Trystan O'r Galon
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Transcript
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|---|---|---|---|
-Subtitles | 0:00:00 | 0:00:00 | |
-Subtitles - -Subtitles | 0:00:00 | 0:00:02 | |
-The Welsh family is changing. | 0:00:02 | 0:00:04 | |
-Over the past 50 years... | 0:00:05 | 0:00:07 | |
-..the traditional model -of Mam, Dad and 2.4 chilren... | 0:00:07 | 0:00:11 | |
-..has been replaced by -a far more contemporary family unit. | 0:00:11 | 0:00:16 | |
-One which is more complex -and colourful than ever before. | 0:00:16 | 0:00:20 | |
-These are the stories -of some modern Welsh families. | 0:00:21 | 0:00:25 | |
-There are over 11,000 adults -with learning disabilities in Wales. | 0:00:35 | 0:00:39 | |
-Hiya, Tryst! | 0:00:40 | 0:00:41 | |
-Hiya, Tryst! - -Hiya! | 0:00:41 | 0:00:42 | |
-More than half of those -live with their parents... | 0:00:43 | 0:00:46 | |
-..and rely on their families -to care for them. | 0:00:48 | 0:00:51 | |
-Trystan is 28 and he lives -in the Gwendraeth Valley. | 0:00:56 | 0:00:59 | |
-Good boy. | 0:01:00 | 0:01:01 | |
-What have you got there? | 0:01:01 | 0:01:03 | |
-Trystan is happy. | 0:01:05 | 0:01:06 | |
-He's pretty lively too. | 0:01:08 | 0:01:09 | |
-He's a real character. | 0:01:12 | 0:01:13 | |
-What are you having for breakfast? | 0:01:14 | 0:01:16 | |
-Monsters Inc. | 0:01:17 | 0:01:18 | |
-You're having Monsters Inc -for breakfast? | 0:01:18 | 0:01:21 | |
-Life is odd. | 0:01:22 | 0:01:24 | |
-This is going to make -a lot of noise, Trystan. | 0:01:24 | 0:01:27 | |
-We do a lot of the things we do -to make life easier for Trystan. | 0:01:28 | 0:01:33 | |
-Very good, Trystan. | 0:01:34 | 0:01:36 | |
-If Trystan's happy, -we can then relax... | 0:01:36 | 0:01:40 | |
-..and our lives are easier. | 0:01:41 | 0:01:43 | |
-Everything falls into place -much better. | 0:01:43 | 0:01:46 | |
-Since Trystan was a little baby... | 0:01:48 | 0:01:50 | |
-..Marie, his mother, -has taken care of him at home. | 0:01:50 | 0:01:54 | |
-Are you ready for more tablets? | 0:01:54 | 0:01:56 | |
-She provides very specialized care. | 0:01:57 | 0:01:59 | |
-Trystan has tuberous sclerosis. | 0:02:01 | 0:02:04 | |
-It's a condition which causes -tumours to develop on the brain... | 0:02:05 | 0:02:10 | |
-..which then cause epilepsy, -autism and learning difficulties. | 0:02:10 | 0:02:15 | |
-Trystan was eight months old when -he was diagnosed with the condition. | 0:02:19 | 0:02:24 | |
-I remember it like it was yesterday. | 0:02:25 | 0:02:27 | |
-You never forget days which change -the course of your life completely. | 0:02:28 | 0:02:33 | |
-I'd never heard of the condition. | 0:02:35 | 0:02:38 | |
-Trystan is 28 now, -so it happened 27 years ago. | 0:02:43 | 0:02:46 | |
-The doctor wrote the name of -the condition on a piece of paper... | 0:02:46 | 0:02:51 | |
-..and handed it to us. | 0:02:51 | 0:02:53 | |
-He then told us -to take our son home... | 0:02:53 | 0:02:55 | |
-..because we didn't know -how long we'd have him. | 0:02:56 | 0:02:59 | |
-That was a massive blow. | 0:02:59 | 0:03:01 | |
-I only asked the doctor who gave us -the diagnosis one question. | 0:03:04 | 0:03:09 | |
-I asked him if Trystan -would be mentally impaired. | 0:03:12 | 0:03:16 | |
-"Yes - probably" was his reply. | 0:03:16 | 0:03:18 | |
-I couldn't ask any more questions. | 0:03:18 | 0:03:21 | |
