Didn't speak, she lost...

0:27:290:27:30

Not that she could talk, obviously, but she was babbling, you know?

0:27:300:27:33

And she couldn't do any of that at all.

0:27:330:27:36

Absolutely devastating, shock, and everything else.

0:27:360:27:40

It took five years for Harriet to be finally diagnosed

0:27:410:27:44

with a rare genetic disorder

0:27:440:27:46

that's only been found in less than 50 other people in the world.

0:27:460:27:50

But Harriet's family just try and get on with it

0:27:500:27:53

and despite her severe disability,

0:27:530:27:55

Harriet is happy, extremely resilient,

0:27:550:27:59

and adored by her sisters.

0:27:590:28:01

She definitely has a personality.

0:28:010:28:04

Even though she doesn't speak, her personality definitely comes across.

0:28:060:28:10

She's got a funny sense of humour.

0:28:110:28:13

-She's always smiling, which is amazing.

-Yeah.

0:28:130:28:16

We love her to pieces.

0:28:160:28:17

Harriet's sisters and Jane clearly worship her.

0:28:190:28:22

But as she's unable to communicate,

0:28:220:28:24

it can be challenging and heartbreaking at times.

0:28:240:28:28

She's beautiful. She's a normal, little 12-year-old inside that head,

0:28:280:28:32

stuck in a body that won't do as it's told.

0:28:320:28:35

When she's upset, trying to work out what it is...

0:28:350:28:38

-It's very difficult.

-..is it emotional?

0:28:380:28:40

Is it because her TV programme's finished or someone died in it?

0:28:400:28:43

Is it because she's hurting?

0:28:430:28:44

If she's hurting, where is she hurting?

0:28:440:28:46

Is it her stomach? It could be her shoe rubbing.

0:28:460:28:48

Because, before we know, we've gone through everything,

0:28:480:28:50

taken her and got her ready for bed, and she's got a blister on her foot.

0:28:500:28:53

And I feel, it makes me cry, because I'm thinking I've let her down,

0:28:530:28:57

you know what I mean? And it's the stress and the worry of that.

0:28:570:29:00

If she could just talk!

0:29:000:29:03

Then... Oh, that sounds awful, doesn't it?

0:29:030:29:05

Jane is a single mum who gave up full-time work

0:29:090:29:12

as a company general manager to be Harriet's main carer.

0:29:120:29:16

And she has a lot to contend with, hoisting Harriet in and out of bed,

0:29:170:29:21

giving her medication through a stomach pump,

0:29:210:29:23

feeding and changing her,

0:29:230:29:26

but Jane just gets on with everything without complaining,

0:29:260:29:29

earning massive respect from her daughters,

0:29:290:29:32

just like Anne felt with her mother.

0:29:320:29:35

There are so many things that she does for Harriet that

0:29:350:29:38

no-one could ever dream of the amount of things that she does.

0:29:380:29:41

All I do is make her laugh.

0:29:410:29:44

That's our job, we make her laugh.

0:29:440:29:46

She does so much on her own.

0:29:460:29:48

With us three and Harriet, a fully dependent child,

0:29:480:29:52

she just does so well.

0:29:520:29:54

The way Jane and the girls cope with such adversity -

0:29:550:29:58

and indeed, Harriet, who always has a smile on her face -

0:29:580:30:01

is really resonating with Anne.

0:30:010:30:03

The way you have responded to this, and your family, the girls,

0:30:050:30:10

is incredibly inspiring, isn't it?

0:30:100:30:12

I mean, you just seem to get on with it and deal with it.

0:30:120:30:16

We don't have a choice.

0:30:160:30:18

I mean, a lot of people say, "Jane, how do you deal with it?"

0:30:190:30:21

I mean, you know...

0:30:210:30:23

It's your daughter, you don't have a choice.

0:30:230:30:25

Anne's main focus now is to find out

0:30:270:30:29

how she could help this inspirational family

0:30:290:30:31

and make life easier for Harriet.

0:30:310:30:33

So, Jane, with all that you contend with,

0:30:350:30:37

what would make a difference to your lives, in fact?

0:30:370:30:41

Both of you, and the family's?

