Llais i Heti O'r Galon


Llais i Heti

Hanes Heti, 5 oed, sydd wedi derbyn triniaeth arloesol i osod mewnblaniad ar ei ymenydd i'w galluogi i glywed. The first child in Wales to receive new pioneering surgery to allo...


Similar Content

Browse content similar to Llais i Heti. Check below for episodes and series from the same categories and more!

Transcript


LineFromTo

-Subtitles

0:00:000:00:00

-Subtitles

-

-Subtitles

0:00:000:00:02

-Subtitles

0:00:220:00:24

-Every day is different with Heti.

0:00:290:00:31

-She makes us smile.

0:00:320:00:35

-She can walk,

-she can laugh, she can cry.

0:00:390:00:42

-She's no different from anyone else.

0:00:420:00:45

-Some people still say, "Poor thing."

0:00:490:00:52

-But she's a real madam, just like

-any other five-year-old girl.

0:00:530:00:58

-There's no need

-for people to pity her at all.

0:00:580:01:01

-A Voice for Heti

0:01:100:01:14

-Ty Pica Farm, Horeb,

-Carmarthenshire...

0:01:200:01:24

-..home to Heti and her family.

0:01:250:01:27

-At first glance,

-Heti is no different...

0:01:290:01:32

-..from any other

-five-year-old child.

0:01:320:01:35

-But it became apparent early on...

0:01:350:01:38

-..that there was

-a problem with her hearing.

0:01:380:01:41

-One.

0:01:410:01:43

-Two.

0:01:450:01:47

-We realized almost immediately.

0:01:470:01:51

-They carry out aural

-screening tests for every new-born.

0:01:510:01:55

-She failed

-the first test at the hospital.

0:01:560:01:59

-They said, "Don't worry, we'll

-visit you at home in a fortnight.

0:01:590:02:03

-"Perhaps there's

-a build-up of mucous in her ears."

0:02:040:02:08

-They tested her

-when she was a fortnight old...

0:02:080:02:12

-..and she failed that test too.

0:02:120:02:14

-I started thinking,

-'What's going on here?'

0:02:140:02:17

-A week later...

0:02:180:02:20

-..it was confirmed

-that Heti was completely deaf.

0:02:200:02:24

-We were shocked and dismayed.

0:02:240:02:27

-It was something you couldn't

-do anything about at the time.

0:02:280:02:33

-You just had to accept it.

0:02:330:02:35

-No-one wants their children

-to have impairments...

0:02:350:02:39

-..especially when they're new-born.

0:02:400:02:42

-Naturally,

-everyone wants a healthy baby...

0:02:420:02:45

-..with no health worries.

0:02:460:02:48

-We were shocked and disappointed

-and got really down at times.

0:02:490:02:54

-Heti? Where's Heti?

0:02:550:02:57

-Where's Gruff?

0:02:590:03:01

-It was hard to deal with

-because we knew nothing.

0:03:010:03:05

-We had to learn sign language.

0:03:050:03:07

-It was like

-learning a new language...

0:03:080:03:11

-..to a child that

-you yourself weren't familiar with.

0:03:120:03:15

-It was like learning French,

-so it was difficult.

0:03:160:03:19

-It was confirmed

-that the conventional treatment...

0:03:230:03:27

-..of a cochlear implant

-wasn't an option for Heti.

0:03:270:03:32

-We went to Cardiff...

0:03:330:03:35

-..where she had

-an MRI scan and a CT scan.

0:03:360:03:38

-The results came back

-and they found she had no nerves...

0:03:400:03:45

-..between her ears and brain,

-which is exceptionally rare.

0:03:460:03:51

-I remember how I felt.

0:03:530:03:55

-I'd hoped that the cochlear implants

-would've worked.

0:03:550:03:59

-Realizing

-that it wasn't an option...

0:04:000:04:04

-..was worse for me...

0:04:040:04:06

-..than finding out initially

-that she was deaf.

0:04:070:04:10

-Heti? Do you want any bread?

0:04:120:04:14

-No? Cheese?

0:04:150:04:17

-No. OK, nothing.

0:04:170:04:19

-Shortly after receiving the news...

0:04:200:04:22

-..Rhys and Elin found out

-about a new treatment called ABI...