-There is no cure -for tuberous sclerosis... | 0:03:34 | 0:03:37 | |
-..but a cocktail of medicines -help treat Trystan's symptoms. | 0:03:37 | 0:03:41 | |
-He takes nine different drugs -every morning... | 0:03:41 | 0:03:45 | |
-..and seven different medicines -at night. | 0:03:45 | 0:03:48 | |
-We spread them out. | 0:03:49 | 0:03:50 | |
-We don't give them -all at once to him. | 0:03:51 | 0:03:53 | |
-Here comes another one. | 0:03:54 | 0:03:55 | |
-Well done. | 0:03:57 | 0:03:58 | |
-Alright? | 0:03:59 | 0:04:00 | |
-Alright? - -Yes. | 0:04:00 | 0:04:02 | |
-This is a month's supply -of Trystan's medication. | 0:04:06 | 0:04:09 | |
-This is -Trystan's repeat prescription. | 0:04:12 | 0:04:15 | |
-These are -Trystan's medication charts. | 0:04:19 | 0:04:22 | |
-Every time we give him something, -we mark it off here. | 0:04:22 | 0:04:27 | |
-We also note his seizures here. | 0:04:27 | 0:04:29 | |
-Among all these, -one drug is particularly effective. | 0:04:32 | 0:04:36 | |
-This drug -changed everything for Trystan. | 0:04:36 | 0:04:40 | |
-We think it slowed the growth rate -of the tumour he has on his kidney. | 0:04:42 | 0:04:48 | |
-OK, Trystan? | 0:04:48 | 0:04:50 | |
-Yes. | 0:04:50 | 0:04:51 | |
-Tumours can develop -in any part of the body... | 0:04:52 | 0:04:55 | |
-..of someone -who has tuberous sclerosis. | 0:04:55 | 0:04:58 | |
-Trystan's largest tumour -is on his kidney. | 0:04:58 | 0:05:01 | |
-The tumour -is the size of two house bricks. | 0:05:05 | 0:05:10 | |
-If the tumour -should suddenly start to bleed... | 0:05:12 | 0:05:15 | |
-..it would be an emergency. | 0:05:16 | 0:05:18 | |
-Should that ever happen... | 0:05:18 | 0:05:20 | |
-..I hope we'd be in a situation -where we could help him. | 0:05:21 | 0:05:25 | |
-The health authority -refuses to pay for the drug... | 0:05:28 | 0:05:32 | |
-..but the manufacturer has agreed -to give it to him, free of charge. | 0:05:34 | 0:05:39 | |
-They're under no obligation -to continue with this arrangement. | 0:05:40 | 0:05:45 | |
-This drug isn't cheap. | 0:05:45 | 0:05:48 | |
-It costs up to 30,000 per year. | 0:05:50 | 0:05:54 | |
-If the company decided to stop -providing this free of charge... | 0:05:56 | 0:06:02 | |
-..his life would be at risk. | 0:06:03 | 0:06:05 | |
-Trystan loves music. | 0:06:15 | 0:06:16 | |
-Joe, Trystan's music therapist... | 0:06:23 | 0:06:25 | |
-..has built a tower of percussion -instruments for him in the garden. | 0:06:26 | 0:06:31 | |
-Do you want to put a jacket on -before you go outside? | 0:06:32 | 0:06:36 | |
-Trystan is autistic... | 0:06:43 | 0:06:45 | |
-..and he struggles to deal with -the tiniest of changes to his world. | 0:06:45 | 0:06:51 | |
-What's making that noise? | 0:06:51 | 0:06:53 | |
-Building work is being carried out -in the front garden... | 0:06:54 | 0:06:58 | |
-..and Trystan's behaviour -soon begins to change. | 0:06:58 | 0:07:02 | |
-Oh, dear. | 0:07:06 | 0:07:08 | |
-Sit! | 0:07:08 | 0:07:10 | |
-Favouritism. Not hard. | 0:07:12 | 0:07:13 | |
-I don't think we're going to be -happy to do this today. | 0:07:13 | 0:07:17 | |
-Sorry. | 0:07:22 | 0:07:23 | |
-Oh, you're shocking! | 0:07:24 | 0:07:26 | |
-What happened there was Trystan -wasn't happy to be outside... | 0:07:28 | 0:07:32 | |
-..because of the noise at the front -as they work on the walls. | 0:07:32 | 0:07:37 | |