0:30:410:30:43

There's a lot of little, simple things that would make a difference.

0:30:430:30:46

She's had this hip replacement

0:30:460:30:47

and while she was in a lot of pain before she had it done,

0:30:470:30:50

and while she was recovering,

0:30:500:30:51

the school very kindly lent us this chair.

0:30:510:30:54

It's on wheels, it's got a base

0:30:540:30:56

and this big beanbag that you position her into.

0:30:560:31:00

Sadly, they were only able to borrow the special chair for a few weeks.

0:31:020:31:05

They can't afford to buy one themselves,

0:31:050:31:08

but it would make all the difference to Harriet.

0:31:080:31:10

So she can be comfy, we can strap her in, she's safe,

0:31:110:31:14

and we can wheel her around.

0:31:140:31:15

And she can be in the lounge with us,

0:31:150:31:17

instead of being in a rigid chair.

0:31:170:31:19

-So she'd have her wheelchair as well.

-Yeah.

0:31:190:31:23

It's just like a chair.

0:31:230:31:24

It's ideal for someone like Harriet.

0:31:240:31:26

Yeah, yeah.

0:31:260:31:28

The way Jane and her family deal with Harriet's disability

0:31:300:31:33

has had a big impact on Anne

0:31:330:31:35

and this meeting has been pivotal in her desire to give something back.

0:31:350:31:39

Jane, thanks so much, it's been so lovely to meet you.

0:31:400:31:43

Lovely to meet you too.

0:31:430:31:44

It's always nice to have a chinwag.

0:31:450:31:47

Well, indeed. Especially in the garden, when it's been so nice.

0:31:470:31:51

-Take care then.

-Lovely to meet you, bye, Anne.

-Bye.

0:31:510:31:54

I was very moved by Jane's tenacity...

0:31:590:32:04

and it reminded me of my own mother, who also was a feisty fighter...

0:32:040:32:12

..and didn't let things get her down.

0:32:130:32:17

She could keep things going for the family

0:32:170:32:20

and that, very much, is how Jane is.

0:32:200:32:24

She, clearly, is devoted,

0:32:240:32:26

as you would be, to all her children

0:32:260:32:29

and she's devoted to Harriet's care

0:32:290:32:32

and I find that profoundly moving and inspirational.

0:32:320:32:36

Anne's obviously been hugely moved meeting Jane

0:32:390:32:41

and hearing all about Harriet

0:32:410:32:43

and how the family have coped looking after her.

0:32:430:32:46

But before making up her mind whether she can help them,

0:32:460:32:48

Anne's going to discuss this important decision

0:32:480:32:51

with one of her oldest friends.

0:32:510:32:53

Michael, I've been on such a journey,

0:32:550:32:57

I've got to tell you.

0:32:570:32:59

It started on Sunday, when I went back to Abergele, in North Wales,

0:32:590:33:05

-where my father had been with his TB for five years.

-OK.

0:33:050:33:09

So I've been uncovering a little bit of the origins

0:33:090:33:13

-of some of his disabilities and difficulties.

-Right, OK.

0:33:130:33:16

Then, I've just come from meeting Jane and her daughter Harriet

0:33:160:33:23

and Harriet's sisters, one of Harriet's sisters,

0:33:230:33:27

and their story is very similar, in some ways, as a family...

0:33:270:33:32

to what I experienced.

0:33:320:33:36

So there's a resonance there?

0:33:360:33:38

Well, there is, and it has been interesting to watch how Jane,

0:33:380:33:43

as the mum in this family, has dealt with disability

0:33:430:33:49

and it kind of reminds me of my mum

0:33:490:33:52

and how she coped with things when my father got disabled,

0:33:520:33:56

as well as, of course, how my dad, as a disabled person,

0:33:560:34:01

also deals with things now.

0:34:010:34:03

He's incredibly resilient, and this young 12-year-old, Harriet,

0:34:030:34:08

who I've met today, is also a very spirited and resilient person.

0:34:080:34:12

Gosh. How interesting!

0:34:120:34:15

-Tell me more, tell me more.

-It has been fascinating.

0:34:150:34:18

Well, this is it.