0:04:220:04:27

-..or Auditory Brain Implant, a

-pioneering treatment in Manchester.

0:04:270:04:33

-It would involve inserting

-an implant into Heti's brain.

0:04:330:04:37

-A treatment, if successful...

0:04:370:04:39

-..would enable her

-to hear for the first time...

0:04:400:04:43

-..but one which could also be

-life threatening.

0:04:430:04:46

-I didn't want it to begin with...

0:04:470:04:49

-..because it sounded too dangerous.

0:04:490:04:53

-But you were keen for us...

0:04:530:04:57

-..to find out more about it

-before making a decision.

0:04:570:05:01

-So that's what we did.

0:05:010:05:03

-I always think that if you

-don't try, then you'll never know.

0:05:030:05:08

-There was a 50/50 chance -

-it was a dangerous operation.

0:05:080:05:14

-But you try to do the best

-for your child.

0:05:140:05:17

-We went through

-two or three horrible days...

0:05:210:05:24

-..because all we did was watch

-her sleep until she came round.

0:05:240:05:29

-She didn't look well.

0:05:290:05:34

-She'd undergone

-a seven or eight-hour operation.

0:05:370:05:42

-The day of the operation

-was horrible.

0:05:420:05:45

-It's not a nice experience

-thinking back.

0:05:450:05:48

-The op

-took about six or seven hours.

0:05:490:05:53

-I remember seeing the surgeons come

-into the high-dependency unit...

0:05:530:05:59

-..where we were staying,

-and seeing their faces.

0:05:590:06:03

-They were smiling and I thought,

-'Thanks goodness, everything's OK.'

0:06:030:06:08

-I get very emotional about it.

0:06:090:06:11

-It was a major operation

-for someone so small.

0:06:110:06:14

-Yes, she was so small...

0:06:140:06:16

-..and you were

-putting her life in their hands.

0:06:160:06:20

-But we had faith

-in the surgeon, didn't we?

0:06:210:06:24

-He was confident.

0:06:250:06:28

-Heti is the first child in Wales...

0:06:280:06:32

-..to receive this special implant...

0:06:320:06:35

-..and one in only a handful

-of children in Britain.

0:06:350:06:39

-There's a magnet in here.

0:06:400:06:42

-It attaches to the side of her head.

0:06:430:06:45

-Within it is a disc...

0:06:450:06:48

-..very similar to this...

0:06:490:06:52

-..and a much smaller lead than this.

0:06:530:06:56

-On top of that

-is a small electrode...

0:06:560:06:59

-..that's been placed

-on Heti's brainstem.

0:06:590:07:02

-I usually put the lead on first.

0:07:020:07:05

-This dot here

-connects with this dot here...

0:07:050:07:10

-..in case someone forgets

-how it's attached.

0:07:100:07:13

-In the beginning,

-I used to take ages doing this...

0:07:130:07:17

-..but now it's become part of

-getting dressed in the morning.

0:07:170:07:21

-This goes up here, doesn't it, Heti?

0:07:210:07:24

-This goes on her head like that.

0:07:250:07:27

-This part is just something

-to help it stay on her ear.

0:07:270:07:32

-We also put sticky double-sided tape

-on the back...

0:07:330:07:37

-..and then that goes...

0:07:380:07:40

-Put it on!

0:07:400:07:42

-You're being cheeky! Typical!

0:07:430:07:47

-Come on, put it on.

0:07:490:07:52

-You monkey!

0:07:520:07:54

-That's supposed to go

-on the side of her head.

0:07:540:07:57

-It astounds me...

0:08:000:08:02

-..when I get reports

-back from school...

0:08:020:08:05

-..saying what she's done or said.

0:08:050:08:07

-Every day is different with Heti.

0:08:080:08:10

-She makes us smile, don't you, Hets?

0:08:100:08:14

-The operation was a major success...

0:08:200:08:23

-..and Heti was able to hear.

0:08:230:08:25

-Her communication skills

-needed to be developed...

0:08:250:08:28

-..at school.

0:08:290:08:31

-Where's your coat?

0:08:330:08:35

-No?

0:08:350:08:37

-Look, it's Michael. Hello.