-That broke Trystan's concentration. | 0:07:37 | 0:07:39 | |
-That was enough? | 0:07:40 | 0:07:41 | |
-Yes. | 0:07:41 | 0:07:43 | |
-I've often said over the years... | 0:07:45 | 0:07:47 | |
-..that I wish I could see the world -through Trystan's eyes... | 0:07:47 | 0:07:52 | |
-..just for five minutes. | 0:07:52 | 0:07:54 | |
-It would answer so many questions. | 0:07:54 | 0:07:56 | |
-It would take the guesswork -out of our efforts... | 0:07:57 | 0:08:00 | |
-..to create a world around Trystan -which would make things easier. | 0:08:00 | 0:08:05 | |
-If only we could see the world -through his eyes. | 0:08:08 | 0:08:11 | |
-Hello. | 0:08:13 | 0:08:15 | |
-You love it there, don't you? | 0:08:17 | 0:08:18 | |
-You love it there, don't you? - -Yes. | 0:08:18 | 0:08:20 | |
-Are you coming in the car with me? | 0:08:20 | 0:08:22 | |
-Are you coming in the car with me? - -Yes. | 0:08:22 | 0:08:23 | |
-Mag, Trystan's grandmother, -is taking him out for the day. | 0:08:25 | 0:08:29 | |
-Mam and Trystan -have a special relationship. | 0:08:31 | 0:08:34 | |
-She understands him. | 0:08:34 | 0:08:36 | |
-He says I'm one of his best friends. | 0:08:41 | 0:08:43 | |
-Say goodbye to Dadi. | 0:08:44 | 0:08:46 | |
-Goodbye, Dadi. | 0:08:46 | 0:08:47 | |
-Off we go then. | 0:08:51 | 0:08:52 | |
-Did you see that big lorry? | 0:08:54 | 0:08:55 | |
-At times, he retreats -into his own little world. | 0:08:56 | 0:09:00 | |
-To pull him out of there, I do -something to draw his attention... | 0:09:02 | 0:09:06 | |
-..to give him a focus. | 0:09:07 | 0:09:08 | |
-Whee! | 0:09:08 | 0:09:10 | |
-I don't drive fast on purpose -but we have fun with it sometimes. | 0:09:11 | 0:09:15 | |
-Is this like a Ferrari? | 0:09:17 | 0:09:18 | |
-Is this like a Ferrari? - -Yes. | 0:09:18 | 0:09:20 | |
-Don't tell anyone! | 0:09:20 | 0:09:22 | |
-Suddenly, he's taking an interest -in his surroundings again. | 0:09:22 | 0:09:27 | |
-You're laughing, aren't you? | 0:09:28 | 0:09:29 | |
-You're laughing, aren't you? - -Yes. | 0:09:29 | 0:09:31 | |
-You've got to smile and have fun -or it's no good. | 0:09:31 | 0:09:35 | |
-It's no good looking like -you don't want to be alive. | 0:09:35 | 0:09:39 | |
-Whee! | 0:09:40 | 0:09:41 | |
-. | 0:09:42 | 0:09:43 | |
-Subtitles | 0:09:46 | 0:09:46 | |
-Subtitles - -Subtitles | 0:09:46 | 0:09:48 | |
-There's no such thing as -an early night in Trystan's house. | 0:09:51 | 0:09:55 | |
-He went to bed -at three o'clock this morning. | 0:09:56 | 0:09:59 | |
-During the time he was in bed... | 0:10:00 | 0:10:02 | |
-..he got up once or twice -to go to the bathroom. | 0:10:02 | 0:10:06 | |
-That was just an excuse from him... | 0:10:06 | 0:10:08 | |
-..to try to extend -the time he was awake. | 0:10:08 | 0:10:11 | |
-Trystan has a very good reason -for trying to avoid going to bed. | 0:10:14 | 0:10:18 | |
-He has epileptic fits in his sleep. | 0:10:19 | 0:10:23 | |
-Trystan went to bed -around three o'clock this morning. | 0:10:24 | 0:10:28 | |
-He then had a seizure -at 4.30 this morning. | 0:10:28 | 0:10:31 | |
-He needed some medication. | 0:10:33 | 0:10:35 | |
-It's really important -that the drugs are nearby... | 0:10:37 | 0:10:40 | |
-..all day and all night. | 0:10:41 | 0:10:43 | |
-They're there in case we need them. | 0:10:43 | 0:10:46 | |
-We've got to stay awake with him -to make sure his body's functioning. | 0:10:49 | 0:10:54 | |
