Fy Chwaer a Fi ‹ Cyfres 1

Line	From	To
-Subtitles	0:00:00	0:00:00
-Subtitles - -Subtitles	0:00:00	0:00:02
-This year, I've been privileged to -get to know twins from Llanelli...	0:00:21	0:00:25
-..who suffer from a cruel -and unique disorder.	0:00:25	0:00:29
-This film captures every aspect -of their lives.	0:00:29	0:00:32
-The girls are keen to tell -their story while they still can.	0:00:32	0:00:36
-Though they're from -a Welsh-speaking background...	0:00:36	0:00:40
-..the illness -has rendered them mute.	0:00:40	0:00:43
-Bound by an electronic speech aid, -they have lost their mother tongue.	0:00:43	0:00:48
-They can now -only communicate in English.	0:00:48	0:00:51
-This is their story -in their own words.	0:00:51	0:00:54
-Hi, I'm Kirstie.	0:01:08	0:01:10
-And I'm Catherine. -People know us as the Fields Twins.	0:01:10	0:01:14
-We suffer from -a unique neurological condition...	0:01:17	0:01:21
-..that's slowly taking away -all our muscle control.	0:01:21	0:01:25
-We both suffer from painful spasms.	0:01:25	0:01:27
-We are the only people in the world -who have this illness...	0:01:28	0:01:32
-..so the doctors have named it -after us - Fields Condition.	0:01:32	0:01:36
-We are not expected -to live very long.	0:01:39	0:01:42
-No-one knows for sure -what is ahead of us...	0:01:42	0:01:45
-..but the doctors have no cure and -we've started going to a hospice.	0:01:45	0:01:50
-We've lost our mobility...	0:01:56	0:01:58
-..and a few years ago, -we lost our voices.	0:01:59	0:02:01
-This year, as we turn 18, we wanted -to make this film together...	0:02:02	0:02:06
-..to share our thoughts -on our world...	0:02:06	0:02:09
-..while we still can.	0:02:10	0:02:12
-Our lives can be really scary...	0:02:12	0:02:14
-..but we have not lost heart.	0:02:14	0:02:16
-We try to face the world -with a smile.	0:02:17	0:02:19
-This is our story.	0:02:25	0:02:26
-In our own words.	0:02:27	0:02:29
-These are the girls' -new means of communication.	0:02:44	0:02:47
-These machines will enable them -to speak and express their emotions.	0:02:48	0:02:53
-In order to tell them apart, Kirstie -has chosen an Australian accent...	0:02:59	0:03:04
-..while Catherine -has chosen an American accent.	0:03:04	0:03:08
-Today, they are being taught -how to use the machines.	0:03:10	0:03:13
-Kirstie is already misbehaving.	0:03:14	0:03:16
-Already I can say things -I've wanted to say for a long time.	0:03:17	0:03:21
-Mam, do you and Dadi have sex?	0:03:27	0:03:31
-Kirst!	0:03:33	0:03:34
-Kirst! - -That's personal!	0:03:34	0:03:36
-I love winding Mami up.	0:03:37	0:03:40
-Kirstie is so cheeky. What she says -is always so embarrassing.	0:03:40	0:03:45
-And Cath's hiding!	0:03:45	0:03:47
-And Cath's hiding! - -But I love her to bits.	0:03:47	0:03:49
-Before they had -the communication aid...	0:03:49	0:03:52
-..the only way they could...	0:03:52	0:03:55
-..if they wanted to tell someone...	0:03:55	0:03:57
-For me, I could -have a conversation with them...	0:03:57	0:04:01
-..by asking them questions...	0:04:01	0:04:03
-..and they'd answer -with a thumbs up...	0:04:03	0:04:09
-..which means yes...	0:04:09	0:04:11
-..and a shake of the head for no.	0:04:11	0:04:15
-They can now have conversations -with everybody.	0:04:15	0:04:19
-Once they've picked it up, I think -there'll be no stopping them.	0:04:19	0:04:23
-Do you remember the Ty Hafan button?	0:04:24	0:04:26
-Welsh is our first language...	0:04:27	0:04:29
-..and we think everybody in Wales -should speak it.	0:04:29	0:04:33
-As you can tell, unfortunately, -the machine can't speak Welsh!	0:04:34	0:04:40
-But to be honest, I am happy -to be able to speak at all.	0:04:41	0:04:44
-I'm excited -they have their voices back.	0:04:45	0:04:47
-Just for the little things.	0:04:48	0:04:50
-They can argue -and quarrel with each other now!	0:04:50	0:04:53
-They can sit there -and just have chit-chats.	0:04:54	0:04:59
-Without the communication aid...	0:04:59	0:05:02
-..if it's just the girls and me -at home...	0:05:04	0:05:07
-..mine is the only voice -you can hear.	0:05:07	0:05:10
-# Merry Christmas	0:05:10	0:05:12
-# And a Happy New Year #	0:05:12	0:05:15
-Go and fetch your sacks then!	0:05:15	0:05:17
-Dadi, get up!	0:05:19	0:05:21
-Don't open anything yet.	0:05:23	0:05:25
-We remember loads about life -before we got ill.	0:05:27	0:05:31