0:34:180:34:19

The next step now is that Jane and Harriet

0:34:190:34:26

are really, very much,

0:34:260:34:29

in need of just a few things that would make their lives a lot easier.

0:34:290:34:33

I was just wondering what you thought, really?

0:34:330:34:37

You've actually been through the same process

0:34:370:34:40

in your life, haven't you?

0:34:400:34:41

And I can certainly see that helping an individual,

0:34:410:34:44

well, I think it would be fantastic!

0:34:440:34:46

I want to do this, there's no doubt about it.

0:34:460:34:49

If you can do it, do it.

0:34:490:34:50

-All right?

-Thank you.

0:34:500:34:52

THEY CHUCKLE

0:34:520:34:53

Having Michael's support and knowing dad Norman

0:34:540:34:56

has also given his blessing are crucial for Anne.

0:34:560:35:00

By introducing her to Jane and Harriet,

0:35:000:35:02

we've found a family that have been facing adversity

0:35:020:35:05

like she and her family experienced.

0:35:050:35:07

We've gone back - now Anne needs to move forward.

0:35:070:35:10

She has a hugely important decision to make -

0:35:100:35:12

how can she help make life easier for Harriet?

0:35:120:35:15

It's the last thing left for her to do.

0:35:150:35:18

It's been a week since Anne and I visited North Wales,

0:35:290:35:32

and during that time, she's met up with Harriet and her family.

0:35:320:35:35

It must have been like looking in the mirror for Anne,

0:35:350:35:38

seeing how determined Harriet and her family are

0:35:380:35:40

to just get on with it and live as normal a life as possible.

0:35:400:35:44

It must have really resonated with Anne.

0:35:440:35:46

After all, that's what her own father wanted.

0:35:460:35:49

Shall we find out how she's feeling

0:35:490:35:51

and ask her the million-dollar question -

0:35:510:35:53

is she ready to change someone's life?

0:35:530:35:55

Anne's waiting for me around the corner from where Jane,

0:35:570:36:00

Harriet and her sisters are enjoying a picnic.

0:36:000:36:03

Time to find out exactly what Anne's decided.

0:36:030:36:05

-Hey, Anne, how lovely to see you.

-Hi! Good to see you.

0:36:080:36:10

-How are you?

-I'm very well, thanks.

-You got the teas in as well!

0:36:100:36:12

-I have indeed, yes.

-Thank you very much.

0:36:120:36:14

So, you've seen Harriet and her family, haven't you?

0:36:140:36:17

I have. I've met Jane and Harriet and her sisters.

0:36:170:36:19

-How did it go?

-It was fabulous.

0:36:190:36:21

It was really, really good. Very inspiring and very moving.

0:36:210:36:24

Have you decided what you're going to do?

0:36:240:36:27

-I have.

-Go on, tell me!

0:36:270:36:29

I won't keep you in suspense any longer then.

0:36:290:36:32

What will make Harriet's life a lot easier

0:36:320:36:35

is if she has one of these special seats.

0:36:350:36:38

-Wow.

-It looks like a sort of padded beanbag,

0:36:380:36:40

but it's actually on wheels, moves around the sitting room

0:36:400:36:44

and, principally, what it does is it helps cushion her,

0:36:440:36:48

so that as she's moving around,

0:36:480:36:50

her head can be held, she can be very comfy.

0:36:500:36:52

Got you. Yeah, it looks very comfortable.

0:36:520:36:54

And I suppose this will include her in the family?

0:36:540:36:58

Precisely. I mean, she wants to be able to sit

0:36:580:37:00

with the family and watch TV.

0:37:000:37:02

It's a small thing to give, isn't it, really,

0:37:020:37:04

to make that possible.

0:37:040:37:05

How much does it cost?

0:37:050:37:07

It costs £1,900.

0:37:070:37:09

-Wow.

-Specialist piece of kit, you see.

0:37:090:37:12

That's a huge amount of money.

0:37:120:37:14

It is a lot of money but it will, I think, make a huge difference...

0:37:150:37:21

because, at the moment, Harriet is stuck in a wheelchair all the time

0:37:210:37:25

and if she gets out of that, she has to go and sit on the sofa,

0:37:250:37:30

the sofa can't hold her up properly -

0:37:300:37:32

this will just make it comfy, safe and stable.