0:08:430:08:45

-She's been in school

-for a year and a half.

0:08:450:08:48

-She started sooner than expected...

0:08:480:08:51

-..because

-there was room at the unit.

0:08:510:08:54

-She's very happy there. It's

-made a world of difference to her.

0:08:540:08:58

-Come on then. Quick, Dadi!

0:09:000:09:03

-Heti travels to Parcyrhun

-Primary School in Ammanford....

0:09:160:09:21

-..where there's

-a special unit for deaf children.

0:09:210:09:25

-Off you go, Heti. Let's see

-what number Heti's going to choose.

0:09:250:09:29

-Which one, I wonder?

0:09:300:09:31

-Heti's fully at home here...

0:09:320:09:34

-..and her speech

-is developing well...

0:09:340:09:37

-..which is a comfort

-to Elin and Rhys.

0:09:380:09:40

-Come and stand here.

0:09:400:09:42

-Why are you feeling like a number

-10? You're obviously very happy.

0:09:430:09:48

-Because it was your birthday.

0:09:500:09:52

-How old are you? How old?

0:09:530:09:55

-Five. Good girl. OK.

0:09:560:09:59

-She's no different to us.

0:09:590:10:02

-She can hear and she only hears what

-she wants to hear sometimes too!

0:10:030:10:09

-If she doesn't want to hear...

0:10:090:10:12

-..she pulls the magnet off herself.

0:10:130:10:15

-She'll clip it back on sometimes...

0:10:160:10:18

-..but she uses it

-to her advantage, to be honest.

0:10:180:10:23

-She does what she wants with it.

0:10:230:10:26

-Before she had it, she could've

-stood next to a jumbo jet...

0:10:260:10:30

-..and she wouldn't

-have heard a thing.

0:10:300:10:33

-Without her implant,

-she hears nothing.

0:10:330:10:36

-When she's wearing the device,

-she hears 30 decibels...

0:10:370:10:42

-..which is staggering.

0:10:430:10:45

-It's like loud whispering -

-that's how they describe it.

0:10:450:10:49

-It's astounding.

0:10:500:10:52

-She can hear the required amount

-of decibels to hear speech.

0:10:520:10:58

-Duck. Duck. Good girl.

-Good listening.

0:10:590:11:02

-She has the ability

-to develop her speech.

0:11:030:11:07

-That's incredible because

-when she first had the implant...

0:11:070:11:12

-..the doctor said,

-"What are your expectations?"

0:11:120:11:15

-We said we wanted her

-to hear environmental noise.

0:11:160:11:19

-He said, "You've got the right

-attitude because I can't promise...

0:11:190:11:23

-"..that she'll hear

-anything more than that."

0:11:230:11:27

-She passed that stage a while ago.

0:11:270:11:29

-Anything she hears on top of that

-is a bonus, really.

0:11:300:11:33

-Sheep.

0:11:330:11:36

-Hello!

0:11:360:11:38

-Heti's the first child

-that we know of in Wales...

0:11:380:11:41

-..to have this hearing device.

0:11:420:11:44

-It's been

-a learning curve for us all.

0:11:440:11:46

-She's surpassed our expectations

-with environmental sounds.

0:11:470:11:50

-I think she's got places to go.

0:11:510:11:53

-We've reached one milestone,

-we'll go to the next one.

0:11:530:11:57

-We're always looking how to move on.

0:11:570:11:59

-What any child needs in the base,

-that child will have.

0:12:000:12:03

-Heti is special,

-as they all are here.

0:12:040:12:06

-They all have

-their tailor-made curriculum...

0:12:060:12:10

-..to whatever they need,

-as you can see.

0:12:100:12:13

-Shall we do it again or not?

0:12:130:12:14

-Shall we do it again or not?

-

-No.

0:12:140:12:16

-Do you want to do something

-different? What do you want to do?

0:12:160:12:20

-Would you like to get a book?

0:12:210:12:23

-Yes. Pardon?

0:12:240:12:25

-Yes, please.

0:12:250:12:27

-Go and get a book. Go and get one.

0:12:270:12:30

-Delyth Evans is

-a peripatetic teacher of the deaf.

0:12:320:12:38

-She has also been supportive

-to Heti and her family...