-I really like watching -old home videos. It's a laugh.	0:05:31	0:05:36
-I enjoy the memories...	0:05:40	0:05:42
-..but it makes me sad to think -I can't do those things any more.	0:05:42	0:05:47
-When they were young, Kirstie -and Catherine were full of energy...	0:05:47	0:05:51
-..singing and dancing -with their friends.	0:05:51	0:05:54
-# Sha-la-la-la-la-la-la-la #	0:05:54	0:05:58
-Gradually, from the age of four -onwards, they both began to change.	0:05:58	0:06:02
-They noticed they were clumsy and -would fall over more than others.	0:06:03	0:06:07
-When they visited the doctors -for answers, none came.	0:06:08	0:06:13
-Living with Fields Condition...	0:06:13	0:06:15
-..is really difficult -and it's getting worse.	0:06:15	0:06:19
-It sucks.	0:06:19	0:06:21
-Well done.	0:06:23	0:06:24
-Hello!	0:06:34	0:06:35
-For the past two years, the family -has been coming to Ty Hafan.	0:06:35	0:06:40
-The hospice provides care -for those children...	0:06:40	0:06:43
-..who doctors believe -won't live beyond the age of 19.	0:06:43	0:06:47
-That's a really scary thought -but Ty Hafan isn't a scary place.	0:06:47	0:06:52
-We love it here. They look after us -in so many different ways.	0:06:52	0:06:58
-It was difficult when we -actually received the letter...	0:06:58	0:07:02
-..telling us -we had been accepted to go there...	0:07:02	0:07:06
-..because you have to fulfil -a certain criteria...	0:07:06	0:07:09
-..and not everyone is eligible.	0:07:09	0:07:12
-You are reviewed annually.	0:07:12	0:07:14
-When we received the letter -last year...	0:07:14	0:07:17
-..telling us -the girls had been accepted...	0:07:17	0:07:20
-..the reality of the situation -hit us.	0:07:21	0:07:23
-I was chuffed...	0:07:23	0:07:25
-..but the reality of why -they had been accepted hit home.	0:07:25	0:07:29
-I had to tell the girls about it.	0:07:29	0:07:32
-When it came to telling them...	0:07:34	0:07:36
-..I said that some children -go there to die...	0:07:37	0:07:41
-..because they only live -a very short life.	0:07:41	0:07:46
-Like everyone else, I don't know -if it's going to happen...	0:07:47	0:07:51
-..or rather -when it's going to happen.	0:07:51	0:07:54
-Neither you or I know. No-one knows -when they're going to die.	0:07:54	0:07:58
-But by going -to somewhere like Ty Hafan...	0:07:58	0:08:02
-..the girls can see...	0:08:02	0:08:04
-I know it's difficult -when they see friends dying...	0:08:08	0:08:12
-..but it's life, and you can't -protect them from everything.	0:08:12	0:08:17
-They have to know -about these things.	0:08:17	0:08:21
-If you wrap them in cotton wool...	0:08:21	0:08:26
-..it's the wrong thing to do.	0:08:26	0:08:28
-But yet you've got to be sensitive -about things too.	0:08:28	0:08:32
-Hayley Mason works with the girls -at home as well as at the hospice.	0:08:35	0:08:40
-A handprint to put on the wall, -so today...	0:08:40	0:08:43
-Hayley is nutty, kind -and a beautiful person. We love her.	0:08:43	0:08:47
-That is not me!	0:08:48	0:08:50
-Excuse you!	0:08:52	0:08:53
-They can't speak, but it doesn't -stop me asking them questions...	0:08:53	0:08:58
-..and speaking to them as I would do -with anyone else who can speak.	0:08:59	0:09:03
-But it is difficult.	0:09:03	0:09:06
-In a way, the girls' feelings -are stuck in their heads.	0:09:07	0:09:12
-It's difficult for them...	0:09:12	0:09:15
-..to express how they feel...	0:09:15	0:09:18
-..how things are going -or if they are worried about things.	0:09:18	0:09:23
-But it's important to do that -because they do have things to say.	0:09:24	0:09:28
-It's important to do that.	0:09:28	0:09:31
-For six months, Hayley's focus -has been on helping the girls...	0:09:38	0:09:43
-..to share their emotions -by using the communication aids.	0:09:44	0:09:47
-We used to talk at night -and put the world to rights.	0:09:48	0:09:51
-Kirstie is the noisy one -and she would jabber on all night.	0:09:51	0:09:55
-We talked a lot of crap. -I miss those chats.	0:09:56	0:10:00
-Now we have to lie there -next to each other in silence.	0:10:02	0:10:05
-It sucks.	0:10:06	0:10:08
-So there's nothing off limits? -Are you sure? I'm just checking.	0:10:08	0:10:12
-Using our speech aids -to talk to someone...	0:10:13	0:10:16
-..has opened up -a whole new world for us.	0:10:16	0:10:19
-We hope that listening -to these conversations...	0:10:19	0:10:22
-..will give you a better -understanding of our lives.	0:10:22	0:10:27
-The only one who knows what you're -going through is Catherine...	0:10:28	0:10:32
-..and the only one who knows what -you're going through is Kirstie...	0:10:32	0:10:37
-..yet you can't speak about it.	0:10:37	0:10:39
-That's pretty pants.	0:10:39	0:10:41
-That's pretty pants.	0:10:42	0:10:44
-Miss it.	0:10:45	0:10:47
-You miss being able to have -a good chat with your sister?	0:10:47	0:10:51
-I bet you do, sweetheart.	0:10:51	0:10:53
-How hard it is. How hard it is.	0:11:00	0:11:02
-You want to say to Kirstie -how hard it is?	0:11:03	0:11:06
-Is that something -you think about every day?	0:11:10	0:11:13
-Would it help if you could talk -to your sister a bit more about it?	0:11:19	0:11:23
-That's something we can do together, -the three of us.	0:11:24	0:11:27
-Yeah, that'd be good, wouldn't it?	0:11:28	0:11:30
-We can have some time together, -the three of us. Yeah?	0:11:30	0:11:34
-Then you can have time -with each other...	0:11:35	0:11:38
-..to talk about different things.	0:11:38	0:11:40
-Are you tired now, sweetheart?	0:11:43	0:11:45
-Yes. It's hard work, isn't it?	0:11:45	0:11:49
-Shall we finish for the day? Yes?	0:11:53	0:11:56
-.	0:12:11	0:12:11
-Subtitles	0:12:15	0:12:15
-Subtitles - -Subtitles	0:12:15	0:12:17
-Kirstie and Catherine Fields -live in Bryn near Llanelli.	0:12:21	0:12:25
-Their parents are Lyn and Chris.	0:12:25	0:12:28
-Dadi is sarcastic and grumpy...	0:12:29	0:12:31
-..and he swears a lot, -but he has a wicked sense of humour.	0:12:31	0:12:35
-Mami is funny and lovable.	0:12:38	0:12:40
-She looks after us -and she thinks about everyone.	0:12:40	0:12:44
-They both have hearts of gold.	0:12:44	0:12:47
-The girls are having a makeover -and they're having their hair done.	0:12:57	0:13:02
-They're having a photo shoot.	0:13:02	0:13:04
-The girls are doing -what other girls of their age do.	0:13:05	0:13:09
-They're being pampered.	0:13:10	0:13:11
-One of the best things -about Ty Hafan...	0:13:12	0:13:14
-..is that we get treated normally.	0:13:14	0:13:17
-Some people -tend to treat us like babies.	0:13:17	0:13:20
-Just because I can't talk, -they patronize me...	0:13:20	0:13:24
-..and treat me like I'm stupid.	0:13:24	0:13:27
-They make me angry too.	0:13:27	0:13:29
-I know they're trying to be nice -but they are just being idiots.	0:13:29	0:13:34
-People who know them and -their friends treat them the same...	0:13:34	0:13:38
-..as they would their other friends.	0:13:38	0:13:41
-Those who don't know them -would see the wheelchair first.	0:13:41	0:13:46
-Everybody's treated the same here.	0:13:47	0:13:50
-Amy Clair Davies is a friend -they met at the hospice.	0:13:50	0:13:56
-She's a good laugh and pretty.	0:13:56	0:13:59
-She goes nuts when people stare -at her. She knows how we feel.	0:13:59	0:14:04
-It's hard when you have -a physical disability on its own...	0:14:04	0:14:08
-..because people automatically -assume you're thick...	0:14:09	0:14:13
-..or you don't understand -what's going on.	0:14:13	0:14:16
-But once -you start talking to them...	0:14:16	0:14:19
-..that person's opinion -can get turned around...	0:14:19	0:14:23
-..because they realize -you have a sense of humour.	0:14:23	0:14:26
-You can lighten the atmosphere.	0:14:27	0:14:29
-For the twins, -it must be twice as hard...	0:14:29	0:14:32
-..because they've got the physical -impairment and they can't talk.	0:14:32	0:14:37
-They're missing out on the physical -side of the relationship...	0:14:37	0:14:42
-..and missing out with a lot -of people on the emotional side...	0:14:42	0:14:46
-..on the social part.	0:14:46	0:14:48
-I think the twins cope remarkably -well considering the situation.	0:14:48	0:14:53
-They laugh and they smile -and they get on with it.	0:14:53	0:14:57
-They do normal things.	0:14:57	0:15:00
-You see through the cracks -when you're in a similar situation.	0:15:01	0:15:05
-You see something happen -and you think...	0:15:06	0:15:10
-..that must be a really, -really shitty day or moment.	0:15:11	0:15:17
-It must be really annoying.	0:15:17	0:15:19
-Look at those smiles!	0:15:19	0:15:21
-How long have you been sisters? -That's a tricky question!	0:15:23	0:15:26
-You're 18 this year, are you?	0:15:26	0:15:28
-Wow! Wish I was 18 again.	0:15:29	0:15:31
-It's good, isn't it?	0:15:37	0:15:38
-Do you feel the heat?	0:15:41	0:15:43
-I'm having a spasm here. -I can't control them.	0:15:48	0:15:52
-I shake and my muscles -sometimes lock in position.	0:15:52	0:15:56
-Sometimes they hurt so much -I want to scream, but I can't.	0:16:03	0:16:07
-Finished?	0:16:18	0:16:20
-Hold my hand.	0:16:24	0:16:26
-Do you feel alright now?	0:16:26	0:16:28
-Are you sure?	0:16:29	0:16:31
-Kirstie and Catherine -have more than 100 spasms a day.	0:16:32	0:16:36
-Some are worse than others and -the girls have no control over them.	0:16:36	0:16:41
-All they can do -is wait for the spasm to pass.	0:16:41	0:16:45
-But the girls always deal with them -with a big smile.	0:16:45	0:16:49
-If we feel emotional in any way, -happy or sad...	0:16:50	0:16:53
-..it makes our spasms worse.	0:16:54	0:16:57
-We found ourselves -in a vicious circle.	0:16:57	0:17:00
-Spasms make us upset -and getting upset makes us spasm.	0:17:00	0:17:05
-I'm not going to have a hand left -if it gets any stronger.	0:17:08	0:17:13
-When Catherine got upset, -I thought, what is going on here?	0:17:16	0:17:20
-Something happens...	0:17:20	0:17:22
-..but perhaps sometimes -it's easier to say, "I'm fine"...	0:17:23	0:17:27
-..or, "I don't know why -I'm feeling this way."	0:17:27	0:17:31
-Perhaps that's why -they go like that all the time.	0:17:31	0:17:35
-It's an easy answer, isn't it?	0:17:36	0:17:38
-Why were you crying?	0:17:38	0:17:40
-You don't know?	0:17:43	0:17:45
-Are you sure? Nothing's wrong?	0:17:45	0:17:48
-You're not in pain? Nothing's -hurting you or upsetting you?	0:17:49	0:17:54
-It's just come on like that, has it?	0:17:54	0:17:59
-And you don't know why?	0:17:59	0:18:01
-Are you alright now?	0:18:03	0:18:05
-It's very important...	0:18:06	0:18:08
-..for them -to express their feelings.	0:18:08	0:18:11
-If they can't talk about -what they're going through...	0:18:11	0:18:15
-..or if they can't talk about -the things that are worrying them...	0:18:15	0:18:19
-..it makes things worse.	0:18:19	0:18:21
-You've got four hands.	0:18:23	0:18:25
-This way, girls. Beautiful.	0:18:28	0:18:31
-Perfect. Hold that there.	0:18:31	0:18:33
-I feel devastated -about my condition.	0:18:37	0:18:43
-What part of your condition -makes you feel so devastated?	0:18:47	0:18:52
-SM.	0:18:52	0:18:54
-Spasm.	0:18:55	0:18:56
-Your spasms?	0:18:56	0:18:59
-Do you think -it stops you doing things or...?	0:18:59	0:19:03
-No? It just slows you down?	0:19:03	0:19:06
-Don't sleep.	0:19:09	0:19:10
-Don't sleep. - -It stops you sleeping?	0:19:10	0:19:12
-Are your spasms -getting better or worse?	0:19:13	0:19:15
-Same.	0:19:16	0:19:18
-Is it the spasms that get you down -the most out of all your condition?	0:19:20	0:19:24
-Worse than not being able to walk?	0:19:25	0:19:27
-Worse than not being able to talk?	0:19:27	0:19:30
-The spasms -are the worst thing for you?	0:19:30	0:19:33
-Do you think you can talk -to your doctor about them next time?	0:19:33	0:19:37
-No point.	0:19:38	0:19:39
-No point. - -There's no point?	0:19:39	0:19:41
-Do you think -she might not be able to help?	0:19:41	0:19:44
-She might be able to help.	0:19:44	0:19:46
-No? So what can we do -to help your spasms?	0:19:47	0:19:49
-Don't know. Do you think there's -anything the doctors can do to help?	0:19:53	0:19:58
-No.	0:20:00	0:20:02
-Do they know your spasms -get you down, do you think?	0:20:02	0:20:05
-Do you tell them?	0:20:06	0:20:08
-Sometimes I think, why me?	0:20:17	0:20:19
-It's so unfair -that it's happening to us.	0:20:20	0:20:23
-I used to wish for a cure, -but I've given up hope.	0:20:25	0:20:30
-If I could ask a god -what will happen...	0:20:30	0:20:33
-..I'd ask, "How bad will it get?"	0:20:33	0:20:36
-We don't know, they don't know, -the doctors don't know.	0:20:38	0:20:43
-But they're not stupid. -They know all about their condition.	0:20:43	0:20:48
-We haven't talked -about things like...	0:20:48	0:20:51
-We haven't talked about dying -and things like that.	0:20:53	0:20:57
-I don't think it's the right time -to talk about things like that.	0:20:57	0:21:02
-Since the filming...	0:21:02	0:21:04
-..I know the girls -have been saying things about it.	0:21:04	0:21:08
-They're worried about discussing it -in case it upsets me...	0:21:08	0:21:13
-..and I'm afraid of mentioning it -in case I upset them.	0:21:14	0:21:18
-I don't want to plant the seed -in their heads...	0:21:18	0:21:21
-..but it's already been planted.	0:21:21	0:21:24
-We haven't been upset about it.	0:21:24	0:21:26
-They've been great about it.	0:21:27	0:21:29
-That shocked me because that shows -how grown up they actually are.	0:21:29	0:21:34
-Hello, Kirst.	0:21:35	0:21:37
-Where are you going?	0:21:37	0:21:39
-Ysgol Gyfun Y Strade.	0:21:39	0:21:42
-A lot of kids -were frightened of us in school...	0:21:42	0:21:46
-..because they didn't understand why -we're in wheelchairs and can't talk.	0:21:46	0:21:51
-One day, we did a PowerPoint -presentation in assembly...	0:21:52	0:21:56
-..about our condition.	0:21:57	0:21:59
-Since then, -everyone is so much nicer to us...	0:21:59	0:22:02
-..and aren't afraid to say hello.	0:22:02	0:22:05
-We've learned from that -how important it is to talk.	0:22:05	0:22:09
-This was the inspiration -for this film.	0:22:10	0:22:13
-When I'm with the girls...	0:22:15	0:22:17
-..I just think they're incredible.	0:22:18	0:22:21
-They always think of others.	0:22:25	0:22:27
-They're so open and honest.	0:22:28	0:22:31
-They never complain.	0:22:31	0:22:34
-Perhaps Cath will cry.	0:22:34	0:22:36
-I must say, she cries often, -but there's nothing wrong with that.	0:22:36	0:22:41
-I just think they're lovely girls.	0:22:43	0:22:47
-I enjoy spending time with them.	0:22:48	0:22:50
-You just feel uplifted.	0:22:52	0:22:54
-You forget about whatever's going on -around you when you're with them.	0:22:54	0:22:59
-That's the way they make you feel.	0:23:01	0:23:04
-.	0:23:04	0:23:04
-Subtitles	0:23:09	0:23:09
-Subtitles - -Subtitles	0:23:09	0:23:11
-Today is Kirstie -and Catherine Fields' 18th birthday.	0:23:16	0:23:20
-For the first time in their lives, -they can make their own decisions.	0:23:21	0:23:25
-It's a bit scary, to be honest.	0:23:27	0:23:29
-Since we were small, people -have always made decisions for us...	0:23:30	0:23:34
-..especially since we lost -the ability to talk.	0:23:34	0:23:39
-Happy birthday, sweetheart.	0:23:41	0:23:43
-Hello, Tad-cu.	0:23:45	0:23:46
-Hello, Tad-cu. - -There's pretty you look.	0:23:46	0:23:48
-Are you enjoying today?	0:23:49	0:23:51
-Have a look what that is.	0:23:51	0:23:54
-Oh, my God, what is it?	0:23:54	0:23:56
-That wasn't my idea, -that was Mami's.	0:23:57	0:24:00
-Just in case, Cath. You've always -got to be prepared now.	0:24:01	0:24:05
-Do you know what it is, Kirst?	0:24:07	0:24:09
-I think it's important -the girls have made this film...	0:24:15	0:24:21
-..because they want others -to see them as people...	0:24:21	0:24:25
-..instead of their disability.	0:24:25	0:24:28
-If people took the time -to get to know them...	0:24:28	0:24:32
-..they would see -what loving, fun girls they are.	0:24:33	0:24:37
-Those who don't know them -are missing out.	0:24:37	0:24:40
-The people who know them well...	0:24:41	0:24:43
-..know that already.	0:24:44	0:24:47
-# Happy birthday to you	0:24:47	0:24:50
-# Happy birthday to you	0:24:51	0:24:54
-# Happy birthday -to Catherine and Kirstie	0:24:54	0:25:00
-# Happy birthday to you #	0:25:00	0:25:03
-Hip hip!	0:25:03	0:25:04
-Hip hip! - -Hooray!	0:25:04	0:25:06
-Hip hip!	0:25:06	0:25:07
-Hip hip! - -Hooray!	0:25:07	0:25:09
-I always wanted a tattoo...	0:25:12	0:25:15
-..but Mami wouldn't let me -until I was 18.	0:25:15	0:25:19
-The other day, I got one.	0:25:19	0:25:21
-I got one too because I didn't want -to be different to Kirstie.	0:25:21	0:25:26
-We both feel butterflies -help us forget our problems...	0:25:26	0:25:30
-..and relax, so that's what we got.	0:25:31	0:25:33
-Really, I don't feel that different -to when I was 17!	0:25:33	0:25:38
-I feel proud to be an adult...	0:25:38	0:25:40
-..and it's good to know -I can do what I want.	0:25:40	0:25:43
-For years, the family has wanted -to throw an enormous party...	0:25:52	0:25:57
-..to celebrate -the girls becoming adults.	0:25:57	0:26:00
-Tonight's the night.	0:26:00	0:26:02
-One, two, three.	0:26:03	0:26:05
-Whee! Hey!	0:26:07	0:26:09
-Heavens above!	0:26:19	0:26:21
-In the future, -the condition is going to get worse.	0:26:22	0:26:26
-I do worry about it -but I try not to think about it.	0:26:26	0:26:30
-Is it working?	0:26:32	0:26:35
-No matter how hard it gets, -we love life...	0:26:38	0:26:42
-..and we are determined -to live it to the full.	0:26:42	0:26:46
-We're getting on with our adult -life, whatever that may bring.	0:26:46	0:26:50
-We're off down to Parc Y Scarlets...	0:26:55	0:26:58
-..for a night on the beer, -as you do, like, isn't it?	0:26:58	0:27:01
-Good night!	0:27:02	0:27:03
-So what does the future -hold for you?	0:27:09	0:27:11
-What do you think?	0:27:12	0:27:14
-Do you think about the future?	0:27:14	0:27:16
-Carry on being happy.	0:27:20	0:27:23
-Good on you, Cath.	0:27:23	0:27:24
-What's your biggest hope -for the future?	0:27:24	0:27:27
-What do you want to do?	0:27:28	0:27:29
-I just think about my wedding.	0:27:30	0:27:32
-I just think about my wedding.	0:27:32	0:27:34
-You think about your wedding?	0:27:36	0:27:38
-Is it important -that you are able to grow up...	0:27:39	0:27:42
-..and have a relationship?	0:27:42	0:27:44
-Meet somebody -and take it from there?	0:27:45	0:27:48
-Do you think you'll be able to have -that independence with your Fields?	0:27:53	0:27:58
-No?	0:28:01	0:28:04
-I want to.	0:28:04	0:28:07
-Get married -and live with your husband?	0:28:07	0:28:11
-I want to stay here.	0:28:12	0:28:14
-You want to stay here...	0:28:15	0:28:17
-..living with Mam and Dad?	0:28:17	0:28:19
-You don't want to live on your own? -With carers? No?	0:28:19	0:28:23
-I thought you just said -you wanted to get married, though.	0:28:25	0:28:30
-You do? So you want to get married -and live here with Mam and Dad?	0:28:30	0:28:34
-Like The Waltons? OK.	0:28:34	0:28:37
-Why is that, Cath?	0:28:37	0:28:39
-I'm scared.	0:28:39	0:28:40
-I'm scared. - -You're scared, Cath?	0:28:40	0:28:42
-To move away from Mami and Dadi?	0:28:42	0:28:45
-I think most 18-year-olds -would feel the same, wouldn't they?	0:28:45	0:28:50
-The family has looked forward -to this evening for a long time.	0:29:01	0:29:05
-A grand celebration with a band...	0:29:06	0:29:08
-..the girls in their party dresses -with friends and family close by.	0:29:09	0:29:13
-It's going to be -the best celebration.	0:29:13	0:29:16
-I'm a bit nervous too.	0:29:16	0:29:19
-Turning 18 is cool.	0:29:21	0:29:23
-We made a card each -to thank Mami and Dadi.	0:29:24	0:29:27
-I wrote, 'Thanks for my party, -my presents and my cocktails.'	0:29:27	0:29:33
-I also thanked Dad -for giving Mami his sperm...	0:29:33	0:29:37
-..for making me -so lush and gorgeous!	0:29:37	0:29:40
-Happy birthday!	0:29:50	0:29:51
-Happy birthday! - -It was great to celebrate.	0:29:51	0:29:54
-At one point, -Hayley made us watch the big screen.	0:29:54	0:29:57
-There were messages for us -from all sorts of famous people...	0:29:57	0:30:01
-..including Harry Styles -from One Direction.	0:30:02	0:30:06
-Hi, Kirstie and Catherine. -We're One Direction.	0:30:07	0:30:10
-We cannot wait to meet you at one -of our concerts. See you there.	0:30:10	0:30:14
-My cousin was in bits.	0:30:15	0:30:16
-SHE SHRIEKS HYSTERICALLY	0:30:17	0:30:19
-# And I see your face	0:30:26	0:30:28
-# There's not a thing -that I would... #	0:30:29	0:30:32
-I think I will have a boyfriend -but it will be difficult.	0:30:32	0:30:36
-The kind of man I'm into -is tall, fit and a nice guy.	0:30:37	0:30:41
-And who knows...	0:30:41	0:30:44
-..one day -I might even get a bit of action!	0:30:45	0:30:48
-So you're lying in bed, thinking, -I can't do this no more.	0:30:51	0:30:54
-What makes you think -of smiling then?	0:30:54	0:30:58
-H...	0:30:58	0:31:01
-A...	0:31:01	0:31:02
-..R... R... Y...	0:31:03	0:31:08
-Harry.	0:31:10	0:31:12
-Harry Styles makes you smile?	0:31:13	0:31:15
-When we're talking -and I'm spending time with you...	0:31:16	0:31:19
-..you have all the same kind -of thoughts and feelings...	0:31:20	0:31:25
-..as anybody else who's nearly 18.	0:31:25	0:31:28
-Do you think that's true?	0:31:28	0:31:30
-So do you think about boys?	0:31:30	0:31:33
-SHE SQUEALS	0:31:33	0:31:35
-Do you think about sex -and things like that?	0:31:36	0:31:39
-No? Kirst, I know that's a lie.	0:31:41	0:31:44
-How can you sit there and say no?	0:31:44	0:31:46
-You are such a liar.	0:31:46	0:31:48
-You don't, Cath?	0:31:48	0:31:50
-You just want a relationship -based on friendship, do you? Yeah?	0:31:50	0:31:55
-What about you, Kirst?	0:31:56	0:31:59
-Be honest.	0:32:03	0:32:05
-Sex.	0:32:09	0:32:11
-You think about sex? Yeah.	0:32:11	0:32:14
-It's normal for 18-year-olds.	0:32:14	0:32:16
-That's the biggest thing -about being an adult.	0:32:16	0:32:19
-You can do things like that.	0:32:19	0:32:21
-Catherine's got her head -in her hands!	0:32:22	0:32:25
-Oh, the shame! -My sister's talking about sex!	0:32:25	0:32:28
-How do you feel, Kirst, -for you to have a relationship...	0:32:28	0:32:32
-..it'll be so much harder -and need a lot of understanding...	0:32:32	0:32:37
-..on yours -and the boy's part, really.	0:32:37	0:32:40
-What do you think about that?	0:32:43	0:32:45
-Do you think -it'll be worth all the hassle?	0:32:47	0:32:50
-Yeah.	0:32:53	0:32:55
-.	0:32:55	0:32:56
-Subtitles	0:33:01	0:33:01
-Subtitles - -Subtitles	0:33:01	0:33:03
-For Lyn and Chris Fields...	0:33:10	0:33:12
-..parenting twins has brought them -double the fun and the affection.	0:33:12	0:33:17
-But it has also meant -double the care and the anguish.	0:33:17	0:33:21
-People think we're brave -going through so much...	0:33:21	0:33:25
-..and trying to smile.	0:33:25	0:33:27
-I think Mami and Dadi -are the brave ones.	0:33:27	0:33:30
-It's very hard -watching them go through it...	0:33:33	0:33:36
-..but they support each other.	0:33:36	0:33:39
-If one of them was fit and the other -was disabled, it'd be harder...	0:33:39	0:33:45
-..because one would carry on with -her life and the other wouldn't.	0:33:45	0:33:50
-They've been brave throughout.	0:33:51	0:33:53
-It's difficult.	0:33:54	0:33:56
-They just take everything -in their stride.	0:33:56	0:33:59
-To begin with, how do you cope...	0:34:00	0:34:04
-..with not being able to walk?	0:34:05	0:34:08
-Catherine has told me...	0:34:08	0:34:10
-..that she'd love -to be able to walk again.	0:34:10	0:34:14
-She hates having to watch me -do everything.	0:34:15	0:34:18
-She wants to help me, -but she can't move from her chair.	0:34:19	0:34:23
-I have to help her with everything.	0:34:23	0:34:26
-How do you cope -with losing your speech?	0:34:26	0:34:30
-How do you cope with...?	0:34:30	0:34:33
-They're gradually losing -all their abilities.	0:34:33	0:34:39
-How do you cope with that?	0:34:39	0:34:41
-But they're coping with it.	0:34:41	0:34:43
-Why do you think Mami cries, Cath?	0:34:44	0:34:47
-She doesn't like what is happening.	0:34:49	0:34:52
-Mami cries because she doesn't like -what's happening... to you?	0:34:52	0:34:57
-And she wishes -she could make it better?	0:34:58	0:35:00
-UNINTELLIGIBLE MESSAGE	0:35:08	0:35:10
-I'll have to read this, will I?	0:35:12	0:35:15
-I didn't get much of that.	0:35:15	0:35:17
-Be happy and smile - -life's too short not to be happy.	0:35:21	0:35:26
-Is that your motto? Yeah?	0:35:26	0:35:30
-Is it hard -to be happy all the time, Kirst?	0:35:32	0:35:34
-Because you're always smiling.	0:35:36	0:35:39
-I think sometimes people might look -and think, they're fine.	0:35:41	0:35:46
-Life's OK for them -because they're always smiling.	0:35:46	0:35:49
-Is that just a mask?	0:35:50	0:35:52
-The discussion turned -to their recent deterioration...	0:35:52	0:35:56
-..and their feelings about death.	0:35:57	0:35:59
-They didn't want it filmed...	0:35:59	0:36:01
-..but wanted Hayley -to explain their feelings.	0:36:02	0:36:05
-We don't know for certain what -the future holds for the girls...	0:36:05	0:36:10
-..because they are the only ones -to have suffered with Fields.	0:36:10	0:36:14
-But we think that things -will deteriorate further for them.	0:36:14	0:36:20
-Their life expectancy may be short.	0:36:22	0:36:25
-The girls are fully aware of that.	0:36:29	0:36:31
-We've been very honest with them...	0:36:32	0:36:35
-..while I've been working with them.	0:36:36	0:36:39
-Especially with Catherine...	0:36:40	0:36:42
-..since I've been working -one-to-one with her.	0:36:42	0:36:46
-Cath mentioned...	0:36:46	0:36:48
-..that she's been -thinking a lot recently...	0:36:49	0:36:54
-..about the fact -she might die young.	0:36:54	0:36:58
-She worries -whether it'll be painful for her.	0:36:58	0:37:04
-She doesn't know what lies ahead.	0:37:04	0:37:06
-She has asked things like...	0:37:07	0:37:09
-.."Can I stay at home? -I don't want to go into hospital."	0:37:09	0:37:14
-And she asked -what would happen to Kirstie.	0:37:14	0:37:18
-It was difficult to answer.	0:37:18	0:37:21
-You just think...	0:37:21	0:37:24
-..she's thinking of herself -and Kirstie too.	0:37:27	0:37:31
-She said, "I don't want to be -the first to die...	0:37:31	0:37:34
-"..because -I don't want to leave Kirstie.	0:37:35	0:37:38
-"But then again, I don't want -Kirstie to die first either."	0:37:38	0:37:44