0:37:320:37:35

Well, that's very, very kind of you.

0:37:350:37:36

I've got a letter,

0:37:360:37:38

and this tells Jane and Harriet what I'm going to do.

0:37:380:37:41

I can't wait to see their faces.

0:37:410:37:42

It's going to make a big difference to her life, isn't it?

0:37:420:37:44

-Do you think so?

-And not just hers, but, as you say, Jane,

0:37:440:37:47

and all the other kids.

0:37:470:37:48

I know they're having a picnic around the corner.

0:37:480:37:50

-Shall we go and surprise them?

-Why not?

0:37:500:37:52

-Come on, let's go.

-Thank you.

0:37:520:37:53

It's the big moment -

0:37:560:37:58

owning up to Jane, Harriet and her family what we've really been up to,

0:37:580:38:02

and discovering how Harriet's life is going to change.

0:38:020:38:05

So, just how are they going to react to all this?

0:38:050:38:08

Listen, Anne, they're having a picnic just over there.

0:38:090:38:12

They have no idea that we're here, OK?

0:38:120:38:14

-How are you feeling?

-Excited, nervous

0:38:140:38:18

but I think it's going to be a great surprise.

0:38:180:38:20

-It is, isn't it? Come on, let's go for it.

-I can't wait!

0:38:200:38:22

Right. Are you ready?

0:38:230:38:26

Here we go!

0:38:260:38:27

-Hello.

-Hello.

0:38:290:38:31

How are you? Hi, I'm Aled Jones...

0:38:310:38:33

I know, I recognise you!

0:38:330:38:34

..from the BBC. Nice to see you.

0:38:340:38:37

-Hello!

-Hello!

-Nice to see you!

0:38:370:38:39

Lovely to see you again, Jane.

0:38:390:38:41

You haven't met my oldest two, this is Chloe and Sophie.

0:38:410:38:45

You thought we were doing a programme

0:38:450:38:48

-just about children and disability, didn't you?

-Yeah.

0:38:480:38:52

Well, it's not the full story, is it?

0:38:520:38:55

-I've got make-up on, don't make me cry, OK?

-Oh, Jane!

0:38:550:39:00

It was so lovely to meet you two

0:39:000:39:02

and I just wanted to bring you this letter today.

0:39:020:39:05

It's for you. I just wondered if you might open it,

0:39:070:39:09

and if you would read it out to us?

0:39:090:39:12

"Dear Jane, it was lovely to meet you and your girls this week.

0:39:140:39:17

"Thank you so much having us in your home

0:39:170:39:19

"and also for telling me about Harriet's condition

0:39:190:39:22

"and the way you have dealt with it.

0:39:220:39:24

"I wanted you to know how moved I was by the cheerful

0:39:240:39:27

"and determined way you and your family manage Harriet's disability.

0:39:270:39:32

"It is both humbling and amazing."

0:39:320:39:34

HARRIET LAUGHS

0:39:340:39:36

She just laughs at everything!

0:39:370:39:39

"And inspired, no doubt,

0:39:390:39:41

"by Harriet's own resilience, spirit and sense of humour.

0:39:410:39:46

"As I mentioned to you, my own father is disabled.

0:39:460:39:49

"The way in which you and Harriet cope

0:39:490:39:51

"with what life has thrown at you

0:39:510:39:53

"reminds me of the way my own parents dealt with things.

0:39:530:39:57

"When we met, you told me there was one thing

0:39:570:39:59

"that could make Harriet's life a little bit more comfortable.

0:39:590:40:02

"Therefore I'd like to offer to pay

0:40:020:40:05

"£1,900 for the special seat you need for Harriet.

0:40:050:40:09

"If I could help you in this way,

0:40:090:40:12

"it would give me an opportunity

0:40:120:40:14

"to make a small difference in your life.

0:40:140:40:16

"I hope you will accept my gift. Best wishes, Anne."

0:40:160:40:19

You're just laughing because I'm crying!

0:40:190:40:22

I hope you will accept it.

0:40:220:40:24

We're all crying!

0:40:240:40:25

-It's a lovely thing, isn't it?