0:12:380:12:41

-..and was present

-in the early sessions...

0:12:420:12:45

-..to assess how much Heti

-could hear with the implant.

0:12:450:12:49

-The therapist told Elin,

-"We're going to turn it on...

0:12:490:12:53

-"..to see if Heti responds."

0:12:530:12:56

-I remember looking at the audiology

-man, thinking, 'Will it work?'

0:12:560:13:01

-We tried it and waited.

0:13:010:13:04

-He turned it on

-and the first thing Heti did...

0:13:040:13:07

-..was turn to look

-where the sound was coming from.

0:13:080:13:11

-It was a wailing siren

-and she turned towards it.

0:13:110:13:14

-It was lovely to see because

-it had never happened before.

0:13:150:13:20

-It was lovely to see, I have to say.

0:13:220:13:26

-It was an unforgettable day

-in my career.

0:13:260:13:30

-Delyth, the teacher of the deaf...

0:13:390:13:42

-..took me to the unit

-at Ysgol Parcyrhun...

0:13:430:13:46

-..when Heti

-was only a couple of months old.

0:13:460:13:49

-It made

-a world of difference to me...

0:13:490:13:52

-..to see deaf children

-behaving normally...

0:13:520:13:57

-..like every other child.

0:13:570:13:59

-There was

-another there like Heti...

0:13:590:14:02

-..who had no nerves

-between her ears and brain.

0:14:020:14:05

-Just seeing her

-being completely normal...

0:14:050:14:09

-..was of great comfort to me.

0:14:090:14:11

-.

0:14:180:14:19

-Subtitles

0:14:210:14:21

-Subtitles

-

-Subtitles

0:14:210:14:23

-Three years ago, Heti

-underwent revolutionary surgery...

0:14:340:14:38

-..to insert

-an implant in her brain...

0:14:380:14:41

-..to enable her

-to hear for the first time.

0:14:410:14:44

-It was a difficult decision

-for her parents.

0:14:440:14:47

-It was a big decision to make.

0:14:470:14:50

-Some people

-might question our decision...

0:14:510:14:54

-..and wonder why we didn't let Heti

-decide for herself when she's older.

0:14:550:14:59

-But it would've been

-too late by then.

0:15:000:15:03

-The doctor in Manchester...

0:15:030:15:05

-..said she was

-an ideal candidate to have it...

0:15:050:15:09

-..because she had no other problems,

-no special educational needs.

0:15:090:15:14

-To get the best out of the implant,

-she needed it before she was two.

0:15:140:15:20

-Heti now had partial hearing.

0:15:250:15:28

-A remarkable fact for a child

-who was born completely deaf.

0:15:280:15:32

-The next challenge

-was to develop her speech skills...

0:15:330:15:37

-..at a specialist centre

-near Oxford.

0:15:370:15:39

-We come here once every fortnight.

0:15:400:15:43

-We've been coming here regularly

-for just over a year.

0:15:430:15:48

-It's made such a difference...

0:15:490:15:51

-..to the way

-Heti listens and hears...

0:15:510:15:56

-..and makes sense of the sounds

-she can hear with the implant.

0:15:560:16:01

-It's been incredible.

0:16:010:16:02

-It's been incredible.

-

-Shall we get a book about a shark?

0:16:020:16:04

-It's a journey of

-almost four hours by car one way...

0:16:050:16:10

-..that we make every fortnight.

0:16:100:16:13

-It means taking a day off work

-for Rhys or myself.

0:16:130:16:16

-My mother or Rhys' mother comes to

-keep Heti company in the back seat.

0:16:160:16:22

-It takes a lot of effort...

0:16:220:16:25

-..coupled with

-the financial cost, of course.

0:16:250:16:28

-Do you want Mami to do it?

0:16:300:16:32

-Ow! Ow!

0:16:340:16:36

-Rub, rub. Are you rubbing it?

0:16:360:16:39

-They offer

-specialist speech therapy...

0:16:390:16:43

-..to the children at this unit...

0:16:440:16:46

-..which is a new approach

-to teaching children...

0:16:470:16:51

-..instead of the usual

-speech therapy given at home.

0:16:510:16:55

-They use specific techniques...