-That's very difficult to hear.	0:37:44	0:37:48
-I'm just pleased -she's able to talk about it...	0:37:51	0:37:54
-..and has the opportunity -to explain how she feels.	0:37:54	0:37:58
-But it's difficult.	0:38:02	0:38:05
-A charity has paid -for a family holiday to Disneyland.	0:38:21	0:38:25
-Cinderella is my favourite.	0:38:30	0:38:32
-I still watch the film now.	0:38:33	0:38:35
-It reminds me of when I was small -before I had Fields Condition.	0:38:35	0:38:40
-I've always liked Disney...	0:38:40	0:38:42
-..because there's always -a happy ending for the princesses.	0:38:42	0:38:47
-Don't feel sorry for us.	0:38:53	0:38:56
-No-one lives for ever.	0:38:56	0:38:58
-Heaven is special.	0:38:58	0:39:00
-I think when people go to heaven, -they are cured.	0:39:01	0:39:04
-It's like Disneyland.	0:39:04	0:39:07
-I believe in heaven -but I don't believe in God.	0:39:12	0:39:16
-Why would he -make our lives hell like this?	0:39:20	0:39:23
-People say we are brave.	0:39:30	0:39:32
-That's because -we've got a spirit for life.	0:39:32	0:39:35
-There are other people -worse off than us.	0:39:35	0:39:38
-I feel very proud of the girls...	0:40:00	0:40:04
-..because of everything -they've been through.	0:40:05	0:40:09
-They've been through -lots and lots of things...	0:40:09	0:40:15
-..but they just carry on regardless.	0:40:15	0:40:18
-They worry -about what other people think...	0:40:18	0:40:22
-..more than what they -actually think themselves.	0:40:22	0:40:26
-They worry more -about mine and Chris's feelings...	0:40:26	0:40:31
-..than they do about their own...	0:40:31	0:40:34
-..when it's them -who are actually going through it.	0:40:34	0:40:38
-Two years ago, -Catherine started having spasms.	0:40:41	0:40:47
-They took over her life.	0:40:48	0:40:51
-They only started for Kirstie -last year.	0:40:51	0:40:56
-Things don't happen to them -at the same time.	0:40:56	0:40:59
-One has it and then -the other has it a few months later.	0:40:59	0:41:03
-Catherine worries -more about Kirstie having them...	0:41:04	0:41:08
-..than she does about herself.	0:41:08	0:41:11
-That goes to show -how strong they both are.	0:41:11	0:41:15
-Everybody feels sorry for them...	0:41:15	0:41:18
-..because of everything -that's happening to them...	0:41:18	0:41:22
-..but they don't like that bit.	0:41:22	0:41:25
-They like people to see them -for who they are...	0:41:25	0:41:28
-..rather than feeling sorry -for them.	0:41:28	0:41:31
-They just want people -to be happy for them.	0:41:33	0:41:37
-Having lost the ability to speak...	0:41:37	0:41:39
-..the speech aids have given -the girls a new lease of life.	0:41:40	0:41:44
-But as their bodies weaken...	0:41:44	0:41:46
-..the fear is they will no longer -have the strength to use them.	0:41:46	0:41:51
-Then the girls will lose -the ability to communicate for ever.	0:41:51	0:41:55
-O-K. OK.	0:41:55	0:41:59
-Do you worry about your sister, -Cath? Do you?	0:42:02	0:42:06
-Do you worry about Catherine, Kirst?	0:42:06	0:42:09
-Yeah?	0:42:10	0:42:12
-Is it hard -to see each other go through it?	0:42:12	0:42:15
-I love you.	0:42:19	0:42:22
-Aw, Kirst!	0:42:22	0:42:25
-Is it nice to use your voice -now and again when you can?	0:42:35	0:42:39
-We talk with our eyes.	0:42:43	0:42:45
-We talk...	0:42:46	0:42:48
-..through your eyes.	0:42:48	0:42:50
-To each other?	0:42:51	0:42:53
-You know what each other's thinking -by looking at each other's eyes?	0:42:53	0:42:58
-Can you understand when Catherine's -sad even if she doesn't say?	0:42:58	0:43:02
-Can you understand when she's upset? -Can she understand you?	0:43:03	0:43:08
-How do you think Cath's doing today? -Is she alright?	0:43:08	0:43:12
-Is she happy?	0:43:14	0:43:17
-Are you upset?	0:43:22	0:43:24
-No? Is it a spasm?	0:43:24	0:43:27
-Are you alright? Are you sure?	0:43:28	0:43:31
-I know it's hard but keep smiling.	0:43:39	0:43:41
-I know it's hard but keep smiling.	0:43:41	0:43:45
-Don't feel sorry for us.	0:44:04	0:44:06
-Life is too short -to spend time feeling blue.	0:44:06	0:44:09
-Have some fun. -Do something crazy once in a while.	0:44:09	0:44:14
-Laugh. Love. Live.	0:44:14	0:44:16
-And always wear a smile.	0:44:16	0:44:19
-S4C Subtitles by Adnod Cyf.	0:44:54	0:44:56
-.	0:44:57	0:44:57

Fy Chwaer a Fi O'r Galon

Similar Content

Factual

Cyfres 1

O'r Galon

Adar Brith

Transcript

Download Subtitles

SRT

ASS