-Thank you so much!

0:40:270:40:30

It's a great pleasure.

0:40:300:40:32

Sorry to surprise you.

0:40:340:40:35

Sorry, sorry!

0:40:350:40:36

What difference is that going to make for you?

0:40:380:40:40

It's going to make life so much easier. She loved having it.

0:40:400:40:43

-I don't know if you've seen it?

-I have, yeah.

-You've seen it?

0:40:430:40:45

-Yes, I've shown him some pictures.

-It's fantastic.

0:40:450:40:48

And she was so comfortable in it, weren't you, Harriet?

0:40:480:40:51

It means she's got her own armchair-type thing in the lounge,

0:40:510:40:54

and it can be wheeled about, can't it?

0:40:540:40:57

Aw, you're so excited!

0:40:570:40:58

THEY CHUCKLE

0:40:580:41:00

And so you can watch TV together and everything else?

0:41:000:41:02

It's like she's got her own chair in the lounge,

0:41:020:41:04

because she has to sit in this...

0:41:040:41:06

Well, we tried putting her on the sofa, she just can't...

0:41:060:41:10

She just slides out and everything.

0:41:100:41:12

Well, listen, I'm glad that you're happy

0:41:120:41:15

and I'm glad that you're happy as well.

0:41:150:41:17

I'm so glad you're happy!

0:41:170:41:18

We'll leave you to it, we don't want to spoil your picnic.

0:41:180:41:21

-Very nice to see you.

-Thank you, lovely to meet you, girls.

0:41:210:41:23

And you enjoy your chair, OK?

0:41:230:41:25

-Thank you.

-All the best.

-Lovely to meet you.

0:41:250:41:27

Nice to see you all. All the best.

0:41:270:41:29

-Oh, sweetheart.

-Thanks, Jane. We'll be in touch.

0:41:290:41:32

We'll be in touch, and I'll stay in touch, yeah.

0:41:320:41:35

-Don't worry.

-Please do.

0:41:350:41:36

Bye, Harriet.

0:41:360:41:38

See you soon, darling.

0:41:380:41:39

-Bye, girls.

-Bye, guys.

0:41:400:41:42

-Lovely to see you.

-Thank you, lovely to meet you, bye.

0:41:420:41:45

THEY LAUGH

0:41:490:41:51

My brain couldn't process everything that was going on at the time,

0:41:510:41:54

because I'm here with the kids and it's very, very surreal.

0:41:540:41:58

It was a surprise, yes!

0:41:580:41:59

It felt great, actually.

0:42:010:42:02

They clearly, clearly needed it.

0:42:020:42:05

I'm very happy to give it

0:42:050:42:06

and they were also surprised and pleased, I think, really,

0:42:060:42:10

to get something for Harriet so I'm thrilled I did this.

0:42:100:42:15

I'm so excited... It's lovely.

0:42:150:42:17

It's really, really... For people...

0:42:170:42:19

I mean, Anne...

0:42:190:42:20

I mean, what can I say?

0:42:200:42:22

Somebody that just does that for people,

0:42:220:42:25

it's just amazing, it really is.

0:42:250:42:27

It's amazing.

0:42:270:42:29

It's just going to make such a difference.

0:42:290:42:32

It's been an absolutely fantastic experience to go on this journey.

0:42:320:42:36

I've learned a lot, I've met so many interesting people,

0:42:360:42:40

and it's ended here with Harriet and Jane,

0:42:400:42:43

and I'm able to do something for Harriet which is just terrific.

0:42:430:42:46

Seeing Harriet's, Jane and the girls' reaction

0:42:530:42:56

to Anne's generosity was something so special, wasn't it?

0:42:560:42:59

Much like Anne's own family,

0:42:590:43:01

they've shown great courage and resilience over the years

0:43:010:43:03

and now, life's got a little bit easier for all of them,

0:43:030:43:06

especially Harriet. And, boy, does she deserve it.

0:43:060:43:09

What an inspirational and uplifting end to the programme.

0:43:090:43:12

And the great news is, since we met Harriet,

0:43:120:43:15

her special chair has now arrived,

0:43:150:43:17

and she's a very happy girl.

0:43:170:43:19

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