0:16:560:16:59

-..to get the child to listen

-and use the hearing they have...

0:17:000:17:04

-..to communicate

-and do all kinds of things...

0:17:040:17:09

-..without having to sign.

0:17:090:17:11

-..and the fish,

-and they all say, "No, no, no."

0:17:110:17:15

-No, no, no, no.

0:17:150:17:17

-"We don't want to play.

0:17:170:17:20

-"You're too scary."

-But, Heti, look. What's that?

0:17:200:17:24

-Over 90% of children born deaf

-have hearing parents.

0:17:240:17:28

-What we need to do is furnish

-parents with all the information...

0:17:280:17:33

-..about possible different

-communication avenues...

0:17:330:17:38

-..and to also furnish them

-with the outcomes.

0:17:390:17:42

-I got it out.

0:17:420:17:44

-The first job we have to do

-is engage Heti's listening.

0:17:450:17:48

-So we have to motivate her...

0:17:490:17:51

-..to find something interesting

-in the sound...

0:17:510:17:54

-..that she's perceiving

-through her technology.

0:17:550:17:58

-Mam-gu has got no play dough.

0:17:580:18:00

-We want some play dough, Sarah.

0:18:020:18:05

-Hold out your hand, Mam-gu.

0:18:050:18:07

-Can we have some play dough, please?

0:18:070:18:09

-You can,

-but that's quite a long sentence!

0:18:100:18:13

-Just hold out your hand

-and say play dough.

0:18:130:18:16

-Play dough, please.

0:18:160:18:18

-Play dough, please.

-

-You're so polite.

0:18:180:18:20

-No please and thank-yous

-in here, Mam!

0:18:200:18:23

-Play dough.

0:18:230:18:25

-The reason is because Heti

-is at that stage of listening...

0:18:250:18:29

-..where the end of the sentence...

0:18:290:18:32

-..is going to be

-the thing she listens to best.

0:18:320:18:36

-So if you say, "Play dough, please,"

-she'll listen to the please.

0:18:360:18:40

-If you hold your hand

-and give the label...

0:18:400:18:43

-..your gesture

-tells me you want it...

0:18:430:18:46

-..your mouth tells me the thing.

0:18:460:18:48

-Play dough.

0:18:490:18:51

-Because so few children

-have the same implant as Heti...

0:18:530:18:57

-..it was difficult to know whether

-she'd pick up a second language.

0:18:580:19:02

-The school is English-speaking

-as well as this centre...

0:19:020:19:06

-..so we decided that we

-would speak more English to her.

0:19:070:19:11

-It was a tough decision to take...

0:19:110:19:13

-..because we're

-a Welsh-speaking family...

0:19:140:19:17

-..and I work

-through the medium of Welsh.

0:19:170:19:20

-It was a difficult decision...

0:19:200:19:22

-..but everyone understands

-it's for Heti's benefit.

0:19:220:19:26

-Hopefully she'll be able to pick up

-a second language. We don't know.

0:19:260:19:31

-Ah!

0:19:310:19:33

-Push it down. Push it down.

0:19:360:19:39

-The likely outcome for Heti is that

-her auditory brainstem implant...

0:19:390:19:44

-..is going to be

-an aid to her lip reading...

0:19:440:19:47

-..and her understanding of

-spoken speech through visual cues...

0:19:480:19:51

-..and probably

-some signed language as well.

0:19:520:19:56

-So it's a boost to her,

-to her understanding.

0:19:560:20:02

-I love working with Heti.

-She's an amazing little girl.

0:20:040:20:08

-She has great communicative ability,

-in any case...

0:20:090:20:14

-..and she's a great little thinker.

0:20:150:20:17

-Dadi? Yes?

0:20:200:20:22

-Seeing Heti before this

-and how she is now...

0:20:230:20:26

-..goes to show that it's worth it.

0:20:260:20:30

-She's become a lot more vocal.

0:20:300:20:32

-She hears a lot more.

0:20:320:20:34

-She understands me telling her,

-"Where's Dolly?"

0:20:340:20:38

-She fetches the dolly and

-fetches her shoes if you ask her.

0:20:380:20:42

-She brushes her teeth

-and little things like that.

0:20:420:20:46

-She's talking,

-she says Mami, Dadi, Gruff.

0:20:460:20:49

-She's starting to say

-simple little things too.

0:20:500:20:54

-Before this, she didn't say a word.

0:20:540:20:57

-We're hoping

-she'll improve even more.

0:20:570:21:02

-It's definitely worth it,

-without a doubt.

0:21:020:21:05

-Despite the benefits

-of the therapy for Heti...

0:21:170:21:21

-..sessions are costly.

0:21:210:21:24

-Over the past year,

-Elin and Rhys' family and friends...

0:21:240:21:28

-..have come together to raise funds.

0:21:290:21:31

-It all started a year ago...

0:21:310:21:33

-..when my brother-in-law

-ran the Snowdonia Marathon...

0:21:340:21:37

-..and raised money for Heti.

0:21:380:21:40

-He raised 4,000,

-which was astounding.

0:21:400:21:43

-Many things

-have happened since then.

0:21:430:21:45

-We held an auction and lots of local

-organisations have donated money.

0:21:460:21:50

-It means a lot to us as a family

-that people think so much of Heti.

0:21:510:21:55

-I have to say, she's very lucky.

0:21:550:21:58

-Come on, Rach! Well done!

0:21:590:22:01

-It's this noisy environment which

-continues to pose problems for Heti.

0:22:050:22:10

-She's not too keen.

-She's flicked the device off now.

0:22:130:22:17

-There's too much noise here for her.

0:22:170:22:19

-She doesn't like being

-in a noisy environment like this...

0:22:200:22:25

-..with lots of shouting

-and different sounds.

0:22:250:22:29

-But in the silence

-at home and at school...

0:22:290:22:32

-..she enjoys the fact that she

-can hear and makes the most of it.

0:22:320:22:36

-We're pleased she's had the implant.

0:22:360:22:39

-It was good.

0:22:400:22:42

-Was it good? How on earth

-did you get up that wall?

0:22:420:22:46

-Hiya, Heti. Are you OK?

0:22:460:22:48

-Hiya, Heti. Are you OK?

-

-She's good.

0:22:480:22:49

-She'll be doing it with us

-once she's old enough!

0:22:500:22:52

-Elin and Rhys have given

-their daughter Heti a chance...

0:22:570:23:00

-..to hear the world around her...

0:23:010:23:03

-..and they're also determined

-that she will lead a normal life.

0:23:030:23:07

-When Heti's

-much older than she is now...

0:23:100:23:14

-..she'll be able to speak better.

0:23:140:23:17

-And understand things.

-That's what's important.

0:23:170:23:21

-She needs to mix with children.

0:23:210:23:23

-Though she's at Parcyrhun

-and we're in Carmarthen...

0:23:240:23:28

-..lots of her friends are up there.

0:23:280:23:30

-She's no different

-from anyone else now.

0:23:310:23:34

-She has her own personality

-and I wouldn't change her...

0:23:340:23:39

-..because that's the way she is.

0:23:390:23:41

-That's the personality

-we're used to.

0:23:420:23:44

-I wouldn't change her for the world.

0:23:450:23:47

-She's a unique character.

0:23:490:23:52

-She's very determined...

0:23:520:23:54

-..and I think that's a good thing...

0:23:540:23:57

-..because

-she's going to encounter problems.

0:23:570:24:00

-The fact she's determined will stand

-her in good stead for the future.

0:24:000:24:07

-But she's also very sweet.

0:24:070:24:10

-She's a real character.

0:24:140:24:16

-Seeing her and Gruff together

-is great. We're very lucky.

0:24:160:24:21

-.

0:24:260:24:27

-For information

-about organizations and resources...

0:24:270:24:30

-..that advise and offer assistance

-to the deaf and hard of hearing...

0:24:310:24:35

-..visit our website -

-s4c.co.uk/help

0:24:350:24:37

-.

0:24:380:24:39

-S4C Subtitles by Adnod Cyf.

0:24:460:24:48

-.

0:24:480:24:49

Hanes Heti, 5 oed, sydd wedi derbyn triniaeth arloesol i osod mewnblaniad ar ei ymenydd i'w galluogi i glywed. The first child in Wales to receive new pioneering surgery to allow her to hear