-We make sure he keeps breathing. | 0:10:55 | 0:10:57 | |
-This can kill people. | 0:10:58 | 0:11:00 | |
-Good morning. | 0:11:01 | 0:11:03 | |
-Good morning, sweetheart. | 0:11:05 | 0:11:08 | |
-We don't do mornings. | 0:11:08 | 0:11:10 | |
-Trystan's day starts -in the afternoon and so does ours. | 0:11:10 | 0:11:14 | |
-Up straightaway? | 0:11:15 | 0:11:16 | |
-Up straightaway? - -Yes. | 0:11:16 | 0:11:18 | |
-Trystan gets up -on what's going to be a busy day. | 0:11:20 | 0:11:24 | |
-Tonight, we're taking Trystan -to be measured for a wedding suit. | 0:11:25 | 0:11:30 | |
-Trystan's cousin -is getting married in a few weeks... | 0:11:32 | 0:11:36 | |
-..and Marie asked the clothes shop -to stay open late for him. | 0:11:37 | 0:11:41 | |
-If things go to plan and there's -no-one there to distract him... | 0:11:42 | 0:11:47 | |
-..it'll be fine. | 0:11:47 | 0:11:48 | |
-Right. We're ready to go. | 0:11:49 | 0:11:51 | |
-We'll take the games -and the iPad with us. | 0:11:52 | 0:11:55 | |
-They help Trystan -concentrate on things he likes... | 0:11:55 | 0:11:59 | |
-..and hopefully take less notice -of what's going on around him... | 0:11:59 | 0:12:04 | |
-..when he isn't happy. | 0:12:05 | 0:12:07 | |
-Off we go. | 0:12:07 | 0:12:09 | |
-We try to stay one step ahead -of Trystan at all times. | 0:12:11 | 0:12:15 | |
-Of course, there's no consistency -when it comes to his behaviour. | 0:12:15 | 0:12:21 | |
-We expect the unexpected. | 0:12:21 | 0:12:23 | |
-Life would be a bit easier -if we knew what to expect. | 0:12:24 | 0:12:28 | |
-The first thing I do -when I walk into any building... | 0:12:31 | 0:12:35 | |
-..is to look around very quickly -and carry out a risk assessment. | 0:12:36 | 0:12:41 | |
-Hello! How are you? | 0:12:41 | 0:12:42 | |
-Hello! How are you? - -Are you alright? | 0:12:42 | 0:12:44 | |
-Say hello. | 0:12:44 | 0:12:46 | |
-You're going to shake hands, -are you? Good boy. | 0:12:46 | 0:12:49 | |
-I work out how I could get Trystan -out of the situation safely. | 0:12:50 | 0:12:54 | |
-We'll do these cuffs up. | 0:12:56 | 0:12:59 | |
-Trystan, you look smart. | 0:13:00 | 0:13:03 | |
-Does Dadi look smart, Trystan? | 0:13:04 | 0:13:07 | |
-Marie takes every opportunity... | 0:13:11 | 0:13:13 | |
-..to help Trystan understand -what's happening around him. | 0:13:14 | 0:13:18 | |
-We'll show these photos -to Trystan... | 0:13:18 | 0:13:21 | |
-..to remind him -what he'll wear on the day. | 0:13:22 | 0:13:25 | |
-It will help him -build memories of tonight... | 0:13:25 | 0:13:28 | |
-..and help him understand -what's happening on the day. | 0:13:28 | 0:13:32 | |
-Don't slip away. | 0:13:36 | 0:13:38 | |
-Don't slip away. - -Alright. OK. | 0:13:38 | 0:13:39 | |
-By the time he's dressed again, -Trystan has become uneasy. | 0:13:39 | 0:13:44 | |
-I'll get your jacket. | 0:13:44 | 0:13:45 | |
-Let's get your jacket on. | 0:13:49 | 0:13:51 | |
-It's time to leave. | 0:13:57 | 0:13:59 | |
-The journey home calms Trystan... | 0:14:01 | 0:14:04 | |
-..especially at this time of year. | 0:14:07 | 0:14:09 | |
-Oh, look at those Christmas lights. | 0:14:09 | 0:14:12 | |
-Aren't they pretty? | 0:14:12 | 0:14:14 | |
-# O holy child of Bethlehem | 0:14:18 | 0:14:23 | |
-# Descend to us, we pray | 0:14:24 | 0:14:30 | |
-# Cast out our sin and enter in | 0:14:31 | 0:14:36 | |
-# Be born in us today # | 0:14:38 | 0:14:44 | |
-Trystan can't tell the time -but he loves clocks. | 0:14:55 | 0:14:58 | |
-He's got hundreds, -but some don't have a battery! | 0:15:03 | 0:15:06 | |
-It's easy to buy Trystan -a present he'll love. | 0:15:09 | 0:15:12 | |
-What is it? | 0:15:13 | 0:15:16 | |
-What is it? - -A clock. | 0:15:16 | 0:15:17 | |
-Do you like it? | 0:15:18 | 0:15:19 | |
-Do you like it? - -Yes. | 0:15:19 | 0:15:21 | |
-When we go into any shop, -we must avoid watches and clocks. | 0:15:22 | 0:15:27 | |
-That's the first thing he sees... | 0:15:30 | 0:15:33 | |
-..and he'll want one or two, -three or four. | 0:15:33 | 0:15:36 | |
-He's got a really clever knack -of holding a clock... | 0:15:37 | 0:15:43 | |
-..and tucking it under his arm. | 0:15:43 | 0:15:46 | |
-Do you like your new clock? | 0:15:47 | 0:15:48 | |
-Yes. | 0:15:49 | 0:15:50 | |
-It's important -that Trystan's content tonight... | 0:15:51 | 0:15:54 | |
-..because Marie is driving -to Cardiff for an important meeting. | 0:15:55 | 0:15:59 | |
-A terrible strain -is being placed on us... | 0:16:00 | 0:16:03 | |
-..because the services aren't doing -what they should be doing. | 0:16:03 | 0:16:07 | |
-Six months ago, a petition was -presented to the Welsh Government... | 0:16:10 | 0:16:15 | |
-..calling for a change in the rules -to allow funding of drugs... | 0:16:15 | 0:16:20 | |
-..like the one that slows the growth -of the tumour on Trystan's kidney. | 0:16:20 | 0:16:25 | |
-This is the reply we received. | 0:16:26 | 0:16:29 | |
-It doesn't say much and it doesn't -deal with the concerns we raised. | 0:16:30 | 0:16:35 | |
-It's what I expected to see. | 0:16:37 | 0:16:39 | |
-It doesn't give us any answers. | 0:16:39 | 0:16:42 | |
-I'm disappointed. | 0:16:43 | 0:16:44 | |
-Marie will meet a representative -of Genetic Alliance UK... | 0:16:45 | 0:16:49 | |
-..one of the charities -which presented the petition... | 0:16:50 | 0:16:54 | |
-..to discuss a way forward. | 0:16:54 | 0:16:56 | |
-About the letter we've had. | 0:16:56 | 0:16:58 | |
-I was rather disappointed, Emma. | 0:16:58 | 0:17:00 | |
-I was rather disappointed, Emma. - -Yes, I know. | 0:17:00 | 0:17:02 | |
-We are planning -to respond to the letter. | 0:17:02 | 0:17:05 | |
-Have you got anything -you want to ask? | 0:17:05 | 0:17:08 | |
-It seems to be so unfair. | 0:17:08 | 0:17:11 | |
-His health is quite fragile. | 0:17:11 | 0:17:14 | |
-Having access -to these emerging treatments... | 0:17:14 | 0:17:17 | |
-..could make the difference -between whether he's with us or not. | 0:17:17 | 0:17:22 | |
-We need to do is keep campaigning. | 0:17:22 | 0:17:24 | |
-In the meantime, it's another wait -for patients like Trystan. | 0:17:25 | 0:17:29 | |
-It is, yes. | 0:17:29 | 0:17:30 | |
-I still falter at times... | 0:17:39 | 0:17:41 | |
-..when I think about -how different Trystan's life is... | 0:17:42 | 0:17:46 | |
-..from what it should be. | 0:17:48 | 0:17:50 | |
-Let's have some spikes today. | 0:18:03 | 0:18:06 | |
-It's the morning of the wedding. | 0:18:06 | 0:18:08 | |
-Everyone in Trystan's house -is primping... | 0:18:09 | 0:18:12 | |
-..and preparing. | 0:18:12 | 0:18:14 | |
-Luckily, he had no seizures last -night and he was asleep by 3.30. | 0:18:15 | 0:18:20 | |
-He woke up at 11 this morning. | 0:18:21 | 0:18:23 | |
-The day got off to a good start. | 0:18:24 | 0:18:27 | |
-Come on then, good boy. | 0:18:27 | 0:18:29 | |
-Well done. | 0:18:29 | 0:18:31 | |
-There's one pace -and it's called Trystan's pace. | 0:18:31 | 0:18:34 | |
-Are we ready, Trystan? | 0:18:37 | 0:18:39 | |
-We're going for a spin. | 0:18:40 | 0:18:41 | |
-Because of his autism, today could -be a huge challenge for Trystan. | 0:18:42 | 0:18:47 | |
-It depends -how many people are around. | 0:18:47 | 0:18:50 | |
-We've yet to decide -whether or not we'll go in. | 0:18:51 | 0:18:54 | |
-Something's troubling him already. | 0:18:55 | 0:18:58 | |
-I've got a nasty cut from Star Trek. | 0:18:59 | 0:19:02 | |
-It's a nasty one. | 0:19:05 | 0:19:06 | |
-He'll draw attention -to anything he can now... | 0:19:08 | 0:19:11 | |
-..because he's not sure -what's going on. | 0:19:11 | 0:19:14 | |
-He feels insecure. | 0:19:16 | 0:19:18 | |
-Come on now. | 0:19:19 | 0:19:21 | |
-Everything's alright, sweetheart. | 0:19:21 | 0:19:24 | |
-We always prepare for the worst -but we hope for the best. | 0:19:33 | 0:19:38 | |
-I'm hurt. | 0:19:40 | 0:19:42 | |
-Yes, you've hurt yourself -but everything's alright. | 0:19:42 | 0:19:46 | |
-Come on now. | 0:19:46 | 0:19:48 | |
-The situation -becomes too much for Trystan. | 0:19:48 | 0:19:51 | |
-Trystan hears things -far more acutely than us. | 0:19:57 | 0:20:01 | |
-He also sees things -far more clearly than us. | 0:20:04 | 0:20:07 | |
-The only way Trystan can tell us -there's something wrong... | 0:20:08 | 0:20:12 | |
-..is in the way -he reacts to a situation. | 0:20:13 | 0:20:16 | |
-Through his behaviour. | 0:20:16 | 0:20:18 | |
-Are you OK now? | 0:20:24 | 0:20:25 | |
-Yes. | 0:20:25 | 0:20:27 | |
-What upset him? | 0:20:29 | 0:20:30 | |
-I think it was too many people -moving around near the table. | 0:20:31 | 0:20:35 | |
-I'm giving him -some diesel therapy... | 0:20:36 | 0:20:39 | |
-..then we'll go back -to have another go. | 0:20:39 | 0:20:42 | |
-We're not giving up that easily. | 0:20:43 | 0:20:45 | |
-MUSIC | 0:20:48 | 0:20:50 | |
-OK? Hold my hand. | 0:20:53 | 0:20:55 | |
-Good boy. | 0:20:55 | 0:20:56 | |
-This time, Marie and Perry -lead Trystan to the back room... | 0:20:58 | 0:21:02 | |
-..away from the noise. | 0:21:03 | 0:21:05 | |
-It would be nice -if we could stay, Trystan. | 0:21:09 | 0:21:12 | |
-Then... | 0:21:20 | 0:21:21 | |
-..something magical happens. | 0:21:22 | 0:21:24 | |
-This is Jacob. | 0:21:27 | 0:21:28 | |
-Look what he's got - a giraffe. | 0:21:31 | 0:21:33 | |
-It's amazing -how Trystan likes responsibility. | 0:21:40 | 0:21:44 | |
-Put a baby next to Trystan and he'll -care for it with great tenderness. | 0:21:46 | 0:21:50 | |
-He's really proud of himself -when he looks after these babies. | 0:21:51 | 0:21:56 | |
-As Trystan relaxes, -the evening starts afresh. | 0:22:08 | 0:22:12 | |
-Look! | 0:22:15 | 0:22:17 | |
-Life isn't about -waiting for the storm to pass. | 0:22:30 | 0:22:34 | |
-It's about learning to dance -in the rain. | 0:22:35 | 0:22:38 | |
-The battle -to secure free medication... | 0:22:42 | 0:22:46 | |
-..for those suffering from -rare conditions in Wales continues. | 0:22:47 | 0:22:52 | |
-I'm hopeful -that things will turn around. | 0:22:53 | 0:22:58 | |
-This family never gives up. | 0:22:58 | 0:23:00 | |
-S4C subtitles by Adnod Cyf | 0:23:17 | 0:23:20 | |
-. | 0:23:20 | 0:23:20